March 2011 Rads
Comments
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doreyme~ I'm an April rads girl, too...was supposed to be a March one, but it got pushed back because of a 2nd lumpect. I really appreciate all of the advice on here, helps me to prepare.
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Hi everyone,
I just finished chemo on March 8 and am starting rads April 4, any advice in preparation? I've been reading your posts about after tx. How long do you wait to put the creams on?
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thegood5:
How many treatments do you need? I am getting 33. Did you have chemo also? I had 4 rounds of cytoxin and taxotere. So glad to be finished with that phase of this journey! Now it's on to rads then tamoxefen. Look forward to sharing notes with you on our upcoming rads experiences.
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20/35 Done. Only 8 more until the boosts
A very warm welcome to all those joining this board. I was so very nervous about SEs. But have found that for me I can handle them pretty well. Told my Doctor today I was having a Margarita on my last treatment day. He said that sounded good to him:-) So looking forward to April 12th..
Have a great day!!!!
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15/33 done. My skin is pink now and a little itchy.
Gymnut.....never say "only" when you are talking about your diagnosis! This is for sure a different but still difficult journey for everyone.
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Hello and welcome to our newcomers!
I have to say, I am SO jealous of those of you who are ahead of me. I want to be done with this so badly! ;-)
Marjie, you mentioned that the skin on your face got really dry from chemo. My facial skin has been dry and leathery for about a month and I didn't realize it was probably from chemo. Thanks for pointing that out. Maybe I'll see if I can find that Glaxol stuff because my regular Olay is not doing anything to help.
Take care everyone! I'm off to have #5 treatment out of 33. -
I'm officially halfway through today - 17/34. Am beginning to have fairly severe burning at the side and under my armpit. Everything else is holding up well, other than appearing to be a little swollen. The fatigue is really bad this week, but not sure if it is the rads or the fact that I have not really missed a beat at work except during surgery. I'm sure ready for a break now. Hope everyone has a good day.
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doreyme~ I had 6 treatments of TCH, will still get Herceptin every 3 weeks for as long as it works for me. In the past month I had a lumpectomy and SNB, a sternal bone biop and a second lumpect to clear my margins. I will probably start rads @ the 11th of April. Have to have 4 weeks of healing from my surgery before I can start it.
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doreyme: Here's a summary of this thread. I'm sure I've missed something, so if someone let's me know I'll edit it. I know there were some other names, but I couldn't remember them!
Radiation Suggestions
Soap: Basis, Dove: Go for free of perfumes and dyes. Do not use wash cloth and pat dry
Lotions: Look for no dyes, no parabens, as pure as possible...100% Aloe: Fruit of the Earth, RO Suggested: Aquaphor for later weeks of treatment, Other Suggestions: Glaxal, Baby Aveeno, Miaderm (purchase on Internet) Boiron's Calendula (lotion, cream, gel)
Later weeks it's possible to get a rash. Having Hydrocortison cream on hand is helpful.
Always go in clean and lube when you go out. Lube 3-5 times a day
Treat your skin delicately. It's being assaulted!
Tank tops, Camisole's with shelf bra, Fruit of the Loom front hook athletic bras, Everything Cotton and loose that you can stand.
Buy a yard of white fleece, and cut to fit inside "bras" so something soft is next to rads area.
If you are larger breasted, be concerned about underneath your breast and treat with care.
Consider a "car" pillow to place between you and the seat belt. Also good for post surgery.
Absolutely NO lanolin or oil prior to treatment. Avoid Lanolin during treatment
Do not wear deodorant or shave the rads underarm.
Breathe through the process: Consider counting the timing of the treatments, visualize the "healing" beam. Ask for music to be played and a warm sheet/towel if available.
Consider naming the machine: Bubba, Sparky, The Accelerator, Trilogy
You will have x-rays and possibly diodes (sensors stuck to your skin) used multiple times. They are used for diagnostics on the position of the rads and the concentration of the beam. They help the techs make sure you are treated correctly.
If the position you are in for radiation hurts your arms or back consider taking ibuprofen or something prior to your appointment...ask your RO about this for recommendations.
Enjoy your tattoos if you get them. They little blue dots to add to the constellation of your body!
Drink Lots of Water
Eat Plenty of Protein to help health skin heal
Do not take extra anti-oxidants
Fatigue is real. Plan for it. Some can take naps and be better, other's can't. Try to plan your days so you don't wear yourself out.
