December 2009 Rads Group
Comments
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Ouch!!! 1000.00 that is rich for my pocket book...LOL! My DH won't be doing that anytime soon if that is what it cost. He would be the one who wrecked hahahaha!!!
But yes he so does want to drive one of those darn things. I personally think he is crazy. I won't even get on a motorcycle. He is doing great! They told us he had to much blockage and couldn't have the stent. Not too sure about that but we may or may not see someone else.
Have a great week.
Renee
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Renee, we felt sorry for the young guy that crashed too...If you don't crash, the cost is about $250...It was fun but kinda scary.....
I guess your husband will need to really watch his diet, since he can't get stent, I have heard that will also be very beneficial....
Hope all is well with everyone,,,,,funny, I go some days now that I hardly think about BC.....Still being cautious, don't want to get blindsided.......
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I have one week until I see the chemo doc for a check up. I'm starting to write down some questions. I'm trying not to get myself upset over this appointment. I dread walking through that part of the hospital. I have to pass by the chemo area. For some reason that smell turns my stomach. I'm starting to tear up just thinking about it.
Hugs to all!
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This is me now. No more curls, fake smile and a few extra pounds.
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Valerie I think you look terrific! I wish I looked that good, my weight keeps going up and down. This darn Tamoxifen I'm on keeps me on a yoyo effect. I will lose then gain. It's terrible and I hate the way I look and feel and nothing fits. Yuck!! you get the point.
Renee
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I know what you mean and I'm not on tamoxifen. I have gained 20 pounds since I ended treatment. At first I couldn't eat. My brained was wired from the chemo that food is bad. So it took a while to retrain my brain that food is good. Now I just can't stop. Clothes that were falling off me are now too tight. As soon as we get some nice warm waether I want to start walking. We are having too much snow and ice this year.
Hugs!
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That's too funny we have had a lot of snow and ice here in the Deep South also!
Hugs!
Renee
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Hey girls, I did start my beach walks again last week..It was warm and sunny, I am suppose to go again this morning but having to talk myself into it...It is sunny but windy and a bit cool...I have got to get more disciplined...I keep making excuses whereas I use to just get up and go....
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Today in a couple of hours I have an appointment with my chemo doctor. The thought of going is making me sick. I have to get a blood test in the same area as the chemo. I try to think of the positive... I'll see my ole nurse friends. I have my questions ready. Please send hugs.
Valerie
I came home with a more positive attitude. The doctor explained to me more about being triple negative and how my rate for survival increases in 5 years. The other doctor gave me 10-20 years to live. This one got upset over those numbers. She said that everything seems okay so far and my blood test results came back great. Now if I can just move on.
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Hello? Where is everyone?
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HI Veggy! And everyone!
You're right, it's been very quiet in our group. I hope that means that everyone is doing (and feeling) great.
Veggy, you had blood work in Feb; Glad you felt better after that visit. How do you feel now?
My big thing lately was spine surgery on Jan 14, about 8 weeks ago. The pain is around 90% gone! Started physical therapy yesterday ( they wait a LONG time after surgery before PT). Good PT; he gave me targeted exercises that are already helping with the last 10% of the pain. I'm thrilled.
I am very slowly getting fit and strong again. I'm eating super healthy. Very motivated. Not even the BC got me as motivated as this. I know why - with BC I felt fine, but I was in agony with the back injury. Horrible! So I'm eating anti-inflammatory foods, getting rest, meditating, taking it easy and doing the exercises that I can do. I will probably regain full strength and health. HOORAY! I have lost 10 lbs and want to lose another 15.
Last November after suffering for about two months with the back pain, I saw a photo of Macho Piccu in Peru and it hit me - I may never be able to travel and hike again for the REST OF MY LIFE. It was sobering, terrible realization. I'm SO GRATEFUL that my condition was treatable. That's not always the case. So anyway, now i want to go to Machu Piccu. It's a big, expensive trip, but I'm determined! It gives me a goal to shoot for! Macu Piccu!!!!
Regarding BC: i have been having no problems. The radiated breast has settled down and I don't hate it anymore. For a long time I was resentful that I had breast conserving surgery, but that radiated thing did not feel like a real breast. But it feels better, although it doens't look that great. But I'm way of sick of surgery, so have no plans to do any lifts or what ever. Maybe someday.
All is well. Yippee!!
Bonnie
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Hey Veggy, Hi Bonnie, it seems both of you have good results news lately, congrats...Monchu Piccu, WOW Bonnie, bet that would be an awesome trip!!!...I'm done with going to see relatives, I want to have real vacations....Just had a check up with my Onco today to go over blood work...Are you guys getting CEA or CA 15-3?...He also checked my Estradiol level, it is 14, but it doesn't give the range so I don't know if that is good or bad...I feel good and I don't let this BC DX get the best of me as it did the first year....So glad that all seems well, wonder how everyone else is, hope they too check in occasionally..I will always check back now and then and hope to continue seeing everyone's great progress....
