Top 5 changes to make after BC

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I'm now finished BC treatment and I want to move on with my life.  I know there is always the possiblity of recurrance.  What changes have you made to try to prevent recurrance from happening?  i.e. supplements, foods to avoid, activities to stop etc (I just read about swimming and chlorine).

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  • baywatcher
    baywatcher Member Posts: 532
    edited March 2011
    The best six doctors anywhere, and no one can deny it, are sunshine, water, rest, air, exercise and diet. These six will gladly attend you, if only you are willing. Your mind they'll ease. Your will they will mend and charge you not a schilling. This is what I am doing.
  • encoremom
    encoremom Member Posts: 186
    edited March 2011

    Hi.  I am almost three years out and I asked my onc what lifestyle changes I needed to make back then.  His response was pretty simple

    Don't eat alot of red meat

    Don't take soy supplements (but soy whole foods are OK in moderation)

    Don't go overboard with alcohol (but some every now and then is OK). 

    Take calcium and Vitamin D supplements

    and the biggest one:  Exercise and maintain a healthy weight.

    As far as skin care products:

    Stay away from products with tea tree oil and lavendar since both have hormonal qualities

    Choose paraben free products if given a choice but not to make myself crazy over it

    It pretty much all comes down to moderation.  

    Just my thoughts.

    Debbie 

  • mdg
    mdg Member Posts: 3,571
    edited March 2011

    I have hormone receptor positive breast cancer and I have made lots of changes so far.  More than five, but this is what I have done:

    Eat organic, no chemicals, no hormones or pestacides

    Eat hormone free/all natural chicken, ground chicken and turkey - limit any beef (when eating beef, organic/hormone free too)

    Eliminate full fat dairy - only low fat organic for me.

    5 servings of fruits/veggies per day when possible

    Eliminate refined foods - eat only whole grain; avoid sugar as much as possible

    No soy products for me - which is hard as soybean oil is in almost everything!

    Avoid all oils except canola and olive oil; (avoid sunflower, safflower, corn oils and butter)

    All make up and health care products (deodorant, lotion, hair care, etc...) are paraben free, aluminum free and sulfate free

    Use all natural cleaning products in my home - no chemicals, sulfates

    Exercise 5 days a week/keep low weight

    Vitamins daily:  good multi vitamin, vitaman B complex, vitamin D, pro biotics for stomach, calcium

    Reduce wine intake - save it for special occasions

    Drink minimum of 8 glasses of water a day

    I know this may seem extreme to some, but it works for me.  My family is adapting well to the eating changes (but they are not too different from how we ate before -just a little different).  I have been even baking low fat low sugar muffins and browies.   My 4 year old loves it and doesn't notice anything different.  I also feel like I am teaching my son how to eat healthy at an early age which is good.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited March 2011

    Whats this about not swimming?  Its great exercise, and exercise is important.  I think the most important thing you can do is, as mentioned, exercise regularly and maintain a healthy weight.  Avoid red meat and eat lots of fruits and vegetables.  But please don't pass up the things that give you joy in life.  I don't believe we should celebrate our survival with self-deprivation.

  • momtomygirls
    momtomygirls Member Posts: 119
    edited March 2011

    I love to swim, but I was told that the chlorine is very bad.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited March 2011

    I think if you don't drink the chlorine you will get far more benefit from the exercise than any downside to swimming in it.  Seriously, go swimming.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited March 2011

    Well, here are my top 5 changes since Dx:

    1. Exercise every single day. I've broken this a few times, but I've made a pact with myself to do even minimal activity (walking, stretching, some static exercises, etc) even if I don't make it out to the lake for a bike ride or to the gym.

    2. Paraben free makeup and skincare products. I use a lot of coconut oil, natural products, and very little perfume. (did find one GREAT one that has no pthlates or parabens thanks to this board, though!)

    3. Eat vegetables with every meal. Now, breakfast is almost impossible, so I use lunch and dinner for this. I've gotten pretty good at it, and I make sure I have 3 colors on my plate (some cooked, some raw) each and every day. I keep the mantra "Every meal is a chance to fight disease" in the back of my mind to remind myself of why I am eating this way.

    4. Relax. I used to be a stress cadet. I'm a lot more relaxed these days, and I try not to worry like I used to. I used to worry A LOT. Over ANYTHING. I don't do that so much anymore. Well, maybe just a little bit. Some habits are hard to break.

    5. Supplements. I make sure that I am taking all my supplements to ensure that I am getting every nutrient possible to help my body.


    I think that's it for me. I really have calmed down a lot as a person, and I don' t try to tackle too much at once.  Great topic for a thread, BTW.

