What activities and hobby do you do during chemo

Options
Healthy_future
Healthy_future Member Posts: 13
edited June 2014 in Stage III Breast Cancer

I'd like to know what you ladies do/did during chemo other than work/cooking/houseworks ?

My wife just had her first chemo last week. She's stopped working and will not go back until the chemo and radiotheraphy.

I can see her feeling down and unwell. She is physically better than last week and not emotionally.

Is there anything that you ladies do at home that help you survive the chemo and still keep your sanity? I just want to get her to do something that is not too physical. Just to get her mind off those negative thougth.

Thanks.

Comments

  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2011

    This is a little physical but I found yoga makes me feel better and helps with muscle aches.

  • SoGr8fl
    SoGr8fl Member Posts: 18
    edited March 2011
    I had very little energy so I read a lot and rented movies.  I also went to a support group regularly and that was incredibly helpful and lifted my spirits. Smile
  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited March 2011

    Hi again,

    Maybe see if her appetite is better mid cycle, take her someplace nice for dinner, or to a park if the weather is good.  Also a good, HAPPY movie helped me.  NO depressing or scary ones!

    Take care,

    Sharon

  • GrandmaBubba
    GrandmaBubba Member Posts: 111
    edited March 2011

    What a wonderful DH. I did cross stitch. Nothing physical about it. The plan was to make Christmas presents, but ...

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited March 2011

    I decided to do my genealogy during my chemo..also taught myself

    digital photography and just plain no brainer knitting..

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    I turned to my art. I did quite a few sculptures in polymer clay (look for the "Creative Cottage" thread on the Depression board).

    My mind wasn't working well enough to do much, not even to read, but the little sculptures kept me sane. And productive, most of them sold.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited March 2011

    I worked full-time throughout chemo and radiation. Keeping things as normal as possible helped me to not dwell on my medical issues. On my off hours, I cross-stitched, read, watched movies, gardened, worked stained glass, and went hiking and walking.

  • Lena
    Lena Member Posts: 1,036
    edited March 2011

    I was totally and completely wiped out by chemo. The fatigue was so crushing that just getting up from a chair, the toilet seat or the couch made me feel like I had run up a flight of stairs. My brain was so fogged I couldn't hold a train of thought for more than five minutes at a time. So, I spent 80% of my waking hours lying on the couch watching Star Trek videos and movies. Housework my ass. When the kitchen sink filled up with dishes (which would take about a week since I live by myself and wasn't exactly overeating during chemo!) I'd get around to doing the dishes, and I took out the garbage once a week, but nothing else. 

    As for that 20% of the time I wasn't lying on the couch watching videos, about 10% I was crying my eyes out because I was so depressed and frustrated. The other 10% was TRYING to do what I enjoyed, and wasn't too successful. It was a major effort to read my email and forums, and maybe answer an email OR write a forum post (I couldn't do BOTH in the same day).  I also tried, but couldn't, play my computer game for more than 5-10 minutes at a time because THAT was too much for me (pre-chemo I used to routinely play that game for hours at a time).  And reading, which I also love -- I tried but nothing would stick. If I put the book down because I had to rest, or get a cup of tea or something, I'd have to re-read a couple of pages prior to the bookmark to mentally find out where I was....So it was just easier for me to lay on the couch watching video because the chemo brain was too frustrating for me to deal with and I'd be back on a crying jag.

    I am NEVER going to do that again! 

  • rystofersmith
    rystofersmith Member Posts: 5
    edited March 2011
    I go to the beach and just sit in the sand and try to relax. painter
  • Heidihill
    Heidihill Member Posts: 5,476
    edited March 2011

    My onc told me I should do the normal things I do. So even if I had to crawl out the door I got myself out and about. I managed that everyday, particularly walking in the woods. Hiking and skiing were also on the agenda on weekends. At night I watched Monk on DVDs or went out with friends. I had family flying in at various times, so that kept me busy. My onc got to meet all my siblings. Plus having a liitle one is mercifully distracting.

  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    Sherri - you might be right.

    I also stayed home from work while going through chemo.  Good and bad days, I got out of bed every morning, took a walk (the length of the walk depended on how I felt), showered, got dressed, even if it was comfy clothes.  This helped so much.  I love to read and just knew I'd be doing a lot of reading, but I couldn't.  My concentration was terrible and if I put the book down, like Lena I'd have to go back a few pages.  I really hated daytime television, so I watched a lot of movies.  I always cooked for my family, but started trying recipes that were a little harder and more time consuming - it was fun.  I also organized my own personal recipes for my family.  On my good days I went to lunch with family or friends, maitinee movies and ran errands.  On my really good days I worked in my garden.  When working in my garden I let my DH handle any chemical treatments I was doing and heavy lifting.  The Spring after my chemo I had the best garden I had had in a long time.