Always ask the question that is on your mind. Do not be pushed or bullied into anything. Some of the techs are ridiculous some are wonderful. Do what you need to feel comfortable. This is your cancer, your treatment, your crazy to own and to take care of. Research when you need to. Leave no stone unturned, and never feel shy about posting here! If something makes you uncomfortable, speak up! It's all about you!
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Girl Friday,
Great summary of tips! I want to print it out so I can have it handy. I just finished #6 so I've a long way to yet to go and I want to remember all this stuff.
Concerning real AloeVera plants...My RO said not to use them because of the risk of bacteria or molds possibly being on the plant that might end up causing infection on burned/broken skin. She wanted me to use 100% Aloe gel or Calendula gel (make sure there was no alcohol in it).
I looked up Miaderm and saw it is made of Aloe, Calendula plus a third thing,Hyaluronate. Since Miaderm is pretty expensive, I'm using Fruit of the Earth 100%Aloe, and Boiron Calendula Gel, for now hoping for similar good results.
Anyone else here doing gated breathing? I get xrayed every time to make sure I'm in the right spot before they zap me.
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GirlFriday: Great summary! Thanks for putting it all together for us.
Lee7: You are just one day ahead of me. I am scheduled to complete rads on the 29th of April. Can't wait!!! Good info on the aloe plant use. Makes sense. But what is gated breathing?? Haven't heard that term before.
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thanks so much Girl Friday for the summary....writing down this page # so I can come back to it in a few months!
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Half-way 14 of 28 done, Woo-Hoo! And if you name your machine Bubba please give a middle name. My rep is bad enough
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Hey ladies I started My rads today was. Ok better than chemo so far. All the best to all doing chemo or rads
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Welcome to our journey, sisters! Girl Friday's summary was really good and I especially liked her final recommendations because everyone's experience is a personal one. Though we're all dealing with breast cancer, each one of us has had to ask our own questions and learn how best to cope with what's now going on in our lives. The great thing about this journey is that it is so do-able, so hang in there through the rougher parts and pat yourself on the back as you put each day's treatment behind you.
lee7: Tell me more about gated breathing!
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GirlFriday - thanks for doing that summary!!
16/33 today - noticing this week that I'm pretty tired, needing a nap in the afternoon for sure. It's harder to get up in the mornings too. Still way way better than chemo though! Skin is still a bit pink but no worse for wear...my bras on the other hand are getting ink stains on them from the constant drawing and marking. Wondering why they didn't just make the tatoos a little bigger??
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Girlfriday~Thank you for the fantastic summary! Thank you also for you words of wisdom and encouragement . It was worded so elegantly. It is so comforting to have this support system available to us.
thegood5 or anyone else~did you have a problem with watery eyes after taxotere? It's driving me crazy!
lee7~thanks for your input! I would also like to know what gated breathing is.
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doryme- YES! The watery eyes are awful. Couldn't even see where I was going sometimes! LOL! I'm 7 weeks out of chemo and they are much better. They still occasionally act up, but not too bad.
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Shooshoo23~did you do anything for it or did it just resolve on its own? I've read that it can be a blocked duct from side effect from the taxotere possibly requiring stent placement or dilation. Had enough with cancer tx. Don't really want to deal with another procedure. Looking for hope that it will resolve itself not finding much reassurance that that is the case.
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Hi all - the watery eyes were making me crazy!! I got to the point where I was tripping over things. I had read about the blocked tear ducts as well my onc assured me that was really a non-issue. It stopped almost as suddenly as it started tho and now like Shooshoo, it's just occasional.
I remember grocery shopping with my DH and the tears were literally flowing down my face...he saw people looking so he yelled at me "I don't care if you have cancer, I said NO cookies!!". It was funny...we're evil LOL
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Marjie, You and your hubby are bad! But very funny!!
Doreyme: I had the watery eye thing too. And my eyes twitched constantly as well. I am now 6 weeks out of chemo and they are finally getting better. I thought it would never end! Now it just happens once in a while. Hopefully, yours will do the same.
Isn't this just a never-ending adventure? Whew!
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18/33 Hydrocortisone cream is my friend. I have an itchy rash now. Not so bad considering. I'm getting very clear tan marks where the radiation hits. My nipple is less sore and swollen than the first couple of weeks, but now it resembles leather. I think I'm going to get one of those BC awarness license plates that says TUFFNIPS
I keep singing that song by Elton John Benny and the Jets....She's got electric boobs, a mohair suit, you know I read it in a magazine Ohoh! Mmmmarcy and the rads. Of course I make it all about me
I'm envious of your naps....I can't seem to take one, and if I do actually sleep I wake up so groggy I can function less than before the nap.
