THE WIERD ZONE!!!!!!!!!

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  • Christine2000
    Christine2000 Member Posts: 176
    edited March 2011

    I have wine every damn night-- figure I deserve it!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2011

    I totally get what you all are saying.

    image

    Barb

  • BeachyQueen
    BeachyQueen Member Posts: 11
    edited March 2011

     Ladies,

    Finally, I have found other survivors with whom I can make a real connection to!!!!!!!!!!! I have all of these feelings as well. The anger and resentment and sick of all the pissy "compliments" at looking good, being an example, so strong..........." makes me sick! Also, I want more than anything my old carefree life back. I feel so robbed! So cheated. I trusted so inherently and followed all the damn rules and jumped through all the hoops only to have my cancer recur and now I have to hear all over again " you will be fine". I will punch someone if I hear this again!! I have never felt more betrayed than I do right now. I have a terrific family and my sons are young men so I don't have to deal with not seeing them grow up but I am at empty nest syndrome and now our sex life is non-existent. I too, owe  money on a defaulted student loan that I have never been able to repay. I didn't even graduate with an A.S.! I can't move forward with my career now because I cannot get any transcripts.I desperately want to make a career change but if I quit my job we will suffer from all these hospital and Dr. bills. We were saving to buy a house too. I feel like if I follow my heart's desire the financial burden will be so great on my husband that we will drown in debt and be miserable. Also, I was fired from my last job and consequently let my life ins. lapse thinking that I would be fine and lots of time to get more. LOLUndecided  Well, now once again I am so burdened with guilt and unhappiness, I feel stuck in limbo and cannot move in any direction...

    Deborah

    Kathleen and Clariceak,

    We are kindred spirits!!!

  • Texas357
    Texas357 Member Posts: 1,552
    edited March 2011

    Deborah, my heart goes out to you. I hope that things resolve for you soon.

    The Wierd Zone is the new normal,isn't it? I can so relate to wanting to kick people in the shins for sending me pink ribbon emails and Facebook posts. I said from the minute I was diagnosed that I would never let BC define me, and I've never played the "cancer card" to get sympathy or get something else I want.

    I'm mostly over the anger now, until I remember something that I used to do (or the day I had to toss my low-back bathing suit because of the huge LD flap scar across my back).

  • Moissy
    Moissy Member Posts: 550
    edited March 2011

    Reading Stephanie's post and everyone else's comments reminds me why after almost 7 years  I keep coming back to this place where we all get it. Rant on, all!

    Moissy

  • Monty
    Monty Member Posts: 197
    edited March 2011

    I can so relate to eveything everyone else has said on this thread, even my onc calls me her "poster child" for breast cancer, so why don't I feel that way?  You are right about everyone else in our lives believing that we have oversome this thing and we can just move on with our"normal" lives.

    My car lease is almost over and I have to decide what to get next, my biggest worry is will the car out survive me?  I find I am still after 3 years afraid, not sure if that's quite the right word to use, of getting into any long term commitments that could leave my husband with a financial burden if anything was to happen to me.  I tried to explain this to him and he just doesn't get it!  He's very supportive etc but he just DOESN'T GET IT.  I find planning for the future puts me in turmoil and I don't know why - all recent tests show NED but what if ..... You get it right? 

    I do not feel guilty if I have a drink at least, enjoy life while you can.

    I want to be the positive person everyone believes I am, if only they coudl get inside my head for a few moments and understand the real me.  They all assume that I am over this thing, a cancer survivor without a care in the world - and I want to be but....

    Thank you for starting this thread I was beginning to think I was the only person out there who feels this way.

  • 37antiques
    37antiques Member Posts: 643
    edited March 2011

    There's a lot of great posts here!  In every one I have found something I identify in.  Girls, please, so many of you feel guilty about so many things, please don't.  I never did anything wrong to get cancer, never had the unluck of the gene pool, there was nothing at all.  So if i want a glass of wine, so be it.  I don't bother about exercising, I have 6 kids and if doing their laundry and cleaning the house doesn't keep me in good enough shape no extra trip to the gym will.  I am me, I am different, my feelings are valid because I have them.  I don't feel particularly strong, or like an accomplished survivor, I feel worried about insurance, money and rebuilding.  I worry there may have been a scar planted in my kids brains from mom being bald or sick.  It took a lot out of me, a lot from me and damaged just about every aspect of the life I had built up. With me, we know I will get cancer again, it is just a matter of when, so I am always going through checks and tests and pokes, and I feel like it's a huge innconvenience on time, travel, and schedule, and nothing irritates me more than a stupid doctor!  Fear? yes. But guilt?  Never!  I have today, tomorrow will bring what it will and I know you girls are here and will understand if I rant.  I am different, not because I am strong, but to be quite honest, I just don't feel I want to put up with all the BS I used to!  The only thing I ever said to myself (and still do) to help me is - God gave this to ME because if he gave it to (Mom, my sister, my friend...) they would not be able to handle it, and I can.  You are right imbell, we should all emulate our husbands!  Whatever will they think!

  • faithfulheart
    faithfulheart Member Posts: 544
    edited March 2011

    Sue, your attitude is great!  No guilt I love it, WOW, six kids!  I have 2 and I'm tired.

    I have a question for you though, You said in you post, " I know I will get cancer again it's just a matter of when" Why do you feel that way so strongly. Your signiture does not show a stage IV

    statis? I'm just curious, woman,  lots if woman never have a reacurance. even with my prog. I

    feel, and pray, we got it for good. I do believe it is very possible for us stage 3 gals to stay in remmision for life. If I'm not over stepping, would you write back, or pm me , and let me know why you feel this way so strongly, it's been bothering me, for you. I don't want you to feel that you

    can't dance with NED for the rest of your life!

