Pinned Thread About How to Lower Recurrence after Chemo

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  • Claire82
    Claire82 Member Posts: 684
    edited January 2011

    The usual associated restrictions - whole grain, fruit, wild salmon or tuna once or at most twice per week, organic blueberries

    are you saying not to eat these?

  • ChrissyMH
    ChrissyMH Member Posts: 64
    edited January 2011

     I'm (actually Dr. Block and others from the research) saying YES - eat these.  Apparently these are particularly well known anticancer foods.

  • MBJ
    MBJ Member Posts: 4,352
    edited January 2011

    Hi Everyone! I recognize some of you from the calling all TN's site and I have just read through all of your posts.  Needed another place to post about eating healthy and related things to TN.   I have been off and on (off during the holidays back on now that they are over) doing the Dr. Perricone diet which happens to be all high antioxidant, low fat, high Omega 3's and high in anti cancer nutrients.  Anyone else doing this?  Also, I take 8,000 mg of Vit D3/K1 and I am still only in the mid 40's when recently tested.   I do juice but I also added JuicePlus to my diet to mae sure I get enough vegis and fruits. 

  • kittycat
    kittycat Member Posts: 2,144
    edited January 2011

    This thread is great.  Thank you all for sharing the information.  Since I am ending rads next week, I'm starting to think about how to keep this cancer at bay.  I don't need to get dx another time.  Twice is enough!!!

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited January 2011

    Ladies I have started drinking more lemon water w/ the thought of making my body more alkaline...give it a thought.

  • MBJ
    MBJ Member Posts: 4,352
    edited January 2011

    Fighter:  I have been doing this by dr's orders!  It is great for the lymphatic system, too.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2011

    Is anyone taking Metformin?  There is a clinical trial in Canada using metformin instead of anti-hormones.  TN's are being included in the trial as well as those who might otherwise qualify for anti-hormones.  I am only 8% ER+ and while I am taking Femara, I have a lot more confidence in the 2000 mg of Metformin I take for my Type 2 diabetes.  It's cheap (on the $4 list at WalMart), it will help you lose weight if you need to, and it reduces insulin resistance.  Circulating insulin has been implicated in feeding breast cancer cells, particularly in postmenopausal women. 

    http://clinicaltrials.gov/ct2/show/NCT01101438?recr=Open&cond=%22Metformin%22&lup_s=07%2F04%2F2010&lup_d=30

    http://www.sciencedaily.com/releases/2009/01/090109173207.htm

    Ask your doctor to test your fasting glucose or insulin level.  If there is any indication of insulin resistance (fasting glucose over 100 or higher than normal insulin level) request that you be put on metformin hydrochloride.  Start out with a low dose (500 mg) then build up to 2000 mg (1000 mg twice a day).  It can cause a bit of gastro-intestinal distress for a couple of weeks when you first start, which is why you start slowly.  After a month, you should be able to tolerate the full dose without any problems.  You'll be doing the same thing as the clinical trial, without the risk of getting a placebo and without worrying about the clinical trial qualifications.  (Example, you cannot be part of the trial if you are already diabetic).  And you'll learn whether or not you are pre-diabetic or actually have diabetes and can start to make the right life-style changes (diet and exercise) to prevent complications down the road.  Clinical studies have proven that diabetics with breast cancer have poorer outcomes than those who do not have diabetes.

    I discussed this with my oncologist who was not aware of the clinical studies and he was intrigued.  I hope he checked it out as I think this is a very promising approach to prevent recurrences, especially in TN's for whom anti-hormone therapy is ineffective. 

    Michelle

  • MBJ
    MBJ Member Posts: 4,352
    edited January 2011

    Michelle:  I have a friend who is diabetic and Stage IV--I forwarded it to her.  Thanks for the link!

  • Babs37
    Babs37 Member Posts: 455
    edited January 2011

    LuvRVing:I'm from Quebec and I will be participating in that trial for metformin for the next 5 years, after I'm done with  chemo and surgery. I just hope I get the real stuff and not the placebo!

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited January 2011

    MBJ--GREAT Doctor!!!!! 

  • EricaH
    EricaH Member Posts: 41
    edited March 2011

    bump bump bump!!!

  • Meggy
    Meggy Member Posts: 530
    edited March 2011

    metformin!!!!!!!!!!   wow I am going to look at my levels.  Thank you for this info. 

    Lets all keep bumping this thread up.  We need it so badly.  Does anyone know how to get it pinned  so it will stay at the top for tiple negatives?!!!!!!!!!!!!!!!!!!!!!!!!!  

