Taxotere is a nightmare

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  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    specialK - I do understand!  When I go out in the sun to get my vit D I really do take a timer with me!  Maybe I shouldn't have fessed up to my method of getting vit D - ?  My daughter has extremely fair skin and she slathers on the sunscreen anytime at the pool or outdoors for more than a few minutes.  AZ sun can be brutal!
  • TonLee
    TonLee Member Posts: 2,626
    edited February 2011

    I love the sun.  I lay out in the summer, but wear sunscreen so I only brown a little bit and it takes most of the summer.  I tend to just slather on self-tanning lotion over my sunscreen ... it's gotten so much better than even five years ago (no more orange streaks!).  I wear sunglasses, hats etc when in the sun, but I still sit/lay out in it whenever I can....it feels good, like the sun is leeching strength into my bones.

    Of course Ohio sun, isn't Arizona sun, or even Florida sun....

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2011

    Omaz - glad your daughter is careful!  She is smart - I made my kids come with me one time to the Derm to watch him freeze off a lesion so they would know why I was constantly putting sunscreen on them! They were totally freaked, but it drove home the lesson!  We moved here because of my DH's military assignment so it was not my choice to live in such a sunny place. I am frustrated living in FL because I can't really be out. We went kayaking not long after I was diagnosed and I looked like a nut because I was all covered up, but better safe than sorry.  Today it is gorgeous outside and very tempting but I am behaving and cleaning my side of the closet instead!

    Kathie

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2011

    TonLee - If I am going to a special occasion I will go do the Mystic spray tan thing - it works great for me.  I actually end up with a pretty natural looking color. I do miss that feeling of the warmth on my skin though, I grew up in CA and spent much of my childhood and teenage years at the beach but I just can't risk it.

    Kathie

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    specialK - Yes sunscreen and we also wear the surf shirts in the pool too and longer leg swim trunks.  There are great websites now that sell sun protective clothing.  We use the block type sunscreen too, zinc and titanium, some of the others contain agents that irritate my skin.
  • lago
    lago Member Posts: 17,186
    edited February 2011

    I don't wear sunscreen because it makes me break out although I might start this summer. I don't sit in the sun but living in the city I do my share of walking around. I still was diagnosed with very low vitamin D 1.5 years ago. Was first put on prescription D. I'm on supplements now.

    Some people, especially those us who live up north just don't get enough sun all year round.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011

    I think during winter only the very southern most states have enough direct sunlight to stimulate vitamin D production but only right around noon time. 

  • tracie23
    tracie23 Member Posts: 598
    edited February 2011
    Today it is 80 here in Houston.... I had so much to do inside I would have sat out for a few minutes... I did work my butt off in the house and made a Chili Rellano Casserole for dinner... Cleaned out my pool. If it stays nice in a few weeks we can heat it up and I can start swimming... I do a 15 spf to 45 in the summer depending on how long I am going to be in the pool.I was a sun worshiper in my teens... baby oil and tin foil... YIKES.  I could use a little color but my face and hands and feet are so dry you could sand a table with all of them... LOLSealed
  • EricaH
    EricaH Member Posts: 41
    edited February 2011

    OK so I lay outside for about 1/2 hour several hours ago.  I thoroughly enjoyed it and didn't overdo.  So far so good.

    (Watch me wake up tomorrow and my whole body will be green or something.)

    If anyone is interested, you can buy the spray Vitamin D at mercola.com. 

  • EricaH
    EricaH Member Posts: 41
    edited February 2011

    Hey Tracie - Ever do the lemon juice in baby oil????  OMG it makes me shudder now!!

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011

    I heard that you have to put on moisturzing lotion after bathing within 5 minutes or skin starts to dry out - did I hear that here?  I use aveeno unscented lotion, works really good for me, not greasy!

  • EricaH
    EricaH Member Posts: 41
    edited February 2011

    That's a good tip - only my hands are dry, but they are like sandpaper!

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2011

    Huh.. I don't have any dryness...

  • krista613
    krista613 Member Posts: 34
    edited February 2011

    Survivorwoman-

    I had the Shortness of breath too while on taxotere. After my fourth treatment, I could not walk up my stairs without needing to sit down immediately and catch my breath. It really made me feel like a weakling.  But I am now 8wks out from taxotere and did not have any more SOB. I can walk up and down on the stairs and work a 12 hour shift no problem. Today I helped lift a 450lb man.  My strength is returning. 

    I know how bad taxotere sucks.  I had a really bad experience with chemo. But there is an end!  I just had to keep that in mind!!  You'll get there and feel better!

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Dry skin: I've been having some good luck with extra virgin coconut oil. I've used it on my face, body even my feet are so muich better. It absorbs quicker than you think. For hands I also use Eucerin hand cream. It's not greasy.

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited February 2011

    krista613 and shooshoo23 ---thank you for letting me know about your experiences with Taxotere. I am actually little over two weeks past the last chemo and this shortness of breath and palpitation issue did not happen before, at least not while I was doing chemo. Naturally, I am worried and brought it up here. As lago suggested earlier, I will mention it to my oncologist tommorrow anyway. But it is good to know that two of you ladies had similar experiences and that it will get better as time goes on. I can't wait to feel that way.

    Dry skin: I use sesame oil from the health food store. After showering my skin absorbs it really fast. It is not greasy but light and feels fantastic on my skin. It is not too expensive either.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011

    I will have to try the coconut and sesame oil.  I used emu oil during rads and I liked that.  Good ideas!

  • Ang7
    Ang7 Member Posts: 1,261
    edited February 2011

    Hey all,

    Just a note about sunscreens...

