I am new on here

Options
2»

Comments

  • Beverly11
    Beverly11 Member Posts: 443
    edited April 2011

    I had a really tough time with taxotere too.  I everything mentioned above but the neuropathy pain was like nothing I could have ever imagined.  T3's didn't touch it.  I could not be touched anywhere.  After 2 weeks of torture; paged my oncologist and got a perscription for ratio-oxycocet which pretty much had me sleeping all the time.  But, it helped tremendousely with the pain.  There wasn't a part of my body that didn't hurt.  (even my ear lobes and nose hurt)  I shudder still thinking back.  I could barely walk. 

     But, I have to believe it works!!!!!    The hospitol staff seemed surprised at my side effects too.  Taxotere is supposed to be tolerated easier than FEC.  Well, that wasn't much fun either but not as rough for me personally. 

    This too shall pass.

    · Share on FacebookShare on Twitter
  • Nannyof2
    Nannyof2 Member Posts: 24
    edited April 2011

    Selfmedicating girl, Hi . I get taxol every three weeks and it hits day three well it did for me anyway - staring with the worst heartburn of my life - I had to get strong meds for it (I am also now wondering that was the cause of my headache or added to it - man one med to help out one thing and then another to ward off the side affects to it - it is a catch 22 all the way

     I use tylenol extra strength but am heading out today to get the gel caps I do believe they work faster - drinks lots of water get lots of rest (you may not have  choice) I too sailed through the RED DEVIL and thought wow 0 this is suppose to be the worst - hmmmmm ......the Terrible Taxol took over!! Lots of pain mostly leg and back - then when you have nupegen it enhances the pain - lots of patience (I am sure we all have by now) and lots of laying around - that is all I could do - definitley keep on top of the pain.  lots of water!! I had diarhea too about day 5 for about 5 days. I am on the mend now other than a headache. hang in there ladies. The support is great on here. Keep it coming - no one knows more than us ladies who are in the 'club; what it is truly all about.

    Nannyof 2 (Rosie)

    · Share on FacebookShare on Twitter
  • selfmedicatinggirl
    selfmedicatinggirl Member Posts: 10
    edited April 2011

    Hi Pure. Thanks for the kind words! So glad to hear that you had no SE's on your chemo! I'm going for my second FEC on Thursday and hoping that everything keeps going well.

    Feeling a bit depressed today. My fiance and I would have been in New York now for our honeymoon if it wasn't for this stupid cancer. Now, instead of strolling down 5th avenue I am losing my hair and instead of attending Coachella I'll be sitting in a chemo chair. I'm just really bummed about the timing. It sucks! 

    · Share on FacebookShare on Twitter
  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited April 2011

    selfmediatinggirl -

    That is rotten timing!  I'm so sorry that such a wonderful event had to be put on hold for cancer.  I hope you'll be able to recovery quickly and get the festivities rolling before too long.

    Nannyof2 -

    Yes, taxol can be pretty darn tough.  A lot of ladies don't have many SEs and refer to it as a "walk in the park".  But some of us seem to get the SE buffet.  The only one I didn't have was the pain from neupogen.  I gave myself injections 6 days a week and it never bothered me. I mean the achiness - giving myself shots took some getting used to!

    I had 12 weeks of taxol and I think I got it all.  The neuropathy, the terrible heartburn, face rash, hoarseness, screwed up tastebuds, low red and white cell counts, diarrhea, constipation, swollen ankles and other things that I listed in my notebook.  But the prilosec, zyrtex, B6, compression socks, zofran and eating because I had to (it all tasted like cardboard) got me through it.  I counted down every week when I sat in that chair and knew that it would be over soon.

    Keep moving forward, ladies.  It will get better! 

    · Share on FacebookShare on Twitter
  • Nannyof2
    Nannyof2 Member Posts: 24
    edited August 2011

    Is looking for some shared information on RADIATION PAIN AND DISCOMFORT WEEKS AFTER RADS ARE DONE ????????????? ANYONE?????????? I had/am having more discomfort from the Radiation than I did from the surgery and the chemo - Frown  Is this normal to anyone else?? I had my Onc check it out three weeks ago - he said it is inflammation from the radiation - take advil - I take advil day and nite (as it tends to wake me) the pain is constant - boo to that ..I am having herceptin this moring - could it be the rads? could it be the accumulation of crap that goes into your body? the nerve endings? the nerve damage?  time - can it take months or years? I am heading back to work in two weeks - thrilled but asking for a weight restriction for lifting etc (students and wheelchairs) - anyone that share their RADIATION EXPERIENCES AND POST PAIN much appreciated ..........Happy Friday

    · Share on FacebookShare on Twitter
  • Nannyof2
    Nannyof2 Member Posts: 24
    edited August 2011

    Sherri thanks I have an appt next Friday and I will for sure mention it

    it does suck

    have a good day

    · Share on FacebookShare on Twitter
  • Nannyof2
    Nannyof2 Member Posts: 24
    edited September 2011

    Sherri Hi I am still having this crazy pain - ribs shoulder down my right arm (a numbess) and when I take a deep breath (often I can't) I can feel it - been back to the rad dr as well as oncologist twice 0 they all day due to deep radiation and a prior infection after surgery - the pain is 24/7 but a lesser degree - less in my lower back but now my armto my elbow feels numb - ugghhard to focus at work when this is always there - never mind how it interrupts your sleep - I am currently on Lyrica 75 mg daily - having a CT scan today ...................and pain in my breast as well - does any of this sound like nerve damage ? radiation damage ? (I finished my rads in JUly) would love to hear from you ladies with the same conditions or similiar

    thanks - enough already

    · Share on FacebookShare on Twitter

Categories