2011 Running Thread
Comments
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Goldlining, I'm so thrilled for you. Way to beat your goal!
(10 slushy miles for me this morning, followed by homemade oatmeal-blueberry muffins.)
Linda
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Sounds like a fun run Goldlining! Always nice to have something to break up the monotony and keep you going. Congrats on breaking 3 hours. That is awesome!
I started trainig for a half last week. This week was the first long run -- 6 miles. I have not run that far in over a year. It was tough ... I hope it gets easier because they are just going to keep getting longer and longer!
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Charley, it will get easier for sure. In my experience, whenever I'm ramping up mileage, I'm always thinking "OMG, I can't possibly run any farther" . . . and then, lo and behold, I do. That's the magic of training.
(Right now I'm *almost* back to the point where I can use the words "easy 10 miler" with a straight face.)
Linda
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Hi fellow runners - I am a runner AND a bc survivor - thought you would enjoy my recent blog below -
February 25, 2011 at 7:48 am by Mary Katherine IbbetsonIn an effort to be an athlete (who'd a thunk it??) and run like it's my job...it has become like a job. I set my alarm, I put on my "uniform" (some sort of tech fabric and $100 sneakers), pack my "lunchbox" (Spi-belt full of Gu), punch the "clock" (Garmin GPS) and go put my "time" in while training to get the "payback" I want (hopefully).
Wait...back up....That is not why I run. I will never be paid to run, I will never win a race or even place in the top 10 (unless there are only 10 people in the race) and at the end of the day I don't care. I admit I get sucked up into the challenge of challenging ME. Getting stronger, getting faster, seeing improvement and maybe even surprising myself now and then (like Miami). But honestly, none of that matters.
I run because I can. I run because it keeps me healthy and strong, emotionally and physically. As a cancer survivor, I don't live in fear (I refuse to) of it coming back, but I do live with the reality of it. You know the saying "Keep your friends close and your enemies closer?" So it's always there, hanging out in my peripheral vision - It doesn't block the view but I know it's there. But it can't run. And I can. So I do.
Will running cure me? Maybe or maybe not. Research shows that breast cancer survivors who exercise regularly and intensely are less likely to recur and more likely to survive. In the meantime, though, and maybe more importantly, the thought that it might (cure me) and that I am doing something to control something so out of my control is a powerful drug called HOPE. And if you think hope is not that big of a deal, consider being on the other end of the spectrum - hopeless.
So to me running = HOPE. In the middle of the night, when I wake up in fear and before I have a chance to boot it out of bed, I go over the miles I have run. I remind myself how strong I am, how healthy I am, what I have accomplished, what my goals are and then I go back to sleep....but not for long since I have to get up early to run!
So yeah, the weather is annoying, the treadmill is boring, and I can do speed work til I am blue in the face (well, that would be bad!) but at the end of the day, running keeps me sane. It is my HOPE.
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Everyminute - reallly well-written blog, a pleasure to read!
Great to hear about all the running ladies, Im trying to get back into the long runs too, I have a half marathon coming up on April 11th so I need to bump up the miles!!
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Everyminute, I saw your post on the Stage III board, and was hoping you'd find this thread. I'm glad you did. Love the sentiments in your blog post!
Linda
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Any runners here had the DIEP reconstruction? I am 6-1/2 weeks out from surgery (just started chemo last week) and dying to RUN to stay fit and feel healthy! I was doing 20-25 miles per week up till surgery on Jan 12th. My stomach still feels really tight and I don't want to injury myself. I know that healing time is different for everyone, but I would be very curious to know how soon after DIEP any of you started up with running, or even light jogging?
Thank you!!
Laura
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Not only does Running =Hope but to me Running=Strength, Accomplishment, Power. As long as I am running, I am breathing.<although possibly gasping>
And yes, mostly I run BECAUSE I CAN!
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Hi mamaoftwo
I started running 6 weeks after my DIEP as my plastic surgeon said I could start then. I was walking alot after about a week. However, I started to have complications once I started running, my abdominal incision kept opening up in a few areas and now have a horrible looking scar. You should be able to start light jogging in most cases but I guess in my case, it was too soon. I ended up having to take more time off of running didn't start again until 13 weeks after my DIEP. Once I was able to start running, within two weeks I started to feel normal again and my was able to continue training where I left off before the surgery.
