2011 Sisters

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  • Kezzie62
    Kezzie62 Member Posts: 189
    edited February 2011

    Hi MrsChorlton, Just wanted to wish you good luck tomorrow with your lumpectomy and SNB.  Be gentle on yourself and take time to heal.

    Hugs,

    Kezzie

  • Rennasus
    Rennasus Member Posts: 1,267
    edited February 2011

    Had my first appt. with my oncologist today. Waiting for my oncotype score to come back (in about 2 weeks) then will know exactly what my treatment plan is. The good news: I found out I am Stage 1b and I am THRILLED!!! ;-) Good luck to all with procedures tomorrow!

  • Kymn
    Kymn Member Posts: 999
    edited February 2011

    That is great news Rennasus, I should find out my stage March 1

  • Kymn
    Kymn Member Posts: 999
    edited February 2011

    wow its sure been quiet in this room lateley, how is everyone doing? I had my bone scan last week and am going for my abdominal ultra sound and muga scan tomorrow. then off to meet the treatment team at the cancer center on Tuesday. I am feeling nervous but anxios to just get this going. Now that I know I am getting chemo lets just get started already the anxiety is getting to me.

  • kg1234
    kg1234 Member Posts: 95
    edited February 2011

    hi everyone,

    was supposed tohave surgery on the 17th, but the day before I got the flu.  Had my lumpectomy on the 24th and was home yesterday...got sick from the anaesthetic.  I'm home recovering now and have lots of discomfort on the underside of my right arm (wings) and tingling.  It's very numb there.  Was spposed to have axillary dissection, but last minute, they decided to go with the newfindings and just do the sentinal node biopsy...but the blue dye didn't work, and so they did the axxillary dissection anyways.

    I feel okay today, resting, first day back on my computer.  worried about lymphedema, but what can u do.

    Will get my full report from surgery on thursday....

    Cheers ladies 

    Kg.

  • Kezzie62
    Kezzie62 Member Posts: 189
    edited February 2011

    Hi Kymn

    Looks like we both have a busy week coming up,  you with all you scans and I have my pre-op and an appointment with the anesthesiologist.  I too just want all this to be over.. I want the surgery over and the waiting for the final pathology to be done.  

    Kezzie

  • Cairycat
    Cairycat Member Posts: 9
    edited February 2011

    Probably it's quiet because nobody is getting new news on the weekends.  Kg, hope you are feeling more comfortable soon.  Kymn, I so hear you about the anxiety.  I have been trying to ask myself when feeling anxious, "Is this something I can do anything about?"  If it isn't then I work hard at letting go of that particular anxious thought.  Like I got through my first chemo treatment fine, but have been anxious about further ones being rougher.  I go over in my mind what I can do about the various side effects, and just try to dismiss the worry about having them, because I'm not in control of whether I have them or not.  In my opinion, it's a matter of realizing there's stuff we just don't have control over and accepting that and going forward.  I believe in God and it gives me comfort to know that He is in control and not me.  Well, let's see if stay this calm until Wednesday (next chemo)!

  • MrsChorlton
    MrsChorlton Member Posts: 23
    edited February 2011

    Hi everyone,

    I had my lumpectomy on Friday the 25th. I feel fortunate that my cancer is so slow growing and caught super early. Should get all the results from the surgery tomorrow, but first indications were that the SNB was good, no need to take more nodes. 

    I'm a mega healthy person I run 5 miles a day, and eat super clean foods.

    I will not be getting radiation, and do not want to take tamoxifen, I've met with medical onc. and radiation oncologist as well. I'll be meeting with my medical onc next week again to take some blood and see what's going on with my proteins...

    anyway I'm just a little sore from the surgery and seem to be sleeping alot. My surgeon says I cant go jogging for 10 to 14 days, so that part is going to be the hardest.

    hello everyone!

    Mrs C.

  • kg1234
    kg1234 Member Posts: 95
    edited March 2011

    Hi everyone!

     I have just returned from the dr.'s (my first time outside the house since coming home Sat) and I have my final pathology report. Two great things:

    I have clear margins 

    and only 1 lymph node out of 13 that were removed has metastatic cancer. Of course, no lymph nodes with cancer is better, but I'll take 1. My dr. was quick to point out though, that while this is good news, I am still on the road to Chemo and Radiation. But overall it is very good news. 

    So now it's just recovery from Surgery and then meet with an oncologist...

