Bottle 'o Tamoxifen

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  • slinky
    slinky Member Posts: 397
    edited March 2011

    So I took my first pill last night.  I can tell you I usually have an electric blanket on until I go to sleep, but last night I had to turn the blanket off after an hour of taking the pill.  I slept with just the sheet on me (even though I usually have four blankets over me).  I got up four times, but forced myself to go back to sleep.  This morning, I am still pretty warm - in fact, I was on the verge of sweating just driving to the store.  I guess this is what hot flashes are like?  I just ate something, so I am going to try the pill in the a.m., versus p.m.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Whew!  You ladies move way too fast for me to keep up.   

    Chevyboy - WOO HOO!  Can you hear me celebrating?  What great news.

    Sherry - Glad to hear the rad onc apologized for his shortness. 

    June, Tink and all the others who joined up last night - what a great time we had.  We should do this again real soon.

    Oops! I did not take notes and if I go back I will lose everything I have written.

    Hope everyone is having a great day. 

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    ECG.... Thinking of you and hoping you are recovering well! hugs!

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  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    Hi everyone!! checking in! I am recovering well. Much quicker than BMX. I've been absent from the boards for a few days and from Tamox as well!! Yep, I stopped for surgery on my own. Have been off 12 days and feel great. All symptoms are gone. Not that I had major ones, I didn't thank goodness, just annoying ones. (and the quick brain pains which do concern me though have disappeared as well) Too bad I have to start back. Waiting to hear from the NP in my Onc's office. I couldn't see my onc at my appt last week and so she is going over all of my things with her and getting back with me. 

    Chevyboy!!! YAYYYYYYYY!!!!! Was so happy to read that you can HEAR!! 

    Sherry, so glad to hear it looks like your dad only has it in his ribs and maybe the radiation will take care of that. Sorry you were talked to that way. Glad he apologized though. I just think in this profession, especially dealing with cancer, dr's and nurses have to have an exceptional bedside manner. It should be a requirement.

    Welcome to all the new T-train riders!! :) We are well fed and never alone and always having fun on this train!  It's fast moving so hold on tight!!

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Chevyboy- can you hear me shouting hoooray from Halifax!! WHEEHA!!!

    Tink- thanks...it was soooo good to get out of my life, you know?....was able to breathe better, sleep better and not...'fret'....a move may be afoot once the 6 month anniversay mammogram is complete....need to keep thinking on this. I felt much more like ME

    slinky - congrats on taking the first step!! hardest one!

    Echo- I love your byline..you are right..every day we think we will not get through it....we do....so true

    Omaz/Sherry- split it in half...take half in the am and half in the pm. I checked with my doc and she said Fine...and i do not have hot flashes..i wake up 'warm' some ams at around 4am but I am not soaking hte bed wet...just the same kind of heat I have felt for the last 4 or 5 years.

    Sherry- so sorry about your dad but relieved on some level that it is one spot and that hey believe radiation will do the trick. Glad your doc. stepped up and apologized...takes a special person to admit when they have been an ass...guess doctor's have bad days too, hmm? Glad it is resolved as he is someone you need to trust is on your side.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sandee - I don't remember if I told you but my mom was from St John's, Newfoundland.  Isn't that close to you?

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Hi Jo - it is a 12 hour ferry ride across the Atlantic....but I have been there and it is gorgeous!!!....Lots of Newfoundland is just ...vast emptiness...rocks....but St. John's is a hub of music, (celtic of course) and bars and friendly people. Makes sense your family would be from a friendly place!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sandee - I was not aware that the music was celtic.  I do listen to alot of that music, now I know why.  I have seen lots of pictures and it does look gorgeous.  Unfortunately, I have never been there and unless I win a lottery, I don't see me getting there anytime soon.

    Other than flying, isn't the ferry the only way to get there?  Isn't is an island with it's own time zone? 

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Yes...flying is about 2 hours? there are two ferries that go but the closest to St. John's is a 12 hour ride...the overnight means you can get on a bunk and sleep with the waves lulling you to sleep.it is a 1/2 hour behind us in time zones..there very only half hour! Newfoundladers (Newfies) are indeed special!.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Yes, I know.  My mom kept reminding me I am half a newfie.  My dad would get here going when he called her a "cod head."  He was the only one who could get away with it.

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    does that mean you have had fish cakes for breakfast and hard tack biscuits>?? You are indeed..did you ever do the duocitizen thing?