Good luck with your running
Dina
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Cinnamonrocket- I was just pouring through the 2010 running thread and saw you had given me feedback on this about a month ago. Sorry that my memory is so short! But thanks for reminding me of your experience and great to hear how quickly you rebounded once healed.
I think I'll listen to my body and the stiffness I still feel in the abs and wait at least another two weeks. Last thing I want is to have a setback! I've been on my bicycle trainer (still too cold in NY to bike outdoors) so feel like I can still get the blood moving, heart rate up, without running yet.
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mamoftwo
that's great that you are able to stay in shape by spinning on your trainer. You're smart to listen to your body as the setbacks are hard to take
Dina
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Congratulation Goldining. I hope that I do that well at my first 1/2 marathon. I am hoping to run it under 3:00
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running is my habit , and i luv this habit.running has been the best actvity of person, it possible for the physical benfits,if we r fit then we are safe frm ache disease.it will be good for us
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Thanks everyone. I didn't win THE race but I won MY race :-)
8,208 place (out of 13,091)
I just put my pretty medal in as the avatar (somehow it turned sideways but some days, it's ALL sideways.)
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Goldlining, I love your new avatar. That is one well-earned medal!
I wanted to let my fellow runners know that I'm going to be taking a break from bco. I've been having problems with a handful of other posters stalking me and deleting my posts, up to the point of getting me banned from the site (twice now). Although the moderator has quickly reinstated me in both instances, I feel increasingly uncomfortable here. It's a drag, never knowing from one day to the next if I'm going to be able to post, or even to log in.
I hope others will keep bumping the thread, and I will definitely check in from time to time - you are such an amazing group of women, I can't wait to hear about your running triumphs!
Peace,
Linda
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We'll miss you lewing. Hope to see you again soon.
Sorry to see you take a break when spammers are still around.
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Ahh, thats a pity to hear Lewing, I enjoyed reading about your runs and your races - come back & keep us up to date every now and then!!
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Linda - Sorry to hear about the problems .. you never had problems on this thread with us runners! Please come back and join us when you can! We'll miss you!
((Hugs))
Charley
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I'm so happy to have found this thread.
I started running in January of 1988 as a New Year's resolution - I hated it but kept at it. Initially I was only slightly faster that the walkers on the track and almost always stopped long before they did. After a couple of years, at least, I came to love the running and eventually started doing half marathons. After an 11 year break from running, marriage and 2 kids, I started running again in January 2008 as my second ever New Year's resolution. My friend and I joined the Running Room and ran a half marathon that June. I have not looked back and have run many 6K and half marathons since.
After being diagnosed with BC at the end of November 2010, my friend and I decided that after my January 2011 lumpectomy we would train for our first Full Marathon - we had selected Honolulu in December 2011 - we thought that we would offset all the pain with the beauty of our surroundings.
In February 2011, I was told that the DCIS (stage II and III with comedonecrosis) was too extensive and that I would need a mastectomy. I will be having DIEP Flap reconstruction at the same time as the mastectomy - I have yet to confirm a surgery date but it might be as early as March 22 or as late as mid-April. I was also told there was a chance that the final pathology might disclose an invasive cancer. Post-surgery treatment, if any, will not be known for a while.
I guess running Honolulu in December is out and when can I run again - were some of first thoughts after some tears about the shock of hearing the word "mastectomy". Running is the only activity I do for me - time to myself (even if I'm with others) to think, to breathe, and to recharge.
Does anyone have thoughts about when I will be able to run following the mastectomy/DIEP without jeopardizing my recovery? Will running affect the scarring?
Thank you all in advance for your responses and for sharing your own running experiences.
For some running humour (non-runners will not get it) check out this youtube video "I'm a Runner" http://www.youtube.com/watch?v=Cw5MHsO-JI8
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Hi Winterpeg
Holy cow, are you there in -21C now? Brr. Running outside yet or still recovering inside?
I had uni-mastectomy for my DCIS without reconstruction at that time, and was running slooooowly at first, a month later and a half marathon 9-10 weeks post-op. It was easier after mast than lump, because there was no jiggle. For that, honestly, I kinda like the mastectomy.
