Calling all DCIS Survivors~How Many Years?

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shannonW
shannonW Member Posts: 186
edited June 2014 in DCIS (Ductal Carcinoma In Situ)

Just wondering how many DCIS survivors are active on this forum and how  many years cancer-free?!

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  • shannonW
    shannonW Member Posts: 186
    edited April 2011

    I'm just 2 months since diagnosis. I read all these active posts with my fellow sisters in various stages of cancer and I sometimes forget the good prognosis of DCIS. When I posted this question I wanted women to post they had DCIS 10, 15, 20, 30 years ago and had no other cancer issues. That would make me feel good. What I realized(and the reason I deleted the post) is that often those in that case aren't on this forum for the support. They've moved on. So I need to continue to heal, realize each day is precious and hope that one day I'll not give cancer a thought!

    Shannon

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  • LindaLS
    LindaLS Member Posts: 15
    edited April 2011

    Hi Shannon

    I can understand why you would be seeking this kind of information. When I was first diagnosed with DCIS, I had never heard of it. I read everything I could to educate myself about it. In particular, the women posting their questions and all the women supporting each other and telling their personal stories,on this discussion board, wasextremely helpful for me while I was going through surgery and radiation. I owe each one my sincerest gratitude. I was diagnosed February of 2007. I just had my four year anniversay this past February 14th. I continue to read this discussion board at least once a week. I have moved on with my life, but will continue to read the posts on this board because the women are an inspiration to me. I believe my emotional healing will always be a part of my life. Best regards to you!

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  • AlohaGirl
    AlohaGirl Member Posts: 213
    edited April 2011

    Only two years so far for me, but I'm planning on many more!  And it does get easier -- I still worry about recurrence or a new cancer, but not like I did at first.  Now I get nervous before my MRIs and mammograms, and occasionally think about it in between, but I don't spend a lot of time thinking about breast cancer anymore and am not on the boards as frequently as I used to be.  Hang in there!

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  • XmasDx
    XmasDx Member Posts: 225
    edited April 2011

    I do have 2 aunts (neither blood-relation to me) that both had BLMX for DCIS, both 20-25 years ago, and both are doing great today!

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  • lauralu
    lauralu Member Posts: 100
    edited April 2011

    I was diagnosed with DCIS and LCIS at the same time. I had bilateral Mastectomies January 10 2007. I have had no further diagnoses of cancer. As far as MRI go the Dr's here don't seem to think it is necessary for what ever reason I don't know. I guess I really don't think about a recurrence B/C I had both breasts removed. I know a lot of people think that I am fortunate to have this type of pre cancer at that stage including my Dr. Sometimes it makes me feel uneasy .

    I don't know if I have moved on as I have had issues with my Breast reconstruction.

    Blessings to you all

    Laura

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  • mikita5
    mikita5 Member Posts: 373
    edited April 2011

    Hi Shannon,

    I had DCIS. Had bilat mx / immediate DIEP reconstruction with no chemo nor radiation. After pathology report, there was two more spots of DCIS in the affected breast. Other one was healthy, but I still went thru with bilat mx. This was 2 yrs ago.  You will probably ALWAYS think about bc, but you'll find the further down the line you go, the less it occupies your thoughts.  My mother died of ovarian cancer. 2 maternal aunts had bc and I've had numerous first cousins with BC, so I don't think I'll ever quit thinking about it...

    Just try to live your life as normally as possible.  None of us know when our time will be up...whether we've had bc or not....... there's no promise of tomorrow.

    Hugs coming to you. Good luck with all your treatments! 

    Kathy

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  • Lovegolf
    Lovegolf Member Posts: 513
    edited April 2011

    I am coming up on 2 years. I had bital Mx with not reconstruction. I do know there are many women who are 10+ years out. We may always caught ourselves looking in the rear view mirror to see if it is coming back but I think we do what is best of ourselves and cut the risk the most we can. Here's to many more years for us all!!!

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  • mrscrj
    mrscrj Member Posts: 55
    edited April 2011

    It will be 3 years the end of this month (April) since the cancer was found and 2 years 3 months since the surgery, chemo and then rad were completed. Only 3 more years on Femara and then maybe the hair will stop growing on my face and start getting thicker on my head.

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  • agada
    agada Member Posts: 452
    edited April 2011

    One year and 3 months for me.

    Agada

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  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited April 2011

    Six years for me. Finished my five years of tamoxifen last July. Life is good!

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  • gymnut
    gymnut Member Posts: 37
    edited April 2011

    hi shannon & all,

    just wanted to say this was helpful for me to see too & shannon i absolutely get your wanting to ask the question & get that kind of hope & reassurance.  i was diagnosed in december (as result of excisional biopsy) and had re-excision at end of january, just to get one clean margin.  i'm in the midst of radiation now & will be glad when treatment is done & i can celebrate that!

    i know all the mixed reports about yes or no to rads w/ dcis & i know lots of women get mastectomies, too.  i dk what treatment decisions you've made or are making but i thinking all we can hope for ourselves & each other is that we make the best decisions for ourselves andcontinue to heal a little more & get a little stronger (physically, mentally, emotionally ...whatever) each day...of course we also hope for no recurrences but i guess do the best we can to take care & take i t one step at a time.  for me i'm also struggling to try to take some lessons from this, since i have to go through it anyway, like at least maybe to woryy less about the trivial stuff & stuff i have no control over anyway.

    good luck & jealth to everyone.  take care.

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  • geebung
    geebung Member Posts: 1,851
    edited April 2011

    Just over 4 years since mastectomy for DCIS. No tamoxifen. All is well.

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  • tweetybird
    tweetybird Member Posts: 815
    edited April 2011

    4 years, and 8 months for me since dx. Sometimes it seems like yesterday, and sometimes it feels alot longer than 4 years.

    Had 33 rounds of rads, still on tamoxifen, will be done in December! Yea!!!!! And I'm still aleternating every 6 months with mamo/ultrasound and MRIultrasound. I'm still seeing my BS and oncologist every 6 months, but it looks like when I hit that magical 5 year mark, it'll be once a year with by BS.

    I'm sure that it all seems like a blur to you now Shannon, but the next thing you'll know, you'll be dancing with NED! (no evidence of dectection)

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