What's wrong with your arm?

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  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Cookie, my grandmother was very proper, and I keep channeling her memory when this sort of thing happens. It's just so RUDE to comment on anyone else's appearance. Especially in front of a group. Basic "Miss Manners" bad behavior.

    I've started to say that it is a result of breast cancer treatment, and that does shut them up.

    He should have known better.

    Kira

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

     The Priest thought with his mouth instead of his brain.

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  • ktym
    ktym Member Posts: 2,637
    edited April 2011

    Sometimes I leave it at keeps my arm from swelling, lately just sound bored and say its a long story

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    kmmd,

    Whatever!WinkPolite way to say (F) off.

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  • inspiewriter
    inspiewriter Member Posts: 876
    edited April 2011

    I have found that wearing the black sleeve and glove gets me more questions--usually from young people who think they are cool and want to order them!

    I agree, most people wouldn't ask if they had any clue it was from b.c.   My latest reply is that it's from complications of a surgery. 

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  • cookiegal
    cookiegal Member Posts: 3,296
    edited April 2011

    Glad the dialogue continues.

    Thanks for all the suggestions.

    Each one works at different times

    Sometimes I want people to know about and understand LE, and if meeting me is that portal, so be it.

    Part of me just wants to be normal.

    I feel like this is in some ways a disease of isolation that gets hidden.

    As a relatively young person in a pretty visible community position I have a chance to educate people...sometime I wanna do it, sometimes I don't.

    I am giving a speech at a BC event in Oct, and I have been thinking about what I want to say about LE. 

    (And funny...even for this, part of my brain wants out of wearing the gear. Before I got LE I bought a hot pink suit with short sleeves....and it looks awful with the sleeve.)

    I'm still a work in progress.

    I actually see the LE again this week for a checkup, then the MD next week, Onc as well while I am at it.

    My onc is a really prominent research guy..part of me wants to beg him to please find something to help us.

    I hope I can say something without breaking down. Last time I saw him he really thought it was not LE.He is super smart tho so maybe he will have some insights about the Liopdema aspects.

    All an all I feel like my arm has been getting better looking. Some of the redness from the infection is dying down, and even if it's not smaller, it looks smoother.

    Mentally I think I am making progress about accepting all this.

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  • Nordy
    Nordy Member Posts: 2,106
    edited April 2011
    Cookie - I have had LE for 5 years... and I am still a work in progress - I have gone through all the stages of grief... and then I go through them again, and again, and again... I don't think it is wrong to always have some hope that someday, somewhere in the future someone will find a cure. Maybe not this year or next... or ten or twenty or more years from now... but it is always good to hope. :)  You will figure out what works best for you. I spoke for the ACS Strides against BC a couple years ago - I had a really pretty sheer long sleeve shirt that worked beautifully. At the time it didn't even occur to me to talk about the LE... maybe in a different forum I would have thought of it, but for this one I just didn't! I had just had my second child (post diagnosis and treatment), so I was just so happy to be alive and have her! I think if you feel there is a place to speak about LE in there, you go for it! But you will figure it out in time. Hang in there - we all support you whatever you decide to do!
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  • cookiegal
    cookiegal Member Posts: 3,296
    edited April 2011

    OMG...I will never ever write my arm is doing well again. I decided to tackle spring wardrobe rotation. I didn't even realize my sleeve had slipped. BLECH!

    I had a super active day tho.

    Gotta get it down for Tuesday!

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  • ktym
    ktym Member Posts: 2,637
    edited April 2011

    Teka, we think alike

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    kmmd,

    Rudeness calls for bluntness.

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  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    I love it when some stupid man asks me about my arm and I get to tell them it's a side affect from the double mastectomy I had to treat breast cancer.

    Then I stick a pen in their eyeball and eat a brownie. Yell

    Can you tell I'm having my monthly visitor for the first time in 10 months???????

    I am so dangerous right now.  I need to come with a haz.mat sticker plastered on my forehead today.

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  • Omaz
    Omaz Member Posts: 5,497
    edited April 2011

    hehhehe - hazmat sticker!!

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012
    We're suffering from spring fever.Surprised               
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  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Suzy, I find tamoxifen PMS to be it's own form of unique emotional rollercoaster. My husband has learned how to duck....

    Today I was at a restaurant, watching a man with a large electric wheelchair maneuver, and never, ever had the urge to run up next to hin and ask "How did you end up in that chair???" No one really has the right to comment or inquire about our appearance--with the exception of the recent TSA screeners. Only if it's for national security can they ask.

    Kira

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Kira,

    Excellent point!

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  • ktym
    ktym Member Posts: 2,637
    edited April 2011

    Oh Kira, totally know what you mean when you say DH has learned to duck since Tamox started. 

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  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    It's likw PMS on steroids, and shows no sign of abating: I try to only throw soft things....

    Kira

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  • Suzybelle
    Suzybelle Member Posts: 920
    edited April 2011

    My poor, sweet, precious husband 'helped' me yesterday by weeding...he pulled up two gorgeous lilies he thought were weeds.  I was outside and noticed it, had an out of body experience, and went inside and sweetly asked him to wait about weeding 'til I am there with him.

    I was outside at 10pm at night with a flashlight trolling the woods to find my poor lilies....I found one, but the other one is MIA.YellYellYellYell

    I love that man, but he nearly bit the big one last night.  ARGH ARGH ARGH!!!!!!!!!!!!!!!!!!!!!

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  • ktym
    ktym Member Posts: 2,637
    edited April 2011

    Suzybelle, my father "helped"  my sister out one day by mowing down all her" weeds" at the edge of her property for her.  She had spent a bit of time planting those "weeds." 

    kira, DH tells me the thing that always surprises him is get doesn't see it coming, next thing you know a hurricane gets unleashed.  I have to go off Tamox for some surgery this Spring and am dreading the swings that come from the restart

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  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2011

    Kate, my husband feels the same way. Suddenly I explode--shocks me too. I've never gone off the stuff, so I have no idea what I'd be like without it--gotta wonder.

    Kira

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  • Sher
    Sher Member Posts: 540
    edited April 2011

    I was already postmenopausal when I took Tamox and for 5 years I felt great!  But when I went off it, all hell broke loose.  I didn't have any problems at all going through menopause, but I sure did when Tamox was stopped.  Weird, huh?

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  • Omaz
    Omaz Member Posts: 5,497
    edited April 2011
    Suzybelle - LOL out of body experience - too funny!  I was trying to get ready this morning and my husband was just traversing the kitchen and I was like 'scuz ME'!  Oh so rude!  I don't know  how he puts up with me.  I'll have to cook some beef for him this weekend.  Laughing
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  • Teka
    Teka Member Posts: 10,052
    edited February 2012
    We need to take our (bitch less pill) daily.Wink
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  • Omaz
    Omaz Member Posts: 5,497
    edited April 2011
    Teka - that cat is so cute, did she just catch a mouse?  It looks like she is licking her lips.
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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Catnip.   She is a Maine Coon, and will play fetch with a cat toy.

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  • ktym
    ktym Member Posts: 2,637
    edited April 2011

    Oh man Teka, how expensive is the (bitch) less pill?  I really need to look into it

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Depends on the severity of your bitchiness.

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