anyone starting chemo in Nov 2005
Comments
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Just want to say Merry Christmas to all. I have been off the boards and just came by to catch up. ( Lots of tears rolled till this post ) I just love this group
I will have my #4 treatment on the 27th due to the holidays. This last treatment was rough, my stomach was just turning.
I didn't get sick, but close. I also have the worst case of hemorrhoids I have ever had, and can't go to the bathroom very well at all. Even with a Lax/stool softener.
I have been eating veggies and drinking plenty of fluids. I will have to talk to my onc about this next visit.
I can't wait for Christmas to come, it has such a new meaning for me this year. I want to go to church and really take in the moment. I'm sure there will be tears as always.
The fact that Christ was born is something I'm glad I believe in. I wouldn't know where to turn if I didn't have God in my life.
Along with the support of my husband, and family. I feel very blessed.
I think God has a plan for me, and I will follow this journey as I do every other journey with faith.
If you really pay attention, you can see the path clearly.
Much like you when we can't see the forest for the trees, just look through the trunks and you will see where the path is going.
Such wisdom comes with age LOL...
I wish you all well and hope all have a good Christmas. May you be blessed with good heath in 2006. For many of us it has been a hard year.
Started with me when my kitty died, then my daddy passed, and now this. God puts on us no more than we can handle, he must believe I'm a strong woman!
And I have to admit, I am one tough lady!
My life seems to matter much more to me also. I will never fuss about getting old again!
Speaking of getting old, I will hit the "BIG FIVE O" on January 12th. I really wanted to have a big celebration, black roses and all.
Never thinking of it being a big black cloud over me on that day..
I will have chemo a few days before my birthday, so I know what I will be facing. Glad it is #4 , I'm half way there. Last A/C YES!!!!!!!
Love Mary -
This is a test to see if I put in a picture.
Thanks
Grace -
Hi everyone~ went for my second CAF today and it was a no go. The MRI I had on the brain, shows mets in various places ranging from mm to over 1 centimeter.
I will see the Radiologist on thursday and possible radiation on Friday.
This is really scary for me..... The chemo and all the antinausea drugs caused my brain to swell, and they think that is what caused the seizure.
Just will have to deal with this.....hugs....Kaye -
Kaye, You are in my thoughts and in my prayers. Sending hugs your way.
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Lana - Got a good chuckle about the chins, as I have 3 of them myself!! LOL
Odalys - It's hard when our time line and God's time line don't coincide. I've had a similar situation with my employment but on a smaller scale (retail) I had lost my fulltime benefits after my grandson was ill. Then the store wanted us to sign a paper that said in order to be fulltime we had to be available 24/7. There was so way I could do that so I lost my benefits. Some how or other I was able to work back up to the required 32 hours per week necessary for benifits and then guess what? Cancer. I had prayed & prayed that I would be able to find a new job. But He had other plans for me. Not only are those benefits important but the many friends I have made at my job. Now the question will be what to do when my Family Leave is up in January. Retail scheduling is difficult to deal with after the holidays - and then try to maintain 32 hours per week, and be around alot of ill customers.
I had treatment #2 yesterday. The 5FU is back on the market so they stuck that in also. I asked about a port but was told I don't need one cuz my veins are so "good".
My white blood count was low so I had to go back today for
"the Shot" Also had high blood sugar. Diabetes runs in my family but I thought it could also be all of the holiday cookies I ate over the weekend! LOL I'll get tested more next week.
Huge hugs to all.
Thanks for all of your support.
Take care. -
Kaye - Sorry to hear about the mets. Keep fighting! God never abandons us. You're in my prayers. Let us know what happens on Thursday.
Mary - Glad to see you're back and your spirit is as strong as ever. I too can relate to the birthdays taking on a different meaning. From now on, it's all about celebrating life for me.
Hugs -
Kaye, sending you lots of hugs. I am sorry about the mets.
This has definately been one h*ll of a test. I, too, am learning to step back and enjoy every day, every moment. I was always the rush rush person, especially w/ three kids.
Also, I am so grateful for my family and friends. My mom moved here 2 years ago from the city. She really wasn't ready to move, but the price was right. Now I tell her God knew I was going to need her to help me out. And God knows how much of a help she has been, especially when I know this whole thing is killing her inside. You don't want to see your child sick and hurting.
I thank God for the friendships here. I always know there is a place to go to vent and just let it all out.
hugs...Kim -
Lat56 -
Quote:
Have you considered legal counsel? As far as I know, there are labor laws defining full time hourly employee. They say nothing about availability (24/7).
