treatments soon...im reaching out.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Just got home...super tired and I have medicine head kinda bad. Needing a nap and all kinds of fluids!

    The day went well until the last hour...could be the study drug or could be One of the antinausia meds...any idea on how long this lasts? Or did anyone decide to reduce dosages? I'm really not good with medicine head...blucky....



    {{{{{All}}}}}}} and a smile! Good night...

  • julie75
    julie75 Member Posts: 635
    edited February 2011

    Fuzzy:  Glad the day went mostly well . . . I'm sorry about the last hour.  I wish I could  help with the drug reactions, but other ladies who have dealt with this can help you out.  As to A.D.D., that seems to me to be an off-the-wall comment . . . other posters here have also been very positive as well!  I don't think I'd worry too much about that right now, I'd suggest focusing on the  treatments.  Just my opinion.

    Good night, and sleep well.

    Julie

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hello sisters! Well...the medicine head has worn of!!! I'm now trying to call the Fellow to discuss these pills they want me to take...I'm having a hard time with Emend...really hard time...

    But-for day one, I think it went as well as could be! I'll let u know what the doc says about the medication...that stuff just screws me up...

    Hugs hugs hugs hugs hugs!!!

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    Glad you are ok. What is the study drug? I didn't use emend, zofran worked great for me!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Oh  man ... I messed up... The doc told me to take the pills ... and I accidently took twice as much as I should have!!  I'm really no good at this ,,, and now I'm due for that shot!!  Is Zofran more gentle?  I'm already back to medicine head ... the study drug is Avastin - I may or may not be receiving it ... but if it wasn't that drug that made me ill ... it is the Emend ... bluck ...

    But ... the bottom line ... I MADE IT ... the first treatment is done.  Now I hear I need to wait at least 10 days before I really know what this is all about. 

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    No, in 10 days you will be out of the woods feeling good. I dipped on day 3 or 4 but by day 10 your body is bouncing back. Emend made me sick: with zofran I didn't feel a thing!

  • DiamondGirl
    DiamondGirl Member Posts: 1,046
    edited February 2011

    Fuzzy, I just sent you a PM.  Please check :)

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    this just in ... shot to the belly ... not too bad but it was a half inch longer than they said it would be!

    My husband has done very, very well these past few days ... rubbin my paws, cleaning, cooking, med schedule ... playing with the puppy ... AND he just gave me that shot!

    Kinda pooped me out a little .... nap time :)

  • julie75
    julie75 Member Posts: 635
    edited February 2011

    Hi, Fuzzy: Congratulations on getting through your first treatment and that stomach shot!  Yikes!  I'm glad your husband is doing well with all of this.

    Zofran is an anti-nausea drug.  When I had my original BMX and then had surgeries due to complications, I asked them to give me Zofran.  It does keep the nausea down.

    Take care!

    Julie

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hello. ... you are angels...I thought I'd be in hell from Now until. ..who knows when! Thank u for the updates....this is the bad day...right? I just have nothing and I'm so sorry....I did everything to take a bath...and now returned to bed. Can I update tomorrow? This is normal right?

    love and smiles

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Oh man ... yesterday was a rough day ... but today is day 5 and I keep hearing (I'm really not sure where I keep hearing this ... ) but this is the day that I'm on my way up!  I've already been up longer than I was all day yesterday.  Is depression normal too?  Wow ... got hit by a friggin' truck yesterday.  But, today looks better ... only four more of these, right?

    Oh ladies ... anything you can tell me right now would be such a blessing ...

  • thegood5
    thegood5 Member Posts: 478
    edited February 2011

    Beautiful pic fuzzylemon! 

    You will be on your way to feeling better soon!  You are thru the roughest part.  I never really felt depressed, more sad about the way I felt and the fact that I had little patience for hanging around people, not that I was mean to them, I just couldn't focus.  It was days before I could even read or sit at the computer.  My attention span was very short.  But the day I felt like I could get up and stay up was amazing and I felt so thankful for it...makes you appreciate your good days.  Keep drinking lots of water to flush out the chemo and take it one day at a time.  Take care!