  • Suze35
    Suze35 Member Posts: 1,045
    edited March 2011

    Meggy - not a doctor, lol, but I think there is a link between TN and blood sugars/insulin. It would make sense given diet and exercise seems to have a true impact on recurrence. I am slowly modifying my diet to be more "diabetic" friendly, 5-6 small healthy carb meals a day, and plan on getting my exercise in regular intervals, such as twice a day for 30 minutes, or 3 times a day for twenty, etc. I have never had blood sugar issues, but I am going to try and keep them level throughout the day. I don't know why, but this just instinctively makes sense for me. I may not prevent this crap from coming back, but I'm giving it my all!

  • Babs37
    Babs37 Member Posts: 455
    edited March 2011

    meggy- I will be participating in a study about Metformin. If everything is ok and I'm excepted in the study, I should start at the beginning of april. The problem with a study is that you are never sure you are getting the real stuff and not a placebo. But got no choice and I got nothing to loose. It is supposed to "maybe" lower the chances of reccurance. So I hope that I will get the real Metformin!

  • swinsatt
    swinsatt Member Posts: 5
    edited March 2011

    I am newly registered and an eight year triple negative survivor with no reoccurance. I have been racking my brain wondering why not. I have not had any genetic tests done but am considering that..but in the meantime  I  decided to list some of the things that I am doing to see if they might benefit someone.

    I don't take any supplements but if you are go for it.  I do my best to eat a balanced diet and get my nutrients that way.

     I do not eat processed foods. I don't even own a microwave. Everything is cooked from scratch or raw. Everything is as natural or organic as possible.

    No red meat. No hamburgers, no steak.Lots of fish!

    No sugar. Maybe once a month I break down and eat a cookie or a donut or something but that's about it. I am pre-diabetic fyi.

    No dairy. Calcium comes from grreens and other sources.I am lactose intolerant.

    Everything in the house is either low fat or no fat. I do however use olive oil and 'Smart Balance' type spreads.

    You should also know that I only eat about one or two meals a day. I only eat when I am hungry and I stop when I am full. Sometimes I'm not hungry in the morning and eat no breakfast. I'm fine doing it that way. I keep my sugar levels stable by drinking diluted low acid OJ. It tasted like flavored water.

    The only exercise I do is walking.

    I keep my room very dark at night. No light at all and during the day the curtains are wide open and I try to spend about thirty minutes outside in the sunlight.

    I have a strong spiritual life. Times of prayer and meditation.

    This was not something I developed to stave off a reoccurance...I wasn't even thinking of that when I started the little steps changing my lifestyle. I was actually trying to diminish the symptoms of fibromyalgia.

    I hope that perhaps one of these suggestions might help someone...or give you some ideas.

  • Meggy
    Meggy Member Posts: 530
    edited April 2011

    Bump.

    Can someone get me some glue to stick this one to the top?

  • Sherry-Groenendyk
    Sherry-Groenendyk Member Posts: 6
    edited April 2011

    Hi All

    Just diagnosed Feb 2011. Surgery was March 10th for mastectomy and first visit to can'tser (coined by a friend - "no sir you can't hang out in my body") clinic next Friday the 15th so not up to speed on what treatment will be, but after reading many posts on her for TN I will be inquiring about aggressive. 

    Until then I have been doing a fair bit of reading and have found these two books very informative and helpful in navigating my way through the maze of what to and what not to eat.  They are "Anti cancer a New Way of Life by MD, PhD, David Servan-Schreiber and Foods that Fight cancer by Richard Beliveau Ph.D., and Denis Gingras, Ph.D.

     Reading these books really helped when I was first diagnosed as they gave me the power to help myself.  So I am drinking Japanese green tea purchased from a tea shop 3 times per day, eating turmeric, black pepper, garlic and olive oil (enough to make it a manageable paste) off the spoon 3 times per day as well as eating as much organic as I can, (no meat, some fresh fish) and juicing cruciferous and other green vegetables 2 to 3 times per day. I also go for a brisk walk at least an hour each day and try to breathe.  I bought enough copies of the Anti cancer book to give a copy each to my parents, siblings and children, so as well as understanding when I say "no I won't eat that" they can also help protect themselves.  Maybe it will help, maybe it won't, but I believe it will help and it definitely can not hurt me.   

     I will help to keep this post at the top.  Thank you for how much you helped me already with your posts :)

  • Sherry-Groenendyk
    Sherry-Groenendyk Member Posts: 6
    edited April 2011

    Forgot to add the green tea, turmeric, garlic combo is to keep any micro tumours left in the body from growing into can'tser.

  • Titan
    Titan Member Posts: 2,956
    edited April 2011

    So..explain this to someone stupid here..about the glucose..I just had blood test and my glucose was below normal levels...soo..should I worry if it goes above normal?   I'm tn but as far as I know I have never had above average glucose levels..just curious.

