MARCH 2010 Rads Group

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    I am 100% with you...I've been so tired, with no real "reason".  I've been through countless tests, showing nothing (which is good), but I would love to understand why I can't stay awake later than 8:30 or 9:00, when just a couple of years ago I would stay up until midnight or later with no problem.  It can't be a turning 50 thing, because I'm only 37...maybe it's just our bodies taking a break after a tough year?  

    I'm trying to start back to exercising in an effort to increase my energy level, but it's really hard.  

    Be gentle with yourself, and try not to be too scared.  Easier said than done, I know.

    Big hugs to you! 

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited December 2010

    txstardust, Yes, I think it is our bodies taking a break after a tough physical and mental year!  As many of you, I'm coming up on the first anniversary of my first surgery (and went back under general for SNB two weeks later when IDC was reported in final lumpectomy pathology report).

    Wishing you all much good health and happiness. 

  • xiaomei
    xiaomei Member Posts: 43
    edited December 2010

    Happy Holidays everyone! I did my 1 year mammogram on Dec 17 and saw the surgeon the same day. She looked at the pictures and said it looked fine (though I had to wait for the written report by the radiologist in the mail). After her examination she said to come back in a year. YEA! On Dec. 23 I received the written report and the result was "NORMAL". I was so happy! Last year on the exact day I had my surgery, and now I am free! That was the best present I could ask for.

    Anyway, I have been attending the "Cancer Connection" programs here on Gentle Yoga and Dance Movement. I do notice that I am weaker than before the treatment. For example, after cooking in the kitchen for 2 hours, my back hurts and legs shaking, but I sincerely believe that doing these exercises is helping, both mentally and physically. I will definitely keep this up.

  • YramAL
    YramAL Member Posts: 1,651
    edited December 2010

    Good news Xiaomei!

    My surgery was last year on December 16th, and the holiday season was pretty much a blur, with pain meds and stress. This year was much better. At Christmas dinner, my family made a toast to me being 1 year clear!

    I, too, do not feel like I am back to my normal pre-cancer energy level, but I don't know how much to attribute to being either peri-menopausal or just plain 50! I still find that I am ready for bed about 9 PM, when I used to be able to stay up later(like 10!)  

    Mary 

  • June2268
    June2268 Member Posts: 1,202
    edited January 2011

    Happy New Year to all you lovely women!  Here is hoping that 2011 is the best year for all of us!

    Hugs to you all!  June

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited January 2011

    June - Happy New Year to you and all the wonderful women on this thread.  May 2011 be a healthy and happy year for all of us!

    Sherri 

  • June2268
    June2268 Member Posts: 1,202
    edited January 2011

    Sherri your hair looks fantastic!

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited January 2011

    Happy New Year One and All!

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited February 2011

    Hi ladies,

    Just an update. Got the all-clear on my January mammo and oncology exams. So happy to hear that news. I am being laid off at work (I think), so I am trying to put it all in perspective and remind myself that nothing compares to cancer diagnosis.... but still upset that despite having cancer and working through treatment, etc, I am being terminated at work! I guess it's just the way things go, and I need to learn to accept.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited February 2011

    Sorry to hear about your job but so happy your mammo and exam went well. And, you're right....a cancer diagnosis does help to put things into perspective.  Often times in sitations like this, you'll find yourself better off so perhaps a better, more fun, job is on the horizon.

  • June2268
    June2268 Member Posts: 1,202
    edited February 2011

    I too am sorry to hear the news......I don't wish that upon anyone as it is so hard to get any job nowadays......keep us posted as to what really happens, fingers crossed.....

    I wish I got a clean report, so congrats to you...........I keep getting well there is a suspicious area we want to watch, however we feel it is benign.....I think next time I am going to insist on someone clarifying that for me as I feel I cant relax until i know things are good.....

    Love the profile pic Sherri, you look beautiful!!!!

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited February 2011

    So sorry to hear about the layoff but so delighted to hear about the clean reports....thats fantastic!  I agree with Sugar---perhaps this layoff will lead to something so much better.

    I am also still waiting on a completely clean scan.  Last year they found an spot on my lung during the CAT scan which they are monitoring.  They did another CAT scan in the fall and I guess it looked a bit bigger but because of where it is located, they think it might be from the radiation which can cause swelling.  So in May I get another CAT scan.  I am scared but trying not to think about it.  I haven't told my husband more than I am being monitored.  His best friend was diagnoised with lung cancer last year and DH went to help him with chemo for a  month.  I feel like if I tell him, it will be too much for him to take. Gee, as I type I realise thats the first time I've put it all in words.

