Bottle 'o Tamoxifen

13783793813833841024

Comments

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2011
    Chan!  I used to have that too....Just take Ranitidine, (generic for Zantac) and it will really help you!  I don't even need to take it any more, but my DH does sometimes!   If you take just one a day, you won't be bothered! 
  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Chan - Might be the reason too. I slacked off the good food and had pizza for supper...but it was LONG before bedtime...wasn't sure if it was happening in a dream or reality given the time of morning...weird! Guess I should keep some tums beside my bed just in case! thanks!

  • slinky
    slinky Member Posts: 397
    edited March 2011

    This is my 7th day on tamoxifen and 6 weeks into my BMX.  I am having a serious pity-party today.  I have cramps, irritability and sadness - feels like pms to me. I am so worried I am going to age overnight and no longer be attractive (yes, my vanity is talking).  Is this normal, or is this the start of depression? So many things have happened to my hormones, emotions, and life in the last 6 weeks that I can't figure out how I should be feeling?  I felt so happy and upbeat before  starting the tamoxifen - can it be the drug or is reality just sinking in??? Help!

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Been a good weekend building the raised veg garden and getting it planted. It looks so good ca't wait for the fresh veges. DH and I are mow relaxing having a shiner bock on the patio. Funny the only time I like beer is after doing yard work when I am hot.

    My dad told my aunt today he was not doing chemo and that he should just start smoking again. My mom said she did not think he would tell the dr that but she is a little worried about the smoking. I assured her he is just angry and mouthing off. I told her I am still angry about getting cancer and have mouthed off plenty to DH about things I would not do but makes me feel better. I don't think she quite gets it, but I will have plenty of time with my dad to talk about it.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    slinky- sounds normal.....i has ONLY been 6 weeks and you are certainly allowed some pity parties..we all have 'em...and while they don't feel good, especially if you were a happy/joyful person before hand, they seem to help push us forward. Keep an eye on the depression end of things though....talk to people here or in person/on the phone....do things...you are the same as you were 6 weeks ago...same person my dear!...Just the idea of tamoxifen can put some of us into a mood...it is scary to think you wen from med free 6 weeks ago to something you have to use for the next 5 years of your life....my advic ewould be to go and get some books on cancer...Crazy Sexy Cancer Survivor sounds exactly up your alley..and Crazy Sexy Cancer Tips...You will be ok...really

    Sherry- When my dad was diagnosed with kidney dialysis and told he was not allowed to have salt, he refused to eat..said food had not taste..what is the point?....I had his dr put him on anti-depression meds for awhile soon after that as he wasn't eating or getting cleaned up...this from the man with exceptional taste in clothes....your mom is likely in denial herself and terrified...hard for her to get it right now maybe? They are fortunate (in some weird way, if you know what I mean) that you know what to look for and listen to....be well Sherry...

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Thanks sander and u are so right about my garden being good fit the soul. There is just something about digging in the dirt

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sherry - I am glad I am not the only one who feels better after digging in the dirt.  I did some replanting today and now i am dog tired.  Have the shower and dinner over.  Going to get sewing soon. 

    It has got to be tough trying to do your own recovery and then having to take care of dad & mon.  I'm sure dad will make the right decisions for him as time goes on.  This is a pretty stressful time for your parents and you are a strong supportive daughter who I know is there for them every step of the way.  Things will work out.

    Slinky - You are allowed to have a pity party anytime you want.  I did not have many SEs when I started Tamox over 2 months ago.  I'm sorry to hear about the depression and it many be a good idea to talk to your onc about this. It is a slow process to be back to the person but you will get there.  I am 6 1/2 months from diagnosis and I just now am feeling like my old active self.

    (((HUGS)))

  • Teklya
    Teklya Member Posts: 435
    edited March 2011

    Hi all.  Just back from Jamaica and have a great time, only wish I felt better so that I could have enjoyed and would have been able to have done a bit more.  However, sitting on a beach with a flavorful rum drink relaxing was not the worst time in my life, trust me. Arrived home to a fresh covering of windswept snow!  SHEESH!!!

    Teklya

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Teklya- sounds percfect for this year...next year you can swing from trees..this year..all about the beach!

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    TEKLYA  S o glad you had a good time!!  nothing better than listening to the waves at the beach, one of my favorite places to be.

    Sherry, you do have so much going on sweetie, I agree with the ladies sounds like a little denial . They are very lucky to have you bytheir side to help them through this. You are a very strong women , and know you can lean on us when you need to we are here for you too! 

    SLINKY...I do think it is all very "normal" right now... probably a combination of everything. I have been on Tamoxifen since SEpt and I still get those days , so much has happened and it takes awhile to process everything because we are so busy doing what we have to do to beat this beast... youll find lots of good advice hear and support. I do agree though if you feel like it is lingering and you cant shake that feeling would be a good idea to call you ONC.... HUGS!!!!!

