How important is the experience of a breast surgeon?
Hi all,
I met my new breast surgeon two days ago, it appeared to me that although she is very caring and clear, she is relatively inexperienced.
She just completed her fellowship in 2010 and started in the breast care center no more than a year. I asked her that how many cases she has done, her answer is hundreds. One thing that really concerned me about, is that she indicated that my MRI results did not provide the size of the DCIS, while it says very clearly on the report as 4cm. I pointed out to her by showing her the exact sentence that states the size.
I am not entirely comfortable with the fact that she didn't even read the MRI report thoroughly to know the tumor size.
She also indicated that if I do MX, she will not do sentinel lymph node biopsy because the very defintion of DCIS is that it is confined. I thought given the size of the DCIS and given that I am small breasted, I'd be more comfortable with a sentinel node biopsy.
Would you advise me to change the breast surgeon if I am not very sure about her?
Thanks for your input,
Bella
Comments
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Bella, I would certainly consider getting a second opinion -- not because your BS is technically a bit of a novice compared to others, but because your gut instinct seems to be telling you something isn't comfortable.
Most of us know that it's not uncommon at all for a bit of IDC to be hiding within a larger area of DCIS. So, yes, her declaring your DCIS "confined" does sound a bit naive and inexperienced.
A second opinion will give you a comparison and alternate choice.... Deanna
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I agree with Deanna. For your own peace of mind, get a 2nd opinion, then you can decide which surgeon you want to use after the fact.
She may very well be competent, but if you're not comfortable, if anything goes not as planned, you're going to be questioning things, and you need to feel that you have received the best care possible.
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Thanks so much Deanna!
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bella- I agree with the others. She may be perfectly capable, but your gut, your instinct, is your most important self protection. It is talking to you, listen. As you appear to be in Boston, you should have plenty of excellent choices. Perhaps put up a post that you are looking for a BS and PS (if you are having MX) in Boston. I bet you will get recommendations from BCO women who know the best. Wishing you a smooth journey.
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Thanks Laurie and DesignerMom. There are plenty of people recommended Dr. Houlihan who is in the same breast care center. I originally wanted to go with Dr. Houlihan but since she has a long waiting list and since my PS recommended my current BS, I thought I would meet with her to see how she is.
Here is the problem: If I try to see Dr. Houlihan, since they are in the same center, my current BS will know and if for some reason, Dr. Houlihan cannot take me, my current BS might give me a hard time. It was not easy to even got on my current BS's calendar, because she is also booked up. My current BS also has already scheduled a biopsy for my right breast already.
I really do not want to deal with all these politics of changing different doctors. I already have enough (the breast cancer) to deal with!!
Bella
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FWIW, they deal with people getting 2nd opinions all the time. A good Dr. will not only understand but will welcome you getting another opinion and should not give you a hard time. If she were to give you a hard time, that would be a red flag to me that you would want a different surgeon.
IT may very well be that your current BS is knowledgeable and competent, but that doesn't matter as much as it does that you are comfortable with your care.
I also wanted to mention that my mom had BC and her initial biopsy showed DCIS with a small spot of possible IDC. Once she had the mass removed, there was much more IDC noted on the pathology. It would make me question not having a sentinel node biopsy, but I don't know, perhaps that is the standard of care if they suspect it is only DCIS. Anyway, just more reason to get a 2nd opinion, and you can go outside of your breast care center for a 2nd opinion if you choose to.
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I think that nowadays a sentinel node biopsy would be recommended for most mx for DCIS. This is because it will no longer be possible to do a SNB after the mx, because the dye cannot be injected. So if they found any IDC during final pathology, and wanted to test the nodes, they would have to take many more nodes since they can no longer find the sentinel node(s). With 4 cm of DCIS (not tiny) and grade 3, a recommendation against a SNB sounds pretty suspicious. If you were doing a lumpectomy that would be a different matter, as they could always go in and do the SNB later.
As for changing doctors, I'd like to add that I changed oncologists within the same practice. I didn't hate the first one so much as I didn't love her and I got several recommendations for the second. Since I will be seeing her for many many years I wanted to be extra comfortable. On my first appointment with the new oncologist the first saw me on the way to the exam room and said hi and was extremely pleasant (I still felt a little awkward). As was said, a good doctor should encourage and welcome a second opinion. If she doesn't, it's more reason to leave her.
Please make sure you feel very comfortable with the plan before going into surgery. DCIS is not an emergency, so you have some time to get this right.
Good luck
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Thanks xtine and JBinOK for your advices. I will definitely get a second opinion from Dr. Houlihan regarding SNB.
