Taxotere is a nightmare

Options
1343537394066

Comments

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    Christine,

    I had lots of sternum and rib pain on the MX side with TE especially after treatment.....what I discovered was some "cording" on the trunk, though barely there, and it made me really sore...but I didn't "see" it until about the 4th treatment.  You may be developing cords, Mondor, or LE.

    Have you asked to see a LE specialist?

  • christine47
    christine47 Member Posts: 1,454
    edited March 2011

    I actually had some cording (on chest), that is resolving.  I like my PS, but can you believe he said he did not know what it was.  When I mentioned Mondors, he said " I treat that and thats not it". I am post 4/6 TAC, with each round my pain is worse, but seems to resolve before the next.  I do not see him again until post chemo, will talk with my onc next week at f/u appt.  In the meantime taking vicodin as needed and hot shower seems to help some. 

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011

    Shooshoo----Lago and N3ybp said it before; there must be a way to work this out. Try requesting an appointment with the chairperson of your department and explain the situation. Also, talk to a financial aid counselor at your school or call the FAFSA's 800 number. This is an extraordinary situation; you were fighting for your life. There is a way out of it. I couldn't start my master's degree program last fall either.  I hope to return to school next fall.

    Question: I had a very emotional day today. I still cry once a day every day. Does anyone have similar, post Taxotere side effects? Just wondering.....or maybe I am the only one.

  • lago
    lago Member Posts: 17,186
    edited March 2011
    Survivorwoman it might be mood swings or depression from chemo-pause. You should talk to your onc about this. You might need a mild anti-depressant till your hormones stop driving you crazy… or some counseling. This isn't uncommon.
  • tracie23
    tracie23 Member Posts: 598
    edited March 2011
    survivorwoman, I cried everyday Cry I think it goes with the territory ..... I still have hard moments but I am 5 weeks out from my last chemo and feeling so much better. The one thing I hate about this cancer thing is it will never go away we will never be finished talking about it or dealing with something that has to do with it. I do take ativan it helps. I don't take it every day but you know when your day is going to be emotional. I hope you have a great day sending hugs your way !!!
  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011

    Hi Lago + Tracie : Thank you for your encouragements. Lago: I am certain it is a mild depression that I have, yet I am reluctant to take antidepressants. I am depressed b/c I lack social support, as I have no family here only a husband who is not really there for me. And it gets overwhelming sometimes that I have to work to make ends meet, and also have get the treatments. Tracie: may I ask you how many Ativan do you take a day? I took one this morning and yes, it does help. Do you take it regularly? I am not taking it every day, only when I cry very hard. Like this morning.

  • coni111852
    coni111852 Member Posts: 419
    edited March 2011

    survivorwoman - Yes I get that too, but me is not just crying its weird one day i could cry and cry and little things will make me cry, then out of no where, my husband will say good morning and that will just get me sooo mad!, last chemo i just cried and cried and cried..I just could not stop..my husband was so scared cause i could not stop crying...out of no where i was lying on the couch and just started crying....i though maybe a combo of steroids, my body just being tired and chemo-pause...I dont know...seem like you are going through a lot too is not easy going through cancer with the support i can only imagine how hard it is not having that support so that also must play a role with your depression...what im doing is writting a journal, write all your emotions in there and what you feel, i find it helps, also helps chatting here with ppl but sometimes we want to write something and just keep it to ourselves also, i dont know if you like painting but i just bought those painting by numbers also helps keep your mind busy and you accomplish something as well, sometimes when im having a bad day a grab a pillow and just punch it until im tired lol is another way to burn that steam off hehhehee it helps me a lot..

    are you almost done chemo? i just want time to fly by and put this behind us all, i wish it was already the 5 yrs and we all say its completly gone no more cancer....but we need to keep positive and live our lives to the fullest! enjoy what we have here at the present time...i hope you feel better soon...I dont know where you are but think summer is coming and the sun will be shinning on our bald heads lol...(hopefully by then we all have some hair, i cannot wear a scarf or wig too hot)

    Tracie - you are so right I wish this cancer was a one time thing, kk we had cancer and is over now,  but is not like that, we always have to worry about it..it sucks it really does suck...