Lee7: I asked about gated breathing this morning. The techs said they don't do it for BC, but they are starting to work it in for lung cancer.
Marjie: That is awesome...I'm sorry you didn't get cookies! My beau and I are constantly talking about how things are the "breast" ever. And occassionally when we're out in public, he'll grab the pink ribbons and say, "ribbon marks the spot!" as he places it on my right boob.
Hey all! Do you think at the end of this,we should do a "weekly" summary? Like I know basically what SE I had per week, but I don't really know what I'm going to face. It's a daunting process to move forward through something without knowing the true outcome, and I think the techs prefer to keep us in the semi dark sometimes. I the kind of person that wants to know so I can put on the right battle gear, but I know some people just want to go blind....Ignorance is Bliss. What do you all think?
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girlfriday- LOL! You are a breath of fresh air in all this cancer mess!! Benny and the Jets is my favorite Elton song! I will be singing Chchchchchheryl and the rads! I really hope my nipple gets like leather because right now it's miserable if ANYTHING other than air touches it! And I love the summary idea, you're about 10 days ahead of me and I like to know what's coming.
doereyme-My eyes cleared up on their own but it certainly wouldn't hurt to ask your dr. and yes the twitching actually bothered me worse than the watering!
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21/35 done. Seven until boosts
girlfriday- you are so funny and smart. Love your writing style. Sorry about the tichy rash. Haven't had that yet. But my nipple is like leather and huge!
The skin under my breast is starting to feel very raw. But the doctor said miaderm and aquaphor shoulf help. I've been told that they will heal while the boosts are taking place. I took two aleve last night for soreness..
Have a great day all!!
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doreyme~ like they all said, the watery eyes do stop for the most part. Everyonce in a while if I go outside and it's chilly or windy they will act up, and they still occasionally twitch. I felt like such an idiot when I would be out and they would be watering. Ppl would look at me like "awww, poor thing, maybe she's crying because she has cancer". Oh well, let 'em think what they want!
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almost forgot...I took claritin for they watery eyes and it seemed to help a little bit.
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25 / 28 done. Aloe in the fridge has become my best friend, so soothing to my rad sunburn. No peeling or blisters so far.
marjie- I read your dh story before and told my husband, hilarious!
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Lee: I have been looking and looking for someone else who does the gated breathing. I do, too! Not sure if we are doing the exact same thing, though.
Mine is called respiratory gating. It is something very new (well, a few years old) and on a machine called Trilogy. Not everywhere has this special machine. My tumor on the left side was deep, hence the need to get the chest away from my heart duing radiation. Basically what happens is I wear googles to view a grid, follow a grid while breathing and then when the tech says take a deep breath, I breath in and match it to the top of the grid and hold it the entire time during the beam.
I must say... the first few times were nerve racking!! Even the simulations and prefilms were very difficult for me. I sat out in the car and cried that first prefilm/whatever it was day- my arms hurt so bad from being in that darn position for over hour!
Now it's a breeze, even on the film days. Total time in the "position" is only like 15 minutes or so. I think what made it tougher is that I have had a BMX and they are doing both sides so takes twice as long as most gals- chest/underarms/superclavs. And all that preliminary stuff took sooo long- it is a very complicated procedure.
I am 17/26 and then need 8 boosts. The tech said boosts will be a breeze- no gated breathing and they target only around my scar area....I think that's what she said. Anyway, with the boosts I can just lay there and relax and let the machine do it's thing.
Day16 (yesterday) is when the preblisters started- on my upper chest. RO gave me RX and it seems to be helping. I call them preblisters- probably not what they are. Rest of the area is okay maybe just a bit pink. I am slathering on the Miaderm and FruitoftheEarth Aloe Vera like wild. Trying to make it 9 more treatments. The good news is that I'll have Sat/Sun. soon to give it all a rest. I am soooo fair, so this is not unexpected. Just wish it had held off a bit longer. And then maybe it will with this RX I'm now using in the affected area.
Going tomorrow for MRI. Need preventative hyster/ovaries out due to BRCA1 positive. Dr. is hoping to do it vaginally-that's why he ordered the MRI to make sure everything is okay. Vaginal ultrasound was all normal. So this BMX, chemo, radiation road will be a bit longer now with hyster. in early May or so.
Everyone, have a great evening!!
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6/33 done today. I was fine when I left but then went to the store and could feel the energy leaving me. Now, I am so tired. I'm putting on my pj's and vegging on the couch. I'm done!
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I have noticed too that when the energy is gone it's GONE.
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