June 2010 Mastectomy

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  • almagetty
    almagetty Member Posts: 316
    edited March 2011

    Dear Joy:  I'll admit that I was holding my breath as I read through your post and didn't let out a deep sigh of relief until I read the words "I'm clean. There's nothing!" I am celebrating with you both your great results and Vida Sofia's 3 month birthday! She is beautiful! I'm sending big hugs your way for all of you!

    It's a happy day!

    Getty

  • joystars
    joystars Member Posts: 95
    edited March 2011
    Dear ladies, seriously thank you for your beautiful words. Like I said, me, hubby and family are super happy that for now I won a battle :) Unfortunately with this disease is hard to say we won the war already, time will tell... but I do pray and hope every day that the stupid bastard never EVER comes back to haunt any of us, we already had quite enough.

    Laurie, I read your previous post and I'm so sorry to hear about your friend. Bless her. A dear friend of mine, a girl I used to be very good friends with when I arrived here to Norway in 2007, just passed away few weeks ago. Poor soul, she was fighting her own battle against hepatitis C, then her liver got seriously damaged and there was no turn back. She passed away waiting for a transplant. She was only 27 years old, a very very young soul full of light, cheerful spirit and many many dreams that never will come true. Her memorial was beautiful, her boyfriend organized such a thoughtful ceremony to remember her...  needless to say the news really hit hard on us. These couple met at the same party my hubby and I met, were close friends that for some reason last year with my BC and all we didn't get to see much..... oh well.

    About your mom's medical records, I would be curious to get to know more. I'm sure she told you everything she went thru, without a doubt... but maybe now you (just like all us) have a bit more info about what things mean regarding BC. Let  us know what you decide. :)

    In other news, the cousin of my husband, a mother of a teenager and in her early 40's was diagnosed with BC 8 years ago and sadly had a come back a month ago, this time on the other breast, she is starting chemo on Monday and already had a mastectomy (again). I think she wants or prefers to live in denial, we have offered her some help to do reseacrh of her chemo regimen, her diagnosis and so on but my impression is that she just doesn't wanna know more about it...she just trusts her doctor and wants to forget about this, but if only I could help her to go trhru this.... oh my! :/

    ]today was a sunny saturday, for a change,and of course after a whole week of cloudy foggy and coooooooold weather here in Oslo, everyone jumped out to the streets. In my neighbourhood an army of strollers, pets and children covered the streets and parks.... was very ncie. Now Vida Sofia is becoming more interested on things, and us are becoming a bit more pro on getting ready faster to go out with pram, nappy bag, baby and layers of clothing :P

    Hope you all have a very nice weekend with nice weather and no more snow.... Spring, can't wait for you! :)

  • jblcsw10
    jblcsw10 Member Posts: 174
    edited March 2011

    Joystars - Ditto what Laurie said! When I saw the beautiful picture of your baby, and read your good news, I cried. It is so good to hear this news. Hooray!!!

    Just got back from fill #3, I am going weekly and getting about 50cc. Today is the first day it actually hurts. But very bearable. Meanwhile, not to brag but its 80+ degrees out today! I'm off to sit in the sun for a few minutes. Everyone have a great Wednesday.

  • almagetty
    almagetty Member Posts: 316
    edited March 2011

    Congrats on your fill, Jane! I'm sorry it hurts. :(  This too shall pass ... 

    The weather has been especially beautiful in Florida, hasn't it? It was hard to go inside for work this morning! 

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited March 2011

    JOYSTARS! You have been on my mind!  How are you?  How is all going? How is the baby?   You must stop over to my thread (!) and let me know how you are doing once in a while!  I miss you.

    To all the June girls: hope you all are doing well!  I miss you guys.  

    Take care, all-

    Liz

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited March 2011

    Lizzie- So nice to see you!  We've missed you and I hope all is going well for you.

    I just wanted to say I am giddy for my appointment with the PS tomorrow.  After almost 9 weeks of wearing these bandages on my nips I will be a free woman again!!!!  I can wear what I want and simply undress get in the shower, get out and get dressed again.  It' silly but I am so excited to throw these things in the garbage!!!!

    YYYYYYYYAaaaaaaaaaaaaaaaYYYYYYYYYYYYYYYYYY!