    My onc. told me about a site called Environmental Working Group (www.ewg.org) where you can look up your sunscreen and see what the ingredients do.  I am changing all the sunscreens that my family uses as they are classified as "hormone disruptors" etc.  Hubby thinks I am flipping out but if my doctor thinks it is important than why wouldn't I look into it?

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    Ang7 - thanks for the site, I'll check out mine.
  • krista613
    krista613 Member Posts: 34
    edited February 2011

    Survivorwoman My SOB of breath did not start until I was like a 1.5 -2 weeks out after my last chemo. But definitely mention to onc. I think it took another 2 weeks to get better. I couldn't believe how weak I felt after the 4th one.  I hope it gets better soon!

    Anyone else lose their eyelashes after chemo?  I am 8 weeks out from TC and am so depressed that my eyelashes are coming out right now.  It's like the last final insult from this stupid drug.

  • lago
    lago Member Posts: 17,186
    edited February 2011

    I'm 6 weeks out and my lashes started to fall out last week. I still can wear mascara but I don't know for how much longer. Good thing I have large eyes and I good with eyeliner Tongue out Krista, we'll have to compare lashes when we meet.

    I have heard that this is a sign that new ones are growing back. But at least the hair on my head is growing back!

  • krista613
    krista613 Member Posts: 34
    edited February 2011

    I too can wear mascara, but I have a huge gap missing on the top lid, so it looks pretty pitiful.

    Lago, your attitude amazes me! It seems like nothing about this chemo business really bothers you!  :) I wish I felt that way.

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Krista there are just 2 things that are driving me crazy. My fingers/nails hurting and my stiff muscles. My toe too but that should be a non issue in a few days. I do think the stiffness is getting better but the fingers, well they suck.

    Every time I do stuff even basic stuff like cleaning, cooking, food shopping, etc I seem to do more damage to the nails/fingers. They are hurting less but still ooze or bleed if I disturb them too much. Still waiting for a couple of nails to fall off but I might be lucky and not have any Kamikaze nails. Oh and did I mention they smell really badly when they ooze. Dogs seem to like the smell. Of course dogs stick their noses in shit too.Tongue out

    So yes even I get annoyed but I still made a hug batch of chili last night. I'm also about to make some cookies and clean the bathroom. I might even try to scrub the floor but that might be pushing it. I also know it's only a matter time.

  • Colodisneylover
    Colodisneylover Member Posts: 220
    edited February 2011

    Lago-I am a lurker on this thread because I will be starting chemo next Thurday 3/10 but wanted to ask you about your nails. Maybe I missed it (I feel like I have chemo brain already and haven't even started, I think it's from all the stress) but did your nails just fall off after finishing or during chemo? Did you put them on ice and it didn't work? Or no ice, or it was just so much T and they fell off?  It sounds so painful.

    Thanks!

  • Adey
    Adey Member Posts: 3,610
    edited February 2011

    Um... lago... stop scrubbing things and

    GIVE THOSE NAILS A BREAK!  Laughing

    Maybe I could join the Rush lunch too?  My youngest daughter finds my "eyebrows" amusing.  They consist of about one and a half hairs each!

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited February 2011

    I started A/C on 11/03 and Taxotere on 01/05.  I have finished 8 of 12 treatments.  I have tried really hard not to complain too much as I know there are people who are in worse shape than I.  Today, however, my fingernails hurt so bad I want to sit down and cry.  The top half of my nails are dark, but not black, they have lines through them and the bottom halves are a much more normal color.  My feet and hands are swollen.  My tongue and lips feel like they are coated with something that burns just a little bit.  I want to crawl in a hole and sleep but instead I am at work and my boss (an attorney) is on the warpath.  I am truly feeling sorry for myself right now.

    This seemed like a good place to vent as I know you all feel my pain.

    Susan

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Colodisneylover They haven't fallen off yet and may not. I have had issues starting after after tx 2 with my toe & finger nail beds. I was not instructed to ice them. Found out after so I only did it for TX 5 & 6 but it was too late. I am 6 weeks post chemo but as you can see it hasn't resolved. 3 finger nails have started to grow out.

    Nail beds getting sore, nails lifting and falling off is a rare side effect… but I got it. Icing from the start probably would have prevented it but I'll never know. Good chance this won't happen to you. You might get discoloration, darkening etc. that's more common. If the nail beds start to hurt that is an indication that they will probably lift and maybe fall off.

  • tracie23
    tracie23 Member Posts: 598
    edited February 2011
    samayofl: I am so sorry you are feeling bad... And I give you big props for even working.. Every treatment I had my nails felt like glass I could barely pick anything up ,my nails are like yours dark , lines and it looks like I tried to pick holes in them. My tongue and teeth always felt like I had socks on them and my mouth just stopped hurting.  this weekend my lips were numb along with my hands and feet with mouth sores all over my tongue.... CryI had my last chemo on 2/17 and today I went for my 1st walk since December. You can complain all you like this SUCKS and we are here to listen to you. I hope your day gets better.
  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    colodisneylover - I used frozen peas in lunch sacks from target and little cotton gloves/socks to ice my fingers/toes during taxotere infusions.  Cool down 15min before tax, during tax, 15min after.  I only came upon the icing by accident while looking up taxotere (docetaxel is it's other name).  Many women do not hear about this.  It appears that about 30% of women on tax get some mild nail problems but as lago said the serious problems are rare.  I felt it was worth it to do the icing if it prevented problems.
  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited February 2011

    Thank you for listening Tracie.  It makes me feel better to know someone else truly understands.  My last complaint of today is - the next person who tells me I will be fine because I ONLY have four more treatments to go is gonna get slapped!  Today, four more treatments seems like an eternity!

    Susan

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