"Then the store wanted us to sign a paper that said in order to be fulltime we had to be available 24/7. There was so way I could do that so I lost my benefits."Quote:
What does your doctor think about the potential exposure?
"Now the question will be what to do when my Family Leave is up in January. Retail scheduling is difficult to deal with after the holidays - and then try to maintain 32 hours per week, and be around alot of ill customers." -
Oh Kaye, I am SO sorry about the mets. I am confident that you will FIGHT this like crazy. I will pray intensely for you.
I hope everyone is in good spirits. Good night. Debbie -
Hello everyone. I have not posted for awhile. Like LynnZ I posted a very long post a week ago. The computer somehow shut off and I lost everything. So I gave up and went to bed.
I had Chemo a/c #3 on Dec 15. I also feel sick just from the the thought of the chemo, not the medicine itself. It seems the more chemo I take, the worse I feel. I am not bouncing back as fast. My stomach has major indigestion and I have major constipation. I am doing everything the oncs and nurses say to do. One more A/C - YEAH...then 4 T's. My nurse says T is not as bad as A/C and I should start to feel a little better. Is that true???
Also, water tastes so bad. Anyone have any suggestions? I have tried lemon water, really cold water, warm water, ice chips etc. I just could use a few new ideas.
I am going to the genetic couns for the BRAC I and II in Jan and also am seeing a Gyno Onc for my left ovary in Jan.
Glad to see everyone is hanging in there. This is a tough fight and a very hard time of year to fight it. But, with the loving people around us and our strong self, we can do it!
Hope everyone has a happy holiday! -
Kaye, my heart goes out to you along with prayers for your recovery. I was up, and came to the boards after no sleep, I will be glad to feel better. One more a/c to go....:)
Also , my cats are playing rough around the tree, and made me get up just as I felt myself falling to sleep. They are just like children at times. -
Mary--I just have to say that from your picture you look like you are only about 30!!!!! I was so surprised to see you are going to be 50!!!!!!
Debbie -
Kaye: Know that on Thursday a lot of people are going to be holding you in their thoughts.
Anna -
Kaye-
I'm so sorry that you are having such a hard time with this! Know that you are in my thoughts and prayers -- I wish we lived closer - could give you hugs and support in person! Forget who said it now, but loved the thought of having us all in a room to share hugs and support -- wouldn't that be wonderful!
Someone asked about water ideas -- crystal light has tasted good to me -- don't think it has caffeine and cafeeine free ginger ale (helps with the nausea too) and cranapple juice has gone down easy.
As far as the consitpation thing -- Colace and Senokot-s, as well as prunes (cherry flavored ones aren't half bad) and raisin bran cereal seem to be doing the trick for me this time - THANK GOD for small favors!
All for now -- off to try the masking tape trick on my remaining patches of hair -- I'll let you know how that works!
Love and hugs to all!
Chins up!
Lana -
Kaye,
My thoughts are with you during this time. Special prayers for you also.
LAT56 -
I'm from the June 04 chemo group. Hang in there ladies. You will get thru this journey. Try TONIC water or diet tonic water. Add a little fresh lime. When someone else shared this (from this board) with me I had to try it. I never liked tonic, but this tasted great while on chemo and helped me with my required massive fluid intake. Keep it cold and hope it tastes ok for you too.
Renee -
Another thing that helps me drink water is having it hot in a cup as if it were coffee or tea. I can drink massive amounts of water this way and the taste doesn't seem to bother me at all. Cold water just doesn't go down the same way these days.
Anna -
Odalys, I actually did see a lawyer due to a different issue at the time. I also have a type of rhuematoid arthritis (ankylosing splondylitis) and my manager told another employee that she hated to schedule me more than a 5 hour shift. At the time I had no work restrictions, in fact the Dr. told me to keep working as it kept me moving. Lawyer said the store can schedule around it's needs.
My oncologist has written my leave through June but because the family leave act is only 3 months (Jan. 28th for me), I will lose my position at the store if I'm gone longer than that. My store manager can give me an extended leave but I will have to take any position available. My disability insurance & payments will remain in effect. But I don't want to lose the other benefits, dental, vision, life insurance. I can pick up the dental & vision thru cobra($$$) and then when I get back to work, the life insurance should get reinstated as it was. There is so much to think about with these insurances! And each time I call our Human Resources # I get different answers. It shouldn't be this way!! I feel I need a secretary to keep things straight. Plus a home nurse to keep meds & appts. straight. (although my husband is trying!)
On a happier note, my grandson's 1st birthday party was a blast. He picked up his chocolate cake with both hands and took a huge bite. What laughs! How adorable!
