Bottle 'o Tamoxifen

SANDEE... OK i found where I got that information I have the DR SUSAN LOVE breast book... and she said it takes up to 6 weeks for it to completley get out of our system... I knew I read it somewhere...  so you will still have some protection.... we are wrapping our arms around you in support and hugs!!!! you will get through this too!!!!! we are here to make sure of that!!!!

Sandee please know I am thinking of you and know that with all the friends and support you have here, we will help you every inch of the way.....you do need to soak and just let yourself breath and thank gosh for Tink as you are still going to be covered until you can get back on Tami full time....HUGS to you my friend.......

thanks june...you have all calmed my fears...funny how it goes from calm and i can handle all this ..piece of cake in comparison to the past 6 months and then BAM..one bad sleep and overwhelmed...

But all of your support and reassurance has calmed me ....I am so grateful for such dear  hearts...thank you all so much.

Want to share a song link to "keep breathing"...a pal from high school (like Sherry's old high school posse) sent me this link  afer i posted something on my facebook about 'breathe people..keep breathing'....so lovely I had to share

Ingrid michaelson -keep breathing   http://www.youtube.com/watch?vv=fORAPkfVV_A

Rennasus - My onc did not tell me a lot about the side effects of Tammy either.  I looked them up on the internet and took the sheet in with me.  I have not had any blood marker tests done, said they wern't necessary.  I see mine every 4 months but can call him at anytime if I am having problems.  I would only get a new onc is you are really unhappy with him.  I tend to trust mine and know I can ask questions about any tests at any time.  My DH and I see the same onc so he better be worth a damn.

Regarding the blood clot issue, I was not told I could not fly, however I have been taking a baby aspirin every day for over a year now based on my own research and my onc seemed to think it was a good idea. Might be something you want to consider adding to your vitamin repertoire, couldn't hurt anyway, I don't think.

Renus . from all indications, my oncologist and radiologist believed I would be ok as i had not present with heart stuff...we all focused on my healthy life style and despite my parent;s heart stuff. they were a big part of their generation and there wer a lot of smokes and drinking going around..and salty fast food since it came out then...and I still think they simply forget becase they are working on it all he time. perhaps we should to up a brochure ourselves, publish it and send it around@

thanks again Tink. You ladies...you all make the world of difference. I didn't want a friend to stay over tonight...i needed to talk to you ladies tonight instead...needed your group brain and hugs.

Thank you!! night

Tink - I have been seeing my onc since Aug - my BS wanted me set up with someone before my surgery and I have asked a ton of questions.  I was on 2 of the AIs and now Tamox.  I have asked about all the meds, various tests - CT, Bone, mammos, US etc. and he has answered me honestly and has told me why he does or does not do certain things.  He is a believer is not over treating or doing unnecessary tests.  He has always assured me that if I need it, he will order it.

Of course I am watch DWTS.  I would not miss the elimination.  We are on central time so don't give it away if it is over in VA.

A "standard of care"?  Now that would be too easy.  I am finding out that my BS does things different than others.  Go figure.. 

JO...I TVO it I cant stand commercials lol!!! I just started watching it   a few minutes ago...I

I agreee SURFETTE it is frustrating....

My onc told me soy is ok in food but not to take soy supplements.  They are too concetrated.

My onc does all the blood test but listens to what I tell him.  I think even when onc's do blood test they are more concerned about how you are feeling and any pains you may be having.  If you do and your bloodwork is out of wack then they will start running test to find out what is going on.  That is how mine looks at it.

And yes standard of care would be way to easy.  Seems they are all different.

Sherry - Sounds like at least our oncs think alike.

OK - Just lost a big response to all of you girls and now I'm too tired to redo it. So just a few things...

Good luck to everyone and a big huge feel better hug to all of you!

I've done tons of research on this soy issue before the news about it tonight. A lengthy but good nutrition article is on the University of California San Francisco -Womens Health Matters site around page 27 is info on soy in a really long but informative article on breast cancer and nutrition. I'm a computer idiot but here's what part of it says:

"Unless soy has been a part of your diet for years,postmenopausal individuals with ER+ breast cancer may be advised to limit soy consumption to 1-3 daily servings. Soy supplements or isoflavone extracts are not recommended."

cancer.ucsf.edu/_docs/crcnutrition_breast.pdf             Hope you can google it with that info.

Basically what I've found is genetically modified soy is in everything we eat. Soy lecithin is in lots of stuff... even instant oatmeal (Jewel organics doesn't have it FYI) i think I read that it's a stabilizer or something that allows for long shelf life on foods.

Sandee hang in there and take care of yourself. I would definitely ask about the baby aspirin thing though. Also the flying thing with Tami is also a concern because of the air compression it effects lymphedema and clots, but I don't think it's very common at all.

 Good night all my friends. Tink love your travel bag!

EastCoastGirl ~ (I am bad with names matching up)  is that Nancy?!  How are you?  I know you weren't feeling good with your surgery.  Check in and give us an update.

Thinking of you.

Caroline ~ I went nearly a year with no period (chemo).  Then I got it for 3 months fairly heavy and then it went away again.  (tamox?)  Just keep an eye on it.  If it is a normal period and goes away then yay !

Val ~ nothing then my normal dimpled thighs here !

MORNING !

good morning all.  I went two nights without a sleeping pill and I did not sleep well.  The vivid dreams have gone away but I was very restless. So guess I will start the sleeping pill again tonight.  I wonder if I add melatonin at night if that might help me out and get off of these sleeping pills?  Any comments are welcomed.

tink it is so frustrating.  I don't really go to sleep until around 3 or 4 so it hard to get up in the morning for work.