    I hope your wife feels better soon and you're wonderful to try to find her some help.

  • Marple
    Marple Member Posts: 19,143
    edited March 2011

    Yep, it's advertising Sherri.  Edited?  Lol, heck, I reported it.  What's with the edited feature?? 

  • DCMom
    DCMom Member Posts: 624
    edited March 2011

    hmm.. I had a 4 year old and a 6 year old during chemo.  They kept me busy.   My oldest was 15 so I still went to all of their sporting events although I sat away from the crowds because sometimes I was just too tired emotionally and physically to want to socialize.  

    When I was feeling icky I caught up with everything with DVR and on demand TV.   Fortunately my biggest time consumer was all of the family that flew in to help.  I had a different sibling or parent stay for the week of each treatment.  It was wonderful to catch up with them since they all live thousands of miles away.

    In addition I read everything I could and lurked on BC.org. I also got on the elliptical almost everyday. 

  • thenewme
    thenewme Member Posts: 1,611
    edited March 2011

    I reported Rystofersmith's post as SPAM, and apparently my "report" was the final straw, but not sure why it show's me as editing it! 

    Anyway Healthy_Future, I'd say take your cues from your wife herself.  If she feels like doing nothing, then indulge her.  If she feels like taking a walk or exercising, encourage her.  If she wants to cry, comfort her and/or cry with her.  In short, just be there for her. Invite here to come here too. 

    It's great that you're so supportive of her!  I often think it's harder for the family and loved ones,so take good care of yourself too!  Best of luck!~

  • karen1956
    karen1956 Member Posts: 6,503
    edited March 2011

    I worked during chemo and rads...had chemo on Th and took Friday off and sometimes Monday as well....we had meals cooked for us for a week post each chemo...I did whatever I felt up to doing, but DH helped with the household chores....grocery shopped....the first few days post chemo were tough, but then I was decent till the next chemo....I had TAC X 6 every 3 weeks...My DH tried to get me out walking every night, whether it was 5 minutes or our normal 1/2 hour walk....for me keeping things as "normal" as possible was important to not feel like a victim....I ate whatever felt good to eat.....

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    I have been doing things that a busy life kept me from accomplishing before.

    I have cleaned out and re-organized every closet, drawer, dresser, shelf in the house.  Gotten rid of SO MUCH furniture and clothing I can't even tell you.

    My concentration isn't great so reading long novels is out...but I do read lots of magazines including home improvement.

    I've mapped out several home improvement projects, as well as modifying/re-landscaping plans for my yard this spring.

    I've touched up trim work, painted, cleaned the carpets, re-grouted the tub tile, etc.

    On days when I am tired I take a walk and do something like cut coupons and make lists of things I need to do when I start feeling back on my game.

    I think moving, a lot, is key to having minimal SE with chemo.  At least that's my experience.

  • Healthy_future
    Healthy_future Member Posts: 13
    edited March 2011

    My wife is not doing too well mostly her mental side.

    She is afraid because she is losing weight fast, 4.5 kg in one week. She would've loved it if this happened while she was healthy.

    I've decided to take 3 months off work starting next month. This her 8th day and physically I think she is not too bad although she is having stomatch ache in the last 2 days.

    She seems to worry about everything.

    We will have a lot of time watching movies and she can start knitting.

    One thing about my wife once she decides she doesn't want to do it she won't do it. This seems to include eating at the moment. But I will have to nag her daily. Oh dear, I have 3 months to do this.

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    HF-

    Sometimes, in the beginning, things can seem overwhelming. 

    Here's hoping she will respond well to treatment, so she can get on with the rest of her life.

    Good luck!

  • diana50
    diana50 Member Posts: 2,134
    edited March 2011

    i made myself a scheule; it helped me maintain some normal time management.  i got up every morning; did my cycling..(some days more miles then then other days)...i always rested in the afternoon; sometimes i slept...some days i prayed...some days i cried...but i took a few hours every day for myself to deal with the diagnosis.  it seemed to help me to take that time.  dinner...support group...friends. 

     it is hard but very do-able.  hang in there.  it is really important to rest and pray..

    d

  • Healthy_future
    Healthy_future Member Posts: 13
    edited March 2011

    I'd like to know if most people find it thougher on 2nd ,3rd and 4th chemos?

    From what I read the last one is usually the best because you know it's the last one.

    Do people usually feel better on 2nd and 3rd week (for 3 weeks cycle)?

    She is thinking about stopping chemo. She is doing it tough. 

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited March 2011

    Infusion #3 was the hardest for me, mostly I think because the decadron was wigging me out emotionally. Infusions 5 and 6 were a bit tougher physically; I had my infusions on Fridays and usually went back to work the following Monday. For 4 and 5, I took Mondays off as well. But everyone is different.

