Breast swollen and hard

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I am 2 months out of radiation and my breast is sore, swollen, burning sensation and underneath my breast is hard. I spoke with my onc and he said it was from the radiation.  I would like to get a second opinion, but i am not sure who I should see. Should I see my OBGYN, Rads onc or my BC surgeon.

Is anyone out there experiencing this problem.

Thanks for any advise.

Jules

Comments

  • huntreiter3
    huntreiter3 Member Posts: 40
    edited March 2011

    Oh please seek further treatment from someone. I am about one month out of treatment and had the same issue. I told my Medical Oncologist that I had to take vicodin to sleep the pain got so bad and that it literally felt as though my breast was going to burst. I was not running a fever so he poked around at it and stated it was normal and fine & sent me home with a new RX for vicodin. I went back to work and sure enough, my breast burst open right at my surgical incision site. I called the on call nurse who told me this was normal, keep it covered and they would see if they could get me in the next day to be checked. When I went in the next day, I saw the Radiation Nurse Practitioner who used a long swab to see how large the hole was. It was my entire surgery site where the tumor was removed. It never healed and she stated that it was def. not normal. They immediately set me up with an appointment with my surgeon for the next day. He examined it and said that now that it is open - there is bacteria in there. I am scheduled for surgery tomorrow (Monday) where he will reopen my incision, do a wound debreidment by scraping out the entire cavity then I will have a wound vac installed which I will have to wear for weeks or until it heals. I would suggest you call your Radiation Oncologist Nurse and tell them you would like to be seen asap. My thoughts and prayers are with you and I will pray that yours is just normal scar tissue as a result of the radiation.

  • LoisC
    LoisC Member Posts: 3
    edited March 2011

    Your symptoms have an all too familiar ring to me. Please  inquire about breast lymphedema asap with either your oncologist or radiologist. Swelling and fibrotic hard spots are common side effects. You may need to find a lymphedemist who specializes in breast cancer. Allso look into compression bras, & manual breast drainage techniques.  I wish you well! This can be difficult. Try to stay strong.

  • Binney4
    Binney4 Member Posts: 8,609
    edited March 2011

    swansea, I'll second LoisC's suggestion that you consider an evaluation by a well-trained lymphedema therapist. Breast/chest lymphedema )called truncal lymphedema) is fairly common after either surgery or rads, but our docs can be slow to recognize it or unsure about where to refer you for help. You need a referral from any doctor on your team. Here's how to find a well-qualified lymphedema therapist near you:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    And here's information about truncal lymphedema:
    http://www.stepup-speakout.org/breast_chest_trunckal_lymphedema.htm

    Do keep a close eye on it for evidence of infection (itchiness, new swelling, increased pain or redness, warmth to the touch) and get help immediately if you suspect that may be happening -- cellulitis can spread quickly and be hard to treat if not caught early.

    Huge hugs! Let us know what how you're doing,
    Binney

  • swanseagirl
    swanseagirl Member Posts: 393
    edited March 2011

    Binney & Loisc,

    Thanks for your input. A few steps ahead of you. Saw Rads ONC who put me on antibiotics for Cellulitis. Then saw surgeon who suspected Lymphedema.

     I am currently seeing a Lymphedema P/T who is working with me. The last few days I have been trying out a compression bra. OMG! 

    So much focus was put on Lymphedema in the arm, not a lot of attention to the breast/trunk area.

    Oh cancer, the disease that keeps on giving.

    Thanks ladies,

    Jules 

  • Binney4
    Binney4 Member Posts: 8,609
    edited March 2011

    Jules, I'm so sorry about this new "gift" from treatment.Frown I hope the lymphedema treatment is going well and you're finding some relief. There are a lot of options for breast compression -- check out the links at the bottom of the page about truncal lymphedema that I linked to above. Some are more comfortable than others, for sure!Smile

    Gentle hugs,
    Binney

  • swanseagirl
    swanseagirl Member Posts: 393
    edited March 2011

    Binney, thanks.

    Checked out the link a few moments ago. Very educational.  So far I have tried 3 compression bra's and so far "I HATE THEM"!!!!!!!!!!!!!!!!!!!

    Sorry for the rant.

    Thanks for the gentle hugs xxxxxxxxxxxxxx

    Jules

  • Binney4
    Binney4 Member Posts: 8,609
    edited March 2011

    Hmmm, that sure doesn't sound like a rant to me -- in fact, as a reaction to lymphedema, it's pretty calm!Laughing

    Do come join us on the "Lymphedema" discussion board (just a couple of boards above this one on the index) and you can "talk" to lots of other women trying to solve the same problem. Personally, I like the WearEase Slimmer best -- it's a cami, so no uncomfortable bottom band or "smooshed" feeling, but lots of other women have other solutions they've found workable.

    Hang in there! It gets easier, honest!
    Binney

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