  • RobinLM
    RobinLM Member Posts: 143
    edited March 2011

    Joystars

    What a gorgeous little bundle, made my eyes water...Cry but in a very positive way. So glad to hear everything is going well for you.

    IJune Girls,

    'm not writing but do read all posts and very glad to hear that all you June girls are doing so well. How is Ducki?

    I've healed very well, but having a remedial op on my left foob hopefully in May. It is higher/flatter/'faces' out that the right which is small and almost perfectly formed! Should be relatively straight forward small op - fingers crossed!

    Anyway, lots of love to you all

    Robin

  • almagetty
    almagetty Member Posts: 316
    edited March 2011

    Robin!!!  Liz!!!! So nice to see you both! Robin, I'll be wishing all good things for your surgery in May.

    Laurie: You should be bandage free by now ... so exciting!!!! I'm happy for you. :) (I can't believe it's been 9 weeks already!)

    Today has been an unbelievably beautiful day in Central Florida. Have a happy weekend! 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited March 2011

    Robin!  So nice to hear from you, don't just come to read, tell us how your are:)

    Throwing those damned bandages in the garbage today felt great.  I am finally free!!   PS is happy with everything and proud that he could tell I didn't cheat and wore them 100% of the time.  We went through nipple colors trying to pick a color for me for May.  How the heck do you do that?  I'm not sure but I picked one called Flesh #1.  He said maybe we should look at your before pictures and see what color you were before all of this.  OMG!  I about hit the floor.  Since my diagnoses I have lost 28 pounds and could not get over how fat I looked  in the before photos and how huge my boobs were.  I couldn't even focus on nipple color, I honestly couldn't get over it.  I reminded my self that I had had a 10 pound baby only 4 months prior to diagnosis but woah!  I told him he should burn them.  He laughed and said I was being too hard on myself.   

    My husband just left this afternoon for Florida for 6 days.  He is going with some of the other men from his company to see the Red Sox in spring training and going fishing, all on the company tab.  He is super excited, me not so much.  But I have lined up my in laws to take both boys for 24 hours this weekend and I will find some of my own fun and take a bit of a break. So Getty my husband will get to enjoy your beautiful Florida weather!!

    Have a great weekend everyone, it's nice to see some faces coming back to say hi:)

  • MistyJ
    MistyJ Member Posts: 113
    edited March 2011
    SmileHey all you June ladies!  I too just popped in to read how everyone who was still posting was doing.  I think of you all often.  It is so so good to hear that everyone is doing okay and is further along on the way to their new normal :).  Yay for your new nips Laurie!  I am hoping I can still get to the website to see them since it has been so long since I have been on there.  Getty, I missed your smiley picture!  It is getting nicer here in SC but you have us beat in FL Cool.Robin...I agree with Laurie....tell how you are!!!  I am doing great really.  Well 10 pounds heavier (jealous Laurie of the weight loss), but I am healthy and feeling mostly back to normal.  I went ahead and had a second exchange in January and fretted so much before hand but I am sooooo glad I did!  I went from 450 mod plus to 600 high profile!  Way better!  Still having a little bit of a hard time getting the incisions to heal in a few places, but I am working at it.  I am going to wait until summer is over to have nipples done.  I missed out on summer last year, don't want nipples to interfere with boat time!  It really is great to read up on all the posts from everyone!  Misty
  • MRDRN
    MRDRN Member Posts: 537
    edited March 2011
    Hi All!
    Misty and Lizzy and EVERYONE!  I too am checking in to catch up on the news.  Today the dafodills are out and Spring is springing! It feels good to be in a much better place than last year at this time, doesn't it?   I too have passed on the nips for now, but maybe in the fall.  heards to continued healing for all!
    MRDRN
  • Laurie08
    Laurie08 Member Posts: 2,891
    edited March 2011

    Misty and MRDRN- So nice to see you popping in!

    Misty- Did you have the second exchange because you felt too small?  I didn't even know you could do that!  I agree with wanting to enjoy the summer and not letting the nips get in the way.  I was lucky with the timing of my exchange surgery.  Where I had the surgery on 1/10 Ihad to wear the bandages for 8 weeks but it was sweater weather so it wasn't that bad.  I'll get the tattoo's in May and be all ready for summer.    I hope your incisions continue to heal quickly and that you're feeling well!