Thanks so much,
Bella
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I had the #10 Dr. in America make a big mistake on me.....he had lots of experience.Follow your heart and listen to the sistas.
Hi Deanna....my mentor.
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Another thing to consider is if your surgeon is board certified. It doesn't mean that if they aren't certified they aren't any good (certification in the US is voluntary) but it does mean, if certified, they have met more than the minimum criteria they needed to get their medical licence.
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JBinOK-my brother checked this Dr out for me.I really dont know how he did it maybe someone else could pop on here to tell you how BUT.that shit dont fly with me.HE MADE A MISTAKE ON ME. he probably paid through the nose to keep his status the way it is.All my new drs. know him and were soooo surprised with the way he did not follow protocol...
I wish i could give you more advice but after 2 more drs after him I finally found a wonderful Dr.who actually went to this drs. seminars...Good luck...this is part of the crap shoot with breast cancer.it sure does suk.im prayin you find the best dr.that you will love and trust.God bless you and all the sistas who walked with me down this ugly road.WE WILL BEAT THIS MONSTER.YES WE WILL.huggggggggggggs K
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Hi there all,
Just an FYI...one can certainly do consecutive SNB's on a breast. I had DCIS the first time, and the second an invasive (that had not gone to the nodes) and they did SNB both times. They simply inject the dye and check them to see where it went first. The sentinel node is not a "specific" node, it is a node that picks up the dye first. Hence the sentinel terminology.
If one has had many nodes removed, they still do it in many cases, as if any nodes are left, the "sentinel" node will still pick up the dye first.
That said, go with your gut, honey. If you are not comfortable and your gut is telling you (and we all seem to agree on this one) that this Dr. seems inexperienced, it is your life and your body. I'd absolutely get a second opinion. Sounds like you are getting all the right info!
Best of luck to you, my dear.
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See another surgeon for a second opinion!!!!! My first BS at the Vanderbilt Breast Center was such a nasty person, even though he was ever so well qualified! He was very experienced, board certified, belonged to all the correct orgs, is well published, and is very highly regarded by his peers. What mattered was that he didn't want to order an MRI for me and I needed one quite badly and I felt uncomfortable with this BS from the moment I first met him even before we discussed the MRI. My DH phrased it best when he told him, "If you do this one thing for my wife, neither of us will ever ask you for another favor of any sort for my wife will be seeing another BS from now on..." He ordered the MRI and I was most gratefully turned over to another BS. I absolutely LOVE my new BS! They are in the same general group but this has made no difference in how she has treated me. I can't help but believe she has many patients who once were patients of this other physician.
I trust my BS but have sought a second opinion and she was not at all offended as she should not have been. A good doc is generally quite happy to recommend someone for a second opinion for if they have made a mistake in their diagnosis, they want to know about it. I also think experience is very important. I believe it is better to have someone who isn't too old but who isn't too inexperienced either. Sometimes, that is a hard balance to find but can be done.
The bottom line is really simple: Would you leave your children or pet with someone you really didn't trust? I doubt it very much! If it made these potential caretakers unhappy or even angry with you, would you really care all that much? Remember, it is your BS you will be watching after you and your breasts while you sleep! You have to find someone with whom YOU are comfortable and with whom you feel safe, Trust your instincts here.
Good Luck!
Sandy
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JB, There are many different organizations which rate doctors and hospitals. I think everyone is more familiar with the US News and World Report publication which rates and ranks hospitals in different areas of specility and overall rankings of hospitals. I don't know how accurate their system is but am always happy to see a facility I use ranked highly.
I think they also do one called "Top Doctors," but I haven't seen it so far for 2010. You can go online too and google "top doctors in ..." and various enrties should appear which you can then search.
There is one in particular which comes to mind but unfortunately, I cannot recall the name of it at the moment, If you like, you can send me a PM and I will get the name for you.
There are numerous sites out there, you just have to look. I don't think any of them are the final word, but are a good place to start.
Hugs,
Sandy
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IMHO, you get a second opinion because you need to feel comfortable with your surgeon. And you will know the right surgeon when you meet him or her. I met with my first surgeon and she was really nice and seemed competent but I just felt so uncertain and scared. I met with a plastic surgeon who sent me to breast surgeon number 2. The meeting was totally different---I felt completely comfortable. But I thought picking 2 over 1 might be a problem [they were both in the same practice]. The nurse stopped me mid-sentence and said, it doesn't matter why, you need to pick who you are comfortable with.
Get a second opinion. Get a third and fourth if thats what it takes.
hugs!
