Anyone have thyroid issues as well as BC?

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rianne2580
rianne2580 Member Posts: 191

I have a 2.5 cm nodule in my thyroid gland. NB did not say malignant but possibly suspicious. It does not bother me, I can't tell it's there. But this will definitely be a double whammy for me if it is a problem. My unilateral MX is scheduled for March 29 but my surgeon yelled at me for suggesting not to remove the axillary nodes if the SN is infected. My question is this concern about the thyroid. My thyroid levels are perfect.

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  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    There are many thyroid nodules that are benign - I've been living with a 6 mm one for about 8 years one, and it's a "cold" one. My endo said to just wait and watch it. I'm hyper-thyroid though.

    Did you get a biopsy of your nodule? That should relieve yoru worries.

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited March 2011

    My thyroid fired hot on a pet scan, but after having it checked out with an endrocrinologist.  He said it was fine and not uncommon to get a false positive from a pet scan.  NJ

  • happytobhere
    happytobhere Member Posts: 10
    edited March 2011

    I am on two different thyroid meds.  I just show my endrocrinologist last week.  Told him that I have BC he did not act like he was worried.  This is all new to me and I am scared to death.  I am no doing chemo and just started Tamoxifen due to start rads new Wed.  Are as I have to told to me marked.  So what should I ask or know be for i go?

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    Make sure you talk to your endocrinologist about taking anti-estrogen pills. Estrogen is a thyroid uptake inhibitor, so less estrogen, more thyroid uptake. You will have to be monitored on the first few months on Tamoxifen and your dosage will need to be adjusted. I just had to stop Arimidex because it was messig up my throid levels something fierce, had a 2 week break, now I am trying the Aromasin.

    Not many endocrinologists are aware of the effects of Tamoxifen/AI's on thyroid levels, so make sure yours is not one of them.

  • Heidihill
    Heidihill Member Posts: 5,476
    edited March 2011

    I had a false positive as well on a scan. Biopsy said benign.

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2011

    rianne ~ There's a thread in the Alternatives Forum entitled, Thyroid, Iodine and Breast Cancer.  I had a thyroid nodule and partial thyroidectomy 30 years ago, and a significant percentage of the women on BCO seem to have had some sort of thyroid issue -- typically low thyroid and on conventional thyroid meds.  There's also a lot of information about iodine supplementation in the Natural Girls thread, which is also in the Alternatives forum. 

    There absolutely does seem to be a link for many of us.  No necessarily thyroid cancer -- but just thyroid problems that appear to be related to our bc dx.    Deanna 

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011
    Deanna, that thread too often forgets to mention what excessive iodine can to do people suffering of hyperthyroid issues (dangerous!), and that the theory "not enough iodine causes breast cancer" doesn't apply to them.
  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2011

    Absolutely agree, Day.  Your posts on the subject of hyperthyroidism have been an eye-opener to me.  Sorry if my enthusiasm for the subject appeared to overlook this possibility.  I know your situation is totally the opposite from those of us who probably are or have been hypothyroid.  I hope no one will blindly supplement with iodine (or anything else) without more information on their thyroid stats.     Deanna

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    Thank you, Deanna. I keep posting on this as people usually are not aware how dangerous hyperthyroid can be - it can be lethal. That is why I also posted the response to rianne, because the effects of estrogen-inhibiting therapy on the thyroid are only now being studied. And as there are fewer BC patients hyperthyroid than hypothyroid, it can get out of hand very fast.

  • rianne2580
    rianne2580 Member Posts: 191
    edited March 2011
    Thanks for the responses, good stuff. Now this makes me think radiation as well as tamoxefin is a bad idea for BC treatment. dlb823  I skimmed through the thyroid thread and it's a long one! Most are thyroid  hormone issues and many said iodine is essential for thyroid health. I'm going to look into that. But my thyroid hormone levels have been normal for years. This nodule has been there at least 15 years but has grown somewhat. The ultra sound showed it's a normal shape, not jagged. And the needle biopsy showed no malignancy. Many pathology websites for the thyroid say could be malignant, could be benign for the various cell structures and the only way to really know is removing the thyroid...YIKES. I don't want that. I've got enough surgery going on. Somewhere it said 1% of nodules are cancerous, did I dream that?
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011
    No, you didn't. I'm not sure if it's that low (I knew about 3-4%) but most thyroid nodules are benign.
  • rianne2580
    rianne2580 Member Posts: 191
    edited March 2011

    Thanks Day, you rule with thyroid expertise! They always try to "cut it out" and I run the other way. I can't avoid my MX though. I don't want those little cancer cells running around in my bloodstream.

