Bottle 'o Tamoxifen

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Comments

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    Smile Or Go Crazy

    This is how I feel right now!

  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    haha love it! I feel like that too. ;)

    June, thanks yes, I am feeling a bit better. I was having some bad days there. Definitley in a FUNK. Hate that. :( I am going through some weird feelings lately though...angry, frustrated with people and things. Not sure what is my deal with that. Just part of this process I guess. Back on the T and not heard from my dr's office yet.....not happy about that. Guess I will call them and see if I can get them to call me back.
    Next time we head up that way I would love to meet up with you. That is cool it is so close. Not sure when that will be though...probably not anytime soon unfortunately. I am not sure I could do the Vegas trip either moneywise, and don't really want to fly by myself. My kids are older so I don't feel as guilty. ;) But I understand that!! It would be fun to pick a spot and just do something low key for a few days to meet everyone.

    Hope you are all having a wonderful day....bright and sunny here today...but a little chilly. 

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    JUNE/ECG...Yup thats how its been for me too. Feel good for days at a time then woke up yesterday and ever since felt like I could bust out into tears over nothing!!!!!  I know I saw that Vegas trip too looks like fun cant go either, money and its the weekend of my daughters 16th bday. ECG I dont think you live too far from me maybe one weekend we could do the DC thing!.

    JO..Lunch was wonderful!!!!!... thank you and a yummy dessert would be great... getting back to my old self seems like a distant fantasy some days lol!!!..

    Did call the onc today to ask about the period thing but havent heard back yet...

  • NJvictoria
    NJvictoria Member Posts: 119
    edited March 2011

    Let me know if and when you guys want to get together in the DC area! The Tamox. is going ok, so far (I say in a whisper) LOL! Just some constipation which I fix with my coffee/Miralax cocktail :) Going on 3 weeks and that's the only SE so far. I feel very lucky so far. I am also on Effexor and I really think that helps with mood!

    Viki

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    June - That about sums up my Monday.

    Tink - There are good days and bad.  I am on a streak of good ones.  Hope it lasts awhile longer. Seems to me you could use a hug.

                           

    Hope this helps. 

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    I am feeling the same way June, Tink and Deb~  Forced myself up and about today.  Achey all over, tired, headache and freezing.  Our weather is still too cold for my liking and the sun doesn't shine for more than a few minutes it seems.  I ran a 5K on Saturday and my legs are killing me.  Today I would say I feel like I have the flu and I just may go crawl in bed when my hubby gets home. 

    JO ~ so glad you are feeling good.  Thank you for that yummy looking lunch ~  It is just what I needed. 

    Healing warm hugs girls...

    :)
    Alicia

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    Alicia.. hope you feel better soon too! hugs to you!

    Jo I am so glad you are having good days, thats great to hear and also inspiring!!! Love the Tink hug by the way... you always know how to make me smile!!!! hugs back my friend!!!!

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Oh ladies...might also be partially due to daylight savings if you folks changed your clocks like we did...losing an hour of sleep when we are already sleep-deprived...not good!

    talked to the pharmacist today about the 10mgs tamoxifen instead of the 20..silly me...here I was trying to cut the damn things in half and getting powder everywhere and uneven peces and all I had to do was snap it in two!...seriously! But she said the 10mgs is the exact same brand so I will stick with the new presciption starting this week...the idea of potentially having to get used to a different company and therefore potentially different binders etc. just about did me in tonight!

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sounds like you ladies need a lift tonight.  Hope this makes you feel so much better.

                                  

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    June, Deb, and ECG. Hope u ladies get to feeling better

    Alicia 5k wow I am impressed, running is really hard for me.

    At the pharmacy waiting on DH meds so I can check in on u ladies

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011
    JO...That looks incredible!!!!... hhmmmm ok  im going to get some extra forks and share!!!!! Smile
  • chabba
    chabba Member Posts: 5,065
    edited March 2011

    Chocolate and caramel, my weaknesses.

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sometimes it is hard to come with something for dessert.  Glad everyone likes this.  Chabba - I love chocolate and caramel.

    Now this is what I am talking about - these are my absolute favorites.

                                      

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    Jo you always know how to make us ladies feel!!!  Scrumptious!

    Alicia good for you gal!  I wish I could do something like that! 