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sandee -  I had the fish cakes and hard tack biscuits many years ago.  It was fish every Friday,  corned beef and cabbage (yuck) and pot roast every Sunday.  Sure miss those meals - mom passed away in 1995 and there is no better cooking than mom's.

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited March 2011

    Srooy about your mom...never easy whenever it occurs...You come on up for a visit Jo and I will haul in my newfie friends and we will have a fry up! MY exroomie is from there and her 'accen comes right thick there bye...lord t'underin!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2011

    Morning girls!  Sandee!!!!!!!  Yes, I can HEAR you, Ha, ha!  Except not actually right now, because I haven't put them in yet...It's nice & quiet, this early in the morning...I put them in when DH gets up, after I shower...THEN my world begins. Cool 

    Okay, here's breakfast....Wink  Just sounds good right now.... xoxoxoxo

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    ECG ~ glad to hear that your recovery is going well and you are enjoying your tamox break !  Happy Healing. 

    Are we eating steak for breakfast ?  Ok you twisted my arm Chevy ~

    :)

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Chevyboy - That looks exactly like a meal my mom used to make.  That would have been a Sunday meal when she got tired of pot roast.

    Enjoy the silence this morning and have a great day,

    Sandee - You never know when and where I may show up.  I do know it will be in the summer months - I hate the cold weather. 

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2011

    No, no!  Alicia....It's Corned Beef and Cabbage, Ha, ha!  I like potatoes with mine too, & maybe a slice of dark rye bread with horseradish mayo for that corned beef!  Cool

    WHAT?  It's just you & me babe...where IS everybody?   Oh sure....bed...Wink

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    This is what I am having for breakfast.  I have plenty to share with everyone.

                              

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    chevyboy so glad you can hear now.

    ECG glad your exchange went well, continue to heal

    Thanks for all the thoughts on my Dad, we will find out more on Thursday when we meet with the MO.  I'm afraid he may have to have chemo as well and he is not in good health.  But maybe we will get lucky!

    Hope all my tammi sistas have a great day!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Sherry - I have my fingers crossed that your dad does not have to have chemo.   Keep us posted.

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    Sherry saying a prayer for you dad!

    ECG..So glad recovery is going well.. the Tammy breaks are nice :)

    JO..OK now I can eat nreakfast just got home from Mass and received ashes.. time to dig in im starving!!!!!  oh I have a sugesstion how do you feel about shellfish??? might be nice for dinner tonight!Wink

    Have a great day ladies.... see you tonight!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Tink - What kind of shellfish?  I love lobster & shrimp.  We may have to postpone until tomorrow night.  I have a dinner meeting tonight and will be MIA.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    LObster and shrimp I can't wait.

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    Jo That sounds wonderful ! no problem whenever you can whip it up! :)

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  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    Guess it's time to jump back on the train.....but sleeping good, feeling good (not queasy), no head zaps...is REALLYYYYY nice.....maybe tomorrow. :)

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    EastCoastGrl - So glad to hear everything is going well.  Sleep makes all the difference in the world.

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  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2011

    Hi guys!  Love reading your posts... I have a question:  about periods.... I have been on tamox since November... and have not had a period (I'm also still having herceptin every 3 weeks).... I haven't had a period since june of last year just after I started chemo.  Are periods normal while on tamox, or normal NOT to have them??  I am so confused... is it a sign that I metabolize if I don't get my period, or no?  My doctor won't run the metabolizing test for me even though I have asked 3 times, ugh!  My hot flashes have also pretty much stopped lately.  Thoughts?? 

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  • surfette
    surfette Member Posts: 232
    edited March 2011

    Leanna9:

    Mine have lessened dramatically since I started tamox in January. I used to get a very heavy period for 8-9 days, and now it's 4 days max and very light. No complaints!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Leanna9 - My hot flashes have decreased dramatically since starting Tamox.  I can't address the issue with periods.  I have been post menopausal for 3 years.

    I tend to do the most posting here and would like to ask a question for those of you wonderful ladies who have been done with active treatments for awhile.  Once the tests are clear and you are just doing the "routine" follow up appts - don't know how else to phrase it - does one ever really stop thinking about BC?  Seems as hard as I try, I can't and I hate that it is happening.  Makes me feel like I am in the nightmare and can't get out.  

    I am doing really well - sleeping good and back to being pretty active but my mind is still in a spin.  Am I expecting too much after just 6 months? 

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  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited March 2011

    East Coast - did your surgeon say when you could start up again?  I have right prophy coming up 3/23 and surgeon told me to stop 14 days before surgery, but she didn't say anything about how long after to start again.  I'll have to put that on my Q list. 

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