How did you deal with simulation?

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Letlet
Letlet Member Posts: 1,053

Hello, just met with my RO last Friday and was given a lot of info about rads. One thing that struck me was the simulation may be around 45 min of you lying down with your arm up and not moving. I was wondering how you all passed the time/didn't freak out during it. I remember having the breast MRI which I suppose is worse since I was facedown with my breasts in those cups but that was the start of the BC journey...now I've had so many tests, finished chemo and so sick of the fact that I still have MORE tx (rads and Herceptin) before I can put this all behind me or at least try to.

Comments

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited February 2011

    Sorry I can't be of much help - I freaked out and got hysterical!  If I'd anticipated that I could have asked for a valium or something beforehand, but I'm generally not a hysterical sort of person.  Perhaps a valium would help?  Just in case...

    My arm was very sore during & after the simulation because of the axillary node dissection.  Other than that and the hysteria - it was a piece of cake!  Hahahaha.

    Best of luck to you!

    E

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2011

    My simulation didn't last anywhere near 45 minutes and wasn't any big deal.  Good luck to you.

  • Sherbear
    Sherbear Member Posts: 215
    edited February 2011

    Mine didn't last anywhere near 45 minutes either.  The padding/form didn't take all that long and the tattoos were pretty quick and painless as well.  Everything went fine with it.  Good luck!

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Mine was very short and easy.  Nothing at all like the breast MRI, which completely sucked.

  • Letlet
    Letlet Member Posts: 1,053
    edited February 2011

    Ah thanks, it seems it may be bearable. Irr, yes the breast MRI sucked big time!

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Other than losing my hair, it was the worst part of all of this.  I hated that damn thing.  It was all I could do not to squeeze that little ball.  The only thing that kept me from squeezing it was knowing that I would have to do the whole thing over again if I did.

  • redsox
    redsox Member Posts: 523
    edited February 2011

    I knew that it would take some time and used visual imagery to escape.  Do you have a favorite bicycle, walking, hiking route?  ...or a favorite vacation place that you like to walk around?  I imagined myself going through such a scenario in detail and tried to visualize it moment by moment.  It worked for me.  When the tech and rad onc came back into the room I felt like they were bringing me back from a place far away.  I actually have no idea how long it took.

    I had a lumpectomy with no nodal surgery and was not in pain.  If you had a mastectomy and nodal surgery, pain may be more of an issue.  The position for simulation is the treatment position so if you are in real pain, tell them and maybe they can adjust.   The treatments are much faster so a position that you can maintain for five minutes should be enough.

  • Titan
    Titan Member Posts: 2,956
    edited February 2011

    Mine didn't take near that long either..in fact...it was broken up into a couple of sessions...

  • crlacey
    crlacey Member Posts: 31
    edited February 2011

    My simulation took about 30 minutes and wasn't all that bad. I just made a mental list of things to do for later that day and thought of some of my favorite songs.

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited February 2011

     mine was easy, the RO was a talker

    after it was all done it turned out I had to have

    a mastectomy and they passed on the rads..

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited February 2011

    Simulation was the first time I cried since diagnosis.  I found it very long and uncomfortable.  As it seemed to go on, and on (and I think they lied about the time!), I knew I had to cope somehow.  I did use visual imagery.  I went back to sweet memories of galloping on my beloved horse.  Then, when it  still wasn't over, I started to sing.  I was alone in that weird room and singing at the top of my lungs.  Weird songs too, ones I don't necessarily like, Tom Jones, Mick Jagger, The Who!  The techs, who surely heard me, never mentioned it during the next 6 weeks of treatment.  Best of luck.  I hope it is easy for you.

  • Makratz
    Makratz Member Posts: 12,678
    edited February 2011

    Mine didn't take that long either and was no big deal.  Easy to say that now, but it really wasn't.  Try and relax, maybe ask for some meds to calm you down.

    Best of luck.

  • Laurie09
    Laurie09 Member Posts: 313
    edited February 2011

    Mine didn't take that long.  I had a little hard time holding still but more because I was a bit ADD and not so much because it was so long or uncomfortable.  

    I hope yours isn't bad.  Sorry you have to go through more treatment.  I hope your radiation therapy is like mine was - no big deal.   

  • Letlet
    Letlet Member Posts: 1,053
    edited February 2011

    Thanks everyone. I do have some Ativan that I used to take for nausea..it makes my mind cloudy though and lasts for 4 hours. I just keep thinking about how I had to be absolutely still facedown in that MRI machine. I was very good..I had kept on singing my little girl's favorite song in my head. When I got up, I realized my face was wet with tears. Hopefully I fare better at the simulation...

  • BrilandGirl
    BrilandGirl Member Posts: 49
    edited February 2011

    The radiation simulation was a lot easier for me than the MRI.   I had two sessions and they included a bit of time for paperwork and instructions as well.  It was more comfortable to lie on my back than on the stomach for the MRI--plus you don't have to lie still for such long intervals straight through.  The only thing I didn't like was when they brought out the syringe for tattoos---had a hematoma aspirated twice and had been poked with needles too many times. However, it was only 2 shots and only one of them stung a bit.   The rest of it is pretty easy.  I usually think about my favorite beach or my friend Charlie who died last month--sending me the rays to zap out any leftover cancer cells. 

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    On 3/2/2011 I had to cancel my CT planning appointment because I ate.  You see, I was due to get an IV contrast was supposed to be NPO 6 hrs prior to treatment. 

