First Time Post - Radiation Fatigue

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pamc
pamc Member Posts: 2

Hello All - I start my radiation therapy, six, weeks, tomorrow.  I know one of the side effects is possible fatigue though I do not know the percentage of radiation recipients that actually suffer from this.  I would like to hear from those who have and what, if anything, they did to deal with this.

Thanks!

Comments

  • BrandyB
    BrandyB Member Posts: 195
    edited March 2011

    Really intense fatigue. Good news is that it doesnt last very long after treatment. While in treatment fatigue would hit around midday ( my treatments were at 9:00 am everyday). I had to sleep at once. There was no choice in the matter, I WAS going to sleep. I slept around 2 hours and then I was OK. I continued to have fatigue for about 5 months following rads and now I feel totally back to normal. The good news is that the time flys by. You'll be done before you know it. Good luck!!! You'll do great. :)



    Brandy

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited March 2011

    Pam, it'll depend on so many things. I did chemo, then lumpectomy, then radiation.  I was walking (admitedly less and less) throughout treatment, but during rads I just bottomed out.

    However -- I was also taking care of my mother who had ovarian cancer and dementia.  And she died in the middle of my rads.

    So it's hard to pull out the different threads and say what was due to what. I was overwhelmed on every possible level.

    Some women do really well by the time they get to rads, and some find it overwhelming.  It's realy individual.

    The best thing I can think of to say to you is to listen to your body.  You may well need extra rest-- so do that.  Naps are ok, no matter how you may have felt about them in the past, and extra sleep at night isn't unusual.  Eat and drink as healthy as possible.  And most of all, be gentle with yourself.  Do what you can do, and don't beat yourself  up if you can't do more.  Exercise as much as you can -- it helps a lot when you get into recovery, but don't feel guilty if you just can't keep it up.  A year out from the end of treatment, I'm really happy with how good I feel.

    Best of luck to you.  You're going to be OK!  Big warm hug...

  • ADK
    ADK Member Posts: 2,259
    edited March 2011

    We are all different and we all react differently.  I really didn't feel any additional fatigue from radiation.  But that was my experience - I hope you have an experience similar to mine.  Good luck with it.

  • Outfield
    Outfield Member Posts: 1,109
    edited March 2011

    My experience was doing radiation right after chemo.  I actually felt BETTER as I went through radiation, so my overall fatigue at the end wasn't as bad as at the beginning.  I was able to stop taking naps and go back to work.  I think, for me, recovering from chemo played a more dominant role than the radiation during that time. 

    I did exercise steadily through radiation, hard to know if that helped or not since I can't compare it to not having done it. 

    Good luck.

  • pamc
    pamc Member Posts: 2
    edited March 2011

    thank you all!

    Pam

  • Eloise
    Eloise Member Posts: 137
    edited March 2011

    I'm one week post-radiation and the fatigue is at its worst for me.  It's a lot like when I had mono in high school -- I feel fine, not nauseated or dizzy or anything; just don't want to do anything except sleep, or lie in bed and read, with an occasional burst of energy when i can watch TV. Unfortunately, unlike when I was in high school I no longer have my mom to wait on me! Yesterday I got up at 9 AM or so and had breakfast, fed the cat, etc. -- went back to bed for a little lie-down and fell back to sleep until 1:30 PM, including sleeping through two phone calls.  I have a bad cold, which may be contributing to it (or maybe I got the cold because the rads made me more vulnerable?).  I have been going to the gym twice a week throughout treatment, but not exercising much on the other days. 

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    pamc - I am 2 weeks out from rads,  I was pooped every afternoon starting about the last week of treatment and beginning to lift now, so about 2-3 weeks.  It's a wierd tired.  Like I need to take a nap now and when that's done I feel better.  Be sure to lube your skin, underarm and up on your chest very well during rads.  Lots of whatever you are using, just slather it on.  Best wishes.
  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2011

    Like ADK,  I really didn't feel any additional fatigue from radiation. I found the mental anxiety before and during rads far worse, truthfully, than the physical issues. With just dcis, you will not undergo chemo., which I recall others posting, often leads to added fatigue during rads.

    May you breeze through the weeks, just take 'em one day at a time.

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited March 2011

    The fatigue for me was very severe.  Started about half way through and last for months. No amount of sleep will make it go away.  It took a while for me but it did go away.  NJ

  • Sherbear
    Sherbear Member Posts: 215
    edited March 2011

    I agree that everyone is different.  I was told to expect fatigue and was lucky enough not to experience any.  Like some of the ladies said, listen to your body, exercise when you can even if it's just a bit of walking, eat when you're hungry, and sleep when you're tired.  I wasn't able to work during rads due to scheduling conflicts and the nature of my job, but I kept myself pretty busy during that time anyway.  :)

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited March 2011

    I am on treatment 26 of 33 here.  I am having some general aches and pains in my joints which I think are actually fatigue.  Just achey, nothing serious or debilitating.  Almost as if I am coming down with the flu (which I have never had since I was a child, just think this must be what it feels like).  I am tired but its not a have to sleep tired.  Just a run down, feeling old kind of tired.  Well......it looks like I may be of no help what-so-ever.......sometimes I am a bit dizzy.  Though this may be a trait I had before all of this mess. I had chemo first and a mastectomy.  A minimal amount of burning even though I am fair accept for the the supraclavicular area (got pretty burned though). Treatment does go by fast. I managed to work out every other day while on rads.  And this is new to me, something I have recently added to my life in an attempt to help fight thinking about having a recurrence all the time. Good luck.

