When should our daughters get their first mammograms?
Hi all, I'm just wondering if any of your daughters have been advised when to get their first mammogram. My daughter's 25 and doesn't have any risk factors other than me(diagnosed just before I turned 50) and her dad's sister(diagnosed just as she was turning 50 too). I have been tested and do not have BRCA 1/2, but her aunt has not been tested(she has no daughters and has shown no interest in getting tested). Her doc is advising my daughter to get a baseline mammogram now, but I thought the guideline was still to start getting them 10 years before the youngest first degree relative was diagnosed, which would put her at 39 or 40. I thought I remembered getting the baseline 5 yrs. prior to starting annuals, but this still seems early. Especially because she's a teacher and her crummy insurance might not pay for it.
I've been reading and it just seems like there are some gray areas with this whole thing too. What have your daughters been advised to do?
Thanks everyone!
Angela
Comments
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Hi Angela-
My Mom was diagnosed at 77, me at exactly 52.My sister remains cancer free at 60. She's been on hormone therapy for YEARS. I never used hormone therapy and didn't ever use the pill - go figure! BRCA was negative but I do believe there are plenty of bc genes yet to be discovered and genetics that played a part in my developing bc.
My Oncologist recommended that my daughters have a baseline MRI at 30. He feels the MRI will show their starting points in clearer detail. I imagine it might be tough to get insurance approval for it, and maybe even for a mammo at 30. I am going to strongly encourage them to fight big time for the MRI. Now that I've heard this from a professional I truly respect, the drive to have my girls get the MRI is obsessive!
I'm looking forward to see what others have been told.
Best, Ellen
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I have been told when they turn 35 for the base line Mammo.
Sheila
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My mom had stage 1 bc at 62, when I was 34 and pregnant. I was advised to get a baseline mammogram at 35. I got it at 36 due to the pregnancy and all... it found DCIS and it turns out some stage 1. So at least 35!
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Thanks ladies! Looking forward to more replies, as my daughter's future health weighs heavily on my mind. I know all docs probably have their own preferences on this, so that makes it confusing too. I've searched online for screening guidelines for higher risk women, but they are all different and some are rather vague.
Sheila, what you are saying(35 for a baseline) sounds like what I had mostly read.
Ellen, that is the other thing that I have been reading - they are recommended mammography along with ultrasound or MRI in higher risk young women with dense breasts, since mammography is less accurate on dense breasts.
xtine, I'm so sorry you have to go through all this at such a young age. Good luck and God bless to you and all.
Thanks everyone for your replies,
Angela
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When I had my genetic testing, they told me our daughters should get their first mammogram 10 years before the age when the youngest family member was diagnosed. My cousin was diagnosed at 38, so my daughter should start at 28.
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wow, thanks for posting...my daughter is 5 and it is at the back of my mind...
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Hi
My mom got bc when she was 49, and I was diagnosed at 47. I've been begging my daughter to tell her obgyn and that she should get a mammo or mri, she's only 23. I had my first mammo at 30 because my mom was 49. Hopefully my daughter's doctor will take this all to heart and order her to have a mammo early
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Like Dawn, I was told when getting my BRCA results (neg, yeah!), that my daughter should start mammograms 10 years before the youngest family member dx'd, which would also put my DD @ 28
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Migallen,
Did you have genetic testing?
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Yes, I did have the genetic testing and it came back negative. That has been about the only good news I've had since I started down this road. I've had 11 relatives with bc and ovarian cancer, but the test came back negative.
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Was told the same thing from the genetics counselor -- if there is a genetic link, on average it shows up 10 years earlier in the next generation. Think that's quite a generalization, and as it turns out, I thankfully do not have either the BRCA 1 or 2 gene. Nonetheless, our daughter will likely have a baseline mammogram before the recommended age of 40, more likely she'll be in her 30s (I was 43 when dcis detected). Hopefully by then the digital mammography and mri technologies will have improved even more.
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CTMOM, I like that - "When I grow up I want to be an old woman:
That's my wish for all of us, that we grow up to be very old women! -
My daughters were both told, by two different GYNs, that their baseline would be at age 35 (I was diagnosed at 48). I'm BRCA negative but their grandmother (DH's mom) died from breast cancer and then there's their mom! I too am hoping diagnostic tests are much improved (although oldest DD is 31 this year so they'd best hurry).
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They only KNOW about BRCA1 and 2. 100% of the women in my family have had BC. You can't convince me it isn't hereditary. I am BRCA1/2 negative. Which leads me to believe my family has BRCA5 or something they just haven't discovered yet.
