Big jump in CA 27.29

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chele
chele Member Posts: 1,465
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

My first CA 27.29 was 25, then 32, 28, 40, now it's jumped to 341.8.

I KNOW the CA 27.29 is not a definitive test.  I've looked for other reasons it could be elevated.  I'll see my oncologist next Tuesday.  Where do you suppose he will want to go from here?  More blood tests?  PET?  I just had a bone scan 3 months ago, will he want that repeated?

GAH!

I just HATE all the driving involved with all the testing!  And the waiting for test results just KILLS me (no patience whatsoever).

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  • jdeking
    jdeking Member Posts: 408
    edited March 2011

    Good luck!

     I think you'll probably end up with scans - PET, CT, bone or some combination of those.

    Hope everything goes ok for you. (((hugs)))

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks!

    Yup, I suppose you're right.  I'm such a big plotter and planner.  I hate the unknown (don't we all?)  I had a spot on my spine that was attributed to inflammation 3 months ago - but my CA27.29 was fine.  I guess I'll just show up for my appointment prepared for anything.  I have a 90 mile trip each way.  bleh.  So tired of the drive to Pratt!

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited March 2011

    Hey Chele, I am still two weeks from finishing chemo so I really don't have any advice for you but wanted to send you a hug and let you know I will be thinking of you and praying that the markers are just plain old wrong.  Please, please post back and let us know how things turn out.

    Susan

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks Susan.  The good news is my oncologist called me at about 6pm (LOVE my oncologist) to talk about my test results.  He wants to do a CT of my chest/abs/pelvis and he's concerned about my headaches.  Probably have to do an MRI.  I'll talk to his ARNP tomarrow to schedule everything.   *whew* It's a relief actually, to start testing right away.  Waiting until my appointment Tuesday was going to be tough!

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited March 2011

    Wow!!! How nice for him to call you.   As you begin your tests my thoughts and prayers will be with you.  Please let us know when the tests are and when you are scheduled to get results.

    Think positive thoughts that the blood test is as inaccurate as everyone says!

    Susan

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    No kidding Susan, what a great doc!  I did a CT, MRI, and more lab work today.  I'll get the results Tuesday. 

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  • nancyh
    nancyh Member Posts: 2,644
    edited March 2011

    Dear Chele,

     You sound like one very courageous gal and seem to be taking this in stride, but I'm sure it is really unnerving.  Please know we are pulling for you and hope your results come back with good news.  Sending every ounce of positive vibes your way.  

    Hugs, NancyH 

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks Nancy!  I've got myself braced for more chemo.  I'm thinking best case scenario is to find I have cancer in my uterus - don't need it, no big deal to remove it!

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited March 2011

    Hey Chele, sending positive thoughts and prayers your way today and tomorrow.  I will check back in for your results!

    Susan

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks Susan!

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    The good news is there are no mets to my brain.  The bad news I get to do more testing.  The CT showed a suspicious spot on my spine, probably T9 again, although my oncologist didn't say that specifically.  I did and MRI of my T-spine today, and re-did the CA27.29.  Tomarrow I will do a full body bone scan. 

    I am soooooooo relieved I do not have mets to my brain!!  Hopefully I'll have some answers tomarrow, and surely the CA27.29 results will be back before the end of the week.

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited March 2011

    OMG!!!!!  I hate the waiting game.  I swear after diagnosis that is all there is . . . waiting, waiting and more waiting!

    I am glad with you that there is no brain mets but I am worried about your spine.  Please let me know when you hear.  You have been on my mind and in my prayers.  I am still hoping for the best of news.  The CA 27-29 had a weird hiccup and you are perfectly healthy and fine.

    I will continue to send positive hugs, vibes and everything else I can muster your way!

    Susan

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks Susan, I apprechiate your concern and prayers. 

    So, looks like I'm stage IV now.  Mets to my Thoracic spine, sternum, and possibly the shoulder that has been bothering me.  I'll be doing radiation then chemo.  My oncologist didn't mention any biopsy, or if he did, I was too stunned to remember. 

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  • nancyh
    nancyh Member Posts: 2,644
    edited March 2011

    Dear Chele - I'm so sorry.  Please come join us on the stage 4 board, there is so much reason for hope - lots of treatment options and women living for a long, long time.  Sending big hugs your way - I'm sure you must be in shock, but I just get this feeling from your posts that you are a strong soul.  

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks for the invite Nancy!  I'm a little shocked; didn't really expect mets, and so many!  Good grief.  *rolls eyes*  I've got a great oncologist; I know he'll take the best possible care of me.

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited March 2011

    Chele, do you know when your radiation will start?  I didn't have radiation so I don't know what that's like.  Will they radiate your spine?  I am truly in shock for you.  Just know there are so many of us who will praying radiation and chemo will find you NED once again!

    Susan

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    I'm still waiting for the radiology dept. to call me.  I'm betting I'll be starting next week.  I sure don't want to wait any longer than necessary!  Radiation isn't so bad.  I had 33 treatments the first time.  They made me a little fatigued, but I still was able to work full time.  Yes, I'll be having radiation to my spine this time.  My oncologist said 10 treatments, so that's not too bad.  Hubby has been enlisted as the official lotion/silvadene applyier so I'm all set!

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  • KS1
    KS1 Member Posts: 632
    edited March 2011

    Chele, I don't know what to say other than I am so very sorry to hear your news.  KS

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  • chele
    chele Member Posts: 1,465
    edited March 2011

    Thanks KS1. 

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