Feeling so down

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Kezzie62
Kezzie62 Member Posts: 189
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

Just got home from my appointment with my Onc and BS...  Here is some history,  Back in March of 2010 I had an abnormal mamo on my left breast and had to have a biopsy done.  The result came back that I had atypical ductal hyplagia (sp) I then had a lumpectomy to remove that and check for any other issues.  Final pathology came back as just ADH and clean margins all round.  So I thought ok that me all done with this breast issues.  I was told I needed a follow up MRI 6 moths later so in sept 2010 I went for a MRI, got the results 1 week later that there was a area in my right brest that needed to be checked by biopsy, so at the end of Oct off I went for another US guided biopsy, radiographer told me it just looked like a blocked duct but the pathology would tell. So another week goes by and my BS tells me there is so DCIS in the biopsy, so another lumpectomy would need to be done...  I asked for some time to look at my options.  After lots of research I decided I would do a double mastectomy as with my family history I was high risk and I did not want to be doing this every 6 months.

I went back to my BS and Onc in late Nov and told them what I wanted done.  They were both in agreement that I was doing the best for me.  So my BMX is scheduled for March 18 2011.  About a month ago I found blood in my bra on the left side and on inspection I was able to get blood out of my nipple.  I called my BS and she said to come in so she could check it out, so off I went to get it checked.  My BS had a look and took some blood to test and also said I needed to have a ductogram done that day.  I had to wait a week for the results, they showed some cancer cells in the fluid so I needed to have the duct removed.  I had that done last week and today I was told that I have IDC and I  had a US of my nodes in my neck and under my arms, because that are enlarged I will need to have nodes removed at the same time as my BMX....

How can I have gone from ADH to IDC in less than 12 months?  I am just so confused..

Kezzie

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  • Kezzie62
    Kezzie62 Member Posts: 189
    edited February 2011

    Just had a phone call from BS I am to have a body scan and chest x-rays and a load of blood work.  Does everyone have this done?

    Kezzie

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  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited February 2011

    Hey there, Yes, totally routine for them to do all those tests.  Hang in there, and ask for some ativan if you need it. After i had my body scan i couldnt breathe, thought for sure it had spread in my lungs, but it was anxiety, went away as soon as i got the all clear phone call...Hang in there!

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  • tpcjkk
    tpcjkk Member Posts: 67
    edited February 2011

    It's pretty overwhelming at first, and things move quickly at the beginning.  When I got diagnosed, I had the same as you - PET scan, chest x-ray and bloodwork.  They are trying to stage you.  If you are at all thinking of getting a second opinion, try to get that moving fast because it becomes harder to get one once you've headed down a treatment path.  

    My lump seemed to grow overnight.  I exaggerate, of course, but those darn things can grow fast.  Mine turned out to be grade 3, which is aggressive.  I put it off for a while, thinking that it was a cyst or something, and since I noticed my lump right before the holidays, I didn't want to think about it over Thanksgiving and Christmas.  I wonder whether if I had gotten in for evaluation sooner, I could've prevented the cancer from moving into two of my lymph nodes. 

    Good luck to you. 

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