  • brendaclee3
    brendaclee3 Member Posts: 119
    edited February 2011

    Hi Fuzzy~I'm so sorry you are going through this.  I had breast cancer in 1996 with positive lymph nodes. No one in my family had ever had it.  It's very scary, but you are doing everything right.  I started juicing and ate nothing from a can for a year.  I only ate chicken sometimes, but no red meat.  I listening to positive imaging tapes and prayed a lot. Someone told me at that time that cancer was 90% soul and 10% cell.  I believe it.  I took chemo for 8 months.  After 8 months, my cancer was gone and hasn't returned.  I had a friend who had cancer everywhere--breast, spine, brain, etc.  I thought she was a goner, but that was 6 years ago.  I see her out jogging all the time now.  She's totally well.  Doctors can do miracles now, but I also think the patient can make miracles happen.  I will give you one bit of advice though--Don't ever listen to statistics. Turn off the T.V. or radio when you start hearing them. Cancer was a drag, but I became a much better person afterwards and it brought me closer to God and my fellow man/woman.  Oh, here's another little bit of advice.  When pondering reconstructive surgery, get the DIEP procedure.  I didn't, I had expanders and ended up having to have surgery 5 times and they never matched.  Now the DIEP is possible,  they look great, and you won't have to have foreign bodies (implants) in your body.  Oh, yes, I juiced everyday, but I also took a product called Juice Plus.  They are vitamins.  You can't buy them in stores, but you can find individuals who are distributors maybe in your area.  Just Google Juice Plus.  I wish you all the best.  You're going to be just fine.~Brenda

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Thank you both!!  I'm having such a hard time and it's day 5 .. I thought I would be back to yoga and juicing and meditating by now ... no such luck.  All I want to do is sleep ... I DO need to focus ... no doubt about that. 

    Should I sleep?  I am drinking, maybe not enough.  I have to wear sunglasses because the snow on the ground is so bright ... I eat a little but I can't concentrate on anything.  It takes so long to type this out that it makes me smile!!  LOL

    So ... is it this bad with every treatment?  Is this what I should expect each time?

  • thegood5
    thegood5 Member Posts: 478
    edited February 2011

    it's so hard for me to say if some could have been better than others.  Some for me were definitely worse because I got my period and a sinus infection, and then another time I got sick with a cold and got a 103 fever for 3 days and ended up in the hospital for the weekend due to low WBC.  My first one seemed to be the best, but I have heard other people say the opposite...just depends on the individual.  I get that whole concentrating thing...it was so hard to focus.  I still have a hard time with typing and I'm 4 weeks out!  My biggest mistake was not drinking enough.  My husband was the water pusher and was constantly pushing me to drink and it took everything I had to take a few sips.  Try drinking thru a straw, that made it better for me.  I even had to have a certain water bottle...some really just bugged me, funny what chemo can do to you.  If you can sleep, SLEEP!  It's the best way to get thru it.  When I would just lay there feeling every little pain, the time just dragged.  It got to the point where I would lay there and watch Sponge Bob or just listen to it because it put me in a happier place because it made me think of my kids and it felt a little like a regular day.  I would try to watch HGTV which is what I watch a lot, and it annoyed me to the point where I couldn't even listen to it!  We all have our weird little things I guess while we are going thru it.  Just don't let anyone tell you what is right or what is wrong...you are the only one at the time who knows what you want and don't want...unless you are in bed for wayyy to long, then you need someone to give you a little push and get up and moving around a little.  I hope you start feeling better soon...I won't be on here for a little while...lumpectomy tomorrow w/ a lymph node in my armpit removed.  Needing a drain for a week...NOT looking forward to it, but looking forward to having this cancer out of me!!  Best wishes!

  • jorja61952
    jorja61952 Member Posts: 68
    edited February 2011

    Hi thefuzzylemon! 

    Just wanted to tell you I have read your thread and am very touched by your story and attitude.  I did chemo 11 years ago, AC, and it was probably a bit different from your treatment.  The funny thing was I was told the effects would be cumulative and that the last one would be the worst.  Well, I did throw up on the THIRD treatment and so I thought "oh no, look out for that fourth one."  But the fourth one didn't affect me at all.  Go figure--it's all a crap shoot and a surprise.

    After my diagnosis that first time, I did some of the complementary treatments that you are doing.  I joined an organic coop, became vegan, looked into all kinds of mind/body activities.  It's such a nice feeling that there is some part of our wellbeing over which we have control, isn't it?  As time wore on and bc was further behind me though, I let a lot of the good habits slip.  I am fighting bc again with a new primary tumor, darn it.  I think it's just a genetic thing.  But because I was being watched so carefully it was found earlier this time.  Still waiting to see if I have to do chemo though and that has put me into a funk.  You are my inspiration!

    I am glad your tests came out well.  And that you seem to be a bit less scared about your stage and diagnosis.  Just remember, this staging stuff, etc. is based on statistics and we are so much more than statistics!!

    I'm pulling for you!
    Georgia

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    Chemo takes us to the darkest places in our mind. But it's ok, because at the end of this you will come out knowing yourself so much better and live a wonderfully rich life. It's all ok. And you will get through it. And day 4 was always my worst. I didnt really wqnt to tell you that and put it in your head...we are all different. Day 5 I was always excited....because I knew I had made it through another. Allow yourself to feel the sadness. It's there, but not for keeps. It's normal. I thought reading your posts you sounded a lot like me...just younger, lol. My husband juiced for me, twice a day. Made me want to gag..but my side effects were so minimal I think because of it. Hugs and white light and congrats in moving past those first few days!!!!!

