Worried about recurrence after Bilateral Masectomy

Busy- this has not been my experience, just bumping this up to see if someone else more knowledgeable can respond. Hoping it's nothing concerning but maybe call your doctor and get it checked for some peace of mind?

Kelly

Hi Busybee

I have had two lots of local recurrences:  I like you, initially didn't have chemo, tamox or rads after having multi focal (3 tumors) Stage 1 grade 1 tumours and I too had extensive ADH.  I however, , had a mastectomy and immediate skin-sparing LD reconstruction, but the cancer came back in 4 stops under the skin.  The first I felt, was like 2 grains of raw rice in the skin where by original largest tumour was biopsied, which eventually became like a raised bruised bump.  I was waiting to have it seen to when in no time another raised hard, small rubbery skin coloured lump came up in the scar of the "areola" disc.

I had the reconstruction removed and they found two further tiny tumours in the skin (in total 4 x satellite nodules/tumours). I then went on tamox and had rads.

I then waited a year and had a tram diep recon, followed a year later with a surgical hysterectomy and ooperectomy and 5 months later felt the skin near my scar tissue under my arm was pulling in and the area felt vaguely different.  I insisted on an investigation even though my onco PS thought I was being paranoid, and hey ho...a small tumour/second recurrence was found a little away from the scar under my arm on the chest wall.  I am now on arimadex.

I have on my other side an area in exactly the way/where you descibe that I had looked at with US and it was nothing.  I now only look for nodules in an around the scar....in fact I just had a rice-like nodule removed last weekwhich thankfully was benign!

I do hope this helps,

Nx

Sorry to hear...but glad to find this...would like to add...found a small bb like lump near my mast scar (had bilat mast w/ recon..silicone implants). Had US twice at 6 mo. intervals. Results benign both times. Surg onc decided we keep watching it...everyone seemed to think it was a 'stitch'...so now...am recovering from having it removed. Waiting for path. Removal more extensive than I thought or expected. Took wide margins just in case....though saying he thinks we're OK. So I read most often...recurrences after mast. are found in/near mast scar (same)...but can be overlooked as can be taken for a stitch. UGH! I'm resting and trusting in God...outcome in His Hands. That brings me great peace. Waiting is hard...and I'm not an overly anxious person! Here we go............

bump

HEY Suzzane,,, you have company for sure. I have a clusters in the same area you have in both arms.... I just made my appt for my 3 month check in july....   Let us know how you make out.

( Blessings and Good check up Vibes)