     By the way, do you like your reconstruction? Looks like there were some problems, did it turn out ok?

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    Yes, it looks wonderful, natural and very similar to my old breasts only in a larger size. I am very very pleased.

  • happytobhere
    happytobhere Member Posts: 10
    edited March 2011

    to dlb823  I am new at this what is thread?

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    happy - discussion in a forum.

    And rianne, I forgot to thank you. I am not really an expert, but I was diagnosed in 2003 with Graves Disease - so you can imagine I had a lot of time to do a lot of research.

  • happytobhere
    happytobhere Member Posts: 10
    edited March 2011

    day - if your in Ok did you go to Caner center of America?  I have thought about calling them.

  • dawn31337
    dawn31337 Member Posts: 307
    edited March 2011

    I had a goiter for a long time and finally had a biopsy in maybe 2006.  No cancer in the thyroid, but i had a hot spot.  Later, I lost a boatload of weight, had shaky hands, etc, so I went back to the endocrinologist.  I took radioactive iodine in April 2009.  I felt an odd sensation in my left breast maybe a year later, but didn't feel a lump.  I had the same odd sensation in September, and did feel the lump.  I now know if was there the first time, but I didn't feel it.  I definitely wonder if the cancer is related to the radioactive iodine, although BC runs in my family. I'm not on synthroid, and my thyroid level is normal right now.  My goiter is gone though so that's a good thing.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    Happy - No, I didn't, I'm going to the OU Medical Center. I have a great endocrinologist there, Dr. Gosmanova. Except for my oncologist, all my other specialists and my PCP now are at the OU.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited March 2011

    I had thyroid cancer after my breast cancer.  I had a total thyriodectomy...would iodine help in my situation?  I'm on synthroid .125 mg.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011

    Blue, in my opinion - logicwise - if you don't have a thyroid anymore, then there is no more "need Iodine to make thyroid hormone". But with thyroid tissue sometimes it's a lot like with the breast tissue - they might not take out all of it. I think a minimal dose of iodine would benefit you. You do not run the risk of getting hyperthyroid from it, and you would get the daily supplement that you need (yes, people on the North American continent do not usually have enough iodine in their diet). Of course, check with your endo and have your levels checked.

    Hope - I don't think they are related. I think it's just that - bad luck. Same way I'd think about my nodule if it turne "hot" on me. I have to go myself through a second round of radioactive iodine - the first one wa not enough to kill my thyroid and I am not a candidate for surgery as it's grown around my vocal box and I run a high risk to lose my voice. 

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited March 2011

    I never had any thyroid problems but a nodule showed up on my PET scan so they did an ultrasound and followed up with a biopsy (Which was absolutley painful and worse than a Lumpectomy).  Anyway, I take a pill each day now and I don't notice any difference.  I would never had known I had it if it wasn't for the PET scan. 

  • rianne2580
    rianne2580 Member Posts: 191
    edited March 2011

    IllinoisNancy,

    Do you still have your biopsy pathology report? I have mine and tried to search everywhere on the net to figure out what the heck it meant. The term cancerous or malignant was no where in there, but other terms were. I wish they would make these terms available like Johns Hopkins did for a breast biopsy. That report is so easy to understand. And my nodule was originally found back in 1998 or so by my primary care who felt it on an exam. We did an ultra sound and I forgot about it. Then in 2007 an MRI picked it up which led to iodine treatment and needle biopsy. Another ultra sound said it shrunk and doc said cancer does not shrink. Then another ultra sound a year later said it grew. Go figure.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited March 2011

    Thanks Day, I have an appointment next month and will ask him.

    P.S.  Please add me to your ritual list.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2011
  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2011

    happy, a thread is each individual topic someone has started for discussion.  If you click on Forum Index above, you'll see that there are quite a few forums or topic headings.  Click on any of them, and it will show you all the individual active threads or discussions.  When you first stumble on BCO, it's easy to miss how extensive this website is.  I know I was kind of shocked when I figured it out.

