Newly diagnosed, starting chemo in 1 week, terrified
Comments
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I hate we had to meet here but here we are...I'm also IIIC and it's a scary place. Not much I can add, the girls covered everything. I did neoadjuvant chemo, AC & then taxotere. For me the very first rounds of each were the worst but the ones after that were more tolerable. The meds they give you will help with most side effects. I had to do AC slowly over 3-4 hrs and I used a motion sickness patch behind my ear for the last 3 rounds and that helped a lot. With my first round they ran it in an hour and it hit me hard and I couldn't tolerate it that fast so, slowing it down and wearing the patch was much better. I also had a port placed and it was sore for a while and I guarded the area so I'm sure that added to the sorness. I responded to chemo very well, my path report after my BMX said residual cancer in LN and my breast tumor shrank a lot so, don't put too much thought in what you said about never doing chemo, we have to do what it takes & what works, look at all the women here it worked for. Take it day by day and go to the +5yrs forum when you need a little pep talk, I go often. We're here & we "get it" so keep us informed on things.
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Hi Suzy,
You've gotten a lot of great advice and I just want to add a few things.
First, even a short walk can help you maintain stamina and give you a change of scenery to break up the harder days.
Second, definitely call about all side effects...don't try to be strong and brave. And DO pay attention to your temperature. My doc called in a script for diarrhea during my 2nd round. That afternoon, my temp went up and I ended up in hospital a week with an infection from the diarrhea. Not fun.
Third and most important, be kind to yourself. Allow yourself an afternoon on the sofa, a day in bed, to say you're tired or sad or afraid, to accept help. It doesn't diminish your courage one bit to pay attention to what you need in the moment.
We're all with you...we understand and we are one in this fight. Take good care,
Molly
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thinking of you......these gals have given so much great advice, no need to add anything but the reassurance you're in my prayers.
you can do this.
xo
janyce
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I am just seeing this thread. I am so sorry you had to join this very exclusive club of wonderful women, the club that none of us wishes to be a part of. The advice given has been great.
Chemo sucks, but is doable. I tried using the numbing spray and not using it. In the end, I choose not to use the numbing spray when my port was accessed because it did numb the area, but it had a little sting that lasted longer than the needle going into the port. Because they aren't searching for a vein, the needle going into the port is so much easier. With that said, a lot of the people in the chemo infusion room did use the numbing spray. I do work, but decided to stay home for 6 months to take care of me. I am glad I stayed home. Drink plenty of water and try to keep to a routine of getting up in the morning, walking, yoga, something for you, drink water and then if you're still feeling bad, let yourself rest. If you are having a good day, get out and do something fun. (((hugs))))
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Suzy / scc218, here's the section to read that christine47 recommends, Chemotherapy: What to Expect.
Judith
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Just checking in to see how you are.
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One thing no one has mentioned is to make sure you eat enough protein. It may seem counterintuitive, but I found that helped me immensely. I tried for 80 g daily which is a lot. It keeps your energy more constant, and really helps with fatigue.
I took Larabars with me wherever I went as would get major energy crashes. These would tide me over. Fruit and nuts would work too. (Which is what Larabars are.)
Third the exercise. I was manic about it, but learning more and more this is the best thing we can do for ourselves.
Water is critical, but this one has been covered. I ate a lot of pears, and escaped most of the tummy woes. Good luck. We all make it through. At least you won't be doing six AC as was the study protocol for me. - Claire
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Once again, thanks for all the helpful advice, everybody. I SOOO appreciate it. And SOOO appreciate all the concern, love, hugs. Right back atcha.....we're all in this together!
Jennyboog -- thanks for checking in to see how I am. I'm doing really well at the moment. A little overwhelmed with work this week (last week was the same), but I should get a little break next week, which will be most welcome after my first round of chemo. Still feeling a bit nervous about the chemo but feeling a lot better about it after reading everybody's entries on this site. Went shopping yesterday for a bunch of the items that were recommended on the Chemo: Before, During, and After thread. So I guess I'm as ready as I'll ever be.....
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Glad you're doing good. I guess I was weird...I was ready to start chemo, it made me feel like I was finally doing something and was killin' this s#!t.
Don't get me wrong I was nervous too but was ready to battle, I was mad at BC, it came in sucker punched me so I was wanting to get it back. And when I saw my IBC leaving and tumor shrinking it was the best feeling, I knew it was dying. Sorry, didn't mean to ramble...let us know how it goes when you can.
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Heading out the door for chemo #1! I'm anticipating the worst and hoping for the best!
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Let us know how you get on....and take all the meds they give you!
Good luck, and remember - after today, thats one less to do, right!
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SCC - I'm sure you'll do fine, remember to drink plenty of water. If for any reason you have nausea problems not controlled by your meds, let your onc know right away, there are many other meds out there. (((hugs))))
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Hi Suzy,
Just want to wish you luck! Ginger ale helped with my nausea when I did AC. TMI Alert! Also, I had to do Colace, Colace, Colace for constipation. I didn't take any with my first AC and it was one of the "hardest" (no pun intended) lesson I learned from this whole BC experience. Chemo really is doable. Just be kind to your self. Take it easy. We'll be here for you. Hugs.
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Thank you all!! I'm doing great! I'm quite tired at the moment, but I think it's more from a stressful work week, not sleeping well all week, anxiety/anticipation, etc. Now #1 is done -- you're right, KerryMac -- one less to do! Yay! So far no side effects whatsoever. No nausea. Got meds and ginger ale and ginger root capsules standing by.....just in case. And Colace, too, Americanpinay. Going to make one other post with my April chemo group and then head to bed with a good book -- but I'll probably be asleep in about 10 minutes after hitting the pillow!
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I'm brand new to the site. Began chemo on April 1 and did 2nd round today. How can I get to the screen to put in my diagnosis. This is my second round with breast cancer. Had it 8 years ago, R mastectomy and AC and Taxatere. Came back in January on the mastectomy side (didn't even know that was possible). Recurrence Tripple Neg. invasive ductal carcinoma. This time I did 30 radiation treatments first. The first plan was Taxol plus Xeloda. I couldn't take Xeloda because it made my heart spasm. So now I'm doing Taxol and Genzar. I want to join the April group but how do I do that.
Susan
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Susan E -- I'm so sorry you are joining us here, but Welcome! I'm new, too, but I'm finding so many wonderful people on this site and so much helpful information. So sorry about the recurrence.
At the top of your page, there should be some tabs -- forum topics, active topics, My Home, etc. Click on the My Home tab. Then, under Welcome, setheridge (or whatever it says), you should see Member Since, etc. To the right of that there should be something about editing your diagnosis. It may be a little different because mine is already set up. I can't remember exactly how to do it initially. But try that and see if it works.
To join the April chemo thread: On the main page, there should be a little drop-down window box that says jump to a forum. Click on the drop-down arrow and scroll down to Chemotherapy, before, during, and after. Select that and click on GO. Then scroll down to April 2011 chemo (created March 24 by geocachelinda). Tons of great people there -- and we're "all in the same boat."
I hope I have the instructions right. I'm very new, too, and just figuring things out. If I have something wrong, or there's an easier way, maybe somebody else will pipe in.
Meanwhile, lots of hugs to you..... -- Suzy
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