LUNG NODULES

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  • chrishat
    chrishat Member Posts: 89
    edited February 2011

    hi jenn,

    you've been on my mind all week, since i first saw this thread. i'm praying for good news today. hugs and prayers.

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    I am sorry to say that it is not lung noodles......I have three lesions in my lungs and one on my spine, located @ T8.  My onc went over the options and two trials that I qualify for, so I have some thinking to do and decisions to make.  All three receptors to the lesions are negative (again). 

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  • lorieg
    lorieg Member Posts: 802
    edited February 2011

    Awww, Jenn, I am so sorry you didn't get good news.  I have been following this thread and keeping you in my prayers.  I will continue to do so.  Do know that there are a lot of us Stage IV gals who have reached NED, and you can do it too. 

     Hugs,

    Lori

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited February 2011

    Been following this thread too. So sorry to hear the news, Jenn! One day, you are at a three-month check-up and the next....

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  • faithfulheart
    faithfulheart Member Posts: 544
    edited February 2011

    Jenn, I have been following the posts, I am so sorry you had to get this news.

    Know that you are not alone.This could be any one of us.

     I pray you will be ned very soon. The trials are amazing.

    I have several friends that started out in stage IV and are NED, it can be done!  We are

    all here for you. I pray that God will bring you peace,lots of peace.

    Sending you lots of prayers,

    Stephanie

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  • americanpinay
    americanpinay Member Posts: 338
    edited February 2011

    Hugs and prayers to you Jenn. So sorry to hear that it is not lung noodles. Frown

    I hope you find comfort in that you have optionSSS. I pray that you'll be dancing with NED soon. Take care.

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  • Pure
    Pure Member Posts: 1,796
    edited February 2011

    Jen I just read about a girl that was stage 3 then went to stage 4-she did the parp trial and has been NED for 4 years now.

    That WILL be you too!

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited February 2011

    Oh, Jenn, I am so sorry. I was so hoping it was something else.

    We are all here for you as you process this, know you have loads of support. 

    ((((Hugs))))

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  • flopsy
    flopsy Member Posts: 365
    edited February 2011

    jenn i was so sorry to read about your news. i am praying that you will get in the right trial and will feel well again soon. Big cyber hugs to you!!!!! Ginny

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  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Thank you! Thank you! Thank you!!!  I can't imagine not having my BCO sisters to help me get through this.  Honestly, my mind is blank - trying to think of how to tell my girls.  We'll have to drive up to my youngest daughter's college to talk to her.  I don't want to tell her while she's home for Mardi Gras with friends in two weeks and want to give her time to deal with this before she starts cramming for exams....... My oldest is in town and does know what is going on, I need to talk to her - ugh!!!  I am not afraid of this fight, but what bothers me is the pain my family will and is going through. 

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  • elmcity69
    elmcity69 Member Posts: 998
    edited February 2011

    Oh Jenn, thinking of you. prayers and good karma coming your way.

    xoxo

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  • Kathleen26
    Kathleen26 Member Posts: 210
    edited February 2011

    I'm so sorry to hear your bad news, Jenn.  We were all hoping it would be something else.   As much as it hurts you, I know it must also be awfully hard to have to tell your family this bad news.   I hope you are able to get into a good trial and that it beats the crap out of those lesions and puts you back in NED-land.

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  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited February 2011

    Oh Jenn.  I was so hoping all would be fine.  I don't know what to say.

    Thinking of you, and will be praying for NED.  Hoping one of the trials is the magic bullet.  The good news is that it looks like you have options at this point. - Claire

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  • kimber3006
    kimber3006 Member Posts: 586
    edited February 2011

    Oh, Jenn, I'm so sorry for the bad news.  Like the others, I'll be praying for peace for you and your family and that you will be NED soon!

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  • mcsushi
    mcsushi Member Posts: 174
    edited February 2011

    Jen... So sorry to hear the news, truly. I'm sending you super-duper hugs and I'm still pulling for you. 