  • Pegs
    Pegs Member Posts: 198
    edited February 2011

    wow, i remember when i was told my husband and i were speechless.  things happened so fast it was hard to have a reaction.  but when i did , it just happened and i couldn't control it.  so I let it go, i cried when i wanted. thank god my husband and co workers were so supportive.  i honestly don't think you can prepare for whats ahead.  chemo was bad but not like years ago, take the nausa meds before you feel sick and drink a lot of fluids to flush the toxins out.  all chemo is different i had TAC, 6 cycles once every 3 weeks, by the time i felt somewhat normal it was back to chemo again,  you can deal with it, you will (at least with me)  hate going because i knew how i was gonna feel for a good week after.  i felt sick just walking in the door, knowing poison is going to be going into my veins.  it was a weird feeling.  i hope i am not scaring you, but there is no preparing a head of time,  just go with your feelings , let go, hope you have a good support group, i couldn't have made it without them.  i went to 3 different radiation doctors in hopes that i could avoid it, no such luck.  see i had radiation to my head 3 years ago for an acoustic neuroma (a beign brain tumor)  i had no reactions to that but had read things about breast radiation, i have expanders in and want to have good reconstruction, with radiation that could be a problem.  i am finished with radiation now and going everyday was a pain, i got burnt pretty bad in some spots and it hurt like hell.  i tried everything aquaphor, silvadene creme, i didn't really get much relief from them, but when i tried emu oil it seemed to work a lot better.  of course doctors didn't know anything about it,  i only found it after radiation was done, i wish i had it before.  my last treatment was jan. 17 and about a week and a half after that i was only pink.  i wish you well , any questions just ask, someone will answer!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    I love you all ... I'm so totally foggy right now that I think I will take the sleepy anti nausia med and wake up in a few hours ...

    I did get to meditate for a bit...put em right to to sleep!  I finally took a bath ... might seem like nothing to some but that was a huge deal to me :) LOL

    Thank you from the depths of who I am for your time, knowledge and thoughts ...

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    This can't be right .... im a slug and able to do nothing ,,, i thought day 6 would be better,  my husband came home and he's been sooo good  but I don't think im on the right chemo,,,,and WHY AM I ON CHEMO...i don't think i can do the study drug no morre.  and im concerned about all the stuff i forget or cant remember,  Im so confused and upset ....

  • Joanne58
    Joanne58 Member Posts: 1,117
    edited February 2011

    The first tx of AC was the hardest for me, too.  The unknown of the 1st tx is part of what makes it hard, and not knowing how long the SEs will last before you regain a sense of feeling "normal" again.  Losing control of my emotions and just sitting in the fog, almost lifeless, was very, very strange.  When you're normally active and happy, this is SO foreign!  Sounds like you have a terrific husband to help out while you go through this crud.  It's great to have a husband not afraid to give the shots, too.  Mine got pretty good at it since I refused to do it myself--eek!  I agree with other posts about the magic "Day10."  That was my consistant # that I really, really looked forward to.  Watching old movies and crying my eyes out while the kids were at school was my emotional outlet during days 1-9. Downing vegetable and chicken soup, instant potatoes and canned "light" peaches really helped my strength and settle my queasy stomach. 

    Hoping better days will be here very soon, Fuzzy!

  • toni30
    toni30 Member Posts: 252
    edited February 2011

    Fuzzy:  I wanted to weigh in and offer my love and support.  I had AC last summer, dose dense,and came through it pretty well (no dehydration, fever, etc.)  Check out the chemo thread for lots of ideas, but here are a few:  (1) I could not tolerate water, so I mixed my water with flavored Vitamin Water, to keep hydrated; (2) I gargled with salt water every day to minimize mouth sores; (3) Milk of magnesia, believe it or not, was the best thing for constipation; (4)  I didn't worry about health, but ate whatever I could get down (which in my case was eggs, yoghurt and macand cheese).   Finally, I had a rule that I did Nothing but rest in the evening and on weekends.  The first weekend after chemo was a toally lost cause - I lay in bed and watched bad TV. The second weekend, I did laundry and got groceries.  That's all I could do for 16 weeks, since I was working almost full time.  I think one reason I did well  later  on with surgery and radiation is that I took it pretty slow during chemo.  You sound like you are doing great - hang in there!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    thank you toni - I don't feel like im doing very good.  my head is sooo messed up and heavy.  i guess i just need to focus on survival ... concentrate on healing and fighting through it all ... im not fucntioning at all ,.. day or night really.  a bath and eating some is about all i can handle ... today is looking about the same.  it's so frustrating. 

    Thank you so so much for the words and love and support.  I need that so bad right now.