  • MRDRN
    MRDRN Member Posts: 537
    edited March 2011

    Hi Laurie! Your kids look adorable! I bet they keep you busy! *Here's to continued healing for all !

  • almagetty
    almagetty Member Posts: 316
    edited March 2011

    Hi all!

    Popping in for a quick hello. It's been ridiculously hot in Florida this past weekend and now today we have thunderstorms rolling through. It seems like it will be a long summer ahead!

    I'm glad to see everyone is doing well and moving on.

    Hugs,

    Getty 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited March 2011

    It's been really windy and cold here, but the sun is out so I'll take it for now.  I got my date for my tattoo's.  May 2nd.  They have set aside an hour and a half, I hope it doesn't hurt, but honestly I am not too worried about it.

    I keep meaning to call the insurance company to see if they will pay for some new bras.  I have yet to go bra shopping.  Not sure why I am not more excited to do it?  All in good time.

    My back and shoulder have been killing me and it's starting to radiate into my chest.  I think part of it is my kids and carrying them and I think part might be my implants settling.  But I have had some achy days and some days my left breast burns and aches.  So tomorrow I am going to the chiropractor and then for a massage.  I hope it fixes things!

    I am also glad everyone seems to be doing so well and that more of us have been popping in to say hi.  I have found so much strength here with all of you.

  • speech529
    speech529 Member Posts: 337
    edited March 2011

    I haven't been here in a while and wanted to say to Joystars --your little Vida is so beautiful!!  I am happy for you that your doctor had such a good report for you. 

    I hope everyone continues to move toward feeling their best.  

  • almagetty
    almagetty Member Posts: 316
    edited March 2011

    I haven't even thought of setting up an appointment for a tattoo. I find that I'm increasingly indifferent about getting the tattoo done at all. Maybe I'll skip it for now. The only reason to have it is so that my reconstructed areola matches the natural one more, color-wise. Eh ... like I said ... I find I don't really care one way or the other. I think I just reached my quota of having things "done". I'm so happy to not be poked and prodded these days.

    Now, bra shopping is something I've grown to enjoy a little too much. Since my insurance company pays for all the bras that I get at Nordstrom (yes. All the bras. No limits in number or dollars.), I have a ridiculous number of bras now. So I've promised myself to allow myself only two bra shopping adventures a year. And to restrict myself to 7-10 bras per spree. Leave it to me to feel guilty about taking too much of something that is part of my insurance benefit.

    Laurie: I've also noticed some twinges in my reconstructed breast lately. Not so much a true pain, more like a sensation. I like your explanation of the implant settling in. My husband says it might also be some of the nerves regenerating. I go see my OB/GyN for my yearly next week. I'll ask him to see what he thinks. 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited April 2011

    Getty- I think you may Have just given me the motivation to call my insurance company- unlimited bras!  WOW!  I need to make the call and go to a Nordtrams, there is one about an hour from me.  But worth it to get fitted and have some fun, especially if I don't have to pay for it.  I have a laugh for you too.

    So this morning I noticed a small lump on the side of my breast toward my under arm.  I spent the whole day feeling the stupid thing wondering if it was a recurrence.  Trying to see it in a mirror etc.  Tonight my husband got home from work and with in the first 3 minutes I pulled the side of my shirt up and turned the lights up high and said feel this right here.  He does and says " yha?"  I asked him " you can feel it?  What the hell is it?  You think it's a recurrence?"  He says "No- it's a zit."  LOL!!!  It must be from the massage oils the woman used in my massage the other day.  But God love that man, he felt it even though he knew it was a zit before he ever touched it.

    Good times:D

    I have my yearly with OB in a week and a half too.  I'll ask as well and we can compare notes on the pain/weirdness.  I agree it is nerves regenerating and settling of the implants.  My tattoo's have been rescheduled for 5/16 because he needs to do an extra surgery on the original date.  By the discussion I had with his nurse it sounds like my tattoos are a low priority, not that I disagree.  She said they have to book the tattoos on a surgery day, but if someones needs are higher I will be bumped.  So I am expecting to be bumped again, what is less important than tattoos?   