    Sandeeonherown you know I would like to blame the 1 hour change, but it seems like lately I am on and off feeling like this.....I HATE IT!!!!

    Sherri- I don't know how you did what you did last week when your father did not hear the Oncologist and you had to repeat it .  My dad started telling me that he has to tell us kids that his time is dwindling he just doesn't have it in him anymore to hold on.....he said he wanted us all to know......I teared up and could not even look at him.  How does one do that?  I am shaking just typing this.....my heart aches for him........he has been my everything.   We all knew this when they diagnosed him as they said it could be anywhere from 2 months to 1-2 years, but he deteriorated so quickly.  I come from a very large family of 7 brothers and 1 sister.  He said he is going to start talking to the whole clan......I know I need to be strong for him and not well up, but I couldn't help it and then he had to change the subject because I am his baby gal and he saw that I couldn't even look at him and nor could he.......I am the youngest of them all......LIFE SUCKS!!!!!  Just when I feel so down and shitty I get this on top of it. Sorry to vent, I just don't know how you did it........and on top of it my mother is going downhill as well and she is in a nursing home with Alhzheimer's and her time is limited......maybe we can be there for each other.....so so very hard!

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    JUNE..My heart aches for you sweetie. I am so sorry you have to go through this with your dad as well. It is so hard to watch our parents go through stuff like this, when all of our lives they have been our rocks now we have to be theirs. It is OK not to be strong all the time and you can vent anytime we are here and you know how to get in touch with me as well, anytime and I mean that!!!!..Life isnt fair and does suck, but we are strong and will get through it just one day at a time.... love and hugs to you!!!!

  • chabba
    chabba Member Posts: 5,065
    edited March 2011

    June and Sherri - My heart goes out to both of you. Both of my parents died many years ago.My last conversation with each of them involved their readiness to welcome death and their expectation that it would be soon.  Dad was gone in three days, Mom the next afternoon.  Although we lost them 11 years apart it us uncanny how similar those conversations were.  And oh so painful, yet so very special.

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    Chabba... I really believe they know when their time is coming... When I went to go see my dad we knew he wasnt doing well, he perked up when we got there and then when we left he looked right at me and said watch out for your mom no matter what... and Ill watch over you... brings to me as I write that... and then 12 days later he passed... so sorry about your parents too... hugs

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    June - Oh Sweetie!  My heart goes out to you.  I was not able to be with my mom when she died of pancreatic cancer.  I was not able to get to Calif later.  My father was without her for 6 years and really missed her.  He had numerous health issues and I think the last time he was in the hospital he just gave up.  He passed in his sleep so at least he did not suffer.

    You and  Sherry are very strong women but you don't have to be all the time.  Give yourself time to let those feelings out even if it is here with us.  We will take care of you.

                                   

  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    Oh June, I'm so sorry.Frown That has got to be so hard on top of everything. {{{{HUGS}}}} to you!!! It's a really rough time right now for you. We are all here for you!

  • chabba
    chabba Member Posts: 5,065
    edited March 2011

    I agree Tink.And sometimes some just decide it is time and will themselves to die.  My Grandmother did that when I was 12. We were visiting her for a couple weeks when one night at bedtime she told Mom she was going to have "one last cup of coffee".  I was supposed to be asleep on the couch.  As she was going to bed she stopped, said a prayer for me and said goodbye.  The next morning when I took her her coffee I found she had died peacefully in her sleep. 

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited March 2011

    Ladies here a an article that I came upon this evening having to do with Tamoxifen, felt that maybe some of you might be interested in it.

    It was just published online today:-

    http://www.drugs.com/news/breast-cancer-tamoxifen-saves-lives-medical-costs-study-30098.html

  • DiDel
    DiDel Member Posts: 1,329
    edited March 2011

    Awww Sherry and June I am so sorry you have to deal with all that..this time is hard enough for us..and to have to pull yourself up to be strong for others is tough. Hang in there, we are here anytime you need a shoulder or to vent.

    ECG I think a lot of us have also had issues with very low tolerance for others. I don't think its the T I think it's the BC. That's whats good about coming here and venting away...no one really understands what we've been through except us. I wish I wasnt so busy with work tht I could catch up more but this train is MOVIN'!.

    Jo I love your sparkling TINKS! So cute!