    ~Colleen 

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  • JacquelineG
    JacquelineG Member Posts: 282
    edited February 2011

    Jenn I'm so sorry, but there's a lot of hope out there - lots of trials, and i personally know someone who was Stage lV and now NED for 8 years -- you will be NED too!!

    jackie

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  • weesa
    weesa Member Posts: 707
    edited February 2011

    Jenn, I always feel so inadequate at times like this, wanting to tell you something insightful and life-altering, and of course there isn't anything--except, isn't it typical of mothers that we always worry about telling our children the most? Screw bc, crap on triple negative. We're ready to always pull for you. Prayers and hugs.

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited February 2011

    Jenn,

    I am so vey sorry of the news that you have to absorb and that you now have to tell your family.  Your family is so important to you and you are so very, very important to them.  My sister tried to hide her mets from us and she ended up shutting us out of some many things.  That hurt worst then the news when her husband finally broke the secret.  Knowing what she was going through but not being able to talk about it or just let her know that we were there to listen.

    Your family is going to give you the strength to figure out the best plan and support you through it.  And we'll be here for you, also.  We love you Jenn!

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2011

    Jenn...I'm so sorry that you did not get the news you were hoping for....My thoughts are with you

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  • diana50
    diana50 Member Posts: 2,134
    edited February 2011

    jenn

    thinking of you and have been saying prayers.  take it one day at a time....find out your options...keep on. so many of us are with you....you are not alone....cyber hugs....***

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  • DCMom
    DCMom Member Posts: 624
    edited February 2011

    Oh Jenn this all sucks.  Wishing to turn back time,but knowing that there are successes and you are going to be one of the good stats... we are all here rooting for you,

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2011

    My prayers are with you and your family Jenn, a "good mom" always feels the guilt more for her children than for herself.  Stay strong, there are stage IV NED...remember that.

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  • Pure
    Pure Member Posts: 1,796
    edited February 2011

    we are all in this with you Jenn... The PARP trial is working wonders for some women....I pray you will be one of those women. So so so many women with stage 4 are living long lives and each day we are one day closer to a cure or another new development.

    Dr lisa Carey is one of the leading docs in the US on triple negative Breast Cancer. She is at UNC. She was Eliazabeth Edwards doctor. Just an fyi incase your thinking of getting a 2nd opioun.

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  • J9W
    J9W Member Posts: 395
    edited February 2011

    Crapola.  Cyber hugs to you and yours.

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  • NancyD
    NancyD Member Posts: 3,562
    edited February 2011

    I second that crapola. Jenn, this is a slug in the stomach to us all, but we're with you. I hope there's trial that wipes the beast from you. NED is just hanging out, waiting for you to start one.

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  • Thundershowers
    Thundershowers Member Posts: 36
    edited February 2011

    Jenn -

    I am somewhat of a newbie here - just had my first chemo yesterday.  I just wanted to also say I am out here pulling for you and your sweet family during this hard time.  I am so sure you will be NED very soon and am hoping for nothing but good news for you from here on out.  You deserve it.  :)  XO

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited February 2011

    Jenn - I've been following your thread and hoping with all my might these were indeed lung noodles.  I started out almost three years ago as stage iv with lung mets  (brain mets 2 years ago) and I was terrified to say the least. 

    Since 7/08 I have learned that there are many who surviving for many, many years despite this dx.  Each journey is completely different and each has hope!  I told my doctors I planned on living for at least another 30 years and they agreed to help me try to reach that goal!  Now I realize I will only be in my 70's in 30 years so I am adjusting my figure to 50 :>  There is a great thread over on the stage IV forum.....a member comes back and posts each January....this year she celebrated 18 years with stage IV and she has never seen NED.  

    Just know you are not a statistic and there is always hope!     xx00xx

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  • littletower
    littletower Member Posts: 333
    edited February 2011

    Aw Jenn - sooooo sorry! This news just BITES! Please, please know that we are all sending only good energy and thoughts to you. On this end it just feels like that's not enough, wish I/we could do so much more. There is hope. Prayers that you will be dancing up a storm with NED in the very near future. And know that when that happens, we will all be clapping!

    Love and gentle hugs,

    Adele

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  • clariceak
    clariceak Member Posts: 752
    edited February 2011

    I'm so sorry.  Your love for your family comes through in your posts. This is so hard.  I don't know what else to say, except we'll always be here for you. 

    XXX

    Clarice

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  • KittyDog
    KittyDog Member Posts: 1,079
    edited February 2011

    (((((HUGS)))))  You are in our prayers. 

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