  • almagetty
    almagetty Member Posts: 316
    edited April 2011

    Lol! Gotta love our guys!! :D

    I hope you don't keep getting bumped on your tattoo date. I know it's a pretty minor thing for the PS, but for you it will mean "DONE"!!! Yay!

    I hope you didn't get slammed with snow this week ... 

  • Steph42
    Steph42 Member Posts: 22
    edited April 2011

    Hi Everyone, glad your still sharing your stories because I need an experienced opinion. I have my final chemo May 5 and my BS has highly suggested I get a mastectomy soon after. I only had cancer on the left but am considering doing both with immediate reconstruction. What I'd like to know is, now that you can look back, if you could do it over again would you? What would you do different? Are you happy with how your foobs look and feel?

    I'm really worried about making the right choices, how they will look and feel and how much pain and trouble it will be to get to something I'm happy with.

  • almagetty
    almagetty Member Posts: 316
    edited April 2011

    Hi Steph: 

    I really had to stop and think about your questions. I'm a uni. I had a mastectomy on my right side and kept my left side intact. For me, this was absolutely the right decision. I know I struggled long and hard when I had to choose last year, and I can remember all too well what you are feeling right now. Knowing now what I didn't know then, if I had to go back, I would still do everything exactly like I did it. I am happy with how I look and feel now. My natural side and my reconstructed side match up extremely well. When I am clothed, even if it's just in bra and underwear or a bathing suit, there is not a person who could tell that I've had a mastectomy and reconstruction. 

    But, just because it was the right choice for me, that doesn't make it the right one for you. This is all such a highly personal thing. You just have to be comfortable with the decision that you make. Get all the facts that you can from your doctors. That was the most important thing for me.

    Good luck to you! 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited April 2011

    Hi Steph- So often on these boards I read other women looking for the same information that you are.  I always read through the responses curious if ladies are happy with their choice.  From everything I have read almost everyone is happy with the choice they have made for themselves.  Women who have lumpectomies, bi lateral or uni.  I think it is a very personal choice and that there is only a right answer for how you feel.  That being said, I think it is great that you are thinking things through and weighing the options while gathering as much information as you can.

    Like Getty, I am happy with my choice to have a BMX.  For me, I never even considered anything else.  I lost my mother to BC six years ago and I have a tremendous fear of this disease.  I was diagnosed at 34 years old and in my heart I thought if I didn't remove everything it was only matter of time before it comes back.  I do miss my real breasts, the sensation, nipples etc.  But I do think I have gotten nice results and that my new breasts look very natural.  I reduced my chest size by about half and love the fact that clothes fit me so much better now.  From what I have been told recovery is the same whether you do one side or both.  Because I chose to have the BMX I was able to dodge tamoxifen as well. 

    Good luck with your decision and I hope that your recovery from everything goes smoothly.  Feel free to come back any time and ask us anything.  We have an amazing group here.  The strength and love I have found amongst these ladies has been amazing.

    Take care. 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited April 2011

    Steph- Also there is a picture forum that is at another web site that you can gain access to that shows photo's of women at various stages of their surgeries.  All different kinds from TRAM, implants etc.  A lot of us have even posted our photos there as well to help others just they had helped us.  The woman who runs it has changed since I got on but if you search the topic picture forum that should lead you to who runs it now, or ask on the Exchange City thread, I think the woman is on there quite a bit.  Hope this helps!

  • almagetty
    almagetty Member Posts: 316
    edited April 2011

    Wow! I didn't know that she was no longer running the other site! I haven't been over there in quite a while ...

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited April 2011

    Getty- Timtam was over worked doing it and was going to cancel the whole site because of the hours it takes to maintain etc.  So she looked for volunteers to take it over and I thinkit's three long term BCO ladies took over the work together.  That's why they weren't taking new people for a while, while they worked it out I think.

