Really scared
I was diagnosed with stage I, grade 3, ER-, HER+ breast cancer in July of 09. No lymph node involvment under the arm (they took out 2). I had a lumpectomy, and did chemo, and radiation through the rest of 09 and into 10.
Friday I felt a sore spot on my neck, just above my collar bone on the same side as the cancer had been. Looking around online, I've discovered that this could be an inflammation of the supraciaclavical lymph node, and that it could be a metastisis.
It hurt when I pressed on it both Fri and Sat. Today, after a good night's sleep, it hurts a lot less. It is hard to the touch, about .5 to 1 cm, and it does not move except slightly when I swallow.
I also have a condition called neurofibromatosis, type one. The tumor could be this, but I don't know.The characteristics of those tumors is to hurt when they first present, and not so much after a few days. I have I'm clinging to hope that this could be what it is, but the nightmare scenario of having to go through chemo again or of being stage IV won't go away.
I also have been having some cold-like symptoms for a few days.
So help me. I'm so frightened. It's hard to determine good information on the internet, but I've read that this could make me stage 4. I know it's not really right, but I can't help but think stage 4 as a death sentence. I'm nearly 40 years old and really not ready to check out (who ever is, really though).
Any information would help. I just don't know if I can face this...
Comments
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I am not a doctor, but shortly after I was diagnosed I felt a lump in the area around my collar bone. I also had cold symptoms. When I asked the docor about it, he kind of made light of it and said that my body was doing what it should be doing to fight off infection. He said we would keep an eye on it and in 6 weeks if it was still there we would explore further. He was right, it went away after my cold cleared up. It could just be your body working to keep you healthy.
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I am not a doctor, but shortly after I was diagnosed I felt a lump in the area around my collar bone. I also had cold symptoms. When I asked the docor about it, he kind of made light of it and said that my body was doing what it should be doing to fight off infection. He said we would keep an eye on it and in 6 weeks if it was still there we would explore further. He was right, it went away after my cold cleared up. It could just be your body working to keep you healthy.
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Meg, I don't have information for you, just some support: although it's hard (believe me, I know!) try not to jump to conclusions. I know you're scared and that's really normal... you're certainly in the right place for people understanding that fear.
As soon as possible, call your dr. and schedule an appointment. Knowing is better than not-knowing, and from what you say, it sounds really likely this can be the neurofibromatosis, although I know nothing about that condition -- I'm just basing this on what you said in your post.
To the best of my knowledge, cancer doesn't present with cold symptoms, so I wouldn't read much into that.
Take some deep breathes. We all live with that fear (I have wrist problems and after I got the x-ray, the first thing I asked was if the x-ray showed cancer) (the answer was no) and it's hard not to jump to conclusions, but try not to borrow trouble. Do things to help you relax, try to get some extra rest, eat well, and find something to make yourself laugh (I turn to baby-laughing videos on youtube at times like this -- they always make me smile!). Let your dr. know ASAP so you can get this dx and moved on with the (very long!) rest of your life. Warm hugs and best of luck.
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I simply would not make it without this website. I wish I could drive the fear away. Im due for a followup this month anyway, and I'm calling in the morning to see if I can get in soon.
How do you cope with the worry? I used to suffer from anxiety disorder, which now and then rears it's ugly head. But I basically consider that to be cured since it's so rare. But with having had cancer, now I'm getting to be hypochondriacal. I hate this. I hate it I hate it I hate it.
My body has changed. I've had a lot of things happen that had never happened previously, such as I broke a toe, I get sick more often, etc. Doc says this stuff isn't related and I shouldn't worry.
I've had sinus problems all my adult life. And never had a lymph node in this location swell up. But that doesn't mean that itt's not just the cold. I can't help but recall how I had myself convinced when I found the lump in my breast that it would turn out to be nothing. I was wrong. And now I want to believe this is ok, but I keep thinking about how I was wrong before.
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Hi Meg-
Can I assume that you did Herceptin as you didn't mention it and you are HER2+?
Our stats are similar other then the fact that I was ER+. Very small of chest, I had no option but to have a mastectomy and decided to do a bilateral. My Onc. told me I had a 95% chance of now being surgically "cured" followed by 5 years of an anti hormonal (which you won't need). I totally understand why you would be fearful. Especially because all that positive "self talk" that it wasn't cancer didn't help. Do you still have any meds for anti-anxiety? If anything is going to put your anxiety into overdrive, it's this!