    In September, I merged my 6 month into my annual and OF COURSE, they found something funky on the other boobie which led to another stereotactic biopsy and another surgical biopsy. 

    In the end I got the all clear except that I apparently have precancerous something in that boobie as well.  No guarantee that it will advance but the type of cells that can.  Can't recall the name.

    Which is great but it would be nice to go in for a mammo and have them done in two seconds and out the door with a "See you next year!" and not doing all the retakes and not saying "well, we are pretty sure its nothing but. . . ."  In September, I stopped them in the middle of the speech and said "I do not want to hear the speech.  You gave me that speech last year and it led to a biopsy, MRIs, CAT scans, 2 surgeries, radiation and 5 years of tamoxifen.  Save the speech." They were not pleased but who cares?  I hate that speech as I suspect we all do.

    But on the bright side, I am celebrating getting through stupidbreastcancer treatment and my 10th wedding anniversary and my 2011  big birthday and we are all off to Paris next Thursday---monsters too.  We shall be completely broke for the rest of the year but it will be worth it.

    hugs to all.

  • YramAL
    YramAL Member Posts: 1,651
    edited February 2011

    MariannaHB-congrats on the clear reports! I'm sorry to hear about your job stress-I hope it all works out for the better for you. 

    One thing I have discovered, is after going through breast cancer, things that used to really stress me out don't seem to bother me as much anymore. I currently have a non-functioning downstairs toilet that is going to require major structural work to repair(picture jackhammering up my family room floor). In the past, I would have been worrying myself sick about how I was going to pay for it and how we were ever going to get it repaired. I still wonder where the money is going to come from, and I don't know when it's going to actually get fixed, but you know what? In the big scheme of things, it just doesn't matter!

    Mary 

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited March 2011

    3Monstmamma, YRamAL, Sugar, June-

    Thanks for your responses. I find myself waxing philosophical since it's one year date from our rads treatment. I remember each of those days very clearly, as I had my rads scheduled every day at 4:30, and I sat out in the sunshine afterwards....

    Anyway, yes, I lost my job. Intuition is a great thing, isn't it? And yes, it just doesn't matter. Am I a bit concerned about where our money will come from? Yes, but not consumed by it. I am just thankful for everything I do have, and am spending time with my kids. They think it's great that mom has an "extended vacation" going on.... 

    The French vacation sounds divine, 3monstmama. What a great thing to do. I sure hope you enjoyed all the good food and French culture.

    Anyway, I am sending all of you good vibes for clean reports, and please keep us updated.

  • Raili
    Raili Member Posts: 435
    edited March 2011

    Wow, Marianna, I can't believe it's been a year.  Well, almost a year for me - I think I started towards the end of the month.

    I'm so glad to have rads (and cancer!) behind me.  I love my life right now; it's even better than it was pre-cancer.  Money struggles are my biggest problem and ongoing, but other than that... I am enjoying my work, I'm super in love with my girlfriend of 6 months, and I'm healthy!  Just had my 6-month-check up with my surgeon yesterday, and it was great.  My MRI was normal.  I'm not having any problems with Tamoxifen.  I do have a bit of breast lymphedema from the radiation, but it's mild and it doesn't hurt, so I'm not too concerned.

    Love to you all...sending you energy for good health!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2011

    It's nice to see this thread active again.  It's really hard to believe it's been a year since we had rads.  I'm having a 6-month follow up recheck mammogram on my good boob on March 22nd. Back in Sept. I got called back for a diagnistic and it was favoured as benign but the radiologist wanted it checked in six months.  I must admit I'm getting a bit nervous.

    MariannaHB - you have the right attitude.

    Raili - nice to hear from you and glad to hear life is going well.

    Take care and hugs to everyone! 

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2011

    hi all!  happy anniversary, well more like happy that here we all are, a year later and that stuff is mostly over.

    MariannaHB, I am so sorry about the job situation but I am glad you are using the time to have  fun with your kids---mine would probably love me on an extended holiday as we all had so much fun on our holiday.

    Sugar77 I am also being monitored on stuff so I know the nervousness that envokes.  Most days I am able to put it all aside and out of my head---my next appointment is in May---which I think is better than dwelling on it.  I hope you will let us know how things go for you.  The last time I went in, I did end up with a surgical biopsy but it was nothing.  I was told that once you have been diagnoised, they are SUPER SUPER overly cautious about anything that shows up so don't worry too much.

    Raili  so nice to hear from you too!  Belated Happy Women's day!

    Our Paris holiday was lovely but we are now so very broke.  I literally choked the first time I changed money and then gave myself a lecture on how I was there to have fun, how I deserved it and how I must let go of anxiety and enjoy myself.  And I did! 