  • MRDRN
    MRDRN Member Posts: 537
    edited April 2011

    Hi Steph,

    You are asking the right questions and have found a great group of women who have been through it.  I am grateful to be a year from dx this month! Yes, I am happy with my outcome.  It took a lot of work but was covered by my insurance and recommended by three different Breast Surgeons since I am BRCA positive.  Every story is unique so obviously consider the source of every post your read.  Congrat's on finishing up the chemo!  That had to be a very hard road to go down but aren't you glad it is behind you now?  Hopefully the Mx will be behind you soon and you can move on.  I am not sure we can ever truly move "on" but I do try.  I guess we will never know of the real answers to your questions until we reach that five year recovered mark but for me, at this time, yes, by all means, I would have a bi lat immediate DIEP surgery again.  

    Best of luck with your decisions.....

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited April 2011

    I finally called the insurance company today to see if they would cover the cost of purchasing new bras.  It was a big fat no.  Ohwell- at least the lady who handled my question was really nice and even called her supervisor to see if she was missing anything.  So, it made the no less of a let down.  I guess I'll just have to slowly grow a bra collection! 

    Hope everyone is having a great day!  It is raw and raining here, but better than the snow storms we had last Friday and Monday. At least spring is here enough that it all melted with in a day of falling.  We were outside playing with light coats on Sunday flying a kite and then it snowed on Monday.  Silly New England weather! 

  • almagetty
    almagetty Member Posts: 316
    edited April 2011

    Man!! Bummer about the bras, Laurie! Call your closest Nordstrom anyway and see if they have a way to code the claim so that something is covered. It's worth another try ...

    We had some more thunderstorms come through today again, which brought our temps down some. We've been in the high 80's/low 90's a few times already. 

  • joystars
    joystars Member Posts: 95
    edited April 2011
    Getty, how nice you get free bras from your insurance company. It is a good help and needless to say bras can be quite expensive.
    Laurie, bummer indeed! Try what Getty recommends, the worst thing that can happen is that they say no. But anyways you tried.

    Steph, I'm glad you pop in to read thru the forums and get as much information as you can. For me this place really became a family place where I can come and ask for info, get support, vent and read others stories.
    In my case my situation was quite difficult, with a baby on her way and being diagnosed at 29 things looked a bit tough. Went for a lumpectomy having in mind that a baby was growing inside me, then a left mastectomy... I needed to avoid rads as they were harmful for the baby. So the best option for me was this and after surgery to continue my pregnancy, interrupt it before the third trimester (I'm ER+/PR+ my pregnancy was literally feeding the cancer cells). Started chemo a few weeks after my c-section and yesterday I finally had the last round. There were not easy days I can tell you.

    But now, almost a year after my diagnosis I can say that I'm happy with my decision, it not only changed my life radically but also gave me a new one: as a mum of a wonderful healthy baby that even tho she was a premmie, she is doing amazingly good and is 4 months this week.

    Now chemo is behind me and plans for a reconstruction are starting now. Tamoxifen in a month for the next 5 years but nothing NOTHING will ever compare to the love I see every day when I see my baby girl smile.

    To everyone, hope you are doing good I'm glad to be back to the forum after some weeks of "holidays" more like being uber busy as a mum. But I'm happy chemo is over. My hair is slowly growing back, I'm feeling ok today on the second day after the last round, hubby is around helping me lots on parental leave until September (YAY we love Norway and it's National health system), snow is melting sun is shinning again and on the weekend my sister is coming to visit all the way from Mexico City. What else can I ask for? Oh yes, to one day get the chance to meet in person the wonderful sisters I made here. One day... that's my hope :)

    Big hugs to everyone!
    Joy :)

  • reneemac
    reneemac Member Posts: 73
    edited April 2011

    Hey, how are all of my June sisters doing? It's hard to believe that it's been 9 months since my mastectomy. I have my next surgery scheduled for April 13. The surgeon is going to reduce the left breast and add an implant to that side to try and make both similar. I'm going to have to take a week off afterwards and since it will only be 7 days, I'll have to use vacation and sick time. Cry The doctor told me that I will probably be more uncomfortable with this surgery than the exhange surgery. Not looking forward to that.

    On a happier topic, we took our 5 day cruise last week and it was glorious. We're taking another one at the end of November but this one leaves from Long Beach, CA. which is closer to home. We drove to Galveston to catch last week's cruise and visited DH's brothers in Houston afterward.

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