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Thanks 3monstmama and everyone. I have indeed requested to get a second opinion from Dr. Houlihan. I will be meeting with her next week!
Thanks again,
Bella
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Hi Bella,
I'm really glad you're seeing Dr. Houlihan. She has a great reputation and many years of experience, as you probably know. I posted on another thread you started that I'd had my mastectomy at Beth Israel Deaconess and had a very good experience there. My surgeon was Susan Troyan (she left the B.I. not long ago and is now at Brigham and Women's).
To echo what other women said about SNB, I had extensive DCIS and Dr. Troyan said she strongly recommended an SNB, since there was always the chance of microinvasion and once the mastectomy was done, the opportunity to sample the sentinel node would be lost.
It will be interesting to see what Dr. Houlihan has to say about this. I'm so glad you're seeking a second opinion!
Barbara
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I chose to ignore my gut and instead went ahead with a surgeon I wasn't comfortable with. I live in a small town and figured it would just be too awkward to fire my surgeon and risk running into her in the grocery store or on the golf course. Long story short . . . go with your gut!!
I'd also really have concerns about having a mastectomy without having a SNB. I could understand if it was a prophylactic mastectomy. As others have mentioned, no one can rule out have invasive cancer until the pathology report comes back. By then,it is too late to have a SNB. If you were having a lumpectomy and all tests point to it being DCIS, I personally would not have a SNB since you can have it after the fact if need be. That said, I did have a SNB with my first lumpectomy . . . a more experienced surgeon would have given me the choice. I was not given one and was not told about the associated risks. Hope your new referral is a perfect fit.
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Thanks so much, Barbara. I do remember your posting on the other thread and I appreciate your help.
Mantra, I hope all is well with you now. I was not completely unhappy with the first BS but I had a couple of concerns about her and as I thought about it, they became more significant issues than my first reaction. I am glad that I get to see Dr. Houlihan after much trying (she is very busy and it was tough to wait and finally hear back from her).
I will keep everyone posted!
Thanks so much,
Bella
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Hi Bella,
I'm in the Boston area as well. As for 2nd opinions, I'm glad you're getting one. I would have suggested getting it from someone in a different practice, because who knows, everyone in the same practice may think the same way and so you may be getting the 'group think' opinion. But it sounds like you're seeing someone with a good reputation, so it may not matter.
My initial dx and consultations were at Harvard Vanguard, but I ultimately had my surgery at Lahey Clinic and then got 2nd opinions about having radiation from Dana Farber. I feel good that I triangulated all the medical opinions from different institutions to arrive at decisions that made sense for me.
Good luck!!
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Bella,
I am so glad you are getting another opinion! It is never the wrong thing to do for this is serious stuff! I have another opinion scheduled for 14 Mardh at MD Anderson in Houston and am so happy about this. Of course, I fear what they may find but realize someone must at least look again before any decisions which will affect the rest of my life are made. Thinking of you and wishng you the very best!
Hugs,
Sandy
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Rateyourmd is the website to check but take comments with a grain of salt. Usually it is the bedside manner that is in question. I was really unhappy with my first BS not because he wasn't surgically competent but he had religious sayings all over his walls and his attitude seemed to be we will let god decide. I wanted a double MX and he fought me all the way. It sounds like because your doc is new she is not willing to think outside of the box. Those node guidelines are the latest study but most experienced docs would most likely disregard them. Same as a mammo doesn't have to be done before age 50. I know what I think of that.
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Bella- Not sure where your cancer is located, but since you have DCIS you may be a good candidate for a nipple sparing mastectomy. Not all surgeons are trained in this procedure, though. If you do end up having a NSM then the experience of the breast surgeon will make a HUGE difference. The success is directly related to their expertise because it can be kind of tricky to maintain blood supply to the nipples and still remove as much breast tissue as possible. Since my first surgeon never even told me NS existed I just wanted to make sure you knew. Hope the second surgeon you're going to works out.
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SO, So glad you choose to get a second opinion. And remember---3 and 4th opinions are not unheard of! I had 4 plastics till I found the one I felt comfortable with. You can also know that with DCIS, you likely have plenty of time to ck out the docs and choose the one for YOU>
---always trust your GUT, I didn't and can really tell some stories about why I Should have.-------
I do have a question tho: I understand that surgeons get a lot of practice in residency and if they choose a fellowship, even more. But to have been in private practice not yet 2 years, I do have to question that the first surgeon has done "hundreds" of mastectomies. As a nurse who worked many years in a university setting, I just don't buy that one. I'll give her the benefit of the doubt and say she was trying to put you at ease.