I have the same question as you about reconstruction.
I am consulting on the prophylactic side and reconstruction this week. I think my centre doesn't do DIEP, and I expect the PS to give me a song and dance about how pedicle TRAMS are no barrier to running and to me, it's just logic that can't be true. I would rather have no reconstruction than no abs. I think for running I need all the abs I can get.
The local DIEP goddess is at another centre so I expect that I need to go to the back of a different queue (damn the family doctor's random choice of mammogram centre in the first place).
Since my DCIS was removed with the uni-mast in December, I don't foresee my turn for DIEP coming up before September, so my choice may be prophy-mast and no reconstruction in March/April -- and a half mary (aiming for Disneyland Labour Day weekend) -- followed by double DIEP, or defer the prophylactic mastectomy until I make my way up the DIEP waiting list and do it then with immediate reconstruction, and in the mean time, run the half-mary with the prosthesis and industrial strength running bra. (See, it's all about the running. It's how I claim an illusion of control!)
I have read elsewhere on BCO, a medical columnist responding to a specific question said that a marathoner pre-surgery could reasonably do a marathon 6-7 months post surgery. Reading between the lines, I don't think she was talking about setting a personal best, but April to December doesn't seem to be a lost cause recovery time frame.
Anyone who runs and has had flaps of any kind, please share your recovery and running experience. Winterpeg and I really would like to know.
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Hi gold lining,
All of my running is outdoors. Today, it was -18 but there was wind bringing that temp. lower. I think running in -30 to-35 is not uncommon. With the proper gear it can very pleasant. I used to wear 3 layers on the bottom but my husband got me the warmest base layer that Under Armour makes for Christmas. Now the base layer and wind pants are enough even on the very coldest days.
You sound very fit, having run a half such a short time after your lumpectomy. Do you know whether you will have enough tissue for a double DIEP? My PS told me he would have to use all of the flap tissue (which is apparently not the norm) to get enough to come close to matching the other C cup side. I would not have enough for both sides. MRI on Wednesday will rule out the need for a double mx.
What is the half-mary -
I saw the PS this morning, and I am soooooo happy - she asked what I knew about reconstruction and I listed the options as I knew them, and my personal pros and cons: too many allergy issues to feel comfortable about implants, and I want my abs for running. I would prefer no reconstruction over TRAM.
The PS volunteered that DIEP was best for me, but she only does unilateral DIEP as she has no teamer/partner, and with no prompting or pleading required on my part, she offered to refer me to the duo that do DIEP down the road a couple km, and that would move me up their priority list. She said I should leave the prophylactic mast until that time and do bilateral DIEP which would be immediate on the prophy side. Going to register for that Labour Day run tonight! Maybe this afternoon!
I want a prophylactic mastectomy on the other side and bilateral DIEP because I will never relax as long as it's there. I feel that it's a time bomb. The DCIS came out of nowhere fast and symmetry is just intuitive to me. I have the same vision correction in both eyes, I am deaf in both ears, and sure I'll eventually have DCIS in the second breast. I don't want annual mammograms and I can't have MRI for monitoring as I have a cochlear implant. Watchful waiting isn't my style.
Bittersweet: she did not have any concern about flap material!! I don't want to be DD. I was B after my breast reduction and have been pining to be a B ever since the damned baby weight. DIEP solves both problems. I weigh 30 lb more than I weighed before my pregnancy (and the "baby" is 15+ -- years, not lb, though she WAS a big baby).
After my lumpectomy in October, I went to the store, but didn't run for 5 or 6 weeks because DD jiggles too much, and really only worked up to 2 or 3 km before it was December and I had the mastectomy. After that, with my wonderful Twiggyish flatness, I started on the treadmill after 4 weeks just 4.4mph for an hour, but kept at it once or twice a week, and by 8 weeks post mastectomy I was up to 7.5km alternating slow running and walking. Then the week before the run I decided I was still obligated to "taper and carb load" :-))) my favourite part of the run events.
My fitness asset is I never ran a step until I was 50+ so my knees are in mint condition. I actually delayed the lumpectomy for 6 months after the biopsy in order to run and get cardiorespiratory fitness and destress after a hard academic year (heavy teaching load) and I felt it helped a lot that I was so much fitter than I usually am.
