November 2009-Starting Chemo

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  • doronet
    doronet Member Posts: 342
    edited February 2011

    I've logged on here several times in the past few days and tried to think of something to say, Melinda, about the glaucoma, but I am at a loss for words.  It seems you really can't catch a break.  How in the world can this not be related to the chemo, though?  The treatments are so harsh, I would think any part and every part of one's body could possibly be affected.  I'm so sorry you have to deal with it, but no damage to the nerve is good news.  Will the drops get rid of it or keep it where it is?

    Sue:  Will the tinnitis go away?  Funny that I was looking up Pulsatile Tin. on the web and discovered an explanation to something my son has had since he was 5: he has Objective Tinnitus where there is a crackling noise you can hear coming from his ear.  The web said it is caused by muscle spasms from the middle ear.  We had even gone to a specialist at that time, and he said he had never seen or heard anything like that.  Guess he had never used the internet before.  :)

    Happy Thursday, everyone!  Nette  :) 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    Hi Nette - I don't think it will go away. I am supposed to go and have a hearing test. I'll arrange that after he rads are finished - only 3 to go. I've got plenty of time before I go back to work. There can be other causes but my GP thinks it's damage from the chemo. You can guess why I'm up so late at night - can't sleep again and I was exhausted at 9:30 - now 11:45pm. I tend to drop off only to wake up a short time later wide awake - the hot flushes don't help.

    Sue

  • Melinda41
    Melinda41 Member Posts: 672
    edited February 2011

    Nette: It does seem unlikely that it is unrelated to the cancer or treatments, but as long as it is not a brain tumor.... The drops appear to be a life long thing, keep the pressure down to protect the nerve. I am just very glad it was caught in time.

    Sue: coming down the finish line, I know you can , I know you can!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Morning ladies.  Hope everyone has a great day.  Havn't been on to much. I guess I have nothing exciting to report. That is good.  Saw little ONC the other day. Can't believe how stressed I was going to the appointment.  Just seeing the hospital and driving in the parkade stressed me out...I guess that will get better with time.  All is well, so I won't see him for six months...woohoo.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    Thanks Melinda - I'm nearly there. More skin is coming off unfortunately. Still, it healed up nicely last time, so I'm not too worried. I hope your eye feels better. Hey, you haven't said how it's going with the beau.

    I'm going in to work tomorrow again - another free lunch :) They are having a lunch to say good bye to the contractors and for the shelving of our project. I might be able to find out where I'll be put when I go back.

    Sue

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited February 2011

    Sue, I'm rooting for you all the way!

    Melinda, take care of those beautiful eyes of yours.

    Chele: 6 months!! I'm so jealous. I go every 9 weeks now. I guess that's better than every week!

    Sisters, hello! Nothing really to report. Having my reconstruction March 24. They bumped it back AGAIN!!!

  • Melinda41
    Melinda41 Member Posts: 672
    edited February 2011

    Linda:  9 weeks, that is an odd amount of time, are you doing the herp for another year??

    Sue: The Beau is fine, he seems to be tolerating my slump well which is another good sign.

    Michele: I know what you mean about that parking lot stress. My Onc has a automated service that calls to remind you of your appt, her "voice" practically sends me into a rage.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    Melinda - good to hear he's still on the scene - I think he's a keeper.

    More skin coming off - only 2 to go. I'm tempted to tell them to shove it. I'm totally over it.

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited February 2011

    Does it cause any pain Sue? You are almost there! I'll drink a glass of champagne in honor or you. My 22 yr-old niece is home, so we're going to have a Beverley Hills Housewives shindig for her...

    Yes, Melinda, my onc added another year of Herceptin. So far, so good...it's working! I'm going for PET/CT scans on the March 23 and have surgery on March 24.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011
    Linda - There's an area on the side where some skin has come off that is hurting. I think some skin is being pulled off as they tape my boob for treatment and I know from last time taping any part of it is bad. I put medi honey on it last night - not supposed to yet, but how can it hurt when it's the weekend. Feels a bit better today. The skin loss in the crease doesn't hurt though. The area is much bigger now and you can see where the skin is grey - that will all probably go too. Oh well - it saves me going to the dermatologist to get my tiny brown spots under there scraped off :)
  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    HI girls ~ just got home yesterday from a wonderful week in Vermont with my family skiing.  I did something off my bucket list and skied my first black diamonds of my lifetime !  It was great to ski and feel alive.  Last year I was just done with chemo for this annual trip and spent my time reading alone while the family skied.