    Kg

  • JeanneR
    JeanneR Member Posts: 128
    edited March 2011

    Hi kg1234 - SO Glad you are recovering good. And so happy your margins are clear!!! Also, you are right, only 1 node out of 13 is actually quite good too. Now it is gone, you can concentrate on getting chemo and radiation for prevention and then back to planning for your many many years ahead of you girl.

  • lilylady
    lilylady Member Posts: 1,079
    edited March 2011

     I want to get in on the sister thread-looks like we have a big year ahead of us. I was told today by a BS that I have BC. She took 7 cores out and put them in the little jar and said she would call me tomorrow with results-that has the crap scared out of me. They did an MRI today also-you know the old saying if life gives you lemons? Well life has given me a lemon sized lump in my right breast. Not quite ready for the lemonade part yet though. Radiologist had estimated 3.5cm. That was the tip of the tumour only.

      I will be headed for chemo to shrink things down. Not sure what because I don't get my results til tomorrow. She wanted to put the port in tomorrow and start chemo next Monday. I have told her I am having arthroscopic knee surgery next Friday so it will have to wait a week. I don't think it will kill me. I also have another BS appt at a cancer center next Wednesday so want to wait at least that long. I am sure she will say pretty much the same thing. I will have to find some of you that might be close to the same place.

      I have just moved over from some of the new people forums so I will read up on you guys so I can talk the talk with you.

  • Rennasus
    Rennasus Member Posts: 1,267
    edited March 2011

    Lilylady, welcome to our "club"! No one wants membership but here we are... You are doing the right thing by getting a 2nd opinion and also taking a breath by telling them you want to go through with your knee surgery. I had 2 surgeons tell me it is best not to feel rushed into any treatment; waiting a few weeks will NOT make a difference and it will give you time to get your ducks in a row. It sucks you got this diagnosis but know that you are not alone.. You've come to the right place for info and support!

     Congrats kg1234 on clear margins and only one lymph node!  

  • Kezzie62
    Kezzie62 Member Posts: 189
    edited March 2011

    Lilylady, welcome.  You should have a 2nd opinion that way you will feel that you have the most options available to you.. I spent a few weeks just reading everything I could about the treatment options and what other women have done who had the same type of cancer I did.  It is sad that you have had to join our exclusive club, but this is the best place to find good info and support.

    I am starting to get a bit nervous, I go for my pre-op tests tomorrow, so it is all becoming very real.  I have a feeling that sleep will not be easy for me over the next 14 days..  I just want the surgery done so I can move onto the next step..

    Hugs to all..

    Kezzie

  • JeanneR
    JeanneR Member Posts: 128
    edited March 2011

    Lilylady...Welcome...although I know you would prefer not too..You are right, a few weeks is NOT going to make a difference, and it took me a few weeks too to tell my family. They can wait until you are ready for them. This forum is really helpful, glad you find us.

  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Hi ladies well I got my chemo date its march 17th. just wanted to pop in a let you know I am so tired emotionally right now cried pretty much during the whole chemo class today. oh well guess it will get better after i get the first one out of the way.time to get my wig

  • slinky
    slinky Member Posts: 397
    edited March 2011

    Kymn, giant hugs to you!

  • JeanneR
    JeanneR Member Posts: 128
    edited March 2011

    Oh Kymn...my heart goes out to you. Each step seems to be difficult, but it is a step for a better tomorrow!!! Just take it one day at a time girl...I know it is easier to say than to do...However we are all stronger than we think. Spoil yourself today.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2011

    Hi 2011 Sisters............Dodged the bullet for many, many, years, then IDC reared its ugly head...........shocked to say the least, but here I am in the club that no one wants to be in.  For the first time in my life I can honestly say "its good to be 75"... considering age is a good thing when you are diagnosed with cancer later in life..........now you wonder if the old body will handle any treatment.Saw my BS, told me "you tested positive", although he thought that the first time I saw him.  Didn't know much at that meeting except that it was IDC.   Couldn't feel lymph node involvement, but we know how that goes.....Saw all the necessary people including the onc. the other day....She had a little more info. and said the tumor was approximaely 2cm, and I am ER/+ PR+, and HER2u-.  Suggestion was lumpectomy from all 3 Dr.'s, with 33 days of Radiation, and possibly Tamox. after.  No Chemo at my age, since according to the ONC. doesn't give any better result for recurrance when done........The will do the test for recurrance possibilities.  I am scheduled for surgery on the 14th of March.  I'm a natural born worrier, so no matter what the surgery, treatment, outcome.....I will worry till the day they close the lid........I know that is not healthy, but that is me, and I can't get rid of that "but what if" part of me.  I will  try to concentrate, and pray that its God's will, and it is all in his hands.........You can only do so much yourself...........and to live by something I never thought I would be saying "I have cancer.........it does not have me.......I have a wonderful support team.  6 children (all in the same town), 18 grand-children,............and yesterday I became a great-grandmother for the first time.  As I sat in the labor-delivery waiting room (in the same hospital where I got my bad news), I thought  "God is good, maybe from this day forward only "good news" will come out of this hospital........Twin girls....Baby A at 1:08 pm......Baby B at 1:18pm........I looked at them closely right after their birth and though........You are the beginning of another generation...an even bigger reason to fight the beast inside.........well at least till March 14th.................I'm keeping the faith.    hugs..