  • sespebadger
    sespebadger Member Posts: 249
    edited March 2011

    1. Exercise almost every day. It lifts your mood and helps with weight control.

    2. Enjoy the life you have as much as you can.

    3. Eat healthy food: very little meat, lots of fruit, veggies, whole grains.

    4.  Sweets, fats and alcohol, in moderation.

    5.  8 hours of sleep every night....starting in about 5 minutes.

     

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited March 2011

    P.S. Wanted to add that I am swimming in chlorinated water, too. I figure the benefits outweigh the cons, especially since I take a nice, hot steaming shower afterwards and scrub my skin. I've added it to my repertoire of workouts (I did a triathlon last weekend), and it's a great form of exercise, so as previous poster said...... Go for it! SWIM!!!

  • bellydancer
    bellydancer Member Posts: 59
    edited March 2011

    Great thread!



    I have :



    Increased my intake of fruits and veggies And trying for mostly organic.

    Said a fond farewell to red meat (((sigh)))))

    Hired a personal trainer to help motivate me.

    Smiled more, judged less...

    Eliminated soda (I miss it's sweet delicious goodness)

  • Raili
    Raili Member Posts: 435
    edited March 2011

    Before dx, I had been vegetarian for 9 years, never smoked, never drank alcohol, never did drugs, exercised regularly and was strong enough to do multiple pull-ups, had a healthy BMI, used natural bodycare products only, slept at least 8 hours most nights, shopped at farmer's markets for organic veggies, ETC.  I was pissed off that I was dx'd at age 30, despite living like such a health nut.  So rather than going down the path of trying to figure out how I could change my personal life even more - diet, lifestyle, habits, etc - I re-focused my energies on advocating for SOCIETY to change. 

    I DO take a ton of anti-cancer supplements, and I gave up sugar, and I eat vegetables that are specifically anti-breast-cancer, but more than that, I do the following:

    - I volunteered at an event that raised money for an organization that researches the environmental causes of BC and advocates for their elimination.

    - I blog to raise awareness of the hypocracy of carcinogen-producing companies (e.g. KFC) simultaneously having breast cancer awareness campaigns.  I wrote to KFC to complain about their "Buckets for the Cure" campaign.

    - I ask the local stores that I shop at if they use receipt paper that has BPA in it.  After all, what's the point of buying BPA-free cans of food if you then get BPA all over your hands anyway just by going through the check-out line?

    - I sign petitions to Obama to demand Federal regulation of cancer-causing toxins, email my representatives to either support or argue against legislation involving cancer-causing toxins, etc., by staying informed through Breast Cancer Action, Pesticide Action Network, etc.

    - I support businesses who make a commitment to creating and selling safe, toxin-free products.

    Yes, we need to shield ourselves from the toxins and do what we can to detoxify our bodies, but the toxins shouldn't be in our air, water, food, soil, and household products in the first place.  I feel that in addition to the ways in which we change our personal lives in an attempt to prevent cancer, we need to demand that the carcinogen producers and promotors change their ways as well.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited March 2011

    Right on, Railli. Well said. 

  • momtomygirls
    momtomygirls Member Posts: 119
    edited March 2011
  • Yazmin
    Yazmin Member Posts: 840
    edited March 2011
  • Hipline
    Hipline Member Posts: 195
    edited April 2011

    I swam as soon as I could after my mastectomy and I feel it helped me heal faster.  It certainly made me feel better!  Excercise, organic foods, moderate treats (like wine) and sex!

  • SuebeeBC
    SuebeeBC Member Posts: 1,256
    edited April 2011
  • redninrah
    redninrah Member Posts: 773
    edited April 2011

    i like this thread! the only thing that ive been doing is remembering to take my tamoxifen and supplements every day., Also im a big meat eater so ive reduced that by half of what i used to eat.

    I shoudl stop sugar, should exercise more should drink more water.........ok after reading this thread......you girls are motivating me...........!!!! thank you- i needed this.

  • redninrah
    redninrah Member Posts: 773
    edited April 2011

    oh i reduced my alcholol :) :P

  • MrsChorlton
    MrsChorlton Member Posts: 23
    edited April 2011

    I totally agree with Raili.

    I was already doing all those things before my dx. I was floored when told I have IDC. How can a healthy 50 year old who runs 5 miles a day 5 days a week, avoids all BPA products, eats organic,  doesn't eat red meat, doesn't consume sugar, has one glass of wine a month, drinks green tea, blah blah blah get cancer?!!!!