  • mrsbeasley38
    mrsbeasley38 Member Posts: 62
    edited March 2011

    I did not have to go the chemo route and with only the 6 boosts left after today I feel great.  Maybe because I have been eating healthier and making sure I get enough sleep at night.  I have experienced some moments of "I need a nap" but really that has not happened more than 5 times. I have continued working out at least 4 hours a week and I really believe that has helped me alot.  I also used Aquafor and aloe and being  redhead I am really happy that my burn is not that bad. I air it out at night as much as I can.  I have had many :( sunburns more painful. Take care of yourself and keep your iron up.

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited March 2011

    I am finished with Rads now, and now feel I am more tired than while on the rads.  Also feel a heaviness in my chest.  I am certain this is from the RADS. I will go work out now to prove to myself that I am not actually out of breath.  And hope it goes away....

  • winkwink15
    winkwink15 Member Posts: 3
    edited April 2011

    Hello Ladies! I am on my 2nd week of Radiation and I am feeling some fatigue already.  Have any of you started working FT already while receiving treatment?  I am due back to work and started today but I felt so losts and tired already! I am not sure if I can go on like this...

  • heavenschild
    heavenschild Member Posts: 212
    edited April 2011
    winwink 15:  one of the secrets of rads is that it makes you very weepy.  I cry a lot.  Fatigue is major, just go home every day, eat, and go to bed.  Be gentle with yourself, rads really is an assault against your body with SE's.  My mantra has been Dory from Finding Nemo, "keep swimming, keep swimming."  Gentle hugs...
  • sjames59
    sjames59 Member Posts: 22
    edited April 2011
    Winkwink15 - the hardest weeks for me were 4-7. I worked from home during that time, and not fulltime. I could not have worked fulltime. I also needed the privacy of home to deal with skincare as frequently as I needed to, with saline soaks throughout the day. Plus the energy it took to get to work and interact with others there. I have a very understanding boss and was able to make decisions based on what was best for me. I hope you can do the same. I finished tx last week and am just now starting to get back to a fulltime schedule, though I'm still very tired. Best wishes to you!

    Sharon
  • texaslonghorn31
    texaslonghorn31 Member Posts: 65
    edited April 2011

    I hope that since this is a late response to your original post that you are almost through your radiation and your fatigue hasn't been too horrible. For me it was BAD. Started around week 3 and got worse throughout my sessions. I was fortunate enough to be able to take medical leave from work and be financially able to not have to work during that time. Some days I was so tired just getting up and having the energy to shower made me cry. I had my sessions Monday-Friday at the same time each day but slept alot and had great friends who would take me to radiation. I would also get dizzy after treatment so would take a bottle of juice to drink after which helped some. I am now 6 months done with treatment and while my energy level isn't where it was before the cancer and treatment, it is still better than it was! Good luck!

  • AmyJean
    AmyJean Member Posts: 2
    edited April 2011

    Hi y'all, 3 boosts left and I'm done! Fatigue is bad but I'm trying to be kind to myself and rest as much as I need to without feeling bad about it! Right now our job is to get well, everything else can wait!

  • mpeoples03
    mpeoples03 Member Posts: 1
    edited May 2011

    I just finished 2 weeks of rad and really felt fatigue after todays session - thought that fatigue would only start after the 3rd week?  I returned to work this week after 6 weeks off post surgery and have my rads at 2pm - I just may see if I get get the rads later in the afternoon since it is impossible to nap at work.  I hope it is not like this for my remaining 3 weeks (I had intraoperative radiation so that took place of the final 1.5 weeks).  To top it off I am dealing with a BAD case of hives from an antibiotic given for a respiratory infection that I got after surgery (think I got it from the hospital). 

  • hnl90
    hnl90 Member Posts: 5
    edited May 2011

    I had no idea rad would be that hard on me.  I will need them but don't know about chemo yet.  Geez & I thought I could work thru it all......

  • Nyr4evr
    Nyr4evr Member Posts: 37
    edited June 2018

    I was not tired through 33 rad treatments. Rest every afternoon. Did not sleep just rested 1/2 hour. Did the trick. Worked for me. Try it. Good lyc

  • Nyr4evr
    Nyr4evr Member Posts: 37
    edited June 2018

    You have it under control. Rest as much as you need to. Good job.

  • Nyr4evr
    Nyr4evr Member Posts: 37
    edited June 2018

    I am now finished all 33 rads. I seem to be more tired now than during. Anyone else

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Congratulations! I finished my 3rd day of accelerated 16 rad session. I do feel tried during mid-day, but not that bad. Maybe b/c I just started.

    Mimi

  • Olesya
    Olesya Member Posts: 114
    edited June 2018

    Hello, my dear ladies.

    I am finishing my 20 rads: 16 full breast and 4 boosters. I have 2 more boosters of radiation to go , and the effects starting to show: fatigue, moodiness. Skin is holding up, though, which is nice.

    Today I sent my 2 yo.daughter to the farm, because after doing some housework in the morning( vacuuming, laundry, swiping) by noon i was completely wiped out! My hubby is at work, so I couldn't find energy to keep her at home and deal with going to bed regiment.

    2 more....

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