    JO...Happy sewing! :)

  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    I have had those days too...really down days.....not sure if it's related to anemia, tamoxifen, surgeries, who knows...but I have had several since dx. I am lately feeling angryyyy....with people who are close to me...family, friends. And I think just in general. Not sure what is up with me. :(

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Tekla glad your home and had a great time.  Sounds wonderful, beach and rum drinks

    Slinky hope you get to feeling better soon.  I hate being in the dumps.

    You ladies are so right about my mom being in denial.  I could go on and on and but I won't.  One of the most frustrating things for me is she has memory issues and can't keep things straight.  I am constantly having to go behind her and make sure everything is good or type up the doctor visits etc so she can read them because she can't remember well enough to make heads or tails of her own notes. Thank goodness for a big family and brothers who are helping out.  I also have lots of cousins who live here and have called to say they will help out if we call them.  My Dad is their favorite uncle he was always the fun one, so they have lots of memories and stories.

    Hope everyone has a good week, think I will have some ice cream and read a book

  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    ECG.. I know what you mean... I have days like that too.. where I just want everyone to go away, but of course not really... i avoided all calls that I could today and just wanted to be left alone snippy all day... and nothing happened to bring it on at all had agreat time at bunco last night... just how I woke up ugh!

    Sherry I am glad you have a big family to shoulder all that is going on. That is so important. When my dad was sick and eventually passed my brothers did NOTHING.it was hard to believe that IM the youngest.....They didnt even go down to see him... loong story... Im glad you have that... enjoy your ice cream and relax!!!!

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Teklya - Welcome home and glad to hear you had a great time in Jamaica.  I will be there in 5 weeks but will also be going to the Cayman Islands and Cozumel on a cruise.  I love Jamaica.  Where were you on the island?  We will be docking in Montego Bay.  We plan on going to a rum factory when we get there. 

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    I thought a sandeeonherown day was in order so after the tea party, I just stayed home. Finally got to see and give my landlady whose son died suddenly a hug....she was hibernating from peope today too. I just fely I wanted a quiet do housework, laundry, cook a chieck and make soup kind of day...

    ECG...read the beginning of your text to slinky and you will also see why you have some bad days! All works out...

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    The bad days are getting fewer and fewer.  But I realize there may still be some in store for me so I will deal with them as they come.  I do know I don't want to be around people as much as I did before.  I got so tired of answering all the questions and think that is still going to happen so I avoid the residents in my park except when I am working and I have to take care of them.

    i spend more time at home in my sewing room and watching TV.  The sewing relaxs me and I don't have to think about anything else.  Total focus is on the project I am working on at the time. 

  • DiDel
    DiDel Member Posts: 1,329
    edited March 2011

    Sherry sorry to hear about your dad but glad you switch up oncs and now feel good about the one you have. Its so important to love your team of docs. FOr me it put me at peace in the beginning knowing I was in good hands. Im also glad you have a big family to support each other through this time.

    Have a great Monday everyone!!

    Di

  • slinky
    slinky Member Posts: 397
    edited March 2011

    Thanks for your support, ladies! I slept and ate my way through this day - not even answering my phone.  Tomorrow is a new day and hopefully I can get back to exercising (slowly).  That was my drug of choice before BC and I haven't worked out in 3 months.  Once I get back into the routine of it, I am pretty sure I will feel better.

  • anetnut
    anetnut Member Posts: 49
    edited March 2011

    I have been stewing about the fact that my onco tells me that I won't be getting routine PET scans to check for reoccurance. She says that they have found that it doesn't seem to make a difference. I cannot help but believe that the sooner and smaller a metz is found, the better. If we only go off of exams, labs and my symptoms, then it is progressed by the time they do a scan. 

     Yet someone else that I spoke with, her mom had scans done every 6 months for 5 years which she just celebrated. Now I love my onco and would hate to change docs, but if it is the difference between having a scan or not I think I will if they'll take me on. I'm currently only on the Tamoxifen and I go back to see the NP the end of this month and I am going to bring this up. How do you ladies feel about this? It just really bothers me to not have regular scans done. I have not been able yet to find out any info on it to know if it really doesn't make any difference or not. I have insurance and asked if it was a money thing and she told me no.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Slinky I encourage to get back to exercising. I never exercised nd started when I started the diag process with bc. It is what has kept me sain during this process and I feel better than I have in years

    Anetnut I am only stage one but will get yearly mri's I don't know how I would feel being stage3 but I think u need to gather more information maybe ask some others with stage 3. There probably is a thread for it. But ultimately I think u have to do what your gut tells u is right and sometimes that does mean switching dr. Good luck with making the decision

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Anetnut - I agree with Sherry.  Sounds like you need to gather more information since you are Stage 3.  I am also Stage One and my onc will be doing diagnostic mammos once a year.  I am comfortable with that as I know that I can have other scans/tests done if it is needed.  Sometimes I think doctors over test but that is just my opinion.

    Good Luck to you. 