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Its going to be a year since I finished radiation on Wednesday. I'm feeling pretty good. I'm on cymbalta and feeling so much better. I'm getting some energy back.
Macu Piccu sounds awesome. You deserve it!
Sorry I don't know what CEA or CA15-3 is, so I guess I'm not getting it. I'll have to do some research.
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Hi Bonnie, Jewly and Veggy! Hope all of you are well... took a break from the boards for a while because I am working so much and was constantly having to do battle with my daughter over the computer (which is hers). I actually went yesterday and bought myself a new one so no more fights. Yeah. Glad to hear that everyone is well and getting good test results. My birthday is coming up next weekend and I am so thankful to be here another year to celebrate. lol! God is great and good! Take care my friends and I will try not to be a stranger.
Renee
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HAPPY BIRTHDAY RENEE!!....I know what you mean about more birthdays, when first hit with this crap, you really start thinking about things like that...Now they seem more important...Glad you have your own computer...Nice to see that some of us are still keeping this topic going with updates...Nice not to be on this site everyday like at first, but so glad it was here...Best to all...Jewly
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Thanks for the birthday wishes Jewly!!! Where is everyone at??? This thread doesn't get enough traffic lately. I know we are all busy with our lives and that is so great. Sending out love to you all. I have to go for a check up with my Med Onc on 4/15 I dread it. I've gained wt. and he will yell at me in a nice way I'm sure. lol! let's remember I had lost some last year in Nov. when I went so now it's back up 12 lbs and he won't be happy and neither am I. It really stinks... he increased my meds and my wt. goes up. Yuck!!
Renee
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I'm here. I'm on a few times a day. Some of the depression is starting to lift. I wish I could lose some of the weight I gained. After chemo my brain did not want me to eat. It kept thinking that food was bad because I would get so sick. Now it seems like all I want to do is eat. I can't fit into my clothes. I have a mammo coming up the first of June. They tell me the results before I leave. They don't torture me with having to wait. Then a week later I see the breast surgeon.
Valerie
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Here's the trip I plan to do in the next year or so:
http://www.roadscholar.org/programs/programdetail.asp?rowid=1-4U6DQR
Just happened to see the Dec 2009 group in Active Topics and Bonnie's post on Machu Picchu....
I use to post here on this thread, but now mostly on "Calling all TNS"
Hope everyone is continuing to feel good and move past this BC crap.
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Nice to hear from you Heidi. I took a look at that roadscholar trip... WOW!! that should be amazing. Have fun and when you go post some pics.
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Veggy so glad to hear that the depression is starting to lift, that alone speaks volumes. I to wish I could lose some weight. I've read that the Tamoxifen and the AI's make you feel bloated and when you stop taking them you no longer look "preggo/bloated" and I can tell you right now my doc incresed my med dosage in November and I have put on weight and I look preggo in the belly. It is sickening. I really dislike myself very much. I am so miserable and unhappy. It has nothing to do with depression and everything to do with being over weight. I guess I will have to go back to a wt. clinic. I sure do dread it and pray that it works.
Stay healthy, wealthy and wise...
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Renee, So sorry you're feeling bloated and horrible. Why did your dr increase your tamox dosage? Try not to dislike yourself! How about; one year down, only four to go?
Heidi! You're going on my trip!!! That looks great. I'm toying with the idea of joining a tour this June, but I'm not ready for any long trips yet after the spine surgery in January. Oh, but I want to go!!
Veggy; So glad that your depression lifting and congrats on your one-year radiation completion anniversary!
Jewly: You asked about blood tests - I do not get any. Never did through this entire process. How's your healthy eating going? I have recently starting learning about lacto-fermented foods. Book called Nourishing Traditions is getting everyone going on this ancient method of food preserving, which also bumps up the enzymes and all kinds of good stuff.
Me: Today is 13 weeks since spine surgery. I'm continuing to get stronger and to do more. Rode my horse last Sunday! I have learned to take things very slow and easy at first. I'm likely to have a full recovery. Yay! PS. Nothing like spine surgery to make you forget all about breast cancer! I have my 6-month oncology followup next month. That's just a breast exam and that's pretty much it. Annual mammograms.
Great to keep hearing from people on here! Thinking healthy and happy thoughts for all of you!
Bonnie
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Bonnie he increased my Tamox dosage because he said it was the normal dosage that everyone is suppose to take. I was previously taking only 1/2 the dosage. I am and have been post menopausal for now 9 yrs. I have no hormones for Tamoxifen to suppress really. I just didn't want to take and AI so together we decided that Tamoxifen would work for me and that since my hormone levels were so low 1/2 the dosage would suffice for me. But, when I went in November he had and intern with him and apparently he forgot I have not uterus or ovaries to suppress and as I was starting to leave and he was writing out the scripts in his schedulers office he says... "
oh I'm increasing the dosage of your Tamoxifen" and handed me the script.I go back to see him this coming Friday. I have decided to put myself on a "tamoxifen vacation" to see if I can drop some weight. You know what is funny I stayed hungry all the time taking it and the 2 days I haven't taken it I've not been hungry all day... Woo hoo!!! I will start back taking it, but I've got to drop 30 lbs for my health.
