Super high risk and in denial
Hi, not sure how this works, but need some direction!
Here's my situation... I'm 39, my older sister (41) was dx'd BRCA2+ with a whole long list of mutations in January (2011) has already had bilateral mastectomies and started chemo. She had a stage II 2.5 cm lump in one breast. My younger sister was BRCA-. My mother died of ovarian cancer (2010) at age 65, her mother died of metastatic breast cancer at age 54! I have a small (5mm) lump. I am petrified about my options because I also have implants!!! I have already been through the plastic surgery and love my breasts! This may sound vain, but I think they are perfect and don't want them to be messed with!!! I cry when I think about it. I'm divorced with a hateful ex and no local family support. Please someone offer me at least a small bit of direction...
Comments
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I am so sorry you're facing all this stress! I'm glad you've found this site for support--the ladies here will chime in with their amazing stories and advice from experience. Our minds immediately jump to the worse case scenario when we face the unknown.
I can't help with advice about the implants, but others have discussed them on other posts (you can type key words into the search engine at the top of the page). I'm sure others will post here to help too. Your health comes first though and there are many options for the rest.
Do you have an appointment soon to discuss the situation and options with your doctor? We're here for your questions, comments, and when you need to vent your fears--no fears are too insignificant! I'm sending calming thoughts your way tonight.
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I'm assuming since you know the size of your lump that you have already seen a doctor and have had some sort of testing/scanning. Where is the lump located and what is the doctor recommending you do next? Right now you are understandably scared but it is important to have the lump tested. Waiting or delaying treatment allows any cancer to grow and spread. When I was first diagnosed I was shaken but decided my priority was to do all I could to rid myself of cancer. If someone didn't like me because I had cancer surgery, it was their problem not mine. Sending good wishes your way!
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First, my condolences on your losses. I am also a high risk due to family history. I discussed this with my primary and he pooh-pooh'd me when I said I planned on getting a bilateral mx. Now, my maternal Grandmother died of BC, then in one year I lost BOTH of my sisters to BC. My older sister never got treatment. My younger sister was a triple negative and fought for 18 months. Her deadbeat husband and 2 rotten kids made it harder on their Mom, me (as the Primary Patient Advocate) and their youngest sister (who is a jewel and did everything a 14 yr old could do to help). Eventually my Sis and her youngest ended up moving in with us because her son was selling weed out of their house, etc. It was a nightmare. So I had promised her to have the BMX but right after she passed, my Dad got sick and he passed. I lost Mom, Dad, and 2 sisters in 3 years, plus my business and bankruptcy, home, etc.
So the Primary said, "Just because your family history has bc in it, a mastectomy is a big leap, and may be an overreaction." He said this like 2 or 3 visits, and then in Nov of 2010 I had a bad mammogram. I found a good surgeon, told him to schedule a BMX and do the pathology after, because the tiny calcifications were at 5 o'clock in the right breast and they couldn't do the sterotactic biopsy there. So on Jan. 12, 2011 I had the BMX. Guess what? The calcifications that they told me were 90% likely to be benign... were cancer!
Next week I am getting my implant exchange and other than the tissue expanders being mighty uncomfortable to me, I am so glad I did this. My cousin's daughter, age 26, had her BMX last year and she is doing great... just based on family history, but both sides of her family.
I'm not trying to scare you, but with a good PS you can still have good boobs if you need to have a BMX, so don't let that stop you. My incisions are straight down from the nipple and that's it. Eventually the scars will fade. But my peace of mind is so worth it. I wish for you the best, whatever your decision.
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I am sorry you have suffered with this dreadful disease. I am at the info gathering stage and wanted to know about your incisions going straight down? I have seen some pictures that look so much different than this. Did you do a skin sparing proceedure? What was your original breast size? I guess I am assuming wrong that because of a DD size, I could have skin sparing with immediate implants. Thanks for answering my questions. Good Luck to you!
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Hi flower: I am so sorry for all your losses and your suffering...I hope I can be of help, my dear.
I think you are brilliant to take this on and just get it fixed BEFORE anything happens.
Don't worry! I was a DD too and inordinately proud of my boobs. I still have to get a prophy on the remaining girl, and I am also exploring options.
I had cancer twice, once a lumpectomy and once had to do a mastectomy on my left breast. I now have a lovely, scar free natural looking breast. My PS used the lattisimus dorsi flap technique (which you won't need) and I have no scars. Only one around the aereola that is invisible as it is called the "apple core" technique. I had skin sparing, yes. I needed a lat flap due to radiation damage on the skin, but you won't. They did this on a large C cup post lumpectomy. I am also exploring skin sparing prophpylactic with nipple sparing on a DD.
Your best best here is to go on the reconstruction threads and to begin a new topic, asking for PS and others' info. Hopefully many will flock to you with photos, great info, and help.
Best of luck to you!!!
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p.s. flower, I am sorry, I somehow missed re: the lump. Yes, get it tested, you have many, many options, to keep your breasts and still look great, but you need to follow up!
Sending benign thoughts your way!
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imaball2-
it seems you have two separate issues that you are dealing with 1) immediate concern: you feel a lump, perhaps you have been to a doctor about it. 2) longer term concern: you have a family history of bc with one sister confirmed to be brca2+ .
Why not deal with the 5mm lump first. Find out exactly what it is and IF Recommended, what would be involved in its removal. You might be surprised to find out that it need only be watched or the surgery involved will not destroy the appearance of your breasts. If it is cancer, you can then decide whether or not to have the genetic test yourself. If you choose to be tested and found to carry the gene, there is an array of preventive measures you can CHOOSE or CHOOSE not to take in the near or distant future.
Please don't let your fear that your breasts will be mutilated stop you from obtaining the knowledge which will either put your mind at rest or help you make an informed decision about your future.
Julie E
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