  • slinky
    slinky Member Posts: 397
    edited March 2011

    duckyb1, So sorry you have to join this club.  Your post was very poigniant and made me very sad that you have to undergo this at your age (or any for that matter).  It sounds as though you have a large, close family and there will be many people supporting you.  Even though I carry myself as though nothing bothers me, I still have my negative moments - or as you put it "what if" moments.

    Please keep us updated - Big giant hugs to you!

  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Good Afternoon ladies,

    Slinky thank you for the hug I sure need them right now.

    Jeanne It really does seem so terribly overwhelming right now but I look at what all of you have done and been through and survived to the other side and there is no reason I cant either right? Thanks for your support

    Ducky I know what you  mean about the what if part. I'm like that too but trying hard to put a different spin on it . What if it NEVER comes back what am I going to do with the rest of my life I am only 41 lots of living and experiencing to do. Congrats on the twins that is so exciting.

    Have a nice weekend all hope you all have moments of no cancer thoughts in your heads

    Love Kymn

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2011

    Slinky, thanks for the hugs......I guess we all need them.  You ladies are all so young to have this happen to you.  No time is a good time, but at least I was spared getting this dreadful disease while I was younger....It is just such a kick in the gut....I had a mild heart attack in 2007.  Woke up thinking I was having an anxiety attack......didn't want to wake my children up at 3am, so I got dressed drove myself to the hospital to be told.  "call someone you are having a heart attack", and have to be transported to a trauma center for cardiac cath.  Again I said "i am not waking my kids up at now 3:30am to tell them, lets just get this show on the road".  "This morning I am doing a "solo" act.  Well of course that didn't work.  When I finally did see my children once we got the diagnosis of a clogged branch artery (not main), I said "hey  don't look so sad, at least its not cancer.............Their father died from Pancreatic Cancer at 57, so honestly I thought I grabbed the "brass ring" when it was a heart attack................So now fast forward to today..................You girls are so young, so brave, and if nothing else I will take a page from your books, and put on my "big girl panties" and face the beast head on, and eye to eye.  As I said previously "I have cancer........it does not have me.........Good luck to all of you, and KYMN I will take my "what if it does", and make it a "what if it never"......comes back.  Hugs to you too.

  • Silia
    Silia Member Posts: 330
    edited March 2011

    Duckyb1 - I'm always inspired be any thread you join. Thanks.

    Kymn - I didnt go to a chemo class but at yesterdays first treatment I had to go into the bathroom to pull myself together. I walked in in a stressed out, cross , and ready to cry. Once I decompressed it was really okay, thank God. The fact that we have do many amazing women who have gone through this before us is inspiring and terrifically helpful. Take care everyone!

  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Hi ladies just popped on to see how everyones sunday was going? Mine was very productive and got lots accopmlished so that is a good thing. I had a few teary moments thinking aobut shaving my hair today but other than that is was good.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2011

    Hi Kymn........Rain, rain, go away.........terrible here in my town today......rained all day, but like I told my grandaughter....no rain, no flowers, and Lord I am ready for the flowers.......Sunday was bittersweet....we found out my one of my great-grandaughters(born March 3rd) is not coming home from the hospital.....her sister came home yesterday.....she is the littlest of the twins, and is having some problems, so they are going to transport her from the hospital she was born in to Children's Hospital of Phila. either late tonight or early tomorrow.  It is very upsetting, and my grandaughter (her mother) is struggling handling this news...........Makes my news about BC seem like "small potatoes".......just wanted to say no matter what you  do to your hair KYMN you will be beautiful, at least from what I see in your picture........nothing wrong with tears.........have shed more then my share ..............prayers and hugs to you.