    So the top 5 things I'm doing since the diagnoses are:

    I've added mega Curcumin, and 5 other new anti cancer suppliments to my already full suppliments list

    Fresh chopped hot Ginger tea daily

    filter on showerhead to filter out Chlorine

    refused radiation, refused tamoxifen, and or other HT

    And my favorite: Seeing an acupuncturist and taking chinese herbs to help my body find Natural Balance.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited April 2011

    I need help cutting the sugar out.  I imagine it is a good choice to make regardless, but I am so good on all other fronts that this is the one area I'm a complete road wreck.  Every day I say I'm going to turn a new leaf, every day....

    For me

    More water (a moving target for this coffee lover)

    Vitamin D (truly the elixir of health in my case)

    Eat well (though ate pretty fabulously before BC, save the sugar ; )

    Exercise (though I did that pre-BC, my new MO is a little every day no matter what, even if it's just a 15 minute walk)

    Simplifying my routine (jojoba oil as a face and body moisturizer, really simple soap, fewer showers, no fancy potions with more than a few ingredients, reading cosmeticsdatabase, etc)

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited April 2011

    Mrs Chorlton-

    I had the same experience. I felt so betrayed by my diagnosis, since I was crunchy-granola organic, ex-professional ballet dancer. I breastfed 3 children, exercised daily, drank h20 and ate well balanced meals.

    I have tried to keep my head on my shoulders about it all and I'm maintaining my regime pretty well, but added the vitamin supplements and cut out a lot of sugar and milk products in my diet. My Dx was a kick in the pants for me to find out where the holes were in my diet and lifestyle that could be changed, I guess.

    As far as what could have caused it? Who the heck knows, but I have a sneaking suspicion that my birth control pills had something to do with it......

  • MrsChorlton
    MrsChorlton Member Posts: 23
    edited April 2011

    Marrianna,

    At first I was so pissed off because there are people here at work who treat there bodies like waste repository and they truck along fine with no cancer. It just made me mad at first. I'm over it now though. I take care of my body because it feels good to be healthy, and I want to live a long long time. I'm going to continue to do my best to remain healthy.

  • Valgirl
    Valgirl Member Posts: 187
    edited April 2011

    MrsChorlton:  Know what you mean about seeing others who don't take care of their bodies and don't seem to get cancer.   

    I've alway tried to eat somewhat healthy but much more so since diagnosis.

    I rarely eat red meat.   Switched from Splenda to Truvia or Agave Nector as a sweetner for my one cup of coffee in the am.  

    Switched to organic as much as possible.   The little bit of milk I use in the am for my coffee is organic.  Eat lots of veggies and fruit and limit carbs.  Use brown rice or wheat pasta when I do. Limit sweets.   Allow myself a little now and then.

    Met with a Nauropath to go over what I eat and my supplements.

    Do Yoga and walk.

    Drink Brassica tea daily at least 2 cups a day (as recommended by Johns Hopkins Breast site- has SGS the antioxident from Broccoli)

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2011

    For what it's worth... I've also always been extremely health conscious, so I had the same betrayed reaction some of you have expressed.  One day not too long after my dx, I was whining to my DH about the unfairness of it, telling him about how I just couldn't stop noticing women in the supermarket with perfect boobs and baskets full of junk food.  And, great guy that he is, he was quick to point out that we have no idea if they possibly have bc or another serious health issue -- that they very well could and not even know it yet.  I know it's not very nice, but somehow that helped me to feel better about the unfairness of it all.   And, in my case, I'm pretty sure it's HRT and maybe some genetics that are to blame.   

    But another interesting thing is that I no longer even shop in those mainstream grocery stores because I have so changed my diet, I tend to find much healthier food in Trader Joe's and natural markets like Henry's and Whole Foods.  And if I do find myself in one for an odd item, the array of packaged non-food and chemicalized food can actually be kind of nauseating.     Deanna

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited April 2011

    Deanna,

    In total agreement about the stock in "regular" supermarkets. I find myself staring at shelves and shelves of boxes, thinking "It's all completely filled with CHEMICALS".  Unfortunately for me (wallet and kiddos), I still have to go to regular supermarkets and places like Sams/Costco.  I try to give the kids the items that count in terms of organics: milk/dairy, certain veggies and fruits, and I spend most of my Whole Foods excursions buying stuff for me. I find the cost of all organic either prohibitive to cook for the entire family, or just simply too "out there". My kids really did not like kale last night, and I really had to agree-- it was TOUGH and not particularly tasty!!! I'm learning--slowly-- how to cook my "new" staples..... 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited April 2011

    I made a lot of changes very very slow.first i did my daily exercise.without fail.that was easy as i always danced 4x a week.then the water was easy too.i always drank water only now a little more.green tea is horrible but i do drink it not every day but i do.i rest much more then I ever did and i go to bed just about the same time every day and get up the same time every day.My weight is underweight so im good there

    Now the most important part is the food.i was a sugar addict.I am about 75%sugar free.

