Brain Tumor

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twoyoung
twoyoung Member Posts: 10
edited May 2021 in Not Diagnosed With a Recurrence or Metastases but Concerned

I was diagnosed with stage 2 DCIS in Jan 2008 at the age of 30, I had a double mastectomy and chemotherapy, and have been followed every 3-6 months since.  I did not ever have any MRI CT or PET scans.  I for the last 8 weeks have had dizzy spells, with blurred vision and numbness.  A MRI showed no signs of BC Mets but did show a small brain tumor called meningioma.  Believed to not be cancer. I will be seeing a neuro surgeon soon. Its my understanding that many people have these and live long healthy lives with them, because of my cancer history and because I am having tumor related symptoms I will most likely be having the tumor removed.  Anyone else have a similar story?

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  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    I cannot comment on this but I know I have recently (in the last day or two) seen another post about meningioma.  I want to say I saw it the "Calling all TNS" thread on the triple negative board.   Hopefully someone will comment soon.

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  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited February 2011

    So sorry to hear you news.  Sending love & prayers. NJ

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  • Jelson
    Jelson Member Posts: 1,535
    edited February 2011

     Twoyoung

    up in the right hand corner of the discussion boards page there is a search function, click on it and when you come to the search page, type in meningioma. I just did so and found the post that Irr4993 referred to and other posts as well. 

    Good luck to you. I hope this is benigh and that indeed with/without surgery, you live a long and happy life!

    Julie E

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2011

    My DH has THREE tumours that are not malignant! The neurosurgeon said he may have had them all his life. They cannot be removed as they are too big and may be holding back blood vessels. He has no symptoms. They will only do something if he gets seizures or headaches, which they can't believe he isn't having. Because of your history it would be better to monitor or take out yours to biopsy it. Good luck!

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  • nikola
    nikola Member Posts: 466
    edited February 2011

    I have a prolactinoma, small tumor in my pituitary gland that was discovered by accident while I was trying to get pregnant. That was back in 1998, I was put on oral medication and I was able to have my son in 2004 when I stopped taking it. I did not and do not have any s&s but now with BC in the picture I am going for an MRI in April. My problem is I am on zoladex inj that has connection with pituitary and they want to make sure it is not growing.

    Good luck.

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  • twoyoung
    twoyoung Member Posts: 10
    edited March 2011

    Thanks for the support and info, I will keep you posted!

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  • mks16
    mks16 Member Posts: 415
    edited March 2011

    Twoyoung, my MIL was diagnosed with meningioma in two different location on her brain two years ago. She had the first one removed, as it was causing the same symptoms you're experiencing... dizzy spells, loss of balance, numbness, blurry visions... It was almost 5 cm in size but the surgery went very uneventful and she recovered amazingly quickly from it. Now the second meningioma started growing after being dormant for two years, and MIL just underwent another surgery 5 days ago. Since the second one was much smaller, she has recovered even faster... morning after the surgery she was up and making her own tea.

    Her second meningioma wasn't causing any symptoms yet, but they decided to go ahead based on previous experience. Her loss of balance has caused many falls, including being hit by a car as she was crossing the street. Brain surgery is a scary prospect, but she didn't think twice about the second surgery, knowing that the recovery is fast and meningioma's are fairly easy to remove as it had well defined edges. I hope this helps calm you down a bit, I wish you all the best!

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  • carcharm
    carcharm Member Posts: 486
    edited March 2011

    I have heard of them being removed but it depends on their location. People do live long health lives with meningiomas they just need to be monitored for changes. I am sorry you've been dealth this card on top of bc.

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  • helenmoore
    helenmoore Member Posts: 8
    edited April 2011

    My aunt had developed Sphenoid Meningioma. This is when the tumor lies behind the eyes. Please check the information provided on treatments and various procedures and types of Meningioma at Brigham and Woman's Hospital's website. It is extremely useful.

    Here is a link:  Meningioma

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  • fredntan
    fredntan Member Posts: 1,821
    edited May 2021

    I now have a meningoencephalocele in my sphenoid sinus.

    I have MBC since 2013

    Have had ONJ, chronic blood clots, left renal near occlusion with stent placement

    The pain is behind my right eye. It started in jan 2021. The pain was only there if I bent over. It's now there all the time.

    I found a neurosurgeon at UTSW.

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