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I totally agree with you Dawn.
Min
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I had my first mammo when I found a lump when I was 30. I was told it was fluid filled, but within 5 yrs became solid (sounded weird to me). I had the benign lump removed when I was 35. I am going to suggest MY girls (all 4) by the age of 25. I don't know if ins. will pay or not, but with all of my breast issues, I think it's a good idea.
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i am glad to see this question! I was the one and only in the family, no BRAC, diagnosed at 46. I pester my onc and my OB/GYN every single time I see them on this issue. Best I can get is 35 for my daughter. The reasoning is that mammos are not effective on young breast tissue and may very well miss something if there is something there. I'll say, they missed my bc completely and my breasts while not younger, were v dense. It is a family trait.
My daughter wants to go for an MRI beginning at 25-28 for a baseline. I encouraged her in this, whether it is paid for or not. He**, I'll pay for it.
4 mammos and US's missed my 1.5 cm completely, only found by MRI. I get them yearly now and will until I get a prophy on remaining girl.
I have just seen the newer model 3-D mammo approved. Hopefully it will be much more accurate for our daughters than mammos are for younger breasts.
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bump
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...on this subject, just met a woman yesterday who lost her daughter at age 28 to bc. They told her "never mind, it can't be anything at your age" and did not follow up on it.
!!!!!
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When I was diagnosed in 2006 at age 56, my then 23 yo daughter was immediately given a mammogram by her gynecologist (who happens to be the Chief of Women's Health at a large Baltimore hospital) and has received a mammogram every year. Surprisingly, her tight-fisted insurance company pays for it without a quibble.
There is no family history of BC and I am the first in my family to be diagnosed with BC. The gynecologist's reasoning was that there may have been environmental factors that raised risk and as there was a chance my daughter had spent 23 years being exposed to the same environment that I had, she needs to have yearly mammograms.
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I first had breast cancer when I was 45. And I was pre-menopausal. Last year my 29-year old (at the time) daughter noticed some thickening in her breast and ended up having an MRI and a biopsy. (All was well). She also has fairly dense breast tissue Her breast surgeon recommended that she start having a baseline mammo at age 35 (ten years younger than when I was first dx), but did have a six-month follow-up MRI and will have another in one year. For women so young, I think an MRI is much safer - there is no radiation involved. My breast cancer was found about seven months after I had a clean mammogram. Maybe it would have shown up on an MRI????
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My mother died of BC. I was told to get my first mammo 10 yrs earlier than the age she was dx (54) - I never got to my first mammo - found a lump and was dx at age 39. I then did BRCA test and was positive, but unfortunately was never told about genetic testing earlier on (BRCA defect was actually passed down through father's side (no clear BC patterns on that side), not mother's side.) If your daughter's doc thinks she should have a mammo already, then why wait? Just go for it for peace of mind.
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Very glad you posted this question. I think if I can manage to drag my daughter to have a mammo done, I'd like to see one done by age 25 for a baseline. It would give me great peace of mind, so I hope I can convince her of it. I need to ask my onco the next time I go though what her thoughts are on it.
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If they are under 35, is getting thermography an option?
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Thanks for your input everyone. My daughter is going to go ahead and have the baseline mammogram that her doc recommends. She's 25. Given the breast density issue with young women, I just wonder how accurate it will be and I worry about the lifetime radiation exposure too. I dont know much about thermography, Thatgirl, but I am going to look into whether there is a high risk clinic in her area, Britchik!
Wishing good health to all our daughters,
Angela
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Don't forget breast self exam. More women find their lumps that mammo does, especially if she is doing regular self exam.
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That's a good reminder Charlie! I hope our daughters are vigilant with BSE. "Know your girls", right? lol
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Bumping so the spam doesn't show on the front page.
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Bumping so the spam doesn't show on the front page.
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My mom died of b/c at age 58 when I was 24. I was advised to get a baseline at 30, and did so, following up every 2-3 years after that till age 40, then I got an annual one. My insurance did not quibble, and I had a couple of different insurance companies during that time, so I think if a parent has it and a doctor recommends it, insurance companies go along.
Of course, at age 52, 6 months after a clean mammo I found the lump - turns out I was multifocal with lymph involvement, none of which was seen on my routine mammo. I even had those films re-read by Hopkins, just to see if the original radiologist missed somethign, and even Hopkins said that they would not have seen it either - I had those dense breasts. So as we all know mammos aren't the be all and end all. But they're a useful tool and I think 25-30 is not a bad time to get a baseline.
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