     I rescheduled my appointment for 3/3/2011, I asked for a later time, but they insisted I must come in at 10:00am.  It was a horrible day, I had to wait for 3 hours before I was seen and that was after I got upset reminding them I am diabetic and was becoming hypoglycemic.

    My veins are not very visible, which I explained to the CT team, and asked them to get someone good with IV insertion.  The first stick from the nurse I screamed, even though I am a nurse myself, the second stick I  started crying ..  They decided to cancel the contrast.

    I am claustrophobic, but did believe, because I had CT Scan before that my head would be beyond the donut. I tried 3 times but could not tolerate the feeling of being compressed.   When they started the CT Scan I had to ask them to remove me because they insisted my head must be directly under the donut, and I felt I was going to die.

    They finally called my RO and he gave me Benadryl IM and Ativan p.o.  In about 45 Min's I was able to complete the CT Scan. The RT gave me 2 tattoos. and said he will call me next wee.

    I then asked him to please let me see the Radiation Machine because if the procedure was anything like the CT Scan, I would have to have a mastectomy.

    He took me to see the radiation machine, and I will be able to tolerate it, because it will not en-cave my head.

    This was not a very good first experience about radiation.

    Diagnosis: 12/4/2010, IDC, 3cm, Stage IIa, Grade 1, 0/2 nodes, ER+/PR+, HER2-
  • Letlet
    Letlet Member Posts: 1,053
    edited March 2011

    so sorry that you had that experience antigua. thank you for sharing it, i didn't even think about being npo for the CT. No one told me about that, I will ask my RO's office. thank you again.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Letlet - I do believe you will have be NPO o for 6 hrs prior, only if you have to be given the contrast, so can clarify.  Thank you for your response.

     Love

  • Gymgirl2679
    Gymgirl2679 Member Posts: 27
    edited March 2011

    The breast MRI is way worse! Simulation is not bad at all!  Good Luck!

  • susanlouise
    susanlouise Member Posts: 9
    edited March 2011

    I had my simulation two weeks ago and this is the first notion I have had that it might have been "difficult" - I don't remember it as being difficult at all! I wasn't uncomfortable and the techs were very nice.

  • Letlet
    Letlet Member Posts: 1,053
    edited March 2011

    Well I had my simulation and I was  uncomfortable just because I had my exchange was the week before and my arm had gone a little back to the way it was and I had to stretch it over my head for a while. I got my plaster mold done, they did their drawings and tatoo...I just thought of my kids...it helped me get through it.

  • MSNOMORELUMPS
    MSNOMORELUMPS Member Posts: 54
    edited April 2011

    LETLET-So you had radiation after you had your exchange for implants? I'm looking for imformation and want to know what happened, if anyting to your implants. I had BMX with reconstructions, and then my BC returned. So I just had lumpectomy and they are suggesting radiation. Any info would be helpful.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited April 2011

    Ditto others who said that breast mri was worse! Totally agree, very creepy and closed in. The worst part about the simulation, at least for me, was just the mental realization that the rad. process had begun and I found the worrying about what to come far worse than what it actually was. Good luck and take this part just one day at a time and before you know it, you'll be done!

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2011

    Is the simulation the time they make the mold for radiation and do your tattoos? if so, I barely remember it - either being long or bothersome.  So i guess it wasn't.  I do know i was pretty scared ahead of time about  the tattoos, but it felt like NOTHING when they did them. So that worry was all for nothing.

    I wonder if you could wear an IPOD and listen to music or a podcast. That would make the time go faster.  That is what I do when I go to the dentist now - it makes a HUGE difference.

    Best of luck to you.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited April 2011

    They didn't make a mold for me at any point. Just lots of measurements to line me up.

    I was given the option to have tattoos or sharpie markers and stickers, and I chose the markers/stickers. I was very careful with these but it was definitely worth it, because I didn't want any permanent marks of this stressful process, I don't care how small the markings were to be.

  • possom60
    possom60 Member Posts: 7
    edited May 2011

    I had no idea what to expect from simulation, as no one told me what was going to happen. Then when they cut my skin for the tattoo's I nearly leapt of the bed as I was not expecting it. Other than that it did not take to long, 5 tattoo's in all.

    My MRI took one hour ten minutes as they had to repeat part of it. I did not find it to uncomfortable, and the lovely lady doing it kept asking me if I was OK. Believe it or not, I nearly fell asleep.  The hardest part was getting of the table after laying face down for so long.

    If I had a dollar for every needle I have had through my cancer journey, I would be a very wealthy lady...Wink

  • Snobird
    Snobird Member Posts: 593
    edited May 2011

    I'm not claustrophobic so I didn't find either the MRI or simulation or CT scans to be problematic at all. I am as they say "a hard stick" so getting an iv is always a crap shoot for me. I usually let the techs know that I'm not an easy IV and also that I can faint rather suddenly from simple blood tests but not always. Then they usually give me the most experienced tech to do the job. I don't remember the simulation taking more than a hour and never had my head covered by anything. The tiny ratios were nothing but quick pricks. I can't even find them now.

  • InTwoPlaces
    InTwoPlaces Member Posts: 354
    edited May 2011

    I don't think the simulation was bad at all and I could hardly feel when I got the tattoos.

    If everything in this journey had been as easy I wouldn't complain at all.

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