  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Thank you Ducky I hope I can feel that one day too. I am sooo sorry to hear about your Granddaugher and greatgrandaughter. I agree the thought of little ones struggling really puts my issue in perspective. I will be praying for them.

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2011

    Ladies, I abandoned this forum and went over to Chemo, Before, During, After, for Feb 2011, we're all in the midst of chemo so I'm getting good sharing there.  Ducky, I am 60 years old but feel much older from being disabled from old car wreck.  I admire your courage.  I am a total wreck and, while I was glad to get on the chemo bus, it sort of moved things forward a step, it has been rather hard to deal with, just knocks you back big-time.  But good thing is, about Day 11 or so out from first chemo, I began to feel more normal.  Now I'm right back in it again and feel lousy again.  Did want to say, tho, my breast stopped hurting after the first chemo, and now after second chemo my breast is looking more normal, red mark got smaller.  Well, just wanted to tell you all where I went, and to say thank you again for helping me begin this whole unbelievable situation. GG 

  • lifelover
    lifelover Member Posts: 553
    edited March 2011

    Well, I was diagnosed with BC the beginning of February but only got a copy of my biopsy report last week.  I now know I have IDC although some micropapillary cells were found as well.  Because of prior radiation 17 years ago to my chest I am unable to have radiation so I'm going to have a bilateral mastectomy and immediate reconstruction using my inner thigh muscle, tissue and fat.  Depending on the findings following the surgery, I may need chemo.  The size is unknown although it is believed to be between 1-2 cm.  I also have another suspicious lump in the same breast and 3 in the other breast that have not yet been biopsied. 

    It's so helpful to hear everyone's stories.  I'm waiting for a surgery date but it will be soon as I'm having my pre-surgery assessments this week.  I'm getting frightened now but I keep telling myself that so many have had this done before me - I'll be ok :-)

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2011

    Lifelover.........it is scary.  My journey started on Feb. 14th with that phone call no one wants to receive........come back for a redo.  Thiis time I had a bad feeling, and my bad feeling did come to be.............I am having surgery March 14th, and even though they all sound optomistic I can't get uphoric till all the news is in.......I have learned we have to take each day as it comes......well at least that is what I tell myself.......yes others have gone through this, and I have received so much encouragement from our Sisters on this website.  Many much worse then I, and many much better then I, but each with their own story to tell........Listen to them, they will help you get through this.......Hugs to you, and remember this.  YOU HAVE CANCER.....IT DOES NOT HAVE YOU.

  • Rennasus
    Rennasus Member Posts: 1,267
    edited March 2011

    Lifelover: I think you are doing the absolute right thing! Especially since you have more than one lump hiding in there. Having a bilateral buys you a big slice of the "peace of mind" pie. A BMX removes what they can see as well as what they can't. Why take the chance? (I told my surgeon to take as much tissue as he needed. I didn't want ANY of it.) So go ahead and pull the rug out from underneath your cancer cells and show 'um who's boss! ;-) Like Duckyb1 says, you have cancer, it doesn't have you. (Love that line!) Just deal with each day as it arrives, and try not to look ahead too much.

    I found it helpful to only research what I was about to go through — and not jump ahead and research stuff that may or may not be in my future. That kept me in the moment and I also didn't waste my energy on things I didn't have to know about just yet. And THAT helps keeps the fear at bay. Good luck in your journey. We are here for ya!

  • NotAgain2015
    NotAgain2015 Member Posts: 223
    edited March 2011

    Oh you guys I have been away too long.  So many wonderful women have joined our thread.  I am touched by each of your stories.  Ducky, your posts have been especially poignant and i find myself in tears as I type after reading them.  I had to pretend this wasn't happing for a couple of weeks and work like a madman to get some work things done.  Now back to my BC world.  I still have numbness in my shoulder, arm and hand.  Its definitely feeling like slower healing this 2nd time around.  Saw my BS today and also the therapist that my onc office provides.  I decided I needed it for me.  I've been putting on the stiff upper lip and I don't think I can keep it up.  So hard for me to admit to the world that I have cancer again.  I may end up opting for chemo and at that point, there's no hiding it.  Just finding it hard this go round.  Boy did she have me figured out and quick.  I cried on the couch.  Just couldn't hold it in, guess I needed it.

    You guys are the best, so glad you are here.  I'll post more later.

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