If you have just been diagnosed....
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Glad to hear I'm not alone!! My docs want more tests before chemo but definately chemo before surgery. Just had biopsy of nodes...positive!! Mri and a pt scan this week. I was told th is would consume my life and so far..it has!! But I am hopeful that chemo will start and my husband and I agree...we will have a shave my head party...lol!! I know its not funny but I need to be able to smile and laugh at myself....I'm petrified but the laughing helps get me through my days!! I really just want to start treatments...at least then I'll be doing something instaed of this waiting!! This is the harest part.....so far!! Thanks fot sharing!!
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Hi Ladies, well I'm back........got the news around 3:30EST. My BS called to tell me that the pathology came back "positive".......He said "I understand we have an appt. for tomorrow.". Told him we did, and he said "is the whole gang coming (6 kids), and a daughter-in-law, that is a nurse. He then said "Don't forget, that Breast Cancer is treatable, and curable. He said by the time we're done talking (2 hrs) I do believe I will have answered any questions you have........but if I don't we will talk till you walk out of my office completely sure of what it is you are going to deal with. I thanked him and hung up..............Didn't cry, cause I don't think there are anymore tears left, and had fully prepared myself for what he said........I was certain just from seeing the ultrasound, listening to him explain it the first day I saw him. Some things you just know......I am 75, so I felt good when he said "you will die of old age, not cancer". I thought "well that's encouraging, cause he sounds confident. I will let you gals know what the pathology says after tomorrow's visit, and will be counting on you all for help and support. Thank God I have wonderful "sisters" like you.
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Ducky..I like the old age not cancer comment....that helps!!! I have my first oncology appt on Monday. Had my pet scan Tuesday...still think every ache on my left side is my very special cancer eating away at my body. I am hopeful that chemo will start soon.....if you told me 6 months ago that I would look forward to chemo I would have told you to stuff it..now I can't wait to get this fight started!! I will not back down...I may get my butt kicked but I won't give up
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ducky, it sounds like you have an absolutely wonderful BS! So sorry you had to get a positive diagnosis, but from his comments, you are in very good hands! And on top of that, your family sounds incredibly supportive!
Hoping what you learn from your BS will all be very hopeful and reassuring. Keep us posted! Deanna
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ducky, I am so sorry to hear about your diagnosis. Like dlb said it sounds like you have a wonderful surgeon and you have a strong support system. That is a huge help.
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Hi..
i'm new to this site.. im here for my mom.. she has recently been diagnosed, we found out today.. she just did the biopsy and still needs to do a few more tests.. the doctor says it's stage 2, but they still need to look more into it, more depth.. i'm trying so hard to stay strong for her. She took the news relatively okay, and i'm pretty sure she will be fine.. i don't know what to expect though.. the doctor said they would start chemo in 2 weeks... then they will do the surgery.. any advice? i really dont know who to talk to .. i don't feel like people around me would understand..
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Ducky, sorry to hear your news, but glad you have a great outlook! prayers and hugs to you!!
Tar, I sooo know how you feel about the aches and pains...I went to the Cleveland Clinic for second opinion, more heads in my corner, whatever you want to call it. But I said that I had a pain in my rib and another in my shoulder. The Dr. looked concerned (you know that "concerned look" ugh!) and said their were some "spots" on my MRI, had some x-rays and it turns out things were fine. I guess I was sore from laying on the MRI machine on my rib for an hour and a half for a biopsy. I have a picc line in my arm now and different aches and pains that go along with that...it's always something...so just know, you are not the only one!
I know exactly how you feel about the chemo too! I began last Thurs. and yes, it was a major relief!!
car, sorry to hear about your mom, this is a great place to come and talk to others, vent, get things off your chest (no pun intended
I hope you let her know about this site as well so she can utilize it...As far as chemo goes, it makes you pretty tired, I'm sure she would appreciate extra help around the house or just someone to sit and chat with!
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Thank you jenn! I will not leave her side that's for sure, we always spent so much time together, and things are not gonna change. I will always be there for her no matter what. I already read some advice about chemo.. I will make sure to let her know so she can check it out.. We all need to keep on fighting really strong!
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im not sure if ive been diagnosed or not. ive had mammo and ultrasound. doctors said definetly looks to be cancer, but scheduled biopsy. i am a 25year old single mom... any ideas what to expect??
