Big fat arm, you suck.

Suzybelle,

It is the inexplicable changes that make LE worst, I think.  One day something works.  The next day nothing works.  I certainly hope you get this latest thing figured out and get back to the stage where brownies help and even don't make you gain back the 6 pounds.  I'm really proud of you for that loss! Thinking of you! 

Dawn 

Suzy, the frustration of it all!  It's great you've lost 6 lbs. and what a kick in the a$$ to have your arm go nuts. 

Your post is what we all want to say when things go amuck.  I'm sorry you are having such a crappy time of it.  Hopefully letting off a good rant will help your arm!!  Sigh, if only it were that simple eh?

Hugs.

Edit to add~I've been wondering where you'd been and thought no news was good news.  So much for that theory.

Suzy, you know that Binney and I have this theory that 1) flares cause dispair biologically and 2) flares cause distress psychologically--because it's the old theory of "learned helplessness" where the dogs couldn't escape the shocks no matter what they did, so eventually they just froze.

And WTF--as you've always said, "You can't cure dumb"--at least it's not in your leg--well, my LE therapist has it in her leg, and she says, "At least I can wear pants and no one knows." And like, it's not a zero sum game here--it sucks no matter where it is.

Well if your arm is going to defy logic--you do every thing right, you're losing weight (I'm so proud and envious) and you take care of yourself, and it's just being difficult--of course it's going to make you frustrated.

Hopefully it just as weirdly as it decided to act up, it will settle down.

And, as someone who just had HUMOUNGOUS polyps removed due to tamoxifen--my gyn called in awe with the sizes--and I'm like "so they're big, are they a problem??" That tamoxifen can make me just insane sometimes (sometimes?). 

Hang in there, and man we miss you when you're gone, but like Sharon, I think you're in your cowboy boots, with gorgeous hair, just enjoying yourself.

Kira

Suzy, much better, thanks--recovering from the misguided anesthesia guy who limited my fluids to 250cc total! And he was so proud of himself. I think I'm finally rehydrated...

When the gyn called with the path this morning, she was kind of somber, but it's benign, just big and at 52, I'm still pre-menopausal, so on with tamoxifen.

Is it getting warm down south? Because your arm could be acting up due to temperature.

Good hair is important to good mental health--my hair is so curly that I look like Rosanne Rosanadana if I touch it...Or, the Bride of Frankenstein in the mornings...

I've been getting myofascial work on my frozen shoulder, and I think (fingers crossed here) that it's helping my LE, but as we all know, nothing is stable with LE.

Kira

Suzy, how long have you been Sleepless in Tamoxland? Because for me, when I don't get enough sleep I flare. I realize that makes no biological sense, but LE doesn't make any sense anyway.

Hope you're soon on top of this latest LE up-rising!
Binney

Suzybelle... I love your post. Really. I know that it is so frustrating, and believe me I share in that frustration, but I absolutely love the way you laid it all out there. I hope you get some relief soon and congrats on the 6 pound weight loss! woooohoooo!

I hate that you are having problems, but I have to tell you that the title of this thread cracked me up.

eta:  LMAO - just read your post.  Again, I hate that you are having problems, but that was funny. Love the pen/eyeball comment followed with the Amen.  I am going to have to remember that one. 

Suzy I know this is off topic but you mentioned you were not sleeping due to Tamoxofin. I searched the side effects and could not find "trouble sleeping" or insomnia  listed. I started Tam about 4 weeks ago and my sleeping pattern is horrible!! I am wondering if this side effect is common, if so why isn't is mentioned more often.

I might also say that I have an intense fear of LE! I had a full node dissection ( thanks to my old school DR. who ignored my pleads for just a SNB ). When I expressed my concerns about LE he replied " you have bigger thinks to worry about, like cancer". Sheeesh. What an A hole that guy was to deal with. 

Timerdog, it sounds like a huge case of poor communication and really horrible treatment of you as a person who had to make decisions and wait for answers.

So glad it was small in the end.

Glad for the happy ending, and I found that I had some strong emotions around my breast cancer treatment, and I took a writing class and spewed them out, and some survivors in the class said to me: "Have you ever thought of journaling?" 

Kira

Kira,

That is a fabulous web site on lymphedema. Thank you for sharing it. Wow.

hey guys, i don;t think ive been on this particular thread, but know many of you. i had bad insomnia before bc thats' just compounded since bc. will be watching to  see what else may help you. melatonin didn;t get it for me....3jays

Suzybelle - I know they shouldn't but your freak outs make me giggle.  Give 'em SH!T girl - you do whatever it takes to feel better.  There's not a single person on here who doesn't "get it"!

((hugs))

Suzybelle~you have such a way with words.  You describe so well how we all feel. 

Hugs Sistah.

Suzy, I'm sorry about every bit of it, except the part where you feel better after you posted. Good! We get it!

Fat arms weigh something, y'know? If you're seeing your therapist and lose some of that fluid you may well see some "weight loss" too, so don't give up hope on that just yet. Good things comin'!

Be well!
Binney