Carboplatin with Gemzar

I did GC with Avastan for 4 months (weekly) with very little sides effects except the usually. Gemzar hard on the blood and liver.  I with you it is usually done for mets...They add abraxanne for liver and bone mets.  The key is that she does not have mets (like myself) and this is the less toxic chemo that they know works with tripl negs.

Jeff-

I took Carboplatin and it did wonders. After taking high doses of it for 4 months I was No Evidence of Disease (NED). I pray that your dear wife has the same results. Triple negative research shows that the cisplatins are the route to go for us. Triple negative is no longer a paradox; more and more women are having complete pathological responses to the cisplatin drug therapies. Are you at a teaching hospital or a Cancer Center? Also, ask if your wifes cases can be sent to the "tumor board" for  review of her medical case.  A Tumor Board is a group of  physicians and specialists who meet every week to review oncology cases presented to them and they give their collective opinions. Even if you aren't at a teaching hospital or a Cancer Center you can have your case reviewed by them. They're cutting edge in their approarches. God is able, Stephanie

Hi, I am also triple negative and have had 3 ac my tumor has shrank from 4.5 to 2.4 after just 2 and now you cant even feel it at all.

 Thanks Tina

Diane had a petscan both before and after taking carboplatin.

The after-petscan showed that the carbo had knocked the disease down almost everywhere, except on her liver. The spots on her liver continued to grow while at the same time all her other mets were reduced, some reduced to nothing.

I BS with one of her chemo nurses alot, he  and I like cars alot.

He told me when she started taking carboplatin that his experience was that it may work, but only for so long..

It did work, but after 18 weeks her cancer either learned the schedule or learned how to beat the carbo. Her cancer became chemo-resistant and after 18 weeks she was done with carboplatin.

Cancer is now growing like wildfire. You can almost watch it grow.

They have about run out of drugs to try...

Bimmer: Thanks for your info. My sister has no intention to take any chemo treatment. The radiation may damaged her lumps since she had heavy dose. I heard one product "FUCOIDAN" made in Japan, can kill cancer cells only (Apoptosis). But it is so expensive. Have you any idea about it? If no drug is available for triple neg mets, we may try alternative now. Wish Diane feeling better and better.

Jin

Peggy,

I'm so sorry you are going through this - I know I have seen people fight this twice on this forum somewhere - one lady is 7 years out from a second triple negative diagnosis - I honestly don't remember if it was a second primary or a local recurrence but you might want to post your situation as a new thread on the recurrence section in order to get more replies and support.  Please take care, and you are definitely in my thoughts.  Also, check out the nosurrender triple negative site- there is a forum there, too - many of the stats you read on the internet are older and we are all individuals, too -

 I have a friend who had leukemia long ago -  treated once, then it recurred 1.5 years later. He was given a 30% chance - that was 20 years ago.

There is a website just for t. neg.  It is tnbcfoundation.org.  They have a discussion board and loads of information just on t. neg.   I was diagnosed in May 2010 and also again in Oct 2010 both of them tn.  Hang in there, you can do it!!!