Starting Chemo Aug 09

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Jenn -- me too (what Patty said)!  Wow it sounds like you were awake during the procedure???  I am praying praying praying it is nothing.

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  • msmpatty
    msmpatty Member Posts: 818
    edited February 2011

    Lilah - Did I see your name on the TA TA Sisterhood list for this fall?   I'm going too.   Can't wait to meet you in person!  Anybody else planning on attending?

    Patty

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2011

    Jenn - fingers crossed for good results. We know the waiting is tough, but hang in there. We are all rooting for you.

     Patty-  I have been thinking of going to Vegas! I know Lilah is going. It would be such fun to "meet" you guys!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Lilah - yes, they want you awake enough to breathe, but in all honesty the last thing I remember is them putting the first needle in to numb the biopsy area telling me to breathe, then I remember waking up and being surprised that it was over.  Weird.........

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Jenn -- well I'm glad it was that easy!  And hope you're feeling good this weekend (not suffering any pain).

    Patty -- yes I am signed up!  I have to wait and see what my schedule is but I hope to be there again this year.  It was really such a life affirming experience... and so nice to meet so many in person.  I look forward to meeting you! 

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2011

    And a new picture too! Look at all that hair!!

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    LOL I just messed it up and lost the photo -- but that was why I changed it!  I have hair!  Working on using another (somehow whatever I did deleted the photo -- sigh).

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Ah there it is!  I found it again.  Can you believe this girl was bald a year ago?

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited February 2011

    Wonderful Photo, Lilah.  Your hair looks great!

    Navy

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Aw thanks :)  Now I must work on weight loss!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Lilah - Love the new photo!!! You look great - amazing how much hair comes back after being bald.

    I went to see No Strings Attached - it was cute.  If we go to the show soon, I think I'd like to see Unknown because I like Liam Neesom.  Other than that, I don't see much out there. 

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Yes Unknown is on my list too :)  And thanks re: the hair!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Well..........I am sorry to report that I do have three lesions on my lungs and one on my spine.  I have some research and decisions to make concerning the type of chemo and two trials that I qualify for - ugh!!!

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2011

    Jenn - I'm so sorry about your news. No-one deserves this. You have been through enough already. I hope you find some chemo that zaps the heck out of these lesions. We are here for you - keep us updated with your next step.

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  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited February 2011

    Jenn, I'm so sorry to hear this! Did you get the lab reports on these new lesions, I am wondering if they are TN also. Can they do radiation on them? I know I am asking a million questions, that you probably are asking yourself. I have to tell you when I was diagnosed my kids asked me what would happen if the cancer came back, and after going through this with my mom my answer was simply, "if it comes back we will kill it again...and if it comes back we will kill it again, and again and again." We are all fighters, in other words you have done this already, and this time you know what to expect, and now you have to do it again and we all already know that you can! Keep us informed, we are all there for you for anything you need or just to vent if you need too! {{{HUGS}}} Donna

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Gill/Donna - thank you.  My mind is blank at the moment, honestly I don't know what to think.....strange......

    @Donna - yes, they gave me the path report, but the onc also told me - the receptors are all negative, so my options are still limited to chemo.  He said that at this point they will use radiation for pain mgmt, but if I need or want a 2nd opinion he will help with the arrangements.

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  • weety
    weety Member Posts: 1,163
    edited February 2011

    Oh Jenn, I am so saddened to hear of your news. . . I don't know what else to say.  I have a good friend on xeloda for a liver met (found after 14 yrs NED) and she is working full time teaching 1st grade and having almost no side effects from it except for peeling fingers.  I hope they can find you a doable chemo.  I know the first chemos we are put on are the hard-core ones in the hopes to bomb everything.  With mets, I think the lighter chemos are tried out first to try to get rid of everything with as little as possible.  My heart and prayers go out to you and your family.  I saw in some of your previous posts that you had not told them yet.  I would definately get a 2nd opinion.  I am glad your onc mentioned this.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited February 2011

    Oh Jenn.  I am so sorry that this is happening to you.  You are a fighter and I am confident that you will get all the information you need to make the right decisions that are best for you. Praying for you.  Hugs to you, too.  We are all here for you.

    Navy

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    I'm heartsick Jenn and so so sorry to hear this news.  I agree with the others: you are fighter and you will fight this!  Let us know what you need from us.  Sending you big hugs and tons of sympathy. 

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Thank you!!! I know once I make the tx decision and start the regimen I'll feel better in that I'm doing something and the decisions (for now) have been made.

    So..............on a good note.  Who is going to Las Vegas?  Getting excited?

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    I hope to go Jenn!  It is SO fun.  I have to wait and see if my schedule permits (it's so far off) but I'm on the list as going (since I hope to :)

    Let us know what you decide re: TX!

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  • Kayel
    Kayel Member Posts: 28
    edited February 2011

    I am so sorry that you have to go through this Jenn.  You have endured so much already.  I can tell that you are a fighter and that you will again fight this with everything you can throw at it.  I am keeping you in my thoughts and prayers and wish you the very best.

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  • Karen09
    Karen09 Member Posts: 320
    edited February 2011

    Jen - I'm so so sorry about your news!!  I can't believe it!  I feel so bad for you and your family.  You guys have been through so much already and don't need this.  You always gave me words of encouragement when we were going through chemo but I'm afraid I don't have the way with words that some others do.  Just know you are in the my thoughts and prayers and I'm here if you need anything at all.      Your chemo day buddy, Karen   xoxo

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  • Loveshermother
    Loveshermother Member Posts: 101
    edited February 2011

    Jenn,

    I dont post here often but always peep in to see how everyone is doing. I'm sorry for the progression and know that I will pray for you and your family everyday. I have followed your story and you have grown to be able to help others and offer peace of mind to us all. You are a strong woman. I pray for peace in your life and that this new journey only takes you to become even stronger. I have no advise to offer but keep your strenght foward and best wishes always.

    Penny~

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  • msmpatty
    msmpatty Member Posts: 818
    edited February 2011

    Oh, Jenn, I am so sorry to hear your news on the lesions.    Perhaps we should be thankful that you got checked out and now they can treat them.   You were such a warrior during your first treatment, I know you'll fight this as well. Like Weety said, there are so many treatments that don't have the really bad SEs of our first ones.  You are in my prayers.  (((((Jenn)))))

    Lilah - Love the hair!

    Gill -  Do come to Vegas!

    Patty

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2011

    Patty - I have just posted on the Vegas thread and plan to be there!

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  • Lilah
    Lilah Member Posts: 4,898
    edited February 2011

    Yay Gilly!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    Thank all of you for your support - we started this together what seems like such a long time ago.

    I can't wait to hear about the Las Vegas trip, or at least what can be told outside of "what happens in vegas stays in vegas", hehehehe

    Mardi Gras has started........We'll probably skip most of the parades this year with the exception of one or two next weekend, and Mardi Gras day.  The weather looks like it's going to be wonderful, cross fingers and toes it stays that way. 

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  • msmpatty
    msmpatty Member Posts: 818
    edited March 2011

    Gill - Yipee!  Vegas here we come.

    Jenn - Sounds like Mardi Gras will be fun!  Isn't it a bit of a "what happens at Mardi Gras, stays in Mardi Gras" kind of thing too?

    Patty

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  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    Patty - Mardi Gras is fun.......What happens depends on the area you go to or the level you want to take it.  We usually stay in family friendly areas or with large groups of friends. 

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