"Half mary" is runner jargon for half marathon. Me trying to sound like an insider: like "oh 10K is the new 5K" :-) I'm a runner in the enthusiast sense, not the proficiency sense. I'm not a bloodthirsty competitor. I run for celebration and impressing myself with being able to do something that feels hard. Oh, and bling. Definitely the bling.
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Hi folks,
I love to read all about BC survivors and their running experiences. I am a recreational runner and haven't been running during my surgery and chemo experiences.
My next step is reconstruction and I think my only choice will be implants. I was wondering if any of you running babes had implant reconstruction after your surgery. What was your experience when you returned to running? I think I've done alot (maybe too much online reading) and am a little concerned about the implants shifting.
Can anyone share their experience with implant reconstruction and returning to running? I see my PS next week.
Thanks for your great inspiration!
Sharon
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Hi Sharon, hi all - just had to check in. I wish I could weigh in on the running-after-reconstruction issue, but I didn't go that route (and don't plan to). Part of the reason for declining reconstruction was running-related - I had the same qualms about letting anyone mess with my abdominal muscles as Goldlining - and part was just plain being chicken.
Winterpeg, you are a kindred hearty soul, running outside all winter . . . temps like those would really test my own heartiness. My favorite winter running clothes are my extra-heavy Canadian-made running pants, constructed out of some sort of miracle fabric (I like to imagine that it was invented by scientists hidden away in a top-secret cold-weather gear research station in northern Manitoba) and my black silk balaclava, which makes me look like a ninja.
Very sorry your DCIS was too extensive for a lumpectomy. I know what it feels like to be dragged down that mastectomy road; hearing the news is a shock, but it does get better. I hope your surgery goes smoothly, and that you're back on the roads in no time.
Linda
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Sharon - I had implants following bilateral. I went this route because I did not want to mess with my abdominal muscles (apparently didn't have enough extra to do 2 anyway) and also because of the recovery time. I wanted to get out there again as quickly as possible. I ran with the expanders and the implants both with no problems. (After both surgeries there was a recovery period of 4-6 weeks) Occassionally I feel an odd sensation with my left implant while I am running which is probably due to the up and down movement but it doesn't occur very often and I can tell that there has been any shift. I have had my implants for 7 months. My implants are round ... I have read things about other shapes of implants, like the teardrop shape, that can move around. Anyway, this is my experience. I didn't have much of a choice as far as reconstruction goes.
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Hi ladies
I had a dbl mastectomy on 2/17 and my first chemo on Friday. I ran a marathon this fall and have done 3 others. Anyone running with t expanders? These feel like tupperware but I'd like to get started again. Any thoughts .
I have 3 ac chemo left and 12 taxol plus herceptin -
Shansen - You can do it. I ran w/ expanders although had a hard time running through chemo. Had to give it up 1/2 way through. (I had 6 TC DD) PS said it was no problem sbout 6 weeks post op. Talk to your PS about what he will allow. Mine knew I was a runner and cautioned me from the git-go but gave the green light after about 4-6 weeks. It was the back and forth motion of the arms that concerned him the most ...
Good luck!
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Lewing, this winter I bought black neoprene running masks for me and two of my running buddies so that I wouldn't be the only one looking like I was running away from a crime scene.
Manitoba is where I live and run. No hills to speak of but the snow and cold are also a good challenge. Ran three times this week and hope to get a few more runs in next week before I turn into an electric reclining chair potato.
Uncertainty and waiting seem to be around every corner. Wednesday's MRI led to call from BS Thursday letting me know concerning nodule spotted on "good" breast so will have US next Wednesday. Good news? Surgery still scheduled for 22nd....for now. -
Winterpeg, I hope the ultrasound is negative. I'm sure you know this, but it bears repeating: MRIs are notorious for generating false positives.
L
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I am having surgery on March 25. I also had knee surgery 2 weeks ago, so I can run again. I had a torn meniscus from training for a half marathon after a broken toe. The knee surgery was scheduled when I got the diagnosis. I felt, let's put me back together again all at once. Hoping to swim before the breast surgery, then hoping to run before I start radiation. Trying to organize my training around surgeries/radiation and hopefully nothing more. I would like to participate in 2 triathlons this summer. It is what keeps me going.
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