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    Wow you girls have been busy since our Friday party ~  I too woke up with red clown lips drawn on me.  You guys....  lol  now those guys !  woo hoo cuties. 

    Hoping everyone had a good weekend, the weather was pretty nice and spring is in the air ! 

    Welcome to the new girls. 

    I have several tattoos.  2 I would like removed.   But for the most part I like them.  Have one on the tope of my foot and yup that area definately hurt the most !  Tink love the idea of tinkerbell tattoo.  So cute ~

    Have a great day everyone !!!

    :)

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Alicia -  See what you get for falling asleep early?  hehe

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    Ladies I miss you all, how are you?  So much reading to catch up on so welcome to all the new gals on this thread and hugs to the rest of you....

    Having a really yucky day and not sure why......so tired and achy all over.  I was supposed to hit the gym and then do a 3-4 mile walk and I have absolutely no motivation or energy.  My appt for my MO is at the end of the month and I hope he seriously will do some blood test as I cannot take this anymore.  I wonder if I am feeling like this cause I still have not gotten a period.  Does that sound right to any of you who have already gone through menopause?  My belly is funky and I just cannot put my finger on it.....sooooo tired today and just feel off balance.....

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Felt like making lunch for everyone today.  Feeling so darn good these days, I almost feel guilty - okay! just for a second.

                                 

    Maybe I will come up with a yummy dessert tonight - better get there before June & Tink take it all.  LOL 

  • schipmom
    schipmom Member Posts: 119
    edited March 2011

    June:  I am feeling the same way....so exhausted and I hurt all over.  This has been going on for about a week. I force myself to workout, but it's so hard. I have not had a gosh-danged period since November, so I don't know if that's the cause of it or not.  My MO appointment is at the beginning of April, so I will talk to him about it. In the meantime, I'll just be walking around like a cranky 90-year-old woman :-(

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    Debyou make me feel better as at least I have a 90 year old friend, who would have thought???  I hate it!  Have you always felt this way since not getting a period?  Do you think you are going through menopause too?  I hate all this unknown.....I only missed periods when I was prego otherwise I was like clockwork......I just don't feel like me, so hard to even pinpoint what my problem is, just a funky belly and so exhausted......I miss seeing you on FB, are you still there?

    Jo I am so happy that you are feeling great!!!  You so deserve it!!!  Lunch was fantastic as usual....I miss you!!

    ECG- How sweet if you visit Brookfield you have to let me know and we shall get together.  My town borders Worcester and Brookfield, I believe is only 30 minutes away.....HECK if it was 2 hours I would still meet you....I wish I could go with all the girls as well to Las Vegas, but I could not afford it and I would feel guilty without my family with me.....(that is just me)  maybe when they get older I won't feel so guilty.  However I would love if we could plan something like a 1/2 way meeting spot for everyone, wouldn't that be so cool!!!  Are you feeling better, you sounded so down as well......I really wish we could just move on with our lives and not be so affected by this disease....

  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    June - Sweetie, where have you been?  I missed you over the weekend.  I haven't been on here as much as before - too darn busy.  Got lots of yard work done and some pre cruise clothes shopping done.  How are you feeling these days?  Hope you are doing good.  It is about time all of us get back to our old selves.

  • June2268
    June2268 Member Posts: 1,202
    edited March 2011
    Jo my friend, this was one of the busiest weekends I have had!  I love to check in and chat but there just was not anytime do it......We had people over Friday night and Saturday we went out with my brothers and their wives....great time that was.  We are in the process of painting our house basically room by room and it leaves no spare time.  Such a project but it is winding down......maybe in the next month we will be done.  Did you finish your shopping for the cruise?  Lucky gal you, I am jealous.....well a little bit as I don't think I could do a cruise as I get so seasick....but I know I would love to go away.....miss ya!!
  • schipmom
    schipmom Member Posts: 119
    edited March 2011

    June:  Actually, I was skipping periods now and then even before starting the Tamox, so I figure I was probably starting meno back then anyway.  I turned 45 in January (sigh).  I've really only started feeling real bad like this for about a week or so.  The last time I felt like this was about 3 years ago.  I had skipped several months back then too, went to the gyno who did an ultrasound and lo and behold, I had 2 ovarian cysts - one on each ovary (a matching set...lucky me!).  One was a solid cyst so they removed the entire ovary.  They removed just the cyst from the other ovary.  A few months later, I finally started getting periods again and even though they had been getting irregular the past year or so, I have felt great.  It's just been recently that this achy fatigue garbage has set in, so in a way, I hope it's either the Tamox or menopause and not a cyst on my remaining ovary.  I don't have any pain or anything, so I suspect these "old lady" feelings are all due to whacked-out hormones Yell

    I am still on FB.  I think I was on a lot more during the winter when we were snowbound, but now that the better weather is here, I'm finally emerging from the igloo and trying to do things outsideCool 

    Here's to hoping we can all start feeling better soon!

Categories