I value all of the members of this message board and wish you well. I take comfort in knowing that I am not alone in this fight.
Hugs to all.
LAT56 -
Hello All, Kaye you are definitely in our prayers, keep the strength and take one step at a time God is with you and will not leave you no matter what your circumstances are.
I'm am up because I cannot sleep. I went to bed late around 1:00 a.m. and took an ativan. I am going to ask my Onc to prescribe me Effexor and see if that helps. I spoke with a lady today that had BC about 4 years ago and she said it helped here tremendously.
Also I am experiencing the bumps on my head and sores, they look like spots. Can anyone shed some light on this. I think in one of the post someone suggested a soda paste. This experience of Chemo reminds me of the story of Job, I get a new symtom it seems everyday but just keep going because I know God is with me.
Blessings!
Grace -
Kaye, good luck today, with the radiologist. My prayers are with you.
Mary, I agree with you totally, as funny as it seems, Christmas has special meaning for me this year too. And birthday, getting older, never mattered to me much, but now my life is so much more important to me. I dont take things for granted anymore, I have slowed down, pay more attention to small stuff, and keep a positive attitude all time (i hope so anyway), and Thank Jesus, daily for the gifts of that day.
Lat56, can relate to that feeling of needing a secretary/home nurse, to keep the insurance things and meds straight. I feel like i couldnt fit in working at my job, with all the phone calls, and insurance chasing I am doing, plus doctor appts, and home stuff.
Kim, funny how things happen, huh. Your mom moving near to you, must have been part of the big plan. I am so grateful for my mom. She has been to every single appt with me, and I talk to her every day. She is going to be 81 in February, and had recently been having trouble with spinal stenosis, and difficulty walking, lots of back pain. As soon as I needed to be walking miles through the corridors of the hospitals for this or that test, and running around to different things, she just follows me around, no complaints, and really feels overall great. So I know God is watching out for her too, because it makes her feel good to be with me. And I appreciate and love her company.
Anna, I have to agree with Renee, the flavored tonic water is great. I prefer it room temperature.
I hope everyone has a great Christmas, and I am sure a lot of us will be busy and checking in on the boards sporadically the next few days. I will be keeping all of you in my prayers, and Thanking God for my connections in life. Hugs, prayers......LynnZ -
Kaye, My prayers & thoughts are with you today.
Chemo #2 was on Monday, side effects not as bad but seem to be lingering on longer. Plus now the heartburn from the 5FU I was finally able to get. I had to have the Neulasta shot on Tuesday. OOO! I am also finding it hard to keep up with the fluid intake. The metal taste in my mouth doesn't help. I've been keeping my husband busy with trips to the store to fill my latest food/beverage craving.
It's hard to believe that Christmas is just around the corner. I think it's going to be a very emotional one! I don't want to cry too much cuz then the sinus/allergy problems start! LOL
You are in my prayers.
Although the miles between us keep us apart, there is no distance between our hearts - HUGS TO ALL!
LAT56 -
Morning ladies.
Kaye, my thoughts are with you today.
I have a couple of questions. I thought a silver lining would be no more monthly periods since I am 49 and I should be close to menopause but no such luck. I got my period 10 days ago on the same day as AC#2. Well for some reason it just hasn't stopped. It isn't that heavy but it just keeps going. My cycle is usually 7 days max but I'm up to day 10 now. Has anyone else had an extended period while on chemo? I'm worried about it affecting my red blood cell count for AC#3 next Tues. The other question is I'm starting to get a cold. I've been out Christmas shopping three days in a row and I think I may be pushing myself too hard. What are we allowed to take for a cold. I use to take Cold-Eeze, which is homeopathic and contains zink but my oncologist told me to stay away from herbs and vitamins. Any suggestions?
Hope all you wonderful ladies have a good day. -
Kaye, thinking of you today. Update us when you can.
LizM. I was told the Taxotere will probably stop my periods. Yeah right. Not so lucky (I'm 36). I usually spot from the drugs and have gotton my period right on time twice. So the 3 weeks between treatments, I spot 2 1/2 weeks. So far I haven't spotted after this treatment and next week am due for my period. We will see what happens.
Kim -
After 1 treatment of A/C and one treatment of ACF, I have not had my period. I was hoping this would push me into menopause (I just turned 49) and was having difficult,painful periods. I guess it's a wait and see situation for now. I've experienced a few hot-flashes this past year, but have had quite a few this last week.
LAT56 -
Hi ladies,
I've fallen behind reading all the post, I will reply to the posts later. Meantime, I want to share with you a message I received at work today. I hope you enjoy it too.
