Bottle 'o Tamoxifen

HI girls, the nurse from my oncologists office called and spoke with me.  She went through my episode of anxiety that sent me to the er.  Asked what all my tests that were done were and what the results were.  Told her they gave me ativan she said good.  Discussed the not taking the tamoxifen ~ she sounded a bit taken back...but they know I am stubborn.  I said I need to feel better and enjoy my vacation, then I have surgery so I will re-visit it when I see my ONC on 5/10.  I told her I cannot help but think what I have been feeling is tamoxifen related.  I told her I just wasn't feeling good and blame some of it on the upcoming 6 month tests.  She said that is normal.  She wants a copy of my echo and caratoid artery results when they come back.  Told me to have a good vacation and I will see them in May.  She will discuss our conversation with my onco and if she has any concerns she will call me if not May it is.

So I guess I am off the hook and tamoxifen for now.  I haven't takne it since Sunday. 

Sun is shining here now but I hear it is to be short lived !

Hope everyone is having a good day.

Alicia

Jules - I am way down by Brownsville close to the Mexican border.  I am scheduled for my first mammo since dx on June 3rd.  It will be 11 months since my screening mammo last year which I had in July and diagnostic/US in Aug.  My MO told me a yearly schedule would be fine.

Alicia - Good for you for standing up for yourself and holding your ground on not taking the Tamox.  We have to be our own advocates - no one else is going to do it for us.

Sherry - Hang in there - you have been through so much and you will get through the mammo.  I won't be here Monday but hopefully will be here when you get the B9 results. 

Sherry - I am not really looking forward to the annual squeeze.  My lump scar is on the bottom side of my boob and it is probably going to cause some discomfort.  Since I will have a diagnostic, that is more squeezes than the screening.  I will have them do the bc boob last and then I know I will be done.  Not going to worry about it until the time comes.  Having this done once a year is kind of a relief - don't know if I would want to have this to look forward to 2X a year.  Never had a MRI for anything and won't insist on one less I think it is absolutely necessary.

Here's to B9 results for both of us. 

Chabba, you sent me the hail. No likey.  If we wait until warmer weather to hook up, we'll never meet. LOL

Sherry & Jo, thanks for the update.  I had a mammo on the dx'd breast right before rads, but my annual base line mammo is in May.   Guess I was expecting a mammo every 3-6 months. Not that I'm looking forward to my rads/lymphedema breast getting slammed between two steel plates

Jo, it must be soooooo warm with you down south?  DH is interviewing with a company in Austin.  The weather is so extreme between the PNW and TX.

OK, I didn't have a single hot flash in the day and only a few at night in southern CA. Since being in WA I'm getting them so bad at night and having quite a few in the day. Anyone explain how I get more in cold weather than I do in warmer weather?  I'm boggled.

Jo I'm ready for the cruise.

Jules

Sandee, sorry I missed your post.

I just bought 3 new bra's (playtex) to help with the support/lymphedema situation. I can honestly say they are the most god awful things. Nothing flattering about them.  However, other than me not being able to wear a low or sleeveless t shirt, they are doing the trick. I certainly kept the ladies in place whilst hurtling down a Disney ride.

I'd give anything to find a some what attractive bra that does the job.  Victoria Secret days are gone.

Good luck bra shopping.

Jules

I just bought two from JC Penney, without underwires and they were not costly and they are very comfy, too.  You might wish to give them a try.  I bought them online and I am in Canada. the fit is perfect!

take good care and just breathe. . .

Teklya

Chili- ok..just cheked the sie..this is the exact bra I tried on tonight at the BAY!!! Yowsers...but they don't do DD's..only D and that caused a lot of spillage...so...I will keep checkin gbut this is th eexact type I amlooking for ! thanks again

yep but I apprecaite the ideas and info:)

Amerimark? Thanks Jo...I am on it now before bed!!! My breast is very sore these days but again..can't tell if it is heart stent related or scar tssue or what....knowing which it is might help me to feel more secure in some way....ah well. start with the bra and go form there:) thanks!

Sandee, here's to us with the  DD's!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Good Morning Tammibabes!  The timed release Melatonin is working great.  I forgot what it was like to get good sleep.  I have 4 days left until I walk on that cruise ship and sail into the sunset.

Sandee hope you find a bra that feels right and is pretty.  I have had the sore achey breast with burning sensations from my SNB down into my breast and behind my nipple I will have horrible stabbing pains.  My RO put me on Celebrex and ice pacs for the swelling and achiness.  This has helped.  I am still swollen but it has taken away enough of it to help.  I was still having the burning and stabbing pains so I went to the BS and she says that I have nerve damage.  She put me on amitriptyline which is an old anti depressant that works well for chronic pain.  I have been on it two weeks now and it is working.  I am still having some breakthrough burning but for the most part it is better. My scar is on the opposide from the burning and it has so much scar tissue from my lumpectomy 14 years ago and now this one that the whole scar area is very sore to the touch.  So not looking forward to this mammo at all.  Think I will do like Jo and request they do my good boob first.

Jules would the job your DH is interview for require you guys to move to Austin?  I live 1 hour south of Austin

Jo I had not thought of that and glad you mentioned it.  I would rather have the painful one done last.

n3ypb-I am in the same situation as you and when I asked my BS about why I had to have mammo's she explained that I have lots of calcifications in my breast and calcifications do not show up well on MRI's and they need to be able to track what they can see. The area around my scar tissue they are not able to see very well so the MRI takes care of looking at this area.

I, too, have some considerable breast pain some of it from the rads while some is from the shingles.  I called the mammo folks and re-scheduled for a month later (at my nurse's) suggestion.  They were wonderful and said no one should have to feel this kind of discomfort and they would do anything to prevent it!  Yay!!

Thanks ladies,

Teklya