    It was quiet here while I was gone. 

    Sue ~ hope your skin isn't hurting too bad, you are almost DONE !!!!

    Linda ~ sorry to hear your reconstruction was pushed back, but hey it is on the CALENDAR! woo HOO

    Melinda ~ sorry about your eye troubles.  I hope the drops help and keep it regulated.

    Michele ~ I do the same thing, hyperventilate the minute I pull in the parking lot of the cancer center.  UGH !  Glad you don't have to go for 6 months.  I have my checkups all scheduled for May AFTER my cruise.  Nothing is going to ruin my TRIP !

    Nettie ~ hoping you are feeling good and all is going well.

    To all the other quiet sisters.  BIG hugs !

    :)
    Alicia

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    Good to hear from you Alicia.

    Only 1 to go - yippeeeee!!!!

    Sue

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Alicia, so glad you had a wonderful trip.  I was looking at my calender yesterday from last year...and boy what a difference a year makes.  I was a couple of weeks into rads and I had gone skating with my family on the The Redeau Canal.  It is the worlds longest skating rink at about 8kms.  My Dh had to pull me all the way up and back.  I wanted to cry.  It was so tiring and I felt like a pathetic baby.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    Amazing isn't it Michele ~ I too can't stop thinking about what a difference a year makes.  Last year I was just done with chemo, I walked up a flight of stairs from the parking lot of the ski area and to the base of the mountain to watch my kids ski down.  I was so winded.  This year I skied down black diamonds.  IT felt great to be ALIVE ! 

    Have a good day all.

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited February 2011

    Alicia, I LOVE your picture! You look great!

    I was still doing chemo this time last year. I didn't finish up until late March. But I was bald and yellow. I'm still working on getting my strength back, but I am out exercising and enjoying the air! Life is good :)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2011

    All done girls - I'm very tired and depressed and over the whole thing. Major skin loss going on - very thin layer coming off all under the boob as well as the breakdown area in the crease. At least it doesn't hurt. There is one sore area over near my under arm but now I can put my medi honey on it so it should heal up quickly (I hope).

    On the positive side, my planning for our trip to Ireland/Scotland/England/Wales and Paris is going well. Found a couple of great B&B's in Scotland last night. Now we just have to find the money. DH has some chance of more advice work (tax law) so hopefully that will pan out.

    I'm glad I'm not going back to work for a few weeks - I'm really tired and used to vegging out in front of the TV.

    Hope you are well!!!

    Love

    Sue

  • doronet
    doronet Member Posts: 342
    edited March 2011

    Yippeee, Sue!!!!!!  Congrats!!!  I know you're tired now, but use the down time to heal and get your energy back.  I'm so sorry you have to deal with the skin breakdown again.  :(

    Alicia, I had to log in last night to see the pic you have up after Linda mentioned it.  (I had seen it on fb, but I wanted to make sure I hadn't missed an even newer one.)  You are rocking the look!  

    Yes, as we keep reminding ourselves, this time last year was so different.  I, too, get the queezy stomach just pulling into the parking lot of the ol' chemo place when I go every 6 mo..  However, I always got queezy just making an appt.  on the phone with my PC doc, much less any BC doc.  :P

     DD is home from college for her spring break.  (She came in earlier in the day on Friday than she had thought and surprised me while I was subbing.  She claims I ran a couple of kids down trying to get to her, but I don't think I did.  At least no serious injuries.)  She and I are going to go out of town later this week, spend a night in a later hotel, and do some serious shopping while there.

    Everyone remains on my prayer list, with special "emphasis" on Sue and Melinda. I call it a "prayer boost."   :)   Nette 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2011

    Nette, love the prayer boost idea..I wish I had the powers you have....could you pray that my saggy skin tightens up before my vacation....That gym membership has Dorito crumbs on it and I can't find it now.

    Sue, woohoo you are done.  Go ahead relax and enjoy the fact tha you kicked cancer ass for good this time...

