Meningioma, Anyone?

paamboli
paamboli Member Posts: 58

Wondering if there is anyone else on this forum who was diagnosed with a benign brain tumour called a meningioma. I often feel quite overwhelmed by it all, and things are further muddled by the Arimidex.This is not exactly where I wanted to be at 71...

paamboli

Comments

  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2011

    No, Paamboli, I am sure this is not where you wanted to be at 71, for sure.  I don't have anything I can add to advise about the meningioma other than thank God it's not cancerous.  I am also triple neg so no Arimidex for me, unfortunately.  Just want to wish you well and hope someone with some experience or knowledge comes along.

    Wishing you all the best,

    Linda

  • paamboli
    paamboli Member Posts: 58
    edited January 2011

    Hi Linda,

    Thanks for responding. Unfortunately, there is a known connection between meningiomas and breast cancer, (something to do with estrogen receptors), so I'm hoping that someone else with this "double whammy" will appear, although I wouldn't wish this situation on a cockroach.

    I have to admit that I lucked out a bit- the bc was small and found early, and the meningioma was murdered in its bed by CyberKnife: still in my head, but dead.

    paamboli

    Diagnosis: 7/2010, IDC, 1cm. Stage1,Grade1, 0/2nodes, ER+/PR+,HER2-

  • twoyoung
    twoyoung Member Posts: 10
    edited March 2011

    I had BC at age 30, stage 2 no nodes, estrogen positive. Double Mastectomy and reconstruction with chemotherapy.  Been doing great, three years later in November I started having dizzy spells with blurry vision and numbness to my tounge.  A MRI shows a meningioma, and 1/2 inch. I have only seen my oncologist at this point who doesnt think that the symptoms match up to the location of the tumor.  I will be setting up an appointment to see a neurologist tomorrow.  Any suggestions, my gut tells me to get rid of it, it doesnt belong there.

  • Mamajen60
    Mamajen60 Member Posts: 75
    edited August 2014

    well I just found out I have a meningioma. ( barely can spell it much less pronounce it )   After research o the internet of course I find out it's tumor.    Tumor , but small 7mm  x 3mm.     Have not seen onc yet, but her nurse gave me the report with a oh you probably could have had this since childhood.  How in the  world can she know this . No calcification.  But no swelling or fluid around it.  It's frontal.  

        Now history  I  am in " remission".   IBC. And Invasive ductal carcinoma  stage 3  grade 3. With hers 2 pos.  Er  pr neg.   first four rounds of chemo ac , the. Taxotere  which rashed me out.  So switch ed to taxol  .then taxol and herceptin and perjeta .   Then  echocardiogram brought everything to a screeching  halt.      Matrial  heart poisoning  caused by chemo.  Hmmm which  one is the suspect. Needless to say out went the port and onc threw up her hands and said I've done all I can do with chemo.  See the plan was  double  mast  then radiation , then 1 year of herceptin. Got the surgery  then rads twice a day for 19 days then boost for 5 .   Can't have reconstruction for a year becaus of IBC could come back within  that time.  Oh and the good one.  Brac 2 gene.   So next surgery ovaries .

        Now to the tumor.   A week of headaches on and off some nausea , off balance. , no dizzy spells . Just all of a sudden I take a step to side or backwards. Like if drunk.    Call the onc with symptoms and immediately get very first in my life MRI.   No masses or cancer , just a meningioma .  That was yesterday.   Next step I have reg appt with onc first week in sept , blood work ,antigen test etc.  most likely a consult  with  neurologist .  I know this is long and I've left other events out.   So now I am wondering if those aggressive hers 2 cells that have been hiding. They will do that .  Went To brain. The chemo can not pass the brain barrier wall .  At least the kind that can get those pesky her 2 pos cells   I have searched for any information  and I guess will not be satisfied until I can consult with dr.  The. I will still research , because it's always there. Always  that's why i take     Klonipin     and see a counselor .   October 7 th  2013 was when it all started .  Will be 62  soon.  That is another story for another time and topic.  

  • Mamajen60
    Mamajen60 Member Posts: 75
    edited August 2014

    sorry anyone else has to face this .  

  • NCDi
    NCDi Member Posts: 85
    edited April 2015

    Paamboli - Hi

    I am a recent member of this great site.

    I had been wondering about my coincidence too as I was recently diagnosed with IDC and, had a meningioma removed ( right tentorium) in 2007 when I was 56, which was benign. I went for surgery rather then radiation just to get the critter out, and so far no re growth. Must admit I would be happy to have no more MRI'

    Now just waiting for treatment plan for the b/c.

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