2011 Sisters
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Duckyb1 - so happy for you!
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Yay for you Ducky. My BS said the inflamation around the tumours can exaggerate the size. maybe that's why yours turned out smaller. One big step closer to the finish line. Think I will go to bed now-been lurking looking for something poitive to think about as I lay in bed.
You and your childen being happy will be as good as any sleeping pill. You will top the list of people I pray for tonight.
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lilylady.........silia........you ladies.............other then my wonderful family are the reason I made it to where i have......To have people who don't know you, who have never met you, hope, pray, and be happy for you is beyone words...........I just wish all the ladies on the forum could receive the same news I did............Cancer scares the ;hell ;out of me in any form...........so the news that I had become a victim, was more then I could handle......Losing my husband 19 years ago, at the age of 57, being alone, and on my own all those years gave me a strength and independence I never knew I had.........Of course I had my children, and grandchildren, but how much can you put on them at the time.......they had lives, and also were trying to adjust to the loss of their father, so was I gonna burden them with my grief......I did all I could not too. So some things do make you stronger, and again 1 months ago I faced another horror................`People said to me "stop going on that website",.....why are you reading and talking about things that may never happen to you"............stop putting your business in the street.............By the time I was done and out of surgery I had many of my "do gooders" saying.........."hey go on that website and ask the ladies what "that" means............Funny isn't it how the "worm" turns.............I go to the BS on Tuesday, and I'm sure this is much he has to talk about..........All my news so far has been good and all path;ology is in..........other then the oncotype test........that will take longer he said about 10/14 days , but he expects that to be good too..................
Well ladies it is a beautiful Sunday morning in, Drexel Hill, Pa........the sun is shining, Spring is here, and we are on our way to a new beginning..............And my new baby great-grandaughter, is coming home from Children's Hospital today..........the first time with us since she was born, and rushed there for problems...........My son, and her got good news too...........after 11 days at CHOP, they have found every test negative, and her outcome positive......God is good.
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Good morning ladies! I'm 31 yrs old and I was diagnosed with invasive ductal carcinoma on March 10th....2 days before my wedding reception! I am having a radical bilateral mastectomy at 11:30am and I am finding it very hard to sleep tonight! This has truly been an emotional rollercoaster for me and I almost slipped into a state of depression! I have been praying very hard and God has opened my eyes to a new beginning for me! I wish all you ladies the best on your journey to recovery!
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I am new to this and find I don't know where I fit in. I have read many posts in different threads and see some who have had lumpectomies, mastectomies, some have chemo, some have not...I feel confused. It is suggested to me by my oncologist that I have chemo I have IDC 2.2cm, that it is grade 2, ER pos, nothing about PR or the other. I had SNB with neg nodes and clear margins. i was expecting only radiation plus AI for 5 years I see women it seems with less than I have mastectomies and chemo...am I missing something as I feel chemo is overkill in my situation...please any help here would be greatly appreciated
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Hi ladies,
I was diagnosed last feb 21, 2011.....stage 4 mets liver and bones....I am having hard time dealing with it as things happen so fast....I am only 32 yrs old and have a 9 month old baby...it breaks my heart not being able to take care of her bec of pain in my hips and shoulder. I am supposed to have my first round of chemotherapy tomorrow but I wasntfeeling well so my dh reschedule it next it. I hope I am going to make it through...
@kymm hi.. Which hospital are you going? I am from calgary and will have my treatment at tombaker Hosp. -
Oh sweet angel I am so sorry to hear this, big breath girl friend, this wont be an easy road but you will have all of us to lean on for support and there are lots of really positive stories out there.Treattment is better, you can and will fight this beast. I will PM you with my personal info
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anniedd: I'm trying to figure out exactly where you are in the process. Biopsy, but no surgery yet? It is frustrating and confusing, especially at the beginning. And everyone's history and medical path seem a bit different. I chose bilateral nipple-sparing mastectomies and didn't see the oncologist until after my surgery. She discussed my Adjuvent! Online profile which used my pathology info (grade, stage, ER/PR status, lymph nodes, general health, etc) to "predict" my outcome by taking hormone blocker, chemo, or both. I also asked for the Oncotype DX test to be run to help ease my mind that my choice to opt against chemo was the right one for me. That is a genomic test run on your actual tissue, but is only used for patients who fit a certain set of criteria regarding stage, etc. That ball just got rolling for me and it apparently will be weeks before those results are available.