    Linda, good to see you again..Alicia, you are one hot sexy mama....ps, how do you like your new and improved "girls", havn't hear to much about them lately.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    JUST LOST MY whole post... grrrr...

    Sue Congratulations on finishing rads, be kind to yourself and rest.  I hope you feel better with each passing day.

    Nette, Linda, Michele thanks for the compliments.  Growing this hair is tough.....  I wish I could pull on it and make it grow.  I am taking biotin so we will see if that will speed things up.  Michele the new "girls" are way better than the last set.  I like the silicone so much more than the saline.  They are rounder and a more full size.  I get skin grafted nipples built on April 29th, it had to be after the cruise so I don't get them WET for a few weeks.  Then after that heals tattooing for color.  Can't wait to have frosting on these cupcakes, these blank globes are scary. lol

    Hugs girls !

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited March 2011

    LOL! Do you mind if I ask a potentially stupid question? Why silicone over saline?

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2011

    Thanks girls - I'm in a little bit better mood today - just threw out the appt list and skin care advice from the rads place - that made me feel better. I still have to go there to pay this last week's bill and then to see the rad onc in 6 weeks. When I said goodbye to the radiographers yesterday - I said "I'll never see you again" - which is so true.

    Not fair - you all seem to have grown back straight hair - mine is still crazy curly!!!

    Sue

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    Linda, not a stupid question at all !!!  I had the saline first, they were tear drop shaped.  They were very hard and unnatural feeling.  The silicone is warmer, softer and rounder.  Feels "almost" like a real breast. 

    Sue, glad you are in a better mood today !  And damn right you won't be seeing them again in radiation.  Embrace your curls.  You look marvelous darling !

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2011

    Thanks Alicia - I don't know how to thankyou you all for being here for me.

    ((((((((((((HUGS FOR MY SISTERS)))))))))))

    Sue

  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2011

    This is what my hair reminds me of. It is just a curly brown blob on my head.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2011

    Melinda you are one cute little monkey...

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited March 2011

    Why does the song Brass Monkey come to mind!

    (((Sue))) You're in a different continent, but you are my sister. I love all of you so very much! You do not know how much you've meant to me through the laughs, tears, pain, and recovery. OK...enough much.

    And talk about the curls. Good Grief, I didn't have this many curls pre-chemo. I use a straightener every day now! And yes, it's still grey!

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited March 2011

    Hi everyone,

    Just reading and BUMPING us up...

    Sue, so glad your finally finished, sorry I was off board so much, but my heart is always here....

    Melinda, at least there is hair, it will grow, I'm still getting used to having curls

    Nette, Alicia, Linda, Mechele ... so happy just knowing we are all getting past this and trying to enjoy life as it's meant to be ... I have been busy in my garden and planting trees (several different fruit) I have been cancelling some Dr. appt. I don't feel it is necessary every month just to have my breast groped. I want to just wait a few...until I need to re-up my Tamox, etc...needed meds

    (((((HUGS)))))                                             CoolHappiness & Sunshine

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2011

    Hi Girls - good to hear you're still out there Brenda.

    I cried yesterday. I went to vist my friend from the bus who han an mx on Monday. I swear she was in the same room I was in November. It wasn't nice going back there and so sad to see her there flat on one side. She wasn't feeling too good so I didn't stay too long. She hasn't got the pathology result back yet. The surgeon wanted an mx because he thought there was more DCIS in there - better be or she's had it off for nothing. At least she won't have to do rads and chemo like we have. I cried for all of us - bc sucks.

    I'm supposed to see the surgeon in April. I'll do that, but I'm not having any mammos before we go away in August - it can just wait.

    Sue

  • doronet
    doronet Member Posts: 342
    edited March 2011

    Sue:  is April's BC surgeon a followup for you?  Hope your bus friend is doing better now.  Has to be hard coming to grips with the surgery.  :(

    Hope everyone had a good weekend.  My DD was home last week and went back to college yesterday.  Will miss her terribly, as always, but our time together is always fantastic, so I have to look at what we had, not what I don't, and to look forward to her next time home!

    Happy Monday.  Nette  :) 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2011

    Nette, my son graduates next year and I already have  a pit in my stomach...why did I wish my kids to grow up....damn.

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