    Have a good night everyone...

    Diane 

  • DiDel
    DiDel Member Posts: 1,329
    edited March 2011

    OH and I live in Baltimore so if y'all ever meet up in DC I am in!!! I soooo would love to sit and have a real glass of wine and chat with you ladies

    Diane

  • schipmom
    schipmom Member Posts: 119
    edited March 2011
    June and Sherri:  I am so sorry you are going through this with your parents.  It is so hard but you are being so strong.  Hang in there...we are here for you.  Big (((((((((((((Hugs)))))))))))))))))) are going out to both of you.Smile
  • Linda_M
    Linda_M Member Posts: 68
    edited March 2011

    Charmaine,

    Very interesting article...I continue to lurk in this forum daily trying to decide what to do re Tamoxifen.  My biopsies (3) all came back clear, but I am told I am pretty high risk.  I've been staring at my bottle of Tamoxifen for about 3 weeks now.  I see the struggles everyone in here has with it, and they have been diagnosed.  I continue to wonder what to do about taking it to 'prevent' being diagnosed.  The fear of side effects (I am the queen of them) scare the bejeezus out of me.  Thank you for more input on this.

  • starbeauty
    starbeauty Member Posts: 327
    edited March 2011

    Linda... I was high risk too... and worried about side effects too... just want to say - now having a MX, chemo and rads - I wish I had the chance to go back and take Tam preventatively... too late for me - not too late for you.  My side effects are really doable - worth every BC cell the stuff kills.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011
    June and Sherry, I also send you my love and hugs.  It is so hard to be strong just for yourself when you're fighting with this battle against cancer, and it just doesn't seem fair that you have to be strong for your families in the same battle, at the same time.  Many times it is very helpful to write and share your feelings, and this discussion board is a safe place for you to do that and to get some support that you need.

    Linda_M, remember that the women here have had side effects from tamoxifen, but not all women have these side effects.  Women who don't have the side effects aren't posting here.  Everything I've read about tamoxifen indicates that side effects are mild and usually do not require discontinuation of the medication.  Obviously, that is not completely accurate, or we wouldn't even be having these discussions.  If you are terribly afraid or think that you are very susceptible to side effects, you might want to talk with your doctor about starting a very low dose and working your way up to minimize side effects.  That seems to have worked for many women here and will be the approach that I will be discussing with my MO on my next visit.

    I do have to say that being "on holiday" for the past several weeks has really given me an opportunity to get some much-needed rest and get stronger so that hopefully I will be able to go back on it soon.  (Mostly I just want to get back on this train to enjoy some of this wonderful food!) Wink
  • surfette
    surfette Member Posts: 232
    edited March 2011

    Linda M, don't be scared of tamoxifen, not everyone has side effects. I had some for the first couple weeks but now I have adjusted and I have none whatsoever.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    June my friend so sorry you are going through this with your Dad as well.  When I look back at last week and having to repeat the Dr. it seems kinda foggy like a dream.  I know the only way I was able to do it was God holding me up.  I have a very deep faith in Christ and know that that is the only thing keeping me going right now. I know that if I rely on Him that He will carry me through and protect me.  I just have to keep believing in that.  PLUS YOU GIRLS ROCK!!!

    June I also come from a large family.  I have 7 brothers as well but I am the only girl.

    Linda M-I was also high risk like starbeauty and if I had been given the chance to take Tamox for prevention I sure would have.  Even though I have had SE which really have not lasted all that long and my body is adjusting.  It is better than the BC.  Don't be afraid and talk to your Dr. about starting slowly.

    Jo how did you know those were my favorite chocolates?????????yum

    Thanks all you wonderful ladies.  This has been such a wonderful place to be able to come and share my life with.  Don't know what I'd do without all the support.

  • chabba
    chabba Member Posts: 5,065
    edited March 2011

    Linda - I would think that the side effects of tamoxifen as a preventative before diagnosis would be different in intensity if not kind from those the rest of us get.  Remember that for us tammy starts when our bodies are already debilitated by the cancer and the other treatments we have had.  The surgery, the chemo and/or the radiation.  My most difficult SE has been fatigue which started in radiation.  Then tammy caused sleep problems. After 5 months on tammy I am sleeping almost normally and getting my energy and stamina back.

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