I honestly don't know how or if these two tests are used for non-mastectomy patients, but I am assuming that they are used. Perhaps your Oncologist used one of these decision making tools regarding chemo and just didn't show you the actual chart and statistics? Or, perhaps he/she is just going by experience? If it's the latter I would suggest asking about the Adjuvent! Online and Oncotype DX tests if you need "proof" regarding the efficacy of chemo for your particular case. These tests were designed for the specific purpose of aiding in decision-making regarding chemo.
Hang in there!!!
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tns: Welcome to the "club"! Sounds like your surgery is already underway or perhaps already done. I hope it all went well. Please keep us updated and if you have questions ask away! If you're not sure if there's a specific thread here for your interests there is a search box at the top of the page or you can simply come here and ask. The is an all-purpose thread for those of us newly diagnosed and/or continuing our journey in 2011.
Take care!
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Sweetangel..........I am so sorry this happened to you......There ;is no way someone your age should have to face this.............Good God does cancer not spare anyone............This is what I meant when I said even though I have cancer (diagnosed on Feb.15th 2011) my heart breaks for you young women with little ones...............I am almost 76, my youngest daughter (of 6 children) is 42, and if this happened to her I don't know what I would do.............I just hope and pray everything goes well for you, and that precious baby...........We will be here for you whenever you need someone..........I will be having radiation in 4/6 weeks......Please keep us posted on how you are doing.............hugs and prayers
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Sweetangel, I am from the Calgary area. I have just finished my chemo . If you have any questions or just want to talk I'm here for you. I will PM my info.
Christine
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Just got the call from my BS with my final pathology.. IDC, 2cm, Stage IIa, Grade 2, 4/22 nodes, ER+ just PR-, HER2-. no vascular involvment.
She said the sentinal nodes had microinvasion that is why she went on to remove 18 more but all other were negative. I have appointment with Onc for 03/31/11 but I may not need chemo as I am post menapausal and risk of mets is low... I am happy with the results and hope I dont have to have chemo..
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Just a hello to all ... I've been down for a while and I am almost up and running ... It's amazing how often I think of everyone here ... and it really does get me through.
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Nice to hear from you Fuzzy hope your feeling better soon
Kezzie that is great news, hope you dont have to do chemo also
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wow this a quite board whats up ladies guess we are busy posting in other areas but just in case wanted to say Hi to you all, hope you are having a lovely sunday full of cancer free thoughts
Hugs Kymn
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Hello Kymn - I hope you weekend is going really well!! I'm still kinda in the ickies from round three but ... Sunday is a day to rest right?
Hugs!
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On February 24th I was diagnosed with IDC in my right breast and on March 18th I was diagnosed with IDC in my left breast. I am trying to keep my spirits up and will be having a double masectomy with reconstruction on April 21st but have to say the surgery and the prospect of it spreading has me scared. I do not have a lot of cancer in my large family and never thought this would be one of the issues I would face. My son is getting married April 9th and the doctors have said I could wait till after the waiting but I have to tell you - all this waiting is driving me out of my mind. I have been getting a lot of scans and mri's done since I am doing the surgery a little later but I am in knots waiting to know the results.. Have several friends in one stage or another and sometimes this helps and sometimes they scare me to death. My husband and sons are very scared and my husband tends to talk about worst case scenio and I cannot figure out why. I believe I will get through this and be fine but the getting there is a rough ride.
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Hi Justeasin11,
I am so sorry you are having to join our club, but welcome. We are here for you. To have all of this going on and a wedding in a few weeks. I know this must be incredibly stressful for you and an emotional roller coaster. It sounds like you have a good plan for your treatment - but I know that waiting and anticipating the surgery is the hardest part. You will get through this and be fine!!
One of the best things about this board is that you can come here and vent - your anger, fear and questions - and we get it and will help as best we can. There are so many wonderful women here.
Take care and let us know how everything goes. Thinking of you!!
Trish
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Justeasin - Waiting sucks ... and you have to tell you DH (dear husband) about how you feel with what he is saying. At least have a conversation about it. When this all first started for me, I thought my DH was the most selfish and un-understanding man (seriously) and ... I am eating my words now ... he has become a man like I never knew he could be - so strong and supportive and caring ... so hang in there! This journey, believe it or not, does get better.
These boards, the women here, are the most amazing and understanding people you will ever come across. Stay here - visit often - ask and tell eveeything. There are no boundaries. These discussion boards are literally one of the best things that has happened to me ... and I have friendships that mean so much ... when you need "something", try these discussion boards first.
One step at a time ... HUGS!