"Why Women Cry"
A little boy asked his mother, "Why are you
crying?" "Because I'm a woman," she told him.
"I don't understand," he said. His Mom just hugged him and said, "And you never will."
Later the little boy asked his father, "Why does
mother seem to cry for no reason?"
"All women cry for no reason," was all his dad could say.
The little boy grew up and became a man, still wondering why women cry.
Finally he put in a call to God. When God got on the phone, he asked, "God, why do women cry so easily?"
God said:
"When I made the woman she had to be special.
I made her shoulders strong enough to carry the weight of the world, yet gentle enough to give comfort.
I gave her an inner strength to endure childbirth and the rejection that many times comes from her children.
I gave her a hardness that allows her to keep going when everyone else gives up, and take care of her
family through sickness and fatigue without complaining.
I gave her the sensitivity to love her children under any and all circumstances, even when her child has hurt her very badly.
I gave her strength to carry her husband through his faults and fashioned her from his rib to protect his heart.
I gave her wisdom to know that a good husband never hurts his wife, but sometimes tests her strengths and her resolve to stand beside him unfalteringly.
And finally, I gave her a tear to shed. This is hers exclusively to use whenever it is needed."
"You see my son," said God, "the beauty of a woman is not in the clothes she wears, the figure that she carries, or the way she combs her hair.
The beauty of a woman must be seen in her eyes, because that is the doorway to her heart - the place where love resides." -
Odalys, that was beautiful, and brought a tear or two to my eyes!!!!
For Kim-Speaking as a person still getting over a COLD (in caps because it was horriffic!!!) I say call your oncologist NOW, and keep asking for stuff. I kind of got shooed away for the first week and a half, then got an anti-biotic that did nothing (azithromycin), then he finally did blood work and saw that my counts were low. Now I am on Levaquin, and it has not cleared it up completely, but I am on the mend. Oh yeah, I tried taking over the counter stuff for the first week and a half and it didn't do a thing. When you are neutropenic, the smallest cold turns into the WORST one.
Kaye? How are you doing? Please check in-I pray for you each night. Well, I pray for all of us, but I've been naming you specifically.
I feel like I know you all.
Question about the crystal light-does that officially count as water intake? I hope so-that is the only thing that doesn't make me want to barf.
I just had AC #4 today and was so excited that this was the half-way point for me. Then doc throws a curve ball..." I am going to have you do carboplatins with the taxol....etc etc..." This extends my treatment 4 more weeks. GRRR.....
I was really bummed. Still am.
Ho Ho Ho!!! (forced smile...)
Debbie -
Ps-it took 2 hours for the yucks to hit me, and I feel YUCKY. Nauseous, achy, tired, headache....Debbie
PPS-the sort of good news is that I already hit my water intake today....yay!! -
Debbie, what are carboplatins? I have never heard of that drug. Will you be having Taxol alone for 4 treatments and then carboplatins or Taxol and carboplatins together?
I also hate bottled water now and am drinking Perrier sparkling mineral water with lemon which tastes pretty good. -
Checking in~ I am so behind in reading my mail and the posts. I just can't seem to snap out of this! I feel so weak and tired all the time, I am on Augmentin for the bronchitis. Still losing that last little bit of hair.....I look like I am 80 years old. All the dark hair fell out and I got left with very thin old lady looking gray hair that is still coming out all over. I saw the Radiologist doctor today. I wanted to opt out of everything.....I think I am starting major depression!! He was very nice and talked me into coming back tomorrow so they can make up a mask that will cover my face. He said that he wouldn't start treatment until Tuesday, so that I had time to think about things I have so many spots, to numerous.....so he decided that they needed to do the whole brain. No guarantee it will work....some people it works for, others it doesn't. He said I would have extreme fatigue, lose the rest of my hair, burn my scalp and have some possible memory loss.
I just want my energy back and to feel normal again.
Hope you all feel better....Kaye -
Kaye, you have been through the wringer, for sure, with all that has gone on with you, since this diagnosis. no wonder you feel like you are starting depression. The good thing is, you realize it, you can talk to your doctor and begin some form of treatment for that. There are plenty of good things out there now, that can help you to feel better. Keeping a positive attitude is difficult, with curve balls being tossed all the time, but you can fight this battle so much better with strong determination and positive thinking. No scientific proof, but positive mental attitude can at least help you to feel better, to keep up the fight. We are all praying for you, and you can come here to vent any time you want, 24/7. Hang in there, keep fighting, dont give up. Wear one of your cute hats you found, I wear mine all the time. Hugs and prayers to you. LynnZ
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