  • Joanne58
    Joanne58 Member Posts: 1,117
    edited February 2011

    Hey--if you're bathing everyday during chemo, Fuzzy, that's better than most, including me! :)

    toni's advice is great.  I forgot about the water thing--had to mix mine with stuff, too.  I forced myself to eat a little bit every half hour, which really helped.  Like toni said--doesn't matter what; just eat.  Many of us had major constipation issues during the first week from the anit-nausea meds, so please beware and take something.  Colace worked for me as well as M of Mag.  I waited too long, though, so I learned the hard way--ugh.  About the "magic day 10"--your number may be different, but you will get to that magic day.  It almost takes away the memory of the rotten days and allows you to REALLY appreciate feeling better. 

    Glad your daughters are old enough to understand and serve their sweet mom.  My teens became more compassionate and helpful, which was a nice byproduct of this BC burden on us and our families. 

    Keep doing what you're doing; getting by every day as best as possible.  You'll make it through with BCO ladies, right beside you :)

  • thegood5
    thegood5 Member Posts: 478
    edited February 2011

    Fuzzy, one thing that really helped me was drinking a Boost shake.  My nurse even told me to have someone bring me a milkshake everyday, just to get the calories.  Sometimes I couldn't handle drinking the boost by itself, so I would make a milkshake out of it w/ some icecream and then throw a banana in.  Or I would make a shake with canned peaches and icecream.  Helped my mouth to feel better too.  rest and take it easy!

  • Pegs
    Pegs Member Posts: 198
    edited February 2011

    fuzzy,

    ya know its ok to have a pity party, i had several and then i moved on.  it actually helped for me to cry and feel sorry for myself.  i didn't do it often but when i did , i did it well. lol.  I had to force myself to do many things too and I think pushing ourselves (to a point) is a good thing.  eating was tough at first nothing sounded good, or even tasted good for that matter, the few things i wanted i ate all the time, scrambled eggs tasted good to me and so did perogies.  if you are tired, then sleep dont worry about it.  you have to listen to your body , its a long road ahead, i am still on it. done all treatments but still have reconstruction to do.  i thate this whole trip but i had no control over it, so i do what i can and forget about the rest. 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hello all!!  Hugs and hugs and hugs!  Today it FINALLY turned around and I had a good day ... I woke up at 2:30am starving and with a suprising amount of energy ... eggs with cheese and in a tortilla with mild sauce!!  TWO OF EM!  Then I finally had a cup of coffee.  Pooped me out and went back to bed and dreamt of ITALY!  I took my puppy for a little walk today and it felt so nice to breathe the air - I know that sounds terribly dramatic but it was so great to be able to get out of this damn bed and walk outside ... freely!  I made a few phone calls and started dinner! 

    It is better, at least more comforting, knowing a little more what to expect ... always being welcome to be real and honest on these boards with the most amazing women I have ever had the pleasure of communicating with - I need you all to know what a life line you really are to me, 

    I heard something very special today that I thought someone else may read and feel it's message - in your own way of course ... it sits next to my bed now on a pink post it note ...

    "The love of God is the blow that awakens." 

    I know I'm feeling pretty awake Wink Hugs and love

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Sorry you are having a hard time, fuzzy, but glad to hear you are coming out of it.  You mentioned you are not sure if you are drinking a lot.  I think is this very very important.  I drank gallons (literally) for the three days post treatment.  It was hard to do, but I forced myself to drink a 1.5 liter bottle of water each morning, afternoon, and evening.  I am convinced it is a big part of the reason I did so well.  I was also told by the chemo nurse that lots of water helps the blood counts rebound - as does exercise, which I was not so good about during chemo.

    Hang in there!  It will be over before you know it. 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Oh thank you!  Yes ... I have to follow your tips.  I was absolutely miserable the past 6 days.  When I went to the hospital yesterday for a good once over and IV fluids ... I wasn't too dehydrated and the fluids didn't help me at all ... BP was good, heart rate was good and blood work checked out ...

    I have found a friend in tea (just today) ... I can't drink it hot (at least not the first 6 days) because I can feel that I am thhhhiiiissssss close to mouth sores (all the way down my throat) ... but if tea counts, I will drink it by the 1.5 liters!  Do you know if that would count?

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    I think tea counts.  I was told any liquid, even coke, counts - but certainly water or other "clean" liquids would be best.  I consider tea (at least certain kinds) to be just as good as water. I personally could not drink tea during chemo - don't know why. It just tasted awful to me for some reason.

    Are you chewing on ice chips during the infusion?  I did that during taxotere because I had read it causes mouth sores and other mouth problems and that keeping your mouth cold would help with it. I never had any mouth problems other than some mild taste issues (see tea comment above).  Also the ice is water . . . so you can get in some water while doing the infusion. :) 

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