    In addition to the Discussion Forums, if you go to the bar at the very top of the page (Symptoms & Diagnosis, etc.), you'll find an entire informational side to BCO.

    Hope this helps.    Deanna

  • happytobhere
    happytobhere Member Posts: 10
    edited March 2011

    dbl823,  thanks, i have read so much I do not know where to start.  Do you have a list of what you eat and don't eat?  What do you think to the shampoos and stuff they they say we should not use.  This more than i can take in.

  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited March 2011

    dbl - I had thyroid cancer (papillary) & left lobe removed more 30+ years ago too!  Then had a nodule in 1989 and they removed the right lobe - fortunately benign.  Have been on synthroid  since the first surgery & increased dose again after the second to keep TSH suppressed.  For those of you who have had complete thyroidectomy, what does your onc say about desired TSH level?  My endocrinologist wants to bring TSH up (reducing synthroid dosage) but I worry because I thought the closer to 0 the better in terms of preventing recurrence.  She says too low TSH contributes to osteoporosis, which I have! I'm going to ask my onc on Wed when I see him.

    I also understand that Arimidex can cause issues w/thyroid dosage.  I'm on tamox right now.

    After my first surgery 30+ years ago the surgeon told me ALWAYS to ask for a lead thyroid shield even for dental Xrays and to minimize even getting those.  Said do the same thing for my children.  I did not have lump/rads - I chose mastectomy.  But I wonder when women choose lump/rads whether the thyroid is sufficiently shielded.  (I've never had a radiologist offer a shield - I always have to ask.)  But it really makes you wonder - radiation exposure is the #1 cause of thyroid cancer and there are genetic links also.  When I went to genetic counseling (negative brca) they wanted me to send blood to Cleveland CLinc which is doing a study on link between thyroid CA & breast CA and the PTEN gene (I think that's the name of it) but haven't had it drawn yet.

  • Springtime
    Springtime Member Posts: 5,355
    edited March 2011

    I am hypothyroid and was for years before my BC diagnosis. I am one of those hypothyroid who take iodine in hopes it will prevent a recurrence everywhere in my body...  More at the thread Deanna mentioned above.

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2011

    Interesting that quite a few of us have not only been dx'd with low thyroid function and needed thyroid meds in the past, but also had nodules or goiters, surgery, and even thyroid cancer in some cases.  It's just a shame that docs don't recognize and emphasize to us the possible connection and future risk (assuming the thyroid issues came first) vis-a-vis bc.  It makes me wonder how many of us might have been able to avoid bc if we'd only known then what we know now.

    happy, some of us have made significant changes to our diets and also look a lot more closely now at what's in cosmetics.  One of the first books I picked up when I started to question how I had developed bc inspite of what I thought was a pretty healthy lifestyle was Beating Cancer With Nutrition by Patrick Quillin, PhD, RD, CNS.  Anti-Cancer, A New Way Of Life by David Servan-Schreiber, MD, PhD is another one I highly recommend.  You can check on the safety of the cosmetics you're using at http://www.cosmeticsdatabase.com/   I don't want to take this thyroid thread off on a tangent, but feel free to PM me if you have specific questions.  These are excellent questions, and there are things many of us (including, evidently, BCO's founder who is a physician, a bc survivor, and now has a book on living green) believe can reduce our future risk.   Deanna

  • NancyD
    NancyD Member Posts: 3,562
    edited March 2011

    Oh yeah. I had nodules removed when I was in my twenties...took out half my thyroid. Skip ahead another twenty years and I finally decided to see an endocrinologist about my remaining half which was enlarging. All signs were that it was benign, so it's just been a waiting and watching game for the last 13 years. I may have some more removed if it starts impinging severely on my esophagus, but it's something I can live with right now. I'm not anxious to have another operation. BC was diagnosed three years ago, so the thyroid issue does not seem to be directly related.

    JanetinVirgina...genetic link is interesting. My mother also had part of her throid removed and developed breast cancer many years later, and so far, I'm the only duaghter (out of three) who has had the same history.

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