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Kristina--Take one day at a time. Once you have all the information--things will make sense. The worst part is the waiting but once you have all the information--things start moving and strangely, you feel a greater sense of control. I have just finished radiation after chemo and surgery. The main thing to remember is that it is all doable--may suck--but you will get through. Hopefully you get all the details soon (remember to get copies of all pathology etc---good to keep on hand). Take care, Rachel
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Thanks Rachel, I am all new to this stuff. I always thought i was to young to even thing about breast cancer!! Ive been trying to do some research i just dont know where to start. Im not sure what to expect right now. My doctor continues to say dont panic, yet i had a call from the lady that did my mammo just crying and saying how sorry she is... Im just terrified!!!
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Eeeekkkk....that is a pretty bad reaction by the mammo tech. No wonder you are terrified. I know it is so hard to do it but truly--it will feel better once you have all the info. I am pretty young also--not as young as you but was below 40 when diagnosed. Complete shock. You will find lots of information here. It was a Godsend to me. Try to stay off the internet in general--when you google things--it will always give worst case scenario. I would wait till you have all the info--ask questions--get copies of everything. I agree with your Doc--don't panic. I think this site has a limit on the amount of times you can post when you are new--so PM me if you have any questions. I know that coming here to this thread a few months ago--helped me to answer questions, figure out what questions to ask. Take it one day at a time.
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Kristina,
So sorry you have to be here too. I agree with what the others say, the waiting is the very worst of it all. It seems like it takes forever to get results and then all of a sudden everything moves in a whirlwind! Do you have a family history of BC? Because I do and because I am young (though not close to your kind of young) they recommended genetic testing for me...something else to look into. Otherwise I will be thinking of you and sending prayers your way!!
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I've just been diagnosed and meet with my surgeon next week. I'm so scared. I've meet with my personal doctor and understand that they caught it early and it is small. Rationally I get this. I'm just scared and afriad what this means for me over the next several months. I also concerned as I have two daughters.
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Jen--once you meet with surgeon and get pathology etc--thinks will feel better. Things start moving and become a little easier. It is a bit of a rollercoaster but you will make it through. With regards to daughters etc, you may or may not get approved for the genetic testing--it all depends on your family history and age. I had the genetic testing done as I was young and have history of cancer in my family. I chose to get it done--the genetic counsellor meets with you first to go through the implications of getting the testing. Mine came about negative but they do mention that they are only right now testing for the BRCA 1 and 2 genes--counsellor mentioned to me that as new genes are found--I could choose to get retested.
You'll get through this--use this site to match yourself up with other people going through the same treatment at similar time--it really helps to learn things that Doc's don't tell you. Once you have more info--everything will make a little more sense.
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Kristina....word of advice...STAY OFF the INTERNET...I looked stuff up and thought OMG..I'm doomed.....listen to your doctors and push for results!!! Explain your a young, single mom...you need answers!!!
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And BTW..got results from pet scan...only in left breast and nodes!!! Whoo hoo....can't wait to start chemo and kick some serious a$$...
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good news TAR! When do you start chemo?
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Thanks Rachel
It seems I do better during the week than the weekends. I seem to be better when I am at work and can focus on that. On the weekends I have a harder time trying not to think of the negative especially since I lost a very close friend couple years back who died from breast cancer. I know that hers was caught very late.
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Hello Ladies
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I was just diagnosed on the 2nd of Invasive Ductile Carcinoma. I had my first apt with my surgeon on the 7th. He has made an apt to see an oncologist on the 15th. I have large breast (48+DD+ depending on bra maker) and I have decided to try Chemo to see if we can shrink this 7cm lump before he goes in to take it out. He also said they will do more Chemo after the surgery for some time. Cancer is not new to my family but Breast Cancer is. I have been reading up on lots of different things about this matter. I am sure every lady worries about a lot of things but am I wrong for not feeling devastated by this news? I feel a sort of relief. For the past several years I have felt something was coming and when I found the lump I knew it was cancer. Everyone around me (not that there is many) is acting like it's a death sentence and my I make jokes about always wanting to have a breast reduction and getting a bra now that will fit right but they look at me like I am crazy. My husband (God love him) is already starting to drive me nuts wanting to watch every move I make asking if I am ok and such and I have not even gotten that thing put in me yet to start Chemo with. I just keep saying to him honey there is nothing we can do about it..it's happened I have it now we move on and fix it we can't go back and not have it. I just sort of feel like I am wrong. I still feel like me even though I will be losing weight (not such a bad thing) and my hair will fall out (always wanted to see what my real color was) I just feel like I am expected to feel bad. Has it not hit me yet? Will it hit me later on? I just don't know what to expect really.