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    I take TCH on Tuesday.  I am more "sensitive" (agitation, sad) on Thurs, Fri, and Sat.  I try not to engage people too much because I get aggravated easily.  Doesn't always work out though.

    Hang in there survivorwoman.  I'm rooting for you.

  • imbell
    imbell Member Posts: 659
    edited March 2011

    Let's face it chemo sucks and then there are the side effects. But I have a role model, my DH has lived with heart disease since he was 51. Add bypass surgery, stroke and prostate cancer and you would think he would just give up. Nope last December he had to have a stent inserted. The doctor asked us if we wanted to sign a DNR. He is skinny as a rail but he is back, bought a truck, still driving, still haunting Wal Mart and feeding all the critters from the neighbourhood. He is 74, lives with spinal stenosis but just keeps going. And he told me he doesn't want to be left alone so I am fighting on but also trying to live. Whenever I want to do something outrageous I say it is on my bucket list. Best of luck to you in your treatment and may the hurdles be small.

  • tracie23
    tracie23 Member Posts: 598
    edited March 2011

    survivorwoman, I take 1 to 2 ativan but I don't take it daily .... If my mind won't stop racing than I take it or if I have to pay bills that day I may take it, there are days I take it for 3 days in a row and than won't take it for a week it just depends on how I am feeling. Right know I am so stressed over the health ins and I still haven't told my husband because I feel so guilty that it is even happening if I didn't have cancer we wouldn't be in this situationCry Everyday I feel like I may have a heart attack. IT SUCKS !!!!!

  • tracie23
    tracie23 Member Posts: 598
    edited March 2011
    coni, it is in the 80's here in Houston and this weekend I was outside doing things and forgot to spray my head... I was very red .... I just didn't think about it. But you are right the wigs the scarfs are all to hot, I have resorted to a baseball cap and even that gets on my nerves but I look so bad with the wispy gray hair , I am a cross between an emu and a coconutFoot in mouth
  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011
    Thank you Tracie, Coni, Imbell, TonLee and others. I am so glad that I have you Ladies in my life right now and that you all are telling me what I am going through is similar to what you

    experience. I am relieved to hear it. I have a lot to figure out in my life, but don't we all?

    Coni: I am done with chemo actually. I has been 6 weeks since the last chemo, but I am still going through some heavy duty emotional stuff. Thank you for the great ideas: painting, writing down my emotions, etc. I have not done that in a while.

    Tracie: thank you for sharing your ativan intake. I do it similarly. I am just so afraid to take it daily, I don't know why.... it is supposed to help me, I guess.....   Oh...and Thanks for making me laugh... I like emus .... I guess, I look like one too,then.

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011
  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011

    OK -- I don't think I have that much hair as the emu above.

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2011

    Ok Ladies.. no getting down...and most of us WON'T be dealing with this forever... we will do what we have to do and then we WILL put it behind us... I am determined to have an end date... For me, I look at the first end date as end of chemo, then second end date as end of either rads or MX, and then last end date is the day of last hormone therapy... after that we monitor but we don't obcess. I know that everyone has a different diagnosis and different dates, but even stage IV ladies have to have dates to aim for... chin up.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2011

    survivorwoman - the first Rx my onc wrote was for Xanax.  He wrote a 90 pill supply with 4 refills.  That is a year of Xanax!  Everyone in his office kept pushing the taking of Xanax.  If I didn't know better I would swear he owns stock in Xanax!  I have never taken it,  although I did fill that first scrip it is still sitting in my basket of stuff - but the thought behind it is that it is ok to take it if you need it.  At that first appointment with him he spent some time talking about how this diagnosis takes the same emotional toll as divorce/death of spouse or child or parent/house burns with all your stuff in it, etc.  He also said it will take at least two years to feel like life is some semblance of normal.  I was actually impressed with how concerned a surgeon was over my emotional state!  Normally they are kind of hard-charging and not warm and fuzzy at all - he is different.  The upshot is, if you are feeling fragile/mad/sad/whatever -take the meds.