  • chinablue
    chinablue Member Posts: 545
    edited April 2011

    My oncologist the says only thing I can do to lower the chance of recurrence is take vit. d, exercise regularly, eat a low fat diet and drink alcohol only on occasion.  That is it!

    I am currently on a clinical trial that includes regular Zometa infusions, but the latest news does not show that it really helps lower recurrence.

    So, what should a person do?  LIVE LIFE TO THE FULLEST, ENJOY WHAT WE HAVE NOW, BE HAPPY AND STOP WORRYING. 

  • weety
    weety Member Posts: 1,163
    edited April 2011

    Yeah, I wish I could stop worrying!!!  SIGH. .  .

  • weety
    weety Member Posts: 1,163
    edited April 2011

    Ooops . . . just realized this is for TN.  Oh well, the comment still applies!  (BIGGER SIGH. . .!!!)

  • Meggy
    Meggy Member Posts: 530
    edited April 2011

    I'm worried about the olive oil.  Although olive oil is said to be good for people, our triple negative cancer seems to really like fat...and the discussion I read about the low fat diet said it's not about substituting for good oils (like heart patients), its about lowering the overall fat to that key percentage.  So....I'd watch how many grams of fat you are taking in by adding olive oil...it may be too much.  It would be good if all our fat content was olive oil...but overall...all of our fat over the course of a day needs to be low.  I don't cook in oil at all.  I find if you take in straight oil...the grams of fat go way way up really fast.  I use water, lemon, lots of garlic paste, etc. 

  • Luah
    Luah Member Posts: 1,541
    edited April 2011

    Were any of you in the Living Beyond Breast Cancer teleconference yesterday? Dr. Lisa Carey (a leading authority on TN) was asked what we can do to prevent recurrence. Her reply was simply: surgery, rads (if prescribed) and chemo. Healthy lifestyle is a positive thing, she said (and I'm paraphrasing), but we really don't know how effective it is with respect to preventing relapse. "The jury's kind of out on that" was my takeaway.

    Still, I'm trying to follow a low-fat diet and exercising regularly... we TNs need some kind of "regime." Agree with you Meggy about fat... healthy fats only, and in low doses.  

  • MBJ
    MBJ Member Posts: 4,352
    edited April 2011

    My feeling is, if they didn't get all of the cancer out of you and it  comes back, no amount of food or diet will help.  I also feel, that to never have it return, it's important to excercise and eat healthy.  The studies show that the overall weight of a woman's body isn't an issue, it was excercise with low fat that kept us healthy.  Same with eating low glycemic foods.

  • Suze35
    Suze35 Member Posts: 1,045
    edited April 2011

    My doctor is pretty firm on the low-fat diet, along with exercise.  She has had a few patients with my degree of disease who are 3+ years out, and the thing they have in common is they all exercised and changed their diet.

    I've cut my overall fat intake to < 20% of my total calories.  I have also cut out all dairy and red meat, I only eat chicken and eggs 1-2 a week, and the rest is vegetarian.  I do eat a lot of grains - quinoa, steel cut oatmeal, brown rice, flax-based wraps and pita pockets.  I also eat a ton of fresh veggies and low-glycemic fruit and I drink one (NASTY) green drink per day.  I'm only up to 20 minutes on my elliptical a day, but I'm hoping to get up to two 30-minutes sessions/day in the next month.  Essentially, I'm following the Block diet.

    I agree with MBJ - it won't cure what is already there, but I really feel like it can help stop floating cells from grabbing hold and taking off.  And at the very least, it feels really good to eat this way.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited April 2011

    How it was explained to me......"it is hard to treat cancer that has spread b/c the body can only tolerate so much chemo before it becomes toxic; and in order for chemo it to be successful on cancer that has spread a ton of chemo would be needed"

    If I hear of any tpye food or vitamin that may assist w/ KILLING any floating cells I try it. I consider myself further assisting the chemo.

    I think I may turn GREEN or BLUE by this summer from eating blueberries and broccoli so much...

  • MBJ
    MBJ Member Posts: 4,352
    edited April 2011

    suze:  Try the Green Magma or the Magma Plus by Green Foods.  I buy it on line at a huge savings and it actually tastes good with just water. 

  • Suze35
    Suze35 Member Posts: 1,045
    edited April 2011

    MBJ - thank you for the recommendation! I will definitely try that. Right now I just choke it down, blech.

  • MBJ
    MBJ Member Posts: 4,352
    edited April 2011

    Suze:  Yeah, I have tried some of those others-blech is right, lol!  I am of the opinion that things that are good for you should also taste good!

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