    Veggies is my stomachs enemy so im takin DIM.not every day as im afraid my stomach cannot handle it.so far so good.

    VitD,Fish Oil,Multi,Calcium and Probiotics.so far.just started about 2 months ago

    And I gave up dairy and Beef.thats a big one.And drink Almond milk as i cannot eat any kind of nuts.Oh and i take a spoon of the organic coconut oil.

    soooooooo what do you think????am I half way there yet...I do feel like im really tryin,

    biggest problem is the food.Im tryin real hard.NO ALCOHOL EITHER.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited April 2011

    I exercised before, but now make absolutely sure I exercise every day.

    No major diet changes.  Ate a ton of veggies before, and still do.  Trying to eat more salmon, but don't always succeed.  Gave up soy products which I despise anyway.

    Vitamin D and calcium supplements daily.

    Aspirin daily.  I took frequently anyway, as usually hurting from the endurance events I do.

    I thought about giving up wine in a demented moment.  I decided as one of the supreme pleasures in my life that I couldn't do this one.

    I pay someone to cut my hair.  Didn't for years, but with short growing out, I need professional help here.  Nice to have help with moving into my new look.

    Finally, tossed an outdated look with an evolving and exciting new look that reflects the vital woman I am.

  • SuebeeBC
    SuebeeBC Member Posts: 1,256
    edited April 2011

    For Granny - with the green tea issues....have you tried WHITE?  It has even more antioxidents than green and its far more mild.    Or you can find that often white tea is a green/white blend.  I used to take white tea with a little honey but slowly weaned off adding anything.  You can start with lipton white tea with mango or blueberry or pomegranate.....brewed lightly...then work your way up.  Straight Japanese steamed green tea is ROUGH to start with.  Roasted is easier but still a challenge.  Yogi has a nice line of green teas with fruits which are good too.

    Organics: I switched the family to organic milk and eggs.  Imported cheeses are hormone free so we use cheese sparingly (cost) but its imported.  Meats will come slowly.

    Meat and veggie intake: I reduced the meat intake and upped veggies....I try to have a spinach salad 4 days of the week at least....when i can (summer) shop at local farms.  I vow one meat free day a week now....working on two.

    Exercise: hard 3 times a week....walk the rest of the days.

    Products: Im slowly changing my products to all natural....deoderant and lipstick to start.

    Fluids: Green tea...Im up to twice a day.  Water the rest of  the time....alcohol is much less.

    I dont know if they are the top changes....but Im working on it.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited April 2011

    Sue-I tried all the gree nteas.even the ones that really have no value like Liptons.i hate them all but im trying real hard.if and when i do i put raw brown sugar/agava/honey/cinnamon and then its still not my favorite drink...but i know its very important

    and soy-----im glad we dont have to do that one.double yuk.

    I also gave up soaps(only dove unscented) Toms of Maine deoderant,and i clean my house with either a mixture of alcolol and water or venegar and water.

    I still feel i have a long way to go.I think we all will be changing things forever.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2011

    I was so mad too. When I would read or see something about 'exercise/little alcohol/maintain proper weight/eat right blah, blah, blah will lower your risk of BC," I would throw things, swear and yell at the computer/magazine/TV, "YEAH!  F*CKING RIGHT!' and when I saw a big, fat person driving down the road with a Big Mac in one hand, cigerette in the other (and no doubt an open container between their knees).......I would have the urge to ram their car!!! YIKES...maybe I should go over to the Bonfire of the Godnesses as I apparently still have anger issues! Surprised

    Anyway, these are things I do:

    1. I always exercised religiously but have ramped up the intensity. 4 hours of aerobic and 3 of toning a week.

    2. I didn't drink very often before but now even more rarely, and then never more than one or two.

    3. More fruit, more veggies, more fish, less red meat, a serving of prunes, a bowl of oatmeal, and 1 to 2 ounces of at least 70% cocoa dark chocolate every day

    4. I already took a multi-vitamin and baby asprin every day; but I upped my calcium and vitamin D intake

    5. Keep notes on all  my appointments, get copies of all my tests, blood work etc. do homework before appointments, write down questions, write down the answers. I have really become an advocate for myself in my health care.

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