    I must say that the emu's expression and hair-do is what I am looking at in the mirror most of the time!

  • marjie
    marjie Member Posts: 1,134
    edited March 2011

    Survivorwoman - where did you find that picture of me????

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011

    SpecialK +Marjie -- you are also so sweet. Thank you for making me smile. I am feeling better after reading your posts, too. From now on........I will say yes to the meds.

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2011

    Bdavis -- you are soooo right, too. I should have end-dates. Those would help greatly.

  • pejkug3
    pejkug3 Member Posts: 902
    edited March 2011

    Oh, the end dates are keeping me SANE.  I'm going to be pretty sad if anything changes my June 9 chemo end date.  I've already told the onc that it is on my calendar so it's a done deal. 

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    Survivorwoman, thanks for the laugh today! I needed one! Laughing

    I have taken xanax for anxiety, thought of it as my "alcohol in a pill" form since my MO said I should not drink.  I took it more often during the week before chemo, but have not taken any in over 6 weeks.  It seems that every med has SE of fatigue, depression, and headache, so I have been discontinuing all meds except ambien over the past few weeks and the foggy thinking has finally lifted.  Now I am just bored and depressed, but that is better with some mindfulness-based meditation rather than meds, and has much better SEs! But I keep the xanax as a "just in case I really need it" and most days am OK with the meditation approach. And I have decided quality of life demands an occasional margarita or glass of wine - total abstinence is just not worth it!

    I have been on this cancer trip for 9 months, am a little tired of it, very bored with it, and wondering what to do now that I have met all my "end dates".  I did surgery and chemo, refused rads, tried tamoxifen but had to quit due to SEs, now am just left with the neuropathy, fatigue, and inabiltiy to get warm except during hot flashes that make me nearly pass out. I am looking forward to traveling as soon as the semester ends, hoping I am in good enough shape to do my solo road trips that I love.

    As usual, too long.... just wanted to let you all know that I appreciate your comments, and that I am keeping you all in my heart and sending hugs to each of you.

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    n3ypb - How is your neuropathy?  Mine actually got worse in my fingertips after I finished chemo.
  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    By the way, here is a picture of me "Assuming Command" at the beginning of this stage of my live.  Sorry I could not get it to re-size smaller - am just learning to use some of this technology!

    Mission: Survive to Enjoy Life

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    Omaz, the neuropathy has not improved and has actually maybe gotten a little worse.  I find that tapping fingers or chewing a lot of crunchy things makes it worse. I tried Neurontin but my brain got so foggy that I felt I had to choose between thinking or doing anything with my hands.  The good news is that my fingernails are finally less painful - the "hammered nails" pain is much better!  I also find that symptoms are worse if I get very tired, so am trying to get the rest I need and symptoms are better.  My physical therapist keeps telling me that it WILL get better, I just need a little more patience!  Hah! And mindfulness-based meditation is also helping a lot in allowing myself to be present in the NOW and not be so worried or fearful about the future (also something that is difficult for me and a lot of others, I suspect!).

    Smile

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    n3ypb - Great Pic!!  Mine also gets worse when I am tired, at the end of the day.  Takes a while I guess!
  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    AWESOME N3y,

    We'd make real life buddies for sure!!

    You're beautiful and tuff.  My kinda gal pal!

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    TonLee - What is your avatar a picture of?  I can't make it out.
  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    It's a tree...

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    Tonlee - It looks surrealistic.
  • sandymess
    sandymess Member Posts: 299
    edited March 2011

    Survivorwoman: Except for the eye color, that emu looks just like me! Although, my hair may not be quite as long, it sticks out exactly the same way!! I have found that writing in my journal every morning while I drink my first cup of coffee, really helps me get rid of a lot of my 'ugly' feelings.



    N3y: Great pic!

Categories