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Justteasin , Fuzzy and Trish are so right, this board is a life savor, there is literally a thread for anything you could and will be feeling through out this process and if there isnt you create the thread and within hours you have so many wonderful woman responding ,supporting and offering words of wisdom and advice. I know this is such a hard time right now, the waiting is the worst part. I just had my first round of chemo 10 days ago and waiting to get my treatment started was the worst part. I had two lumpectomies. Are you having to have chemo after surgery? Your surgery date is not that far away please dont stress that it will spread between now and then the doctors would not let you wait if that was the case.
Well welcome even though I know you dont want to have to be here. Our arms are open wide.
Wishing you a day full of cancer free thoughts.....Hugs Kymn
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Justteasin.................I came here for the first time on February 15th after returning home from what I thought was just the routine "redo" of my Feb. 14th Mammogram...........Well my life changed that day when the BS said "I do believe this mass we see is malignant..........he couldn't feel it...........he couldn't even find it, but looking at the ultrasound he said "see the starburst, that tells me this is malignant"..........I was alone.........why wouldn't I be.........this was a routine repeat........I had it done before.........nothing ever came out of it, and I considered it a huge waste of time just getting called back.............Not this time......and that was the day my whole life changed..........I had no husband.......he died 19 years ago of Pancreatic cancer, but thank God I had my 6 children, and 18 grandchildren who were my saviors.........The support, love, and constant side by side companionship was tremendous.............I never felt so loved..........The waiting was horrible........however my BS had everything done in 1 month.... Each day I saw someone different.........Onc, Rad., Onc, Biopsy, and the surgery.............I was fortunate, as I hope you will be too.....................My BS was right about the mass being malignant.......but he misjudged the size (although he told me it could be bigger or smaller)............It was smaller.. He thought about 2-2.5 cm, but it was only 1.1cm..............that was wonderful news.........I will be starting radiation as soon as my surgery heals. Not sure how that will go, because I am not a spring chicken (75), but I am going to try to stay positive...
You could not be in a better place then right here on this website.......I found comfort, compassion, information no matter what time of the day .........These women are from around the world, each with their own story to tell.....................Visit often, pour your heart out....I could not have done this without them.........Stay positive, and remember..........you have cancer, it does not have you................I lived by that until after my surgery, and I was finally rid of the Beast...........Now I say "I had cancer, it did not have me............hugs to you...
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Hi Girls! So happy to see so many Canadians on here; I live in Calgary.
I have recently been DX with DCIS on January 14th at age 42. I went in for a lumpectomy on March 9th. The margins were not clear on the pathology report and the BS wanted to do a second lumpectomy... until I asked a question.
When I had the wire localization done the radiologist made a comment about a large amount of calcifications. I asked the BS about this and he went to get a second opinion from another radiologist and the results came back that I had to have a masectomy.
I am just researching all my choices, going for a second opinion on the 5th of April. I have a feeling the doctor will tell me the same thing since the calcifications are 9cm.
Definately going to see if I can have a MRI done, seems like this is more of an option in the States than here in Canada. I would never have known to ask if I had not found this site.
If I have to have MX done, I think I will have a Bilateral Masectomy (with Nipple Sparing). My breasts have always been on the lumpy side so it made doing self exams impossible, and I don't want to go through this again in 10 years.
I'll keep you posted! Thanks for listening.
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I'm so sorry that this has happened to you, and I know how you must feel. Cancer seems to be the most inconsiderate of diseases with the worst timing in the world! My fiancé and I were going to get married and go for our honeymoon in a week and I had to cancel everything which was devastating, but we got through it! It has been 6 weeks since my BMX and I've had 1 chemo session and I feel perfectly fine. The surgery wasn't fun, but with the support of my family and some good pain management it was bearable and now feels like it happened a million years ago. I went to a Biokineticist 3 weeks after surgery and she gave me some great exercises & stretches to do to get my mobility back and that really helped make me feel normal again.
Just remember that your doctors are experts in these matters and they wouldn't put of surgery if they felt that it would put you in danger, but I know it's hard to not worry. Try to restrict your intake of cancer-related info. I found that too much info made me feel worse. When you do have questions, I found this website very helpful: www.macmillan.org.uk. They list topics from talking to your family/employer/child to what foods to eat and more. The information is also not too overwhelming.
Good luck with everything. I'll be thinking of you!
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Hi selfmedicatinggirl -- I noticed in your comment below that you are doing chemo AFTER a mastectomy... my mom has IDC, Grade 3, ER+, PR+, HER2- and she wants to do chemo after surgery as well. But her oncologist keeps pushing for chemo before, despite the fact that she has no indication that the cancer has spread (but her Oncotype and Ki67 scores wer high). Two other oncs that she has seen for second opinions tell her the chemo can be done before or after surgery -- either way will be fine. Can you tell me what led you to decide to do chemo after? Was it recommended by your onc? I am just trying to understand the pros and cons.