    Alas, I came back to a rather snippy colleague with a chip on her shoulder.  but I am proud to say that I did not just ignore and went to talk to supervisors and got it resolved ASAP.  I have come to believe that in many situations, while I thought I was just moving on, i was not letting go of stuff the way I thought but just burying feelings and issues inside where they festered and continued to stress me.  Plus in some cases, cr@p popped up months later in a bigger badder form. So I am changing my approach.  

    I hope everyone is having a great spring ---I finished my "Official Spring Scarf" that I was knitting for myself and am wearing it so see, it MUST be Spring!  Cool---and that as things progress we keep in touch and continue the support for each other that started last March.

    Hugs to all!

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011
    MariannaHB I love your attitude!  After everything we have been through and more..... you continue to be so positive and upbeat....So happy for you and gosh who would have thought it would a year already.......April 29th is when I started Tamox, I cannot believe it is close to a year on that as well....Almost 4 more to go and I hope nothing more.  I did really well with the Tamox in the beginning and as of lately the SE seems to be popping up.  Major joint pain where I cannot even climb stairs.  I fell so old these past few months.  My period stopped as of last month.  That is new....so much to still deal with but happy the hellish day are over and that I met all you wonderful ladies......
  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2011

    37 pages we've shared together over the past year and I see that now there's a March 2011 thread. As for me, so far so good physically, I do think about bc every single day and wrestle with keeping the fear under control. Thanks for going through the slam dunks with me.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2011

    still trying to catch up with these posts. Am shedding tears for those that have unfortunately been dealt some additional bad news. Sending positive vibes.

  • AndreaS97057
    AndreaS97057 Member Posts: 46
    edited March 2011

    Wow, a year has gone by??  It sure has been a wild one for me.  I guess I'm the tough news story with respect to radiation - it didn't do all I wanted it to.  At my 6-month checkup, more microcalcifications were found (they were always there, just really hard to image) and more DCIS was biopsied, and that pretty much meant that I had to have a mastectomy.  Bleech.. The odds are so slim that this would happen, I just got really, really unlucky.  I've come to accept that I had to do what I had to do but it sure wasn't much fun.  I did immediate reconstruction with a DIEP procedure - and life is now starting to settling back down although I'm still getting used to the stranger on my chest.  I thought I'd be so changed and beat down after all of this, but you know what.. I'm still me, thank goodness. 

    And all through this last year I've had a major project in New Zealand -- the good news is that I could manage the travel to such a great place four times! (I'm just back from my last trip - it's summer there which is such a brilliant contrast to our drippy gray Seattle end of winter.) 

    It's really good to hear from you all - we all seem to have had to deal with some difficult things even after the super-rough radiation period.  I think we're a pretty darn tough group.  Hugs to all.

  • YramAL
    YramAL Member Posts: 1,651
    edited March 2011

    Hi Ladies-

    Not much new to report here(thank goodness!) My one year anniversary for the end of my rads is April 5th. It's kind of a bittersweet anniversary because it is also the 1 year anniversary of the death of one of my friend's teenage sons. Actually, he died on Easter, the day before the end of my rads. He was killed in a car accident-the driver was drunk. So sad.

    Andrea-It sounds like you have been through a lot this past year. And I see that you are a fellow Seattle area person too! I live in Shoreline. I know exactly what you mean about our drippy gray Seattle end of winter. I am sick of it!

    3monstmama-I'm so glad you had a good trip to Paris. I visited Paris 30 years ago, right before I got married. I did the Eurail Pass/Youth Hostel thing and had a great time.

    Sugar77-Your hair just keeps getting cuter and cuter! I wish you luck on your next mammogram. My next one is in June-just on the "bad" boob this time. I don't seem to get nervous until the actual day, and then I'm a wreck. Last time, I took the day off of work and did some fun stuff just for me. I think I'll do it this time as well.

    Raili-Good to see you here, and see you feeling so postitive. I seem to remember you having a really hard time at first. I also have some lymphedema of my radiated breast. It comes and goes but never entirely goes away. I mostly just notice it at the end of the day, when I take my bra off. I can see bra marks on my skin on that side.

    June-It's hard to believe that I, too, will be coming up on my one year anniversary of Tamoxifen. My biggest side effect is hot flashes and irregular periods, but that might be happening anyway since I am 51 now. 

    CTMOM-I know what you mean about thinking about bc every single day. I think I have finally reached the point where I don't think about it every day and I honestly never thought I would reach that point. My mind still goes to dark places sometimes, but it's getting better. 

    Marianna-Thanks for activating the thread again. I hope you have success in finding a new job. I'm glad you're enjoying your extended vacation with your kids. 