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Hi MLBIT---Sorry to hear your news but it sounds like things are underway already. Take each day--get copies of all your stuff incase you have questions later. Once you have the treatment etc underway--you will feel more in control of the whole situation. Take care, Rachel (p.s. unfortunately, I didn't lose any weight during this whole thing....go figure!!)
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MLBIT - Not a death sentence these days. Not even IBC, like it use to be. Some day, yes it will kill me, but I could get hit by a bus and die tomorrow too. I delt with it almost the same exact way as you just described. I was actually relieved. I haven't ever really completely broken down. Cry every once in a great while, but I think some of that is menopause.
You didn't say how old you are. I'm 46. Was diagnosed when I was 44. I just wanted to get started, get it out of me and move on. Get on with my life. I have more important things to do in my opinion. I had my kids when I was young. So that by the time I turned 40, I could go & do anything I wanted, when I wanted. Now this damn desease has interrupted my plans. So I wanna get on with MY LIFE. I'll do anything & everything they tell me so I can get my life back. I'm ready to move on.
Good luck, take care. Let us help you in any way we can. Any questions, comments, bitch, moan, laughs. We're here. This is a great place. Lots & lots of wonderful women here. At some point, someone here will have or will be going through the same thing you are. So ask any and all questions. We're here to help. God Bless & sorry you have to join us, but glad you're here.
Best of luck, Leisa
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Sorry jenn h, I've been icky. Started chemo on the 3rd. Starting feeling better and then gross again. Next treatment is the 24th. Lumps have shrunk with just one treatment so its working...cantt wait for more good news, hope 2 get some.
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Hello everyone,
My sister was diagnosed with Mucinous Carninoma of the right breast two weeks ago. I can't find a lot of info on this type of breast cancer. Can anyone help? She was told they caught it early and it was microscopic. She had a biopsy done resulting in this diagnosis. She is so scared and so am I. She meets with her surgeon tomorrow. I so want to help her but have no idea how. Can anyone help her please?
Thank you so much!
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Jude58 we have a mucinous breast cancer thread. Go to the search bar and look for us.
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Thank you! Unfortunately I don't see it. Is it another another name or catagory?
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I am going to bump up the mucinous thread. Click it
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I was just recently diagnosed with high grade DCIS. Initially, the biopsy came bach ADH and DCIS. A conservative reexcision was performed, with the surgeron believing it was all lactational hyperplasia (I was nursing my now 5 month old during the biosy but had to wean for the surgery on March 7th) only to find the tissue to be all high grade DCIS with no clean margins. I am scheduled for an MRI tomorrow and then consultation with the surgeon on Tuesday. I know I am heading in for more surgery and either radiation or tamoxifin depending on the surgery. I feel like I should just go for the mastectomy if not a double mastectomy. I am positive for estrogen receptors, I am 38 yr old vegetarian mother of 5. I don't want to worry about this for the rest of my life. Any recommendations?
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Hi, jklmtl ~ So sorry you're joining us, but I see that you've already gotten some good input on another thread. Obviously, your decision about what type of surgery to have might be influenced by the results of your MRI. Unlike many women who decide on a BMX, after learning that there was no evidence of disease in my good breast, I was very happy that my medical team encouraged me to do only a unilateral mx with Diep reconstruction. Retaining one good breast means I still have nipple sensation, which was important to me, and something you will want to weigh as you make your decision. And the Diep recon is so natural, there wasn't a need to do a BMX for symmetry.
I'm so sorry you're facing these decisions, but I'm glad you've found BCO, and I know that you will make the right decision for you. Just don't allow anyone to rush you into it. Take the time you need to be sure. Also, I found looking at photos of various types of reconstruction helpful. And some women end up talking to more than one plastic surgeon, to be sure they know all of their options. Deanna
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Thank you Deanna. I am looking at my MRI results and I am getting the hang of looking at them but am concerned that I am seeing some acitivity on the other side as well. The mammo showed a benign calcification on that side but now I am noticing more of them. Not as much as the right but I am curious about what they are going to say. It is scaring me that I haev a so called "benign" calcification to begin with since they said that about my right side last year. I don't want to be one year down the road and start this all over again.
I am not sure what Diep is. I have heard of tram flap and the silicon. I am trying to get as informed as I can even though my husband is getting very upset with me. I don't want to rely on one doctor's opinion, I want to know the right Qs to ask.....
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