Question
Hello,
I have a question. Back in december my mother was having some routine test and they found a 9mm spot on her lung. Too small to biopsy so they said we will wait and check it again. She was at her doctor today and he said he will check it again in may. Is it me or shouldnt they be checking it out now. Its been 3 months sence the last xray that found it. She is a smoker and has smoked for many years. I was hoping they would check it again in 3 months. I tend to be the worrier in the family so I didnt say anything to her when she told me he was waiting till may. Thank you in advance.
Comments
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Penny, I don't know the answer to your question, but if you are at all concerned about the way your Mother's doctor is proceeding, a second opinion might ease that worry. Otherwise, if I was in your situation and if your Mother is really happy with her doctor, then I might (with her permission, of course) call and discuss your concern with her doctor -- maybe ask him the pros & cons of waiting vs. biopsying now. From your post, I'm not clear if he even imaged it this time, or if he's entirely waiting. If he plans to wait another 3 mos. to do anything at all, maybe he believes it will take that long for any changes to be evident, and is trying to protect her from an unnecessary biopsy. But definitely ask him. He should be open to your question and concern, and be able to explain his rationale for waiting to you. If not, then I would definitely seek a 2nd opinion Deanna
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Deanna,
Thank you for your responce. No he didnt image it this time. This was her regular doctor who we respect alot. You are right, maybe he dosent want to do anything unnecessary. I just would have thought with all her past history and having breast cancer that he would have wanted to look into it sooner. I do have the concent to ask her doctor anything so I may go that route. I just worry all the time and want to keep things from being missed. Her onco. tends to be a alarmest so we really want her regular dr. to handle this. She is comming up this month for all her scans again and we dont expect any problems. She has been very tired but other than that she is doing well. Thank you again for your responce.
Penny
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Penny, does your Mother still see her onc on a regular basis? Is he or her primary doctor doing routine blood work -- at least CBC & CA27-29? I tend to agree with you about taking these irregularities more seriously due to the past hx of bc.
Other than the smoking, does she take care of herself? If she's been tired since her tx ended, perhaps there are other things going on. As you probably know, chemo & rads (not sure what she had) can cause all sorts of lingering issues, including anemia and reduced immunity. Deanna
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Deanna,
Yes she see's her onc reg. she is set to see him at the end of the month. He did a pet scan 3 months ago, along with a ct scan and chest xray. That is when they found the spot on her lung. At first he made no big deal over it until I asked what was next. He acted surprised because he had thought it was there the last scan. I told him well if it was no one told us. He went threw all her reports and it was never mentioned. It was 9mm and they said 9mm (both her reg dr and her onc) it was to small to do anything at this point and they will check it again on the next round of scans. My mom is not a healthy person. She has a mechincal arotia heart valve for 10 years. She is on blood thinners as well. I will try to make this short- Here is how her last scans read in nov. First let me say thank you for your time with me on this.
CT scan of the chest- 9mm nodule in the left lower lobe. No pieural effusions are seen. Small lymph nodes are present in the AP window and right paratracheal region. No evidence of mediastinal, hilar or axillary lymphadenopathy. Liver is of decreased attenuation compared with the spleen constant with fatty change.small cysts are present in the right kidney without change. Atherosclerotic coronary vascular disease. Status post median sternotomy.
PET Scan-- PET images demonstrate now is some metabolic activity. Low lwvel activity associated with degenerative changes in the thoracic spine as well in several small lymph nodes, not pathologic by size criteria nor by magnitude or metabolic activity. The lymph nodes in the left axilla have physiologic uptake. The remainder of uptake is physiologic. Extensive atherosciclrotic calcifications are noted int the coronary arteries, thoracic aorta, abdominal aorta and perpheral vasculature. There is mild fusiform aneurysmal dilatation of the infrarenal aorta to 3.0cm. mild rena atrophy is present. Sigmold diverticula are present without adjacent inflammation.
Impression-- No evidence of metastatic disease.
I have all the copies of her blood work but I really cant make heads or tail of them. I dont know what a CA27-29 is. What would it look like under her blood work.
I have tried to disect all the reports but I just dont know what it all means. When she goes at the end of march I know he will order more scans and I plan on him telling me what it all means. I got these faxed to me when he was away for a month on vacation and never got him to explain them to me.
Thank you again for any input you may have on all of this. I have also noticed she has such a hard time remembering anything anymore and has a face of confusion more often than not. I love my mom with all my heart and I know she is tired from all of this. But she is a very strong woman and pushes forward! My mom will be 77 this year.
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Penny, if your Mom had chemo, the memory issues may well be related to that. Many of us struggle with some degree of "chemo brain" after tx.
I'm not a doctor, but the line that jumps out at me from what you've shared above is:
"Impression-- No evidence of metastatic disease."
If I was in your situation, I think I would focus on trying to help her rebuild her health & strength with wholesome food and maybe some nutritional supplements (smoking, for example, really depletes Vitamin C). But for now, I would be very happy with the impression the radiologist has given. If you are still concerned after her next scan(s), you can always have a different radiologist review them for another opinion. Deanna
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Thank you deanna for your time. You are right about focusing on the NED!. I do.. and they are magical words for me. I will continue to encourge her along the way. Its just that spot on her lung that has me worried., Like I have been doing we will continue to enjoy each and everyday. She did have chemo and I have heard about the chemo brain. No rads. Thank you again for taking the time to respond to me. It helps to know that I can ask a question and get some answers.
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