Who needs Transvaginal ultrasound?
After breast cancer surgery who needs to have a transvaginal ultrasound? I routinely have mammograms, mris, breast ultrasounds, pap smears but have been wondering what other test I should be having to detect cancer. I take an AI and use Estring. What got me thinking about the trasvaginal ultrasound is an article on Robin Roberts in the latest Prevention magazine where she mentions having the test routinely.
Comments
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I was advised to do this before starting Tamaxofin. To have a baseline on uterine and ovarian health for surveillence after starting the treatment.
I did it to make sure I am looking at all possible risk factors.
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I do it once a year for as long as I'm on Arimidex. This was suggested by and ordered by my GP, not my oncologist. But I had had some problems (not cancer but a thickened lining requiring a D&C) in the past, so GP and I just want to be extra cautious.
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Interesting subject .. Never heard of this before ... Thank you for the posting!
Vicki Sam
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I have had several to get baseline measurements & follow up measurements for uterine thickening that can occur with Tamoxifen
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a yearly transvaginal US is a good idea for anyone taking tamoxifen that still has an intact uterus, to monitor the uterine lining for any thickening; the ovaries can also be monitored this way.
anne
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My GYN had me get one after a pelvic..
I did and they couldn't find my ovaries..
Arimidex did them in
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i don't have my ovaries, have had a hysterecotomy. yet, got one done, cause i got something called chem bloat.. gained 5 lbs, but 4" around my waist.. seems the intestines sometime swell, and this test is part of what they're keeping watch on. go figure! 3jaysmom
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I had one done as a baseline because I'm starting Tamoxifen. Robin Roberts is a BC survivor and I don't know the details of her situation, but maybe that's why she does it as well.
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I have to get them, because when I started Tamoxifen, it caused these uterine polyps to grow. It was NOT FUN... I was on Tamoxifen for 2 years, and then my onc. switched me to Femara for a year. Only, I just had a bone density test, and it showed "significant bone loss" since taking Femara. So, now I am BACK on TAMOXIFEN, reluctantly.... I am SO SCARED those things are gonna grow back! The D & C I had, to remove them, HURT SO BAD! It was by far, the WORST surgery I have EVER HAD!
Harley
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My oncologist says he likes to play it "cautious" and he is having me get a yearly MRI of the chest area (I had a BMX) and TWICE yearly transvaginal ultrasounds ~ to check the uterus and ovaries. I am 44 premenapausal and taking Tamoxifen.
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I have yearly TV-US and endometrial biopsy since I am on Tamoxifen.
So far, it has shown that my uterine is growing from year to year, I am developing "multiple hypodense masses" in the uterus, cysts on the ovaries, and moderate free fluid in the pelvis.
I was hoping to avoid ooph/hysterectomy, as I am 36 and hoping to have children, but alas, I think it may be unavoidable this year. I have become quite bloated in the abdomen, probably from the extra fluid and uterine growth. Ain't it fun being a woman??
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From the above posts, it seems like those on Tamoxifen can develop a thickening of the unterine lining. I wonder if the same is true for those on AI meds.
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It is much more rare on the other Als.
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Prior to being dx'd with BC, my ob/gyn had me get a transvaginal ultrasound because she was concerned about a small fibroid. They found my uterine lining was "near the cusp' of normal - (I believe it measured 5 mm - at 6 mm they would worried about endometrial cancer.) The radiologist couldn't see my ovaries either, so I asked my ob/gyn what would cause a post-menopausal woman to get a thickened endometrial lining. She answered "Estrogen" - and then I asked, "Where is it coming from since my ovaries are so shrunken and I'm post-menopausal?" and she said "from your body fat." This was the FIRST time I ever heard that excess weight in post-menopausal women can lead to cancer! A few months later I'm dx'd with BC (estrogen positive)........I almost demanded a hysterectomy from a gynocological oncologist, but he convinced me it wasn't necessary (after doing a biopsy of a suspicious "endometrial stripe" which came back negative). I was avery relieved not to need Tamoxifen (I had read that it can cause uterine cancer) - my onc said they prefer giving post-menopausal women Arimidex.