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Raven2011 - Poor Girl, another young one. I live in Halifax and I had no problems at all getting a MRI in Nova Scotia, so I cannot imagine you having a problem in Calgary. I know how you feel. It seemed to me that each appt I had, the news were worst and worst. I finally had a double mastectomy with immediate reconstructions. These days, reconstruction work is amazing. Courage girl, we are all here and lots of us have experienced what you are going thru. This is a great site. Hug.
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Hi pp729 - I was never offered the option to have chemo before surgery.
My breast surgeon & oncologist gave me the option to have radiation before the surgery to reduce the size of the tumour so that I could have a lumpectomy instead of a mastectomy. I would have had chemo afterwards as well with this option. It could be that they want to shrink the tumour before surgery?
I chose to have a bilateral mastectomy because I wanted to prevent recurrence in my other breasts, so radiation/ chemo before surgery wasn't needed.
I have no idea which is the best route or what the pro's or cons may be with each. Have you asked your Oncologist why she/he thinks chemo before surgery would be more beneficial? If other doctors feel that either way is fine then I would do what your mom feels comfortable with. It can sometimes feel like you're being pushed around during this whole thing. It helps when you feel you have some control & choice in the matter.
Sending all my best wishes & strength for this journey! This part was the scariest for me, so full of the unknown. Offer her that extra bit of love & support (I can see you are already) during this time. My family has made all the difference during all of this.
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Hi pp729 -
Think it's great you're researching for your mom and thought I'd share my situation. I am having chemo currently (AC x 4 then T x 4) and then will have surgery. Originally expected the reverse but when I met the onc, he recommended doing things in this order. His explanation was that there was a study in 2003 where they were trying to figure out if pre-operative chemo would reduce the likelihood of recurrence. (you can look it up at ascopubs.org - pre-operative chemo for breast cancer: lessons learned and future prospects.) They found that it does not impact that BUT those that had chemo pre-operatively who ended up having a recurrence had an "extended disease-free interval". So while he and I are hoping I don't ever have a recurrence, if I do it should be further into the future... I was really thrown for a loop when I met with the onc on Feb 25 and we shifted from surgery to chemo first. In hindsight I think it's been a blessing. I would have already had my surgery and would have been a Mx of the R breast. Now that I've had more time to consider things, I'm strongly leaning towards bilateral Mx (am 99% there...) because I want to reduce my chances of ever having to revisit this process and having endless stress every 6 months when my L breast needs alternating MRI/ mammos. I will also say that my BS and onc have a similar approach which is focused on hitting my cancer with everything in the arsenal because I'm 48 and they want me to deal with this and never have to deal with it again. Some with the chemo first are able to do lumpectomy vs. Mx. That's not my case. Since I have 2 masses in 2 quadrants on the R breast, Mx is what's being recommended. Hope this input helps. We each have to weigh our own options and I think having your mom have a lot of faith in her medical team is a huge piece of the puzzle. Best wishes to both of you.
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Thanks selfmedicatinggirl and silia for your perspectives on chemo before or after. Spoke with my mom's onc again by phone today (she's in another state than where I live) -- he originally wanted her to do chemo before surgery. The primary reason for chemo before surgery has always been to shrink the tumor, but my mom already had an excisional lumpectomy so there is no tumor remaining -- only margins left. (Many people have an incisional biopsy and tumor as well as margins are remaining, so chemo does help to shrink the tumor in that case.) And, there is some thought about the 2003 study that you reference.
However, he spoke with an onc at MD Anderson and they agreed that chemo after will be fine for her. This matches what the second opinion at Fox Chase gave us and also what a third onc. gave us. So we are moving ahead to schedule a mastectomy, then chemo. The mastectomy will give the onc information about her lymph node status and will also give another patholgy report, so they can select the chemo type depending upon what they see -- they are considering FEC or TAC.
She is anxious to get to surgery -- after over 10 weeks of waiting on various tests and second opinions, etc. Thanks again for all your insight.
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Haven't been on in awhile, I guess just a little depressed over this whole thing. The long wait is finally over and my surgery is scheduled for Friday morning. I am having a bilateral mastectomy done, with recon.. One more doctors visit tomorrow for die injections and then Friday maybe some kind of relief.
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Carol6026, good luck on Friday!! We will be here for you, so let us know how it goes!
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