    I always felt great during weeks 2 and 3, even during my last two infusions. I had daily neupogen shots during the first week following chemo, and that always made me achy.

  • ilchusband
    ilchusband Member Posts: 9
    edited March 2011

    Healthy _future

    Week 2 and 3 do progressively get better at least for my wife she is on week 2 of second treatment now. Maybe check with her onc, nausea had my wife down the first few days with first treatment which I guess is normal. Dr. switched her from prochlorperazine to zofram. That made a big difference her stomach improved drastically she got her appetite back and that in itself helped her attitude towards treatment. This time She had hardly any complaints of nausea

  • Annaanne
    Annaanne Member Posts: 190
    edited March 2011

    Hi Healthy Future.  I'm 6 years away from a stage 3 dx, and don't post often...but...when I was diagnosed, I got advice from other women, which I followed.  That advice was...Walk an hour every day, and get acupuncture twice a week.  I did those things all through chemo, and the walking was always with a girlfriend, so it was social as well as exercise and fresh air.  Even when I was dizzy, tired, etc, I walked.  And I don't think the acupuncture did anything theraputically, but it was great to have a routine of going to someone who wasn't a traditional medical person.  It was soothing and relaxing and sometimes energizing.  I think any kind of massage, or nurturing non clinical therapy that your wife is comfortable with can be a good thing. The medical world is pretty cold, non touchy and isolating.  

    Just offering some other ideas.  Wishing you well.  You will come through this.

    Annaanne (doing great.) 

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited March 2011

    Healthyfuture- Glad you came here for help for your lady. you seem like a great Dh and sounds like you are doing all the right things for her, coming here lets us know that you care, and want to do all the right things.As you can see you have such wonderful advice and so many different situations from so many different woman, we are all dx with BC, but are all different with our cancers but yet the same. We all respond differently to chemo, I myself had a lot of pain especially with the nuelesta shots, not the shot itself but the SE afterwards, I couldnt get out of bed untill i had my next chemo which right before i had to take steroids and all I wanted to do was clean the house for 3 days and felt pretty good, then after shots felt crappy for a few days too, but it was all doable and we all get though it, my most important advice to you would be just let her know you are there for her and let her know how much you love her, which seems to me like you are already doing, get some one if you arnt able, to help with the housework, like cleaning, cooking, running errands, just things that seem unbarable to her at the time. She also needs time, love and compassion through all this to help her get through it all. We are all here for you, please keep us posted, Im keeping you in my thoughts and prayers

    big hugs,

    Debbie

  • gutsy
    gutsy Member Posts: 391
    edited March 2011

    I was extremely sick for about 5 days after the chemo infusion, so I did next to nothing for those days. Day 6 I would be back to work. Chemo certainly for me was not a time to take up a new activities or hobbies. I tried walking, but had to sit down along my walk.

  • Jules59
    Jules59 Member Posts: 207
    edited March 2011

    I just had my second infusion 6 days ago.  My oncologist asked me if I was an active person, and I told him yes.  I walk a half hour a day, do yoga several days a week, and I also horseback ride several hours a week.  He suggested that staying active will be a big part of my recovery, and will help me maintain a good attitude.  I still walk every day, and horseback ride on pretty days.  My husband takes me to the park when the weather is nice so we can walk together.  Socializing with friends is also important, even if it's on the phone.

    Your wife probably won't feel like starting a new physical routine while on chemo, but a nice walk on pretty days might help.

    Also, the oncology nurse told me on days when I have no appetite, to eat 6 or 7 very tiny meals or snacks a day, and my stomach would do better.  This advice has helped me a great deal.

    I also enjoy watching funny tv show and movies, as well a meditation.

  • Healthy_future
    Healthy_future Member Posts: 13
    edited March 2011

    Hi everyone,

    My wife is feeling better now. In the last 2  days she's been eating better and much more active.

    I've been encouraging her to eat more when she feels like it.

    Also I am taking 3 months off work starting next week. I think I better keep her company.

    Maybe it will give us time to think what we want to do in the future.

    Hopefully when she loses her hair she doesn't feel too bad. She's already asked me to shave her head when she gets to that. 

    I feel better too now. I didn't get a good sleep for a while.

    No doubt I'll be back here for a chat and advise.

    Thanks eveyone.

  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    healthy_future  - chemo is hard, very hard, both mentally and physcially.  The steriods they give you to offset SE's from the chemo are hard, as well as the chemo.  I can remember during the AC portion of my treatment, not eating much because I had mouth sores and just felt terrible.  Chemo is cumilative and you and your wife will soon begin to notice a pattern of the good and bad days.  She can rest on the bad days, with you by her side and on the good days, take her for a ride, go to a movie, lunch, walk in the park. 

    You sound like a wonderful husband who loves his wife very much.  (((hugs))) to both of you.

Categories