    God bless you, and your big beautiful family!

    Steph

  • 37antiques
    37antiques Member Posts: 643
    edited March 2011

    Hello Steph,

    I know lots of girls have a really good prognosis, I didn't mean to worry you!  For me, after my treatment they told me I had an 85% plus chance of getting cancer again.  I'm not sure how they mix everything up and come up with the numbers, there must be a secret formula somewhere.  They never did stage me, the surgeon couldn't find my nodes.  Maybe they're wrong, maybe they're right, but whatever it is, it's Mine!  

  • faithfulheart
    faithfulheart Member Posts: 544
    edited March 2011

    Sue, thanks for responding, your amazing!!!  Remember that we are not statistics, we are women who got bc, early, middle or late , it is what it is, your right. Dr's don't know it all, we know that too! Your going to be a little old lady, I just know it! With lots of grandchildren, to say the least!!!!

    Hugsss to you, and lots of blessings along the way,

    Steph

  • alamik
    alamik Member Posts: 113
    edited March 2011

    The Weird Zone!! Sounds like a game show and it's exactly how it feels sometimes. Pick what's behind door Number 4 or door number 3.... I guess I picked the wrong darn door! I keep  waiting  for someone to step in and say "This was only a test. You passed, so now it's over". I keep waiting for the re-do button! Seriously? this is it? This is my life now? I wasn't ready for this. I want my old life back. Is this all there is? Future plans? I can barely think of planning a week ahead. Anytime I get asked to do anything, my response is always the same... "It depends on how I feel that day" No more hanging out at the karaoke bar singing really bad karaoke, no more going out with friends, no more intimate date nights with my incredible husband, no more nothing. I get out of the house on chemo days and for doctor appointments. On those days, I wear real clothes and make-up. The other days, I spend in my comfy clothes made up of pj bottoms or sweats and t-shirts. When I do leave the house with make-up and my wig, heaven forbid that I get a compliment, because in my head I'm thinking "wow, if you could have seen me a few hours ago, sans wig, make-up, and regular clothes, with my bald head covered by my sock hat, and my eyes circled by dark rings, I would have scared the daylights out of you!" I walk around in this unattractive shell of who I used to be and I find it harder and harder to find my true self anymore. I know how bad I look, so when someone tells me how good I am looking or how I am handling my chemo so well, I just want to scream. they don't see me puking every night. They don't know that I keep my puke bucket at my bedside. When they tell me how strong I am or that I inspire them. They don't know just how strong I have to be just to get out of bed on some days. Yes, I'm strong because I have to be. This is the life I am living, but it's NOT me. But since I am the only one that can live my life, I have to do it because I don't like the alternative. My friends wear their little pink ribbon t-shirts to support me and it honestly just makes me sick. Cancer is not Pink and pretty. It's ugly and raw! It's engulfing and stealthily stealing away my normal life away from me. Cancer is the host of the game show of the Weird Zone. I am just the contestant. I just have to make sure I win the big jackpot instead of the elimination prize.

  • 37antiques
    37antiques Member Posts: 643
    edited March 2011

    Aw Alamik!  (((Hugs))) This doesn't define you, just what you have to do today!  No matter what you wear or how you look, and no matter how many times you have to use your bucket, you are still here, you still love your husband and feel passionately about things.  My mother bought all the pink crap, made ribbons, brought a pink ribbon cooler to chemo, and seriously, I do have pink sneakers!  It made me sick to see it all (and still does), but thank goodness you have your husband and your friends, they don't know what it feels like or what to do, but they are There.  Just being able to rely on your close supporters when you need them, even if it's only a hug is tons better.  My clearest memory of chemo is a few days after a treatment, everything tasted horrible.  My mother came over and made my favorite dinner because I wasn't eating, and I couldn't eat it, it tasted so awful to me, and my doctor told me with brute honesty that some people never regain a proper sense of taste.  I sat on my husband's lap and cried...strangely enough, that is my best memory, because they were there and supported me.  It wasn't because I had hair, or wore makeup and was wearing nice clothes, it was because I was still me and they still loved me, no matter what I looked like, if I lost body parts, taste buds, or anything else.  This is a rotten thing to have and to go through, but it does not define who you are, and you do not have to lose yourself because of it.  You can never go back, but moving forward is so much better!

  • faithfulheart
    faithfulheart Member Posts: 544
    edited March 2011

    Alamik,

    I love the game show comparison ! its so true!  NON OF US SIGNED UP FOR THIS. I will tell you I could have written your post, when I was in chemo, I would stick that wig on, make up,  you know one day out of the week I would get myself together for my journey to chemo. My mom would go with me, and tell me how good I LOOKED AND THAT NO ONE WOULD EVER know the true hell

    I WAS EXPEREXING! The rest of the day was the same,  you look so good, you would never know

    you were in cancer trearment. Let me tell you all a little secret, this really helps the people around

    us, It makess us feel fake because if we look like we feel, we would get lots of pitty, which b y the way, sometimes thats a good thing. Let people know this is not as pink as they think!!!

    Here's the deal, this is temporary, you will be done with treatment before you know it!

    You will have intimate dinner's with your husband, and you will sing cheeses songs again!

    This I know, because, although I am not the old me I am the new better me, and you will be too!!

    Stay strong, this will pass, we are all  here for you every step!!

    None of us ask for this, and  I  think it takes along time to move forward, but you will sweeti, and

    there will always be days the anger comes back, or whatever. Thats when you come to the wierd zone!!!!! thats what I  call it because thats how it feels!!

    LOTS OF BLEESINGS!!!!!!

    Stephanie

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