I know that there is always the possibility that I may not fall into the 95% of those who remain cancer free. But there's a far better chance that I won't. That helps me deal with the fear of return. What also helps me is the thought that I got through this when in the beginning, I truly did not think I would mentally survive (especially chemo!) Though I am not dealing with anything that provokes fear that it's back, I have learned that I can't change a THING that is unknowlingly going on in my body. There are so many "what ifs" that could drive you crazy. I need every ounce of energy I can get and am determined not to let my fears gobble it up until I know exactly what I am dealing with.
I think it's wise to get into the Dr. when you can but until then, you don't know what it is. The odds are on your side that it is not cancer. Try to remember that until you see the Dr.
Hugs to you and please update.
Ellen
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Meg. I'm prone to anxiety as well, although I've noticed as I've gotten older and learned more about myself and found ways to cope with things, it's gotten quite a bit less frequent and severe.
Coping with anxiety is hard, and everyone is different and has to find what works for them, but here are some things that have helped me:
1. meditation. I'm not good at it, and I don't practice as regularly as I'd like, but it helps, even in small doses or emergency situations (like an anxiety attack when I'm waiting for my mammogram results). There are many different ways -- I like visualization, and TM, the best, but again, it's what works for the individual. Breathing exercises help me, too. If you're interested, look for the "Relaxation/ Meditation CD you'd recommend?" thread in the "recommend your resources" forum. There are several good ideas there. (edited to add, link doesn't work but it should be easy to find the thread).
2. I ask myself, what do I know right now? and what can I do to make this better, right now? I answer those questions. That brings me more clearly into the moment, instead of projecting ahead.
3. Once I've figured out what I know and what I can do -- I act. I do what I can and let the rest go. If I can't do anything right now (for example, unless it's an emergency, I can't call the dr. on a weekend), then I've done all I can do and I have to let it go. Letting go can be hard, but for me, I've found that if I even have the intent to try to let something go, that gets me started on the path, and before I know it, I've actually moved on.
4. I call a close friend and share what I'm going through. Sometimes the process of getting something said out loud starts to lessen its power over me. If a friend isn't available, in many communities there are 24-hour crisis hotlines.
5. I eat something healthy, like an apple. I know it sounds simple and like it won't help, but it does. Same with going for a walk or listening to music or watching a comedy or whatever I find soothing.
6. Also, I try to get enough rest! My mind can't cope with things nearly as well if I'm not rested.
7. Before it happens again, I make a list of things I can do to calm myself when it does happen. Then I have something concrete in front of me when I need it and can't think as clearly, and I can pull out my list and use it.
8. I've seen a therapist. Professional guidance is very helpful.
9. Last, but maybe not least: I still keep some ativan on hand, small dose. I don't like using drugs if I can help it, but I've also come to respect that they can really help. I was having some serious anxiety last fall over a situation and was getting overwhelmed and finally took an ativan a couple of different times to help me through it. And, if anxiety is an ongoing issue, I wouldn't hesitate to talk to my dr. about it and maybe go on a daily med for awhile -- I've done that in the past (about 10 years ago, and also when I was going through treatment) and it's always helped ease the stress, and once I've gotten back on my feet and feel I'm ready, I stop whatever I'm on.
I don't know if this is really what you were asking for or if it's of any help, but it's here FWIW. Please do keep us updated. Thinking of you!
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Hey everyone, thank you. I have an appointment for next Monday. I was due soon for a followup anyway, and I'm able to go in a few weeks early.
I do have anti-anxiety medications. I rarely have problems with it anymore, I've even had my 15 pill perscription expire before I used it all. I also have other ways to help me relax, though I do think I will try the meditation as well. I talk to my mom, mostly. I hate to stress her out too but she's really the only one I want to talk to when this is going on. My closest friends have kids and moms and dads that are constantly wearing them out. I hate to bother them with my stupid anxieties.
Im a teacher and one thing that always helps is the way my young students always hug me every day. That's something I pity non-teachers for not having. It's a joy (even the naughty kids).
One thing that has since occurred to me, I had some thyroid problems when I was in my early to mid twenties. This could be thyroid, as it is in that exact spot. I suppose that could explain why it's not moving around much as well.
It seems like it might have gotten smaller, though it is really hard for me to tell. It definitely hurts less when it's pressed on. In fact, it hardly hurts at all. It seems like if it was metastisis, the pain wouldn't go away. But I don't want to be over confident either. It's a bit of a roller coaster.
My doctor said my chances for recurrence were something like 5 to 15. So those odds are still pretty good (good as in not cancer). I don't like to rely on odds too much though. At age 38, on paper, I was at very low risk of having BC. But here I am...
I suppose all this is compunded by my stress and worry for my 18 year old cousin, who is battling metastatic liver cancer. I hate hate hate hate this disease! Nobody deserves to have the rug pulled out from them like this. I wouldn't wish it on the worst person in the world.
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