The other point made above that I'd like to reinforce: the newest info about not needing nodes removed to ck them out. The younger docs,, IMO, jump on the newest info from the ivory towers of academia and call it their own so they can appear knowledgeable, but we should never replace" new info" for experience! They've been cutting down on node removal for decades, but the new info about NO removals, according to your doc, I really don't think so. JMHO--have to admit I'm old school.
As far as nipple sparing: keep in mind that with all the tissue removed( and even if blood supply retained) that nerves to the nipple can also removed and very little, if any, sensation remains after mastectomy. JMHO, and if you choose this route, make sure you know what you'll have and what you will not have.
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Kate and Iodine,
Thanks for your messages. My DCIS is very close to the nipple so I don't think I will have the NS. Iodine, surgeons do get a lot of practice as a resident, but my first surgeon does have two years of fellowship. Someone told me that they do this kind of surgery and within a year it would be one hundred, so I think with two years of being the fellow and almost a year in practice, she may have done close to three hundreds. But I do think I have a hard time to be comfortable with her because she didn't study my MRI results closely to know that my DCIS is 4cm, and she insistent of not doing SNB kind of throw me off. She is a nice person and clearly intelligent, but I need to be comfortable with my BS, that's why I am seeing a different BS (Dr. Houlihan) today. I have heard so many good things about Dr. Houlihan, and I am sure I will be happy with her.
Thanks so much,
Bella
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Hi Bella, I hope your appointment put you at ease and that you've found the doc that is for YOU. Good going! We must take care of ourselves.
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Iodine,
Thanks so much. My appointment with Dr. Houlihan went great. She is intelligent, caring and has a clear inclination of how she thinks the suitable procedure would be. Given my past history in Pulmonary embolism, she suggests me to have less invasive surgery. If I do a MX, she said I should go with implant instead of DIEP because it is too long a surgery for me.
I feel much comfortable with her.
Thanks again,
Bella
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I found a female surgeon who seemed abrupt and rude, but she has years of experience and last year performed over 300 breast surgeries. She specialized in breast surgery. I called an left a VM asking about the study that came out in Feb 2011 about not removing axillary nodes for some patients. Even if the SN was cancerous, one would procede to chemo and it kills all the cancer anyways. That way the patient would not be subject to lymphedema (or risk would be much lower) and the risk of nicking that shoulder nerve which causes life long numbness would not be a factor.
The surgeon called me at home at read me the riot act. She said "do you want to cancel your surgery?" She belittled me for even inquiring about this study, said it is not standard of practice and said I've been "dinking" around for too long. I had a burst appendix in Feb 2011 which pushed my surgery off a few weeks. Had emergency surgery and was in the hospital for 3 days. Now I'm scared of her. I was crying after her rant to me on the phone, did not give me a chance to speak. Help, what would you do? She has this reputation of being rude, but this was beyond rude, it was belittling and she also told me to stay off the internet lol. What balls! Do I respect that or cancel my surgery?
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I recommend you get a second opinion and maybe a third. Bottom line is you have to be comfortable with your surgeon. And, it never hurts to hear another's opinion even if they confirm what this first doc says. There is comfort in that. With DCIS you do have some time to do this. I was diagnosed in Dec 2009 and had my surgery in March 2010.
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Bella, I'm glad that your appointment with the 2nd surgeon went well and that you are happy with the recommended approach.
Rianne, wow! In your voicemail, did you ask her opinion about the study and/or say that you wanted to discuss it with her? Or did you say that based on this study, you do not want an axillary dissection if the SNB shows that you have positive nodes? I don't think the doctor's reaction is right in either case, but I can see why a doctor might get her back up if a patient comes to her and tells her what to do. On the other hand, a doctor has an obligation to address patients' concerns and questions, so if you were simply asking about the study or saying that you wanted to discuss it, then her response was 100% out of line.
In either case, given the discussion that you had with her, and given your concerns about how your nodes will be handled if it turns out that your SNB is positive (which hopefully it won't be), then I would recommend finding another surgeon. I know that you've had the delay because of your appendix and I know that some invasive cancer has been found (so you're not dealing with pure DCIS) but if you can get into surgery with another surgeon without too much additional delay, I think that might be the best approach. I'm not one who thinks that it's important that you like your surgeon - for me, experience and trust are the most important criteria for choosing a surgeon - but I would find it difficult to deal with a surgeon who was flat out rude to me. At least phone around to investigate how quickly you might be able to get into surgery with another surgeon.
So sorry that you had this experience. What an @$$ your BS is!
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