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HI TO ALL.....Inlaws just left this morning after a 10 day stay with us, not bad, but about 4 days would have been enough....So glad we are keeping this site going, I really wonder and hope all of you are doing great..Nice to know we are not so allconsumed with this BC as when we were first blindsided....
Bonnie, My Onco is doing blood work every 3 months!!..This last time it included an Estradiol chemistry which was 14, but he didn't discuss if that was a good number or not!..But since I have it all done again in June, I will ask then....The tumor markers (CEA and CA 15-3) numbers are still the same as last year, but it is crazy that I am having these checked every 3 months and your Doc isn't doing any...Last week was my one-boob mammo/ultrasound, that is always very stressful, esp., as long as they kept me and the ultrasound tech did about 30 minutes just on the one boob, she was pushing down so hard, my poor boob still hurts, I thought something was wrong, but I always ask to talk with the Radiologist while I'm there and he shows me on his screens my results..The tech was very surprised that I asked to speak to him and even more surprised that he lets me come back to view my results...Tomorrow, I see my surgeon to go over the results....Wow, you rode your horse, you must be getting your mojo "back" back..good for you...
Renee, it is hard getting into better eating habits, since my inlaws were here, I have not been sticking with my better-for-me diet, I have been eating out too much and too many not-so-good for me foods...Today, my plan is to get back to my better ways...I feel much better when I eat better...I also have put off my beach walks and again need to get my butt out there and just do it!!..I can see where it would be very easy just to fall back into my old ways and that scares me so hopefully I will stay determined and realize that the benefits eating and walking outway the urges eat all those comfy fat foods......I wish some of you lived closer, I am sure we could help motivate each other....
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Jewly I saw my med onco as stated on Friday and we discussed the Tamoxifen. He told me one of the reasons you gain weight on Tamoxifen is because of the steroids in it. So, now he has changed me to Arimidex and wants me to try this. I of course argued all the reasons why it was not a good med to be on and all of the potential side effects... foot pain, cramps, joint and bone pain, etc. He told me that the "people that have these side effects" are prone to have things like that. I told him I take Crestor and he asked if it bothered me...Me: NO, he said well that would apt to be more of a cause those symptoms than Arimidex. At least that is his philosophy, so we will see! I am petrified to start taking it though. Gonna wait a bit I think???
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HI RENEE,,I had no idea that Tamoxifen had steroids in it, I wonder if Arimidex does also....I have been on Arimidex for about a year and a half and I can just tell you from my experience that I have not had any bothersome ongoing side effects and esp., the ones that you mentioned..I find that if I eat healthier and at least do some beach walks that I feel good...When I slip up and eat crap (like this past week when I had company) that's when I feel bloated and like crap myself....When I first started taking Arimidex, I thought it was giving me leg pain, well I cut out eating salt for the most part and my cramps went away, to this day if I have chips or popcorn in the evening, the leg cramps come right back.....Good luck and keep us posted on how it is effecting you...
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Jewly, No Arimidex doesn't have any steroids in it. So that is a plus. I haven't been as hungry on the Arimidex but I can say that all the stress from the storms we just had and no electricity has had me stress eating. I really stink at dieting. I use to be able to drop wt. like crazy easy and now I just put it on easy. I need a new frame of mind. LOL
Bonnie, Heidi and Veggy... Hi how are all of you doing. Miss you all
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I'm doing okay. Just busy getting my son done with his home schooling so he can graduate. I have been gaining weight and I can't figure out why. I had my doctor check my TSH levels and it came back within the normal range. I guess I'l have to watch what I am eating and start exercising. I have started my garden. MIss everyone too. Hope everyone is keeping busy and healthy.
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Glad to hear that you are great Valerie! happy mother's day to all
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WOW, we just don't come on here as we use to...Hopefully, we are all getting back to some new normal life and not letting this bc depress us and keep us down...I sometimes have days that I do not think of it at all, my son has finished his first two years of college and now I just wait to see what will be our fate after the last Space Shuttle flies (possibly July)..Don't know if we will have to move for a while or what!!!..Lots of people's lives here will be disrupted, can't believe the U.S.A will not have a Space Program....Just don't know.....Anyway, a big hello to everyone, hopefully we all stop in from time to time to say hello and keep this Topic going....You all have helped me so much by just being here to listen and have hope.....Best to All, Jewly
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Jewly I think it is a very sad day that "Obama" has cancelled the space program. He is such a butter head!! Hopefully whomever wins the next presidency will have enough common sense to start it back up, there is still much to learn and do in space. How anyone can possibly think that it's over and nothing more to do and let's leave it to the Russian astronauts to explore is absolutely ludicrous. O.k. I have spoken my peace now I'll shut up.
Glad to hear you are well. What a wonderful thing that your son has finished his second yr. of college.
Hugs to everyone and Jewly I come on here about everyday but I just don't write on this site because no one else ever comes on here.
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