So I still have my uterus and shrunken ovaries. After over 2 years on Arimidex, my last transvanginal ultrasound a few months ago showed that the endomtrial lining has SHRUNKEN to be absolutely normal! The only explanation for this is the effects of Arimidex..........it's WORKING on reducing the estrogen in my body (even though I haven't lost weight). I was SO impressed with this visible and measurable effect of Arimidex, that I told my girlfriend at work. She was dx'd with Stage 3 endometrial cancer and had a complete hysterectomy - strong internal radiation - and strong chemo. She's fine now but it worried me that she wasn't taking any estrogen-reducing drugs. We both see the same oncologist, so I told her to ask him if Arimidex would be good for her to reduce her risk of recurrence. Our oncologist consulted with a Sloan-Kettering onc (who specialized in endometrial cancer) and he said YES! There are promising studies showing that Arimidex IS helpful in reducing the recurrence of endometrial cancer - and so he immediately put my girl-friend the drug - but only for one year. So now, while we both complain about our joint pains, I tell her it's worth it knowing it's WORKING against our mutual enemy, post-menopausal Estrogen.
Sorry for being so long-winded, but I just needed to tell that story - about the wonders of Arimidex in fighting estrogen - and how a transvaginal ultrasound helped give me more peace-of-mind regarding my need to take this drug - and also - how it is helping my friend.
In short - to answer mawhinney's question - AI's do NOT cause thickening of the uterus lining - rather the reverse is true (at least with Arimidex.)
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Yes, I believe you are right. I had a D&C before BC due to thickening & since I started arimidex my yearly ultrasounds (done just to be safe) have been perfectly normal...finally a good SE!!!!
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For those of you who had uterine thickening - did you have symptoms? If so, what were they? I had an ultrasound today becaue of pelvic pressure and feeling of fullness. I am on Tamoxifen as preventive (very strong family history, mulitple biopsies, ALH, etc). Thank you.
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I was bleeding and had crampy pains.
edited to add this was before BC, and due to menopausal stuff not an anti-hormonal
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After trying AI's after chemo and not being able to take them, we tried tamoxifin. It only took a couple months for me to start spotting after 10 years of no periods. OB had ultrasound done and then and endomentrial biopsy. Fortunately just thickened lining and polyps. They could just have done a D&C but I opted for a laprascopic hysterectomy with ovaries removed too. They did this in Oct and it went great. I was back to work in 2 weeks and fully healed at 6 weeks. I seemed the be a great choice for me, no more possibility of ovarian, uterine or cervical cancer and I really did not need those parts any more. I think anyone who is taking tamoxifin should probably be having an ultrasound yearly along with their mamogram. Annette
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To make sure one doesn't have ovarian or uterine cancer, we are at higher risk for them; or endometrial if one took Tamoxifen.
I have one yearly.
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I had one in 2009 and 2010 August. I also had a kidney small stone that I eliminated natural in August 2010. In Jan 2011 my doc wanted to make sure my kidney is ok and surprise I had 2 cysts in my right overy. I have been postmeno chemo induced since 2008 . To make it short Feb 9 surgery confirmed ovarian cancer stage 3B. This devil is fast! I will start chemo soon. Also, I will get tested for BRCA as I have a daughter and need to make sure we do everything we can to keep her safe.
Please check yourself at least 2x a year. -
I just had my gyn appointment a couple days ago. Asked about follow up for tamaxofin (I am post meno) . He said no testing needed. If I start to bleed, then he will do biopsy. He thinks u/s don't really tell anything, Really!! do I need I new gyn? I am starting to wonder.
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Transvaginal ultrasounds are not recommended for people taking tamoxifen, in the absence of symptoms. I have had several because I have fibroid tumors and they are not an experience I want to repeat unless there is a clear reason. Taking tamoxifen raises your chance of getting endrometrial cancer by !%. Combine that with the fact that endrometrial cancer is easy to catch, in that is causes symptoms (bleeding etc) early on, I will not get another unltrasound without a good explanation from my doctor on why I need it.
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My best friend was told she had fibroids, and was also experiencing heavy bleeding which she assumed was a symptom of the fibroids as well as perimenopause. Her gyn didn't suggest a D and C which would have done a biopsy of the fibroids. One year ago she was DX'd with stage 4 uterine cancer with mets to her bones and lungs. Can a transvaginal ultrasound tell the difference between a fibroid and a cancer?
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No wenweb, biopsy is the only way to differentiate between fibroids and cancer.
So sorry for your friend.
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I have vaginal ultrasound done every 6 months as part of the high risk surveillence for ALH /LCIS.I take no meds.
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Thanks jdeking.
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I requested a transvaginal ultrasound after my dx for bc. My GYN was hesitant but he went ahead and wrote the request.
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