    Best wishes to everyone!

    Mary 

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2011

    Paris...a girl can dream!!  My DH proposed to me in August 1997 at the Jardin du Luxembourg off Boulevard St. Michel in Paris. It was two days before Diana Princess of Wales died.  How time flies.

  • mheffner3
    mheffner3 Member Posts: 3
    edited March 2011

    So glad to find this site! Having my simulation tomorrow. It seems to have taken forever to get a game plan, so I'm ready to get going. Looking forward to chatting with you all-

    Meredith

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2011

    Hey there mheffner3

    We are happy to have you here on our thread but do note that we are the March 2010 women.  Everyone on this thread has finished their Zap Treatment last April or May so we are very good at telling you what to expect but may not be as strong or immediate on moral support for your daily zaps.  There is a different thread for March 2011 with women who are just starting.

    As for the rest of us

    Last night was one of Those Nights---the mega nightsweats sort of night with damp jammies etc.  I think it was because I forgot to take my drugs in the am and took them right before bed so as not to miss a day.  Anyrate, this morning when I mentioned the delight of being cold and clammy to DH, he said he knew as he had hugged me early in the am and I was disgustingly cold and damp but he hugged me anyway.  Guess he does not have mermaid fantasies. . . .Tongue out

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2011

    3monstmama - sorry to hear you had a rough night. Are the drugs you take at night for breast cancer? Tamoxifen?   Mine was hormone negative so I unfortunately don't get to take anything.

     mheffner3 - welcome to our thread. As 3monstmama mentioned, this thread was very active a year ago when those who post on here were going through rads. We've all finished now but do come back to post from time to time to keep in touch and let each other know how we're doing.  We welcome you here but you might find more daily support on the March 2011 rads thread. 

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited May 2011

    Hi all,

    One year ago this month, I was finishing zaps.  I celebrated this year the same way I did last year--going to our family Zen retreat. 

    Today I have my check-up mammogram--I am about 2 months overdue. I confess to being a bit tense and spending a couple months sailing on the river d'nile----when I did the first 6 month check-up back in September, I ended up with a suspicious area on the other boobie (the one I always thought was my Good WellBehaved Cancer-free Boobie).   After a surgical biopsy (like a lumpectomy but smaller)  I ended up fine but I now realize it scared the cr@p out of me and sent me straight for the cruise boat pretending there was nothing wrong and never had been anything wrong so there!  I bailed on my appointments, stopped taking my calcium and my Vit D, went back to staying up late and missing sleep and you name it.   Then a friend who was diagnoised with lung cancer just as I started rads in 2010 had a relapse and I realized I needed to get off my cruise.

    so here I am getting ready to take my happy pill and do my scan.  Not expecting any news (last time bad boobie was practically perfect in every way, well except that squashing the scar tissue hurt like HELL!!!!!!!!!!!!!!!!!!!!!!!!!!) and this time I have lovely drugs.

    Hugs to all and happy spring!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited May 2011

    3monstmama - when will you get the good results?  Will you have to wait long?  That's the worst part.  I hope all goes well for you. Let us know.

  • YramAL
    YramAL Member Posts: 1,651
    edited May 2011

    3monstmama-I hope all goes well for you.

    My next mammo on the bad boob is in 2 weeks. I'm usually fine until after, when I'm sitting there in the private waiting area in my little cape, waiting for results. So far, every time, I've gotten my results in about 15 minutes, and all was well.

    Fingers crossed for all of us!

    Mary 

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited May 2011

    Thank you everyone for the supportive comments.  Results are in and for the first time in 20 months I AM BORINGGGGGGGGGGGGGGG!!!!!!!!!!!!!!!!

    nothing to see, nothing to look at, no reason to come back until another six months has passed.

    Gee it feels good.

    Oh for the funny part--the first 6 month exam hurt like hell so the onco gave me a prescription for pain pills to take in advance.  I grabbed some food on my way to the appointment, gulp my pill, hang out for an hour and don't feel like anything has changed.  Get to my knitting support group---still no problems, no sign of pills working.  Decide to take a secon pill (instructions say take 1 or 2) waiting waiting waiting.  Go into do mammo--now over an hour after 1st pill and 30+minutes after second.  It all still hurts though I don't hit the I think I'm going to hurl stage until the last compression.

    Pills start taking effect just as I get the good news--whhhhhhhhhaaaaaaaaaa?  is someone talking to me???????  Was taking bus home from appointment but wanted to stop in shop first.  Could NOT remember where I left the shop so I wandered in circles for an hour. . . . .soooo very funny.  Eventually found shop and took bus home.

    Moral of story: take pills 2 hours in advance. . . . .

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