SSDI
I wanted to share my experience with my stage III sisters. I was able to get onto Disability the FIRST TIME I applied! I am at stage IIIA, but borderline IIIB because of some active lymph nodes that showed up on my PET scan after surgery.
Everybody at the Social Security office was very kind to me and pushed my application through in 3 weeks. So, it is possible! Please, if anyone would like advice on how to go through the process, I would be so happy to help. We have 2 small children, so this is so helpful to us.
One love, Jackie
Comments
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I would like to know about your experience. I was stage 2B/3A three years ago, but have developed nueropothy in my feet and hands from the chemotherapy and now lymphodema in the arm where I had 23 nodes removed. I am finding that the pain from these things plus the work I am missing for appointments, etc. is just getting to be too much. I called a lawyer but they told me that it would take two years to get approved. Any advice would be appreciated, I have three children and need some form of income.
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Lookingforward4more,
I am happy to give you as much advice as I can. The most important thing is they are looking for PAIN. If you can convince them that you cannot work because it is too painful, that is your best bet. Social security has an official cut-off at IIIB, but I was able to get it at IIIA -- it should take 2 years to be approved in any case... maybe a few months at most. Also, if you are taking medication that makes it hard for you to focus or are on antidepressants, I would mention that to them as well.
One thing that really helped me was to have all my paperwork prepared before I went in. I brought in copies of my path report, documents from the lymphedema therapist, PET results, etc.
I wish you the best of luck, and pm me if you have any more questions. (although I am terrible at checking that folder!)
One love, Jackie
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I also had no problem getting my SSDI approved,mine was about 2 months.Just as Jackie said,be well prepared.I went to every Dr & hospital and got my records,some may try to charge but by law they can't when you tell them it is for SSDI.I also got my Congressman and State Represenative involved from the 1st day,most wait for a denial.When they call SSDI on your behalf they really listen to them.Then they would send me a letter detailing what SSDI told them.They are glad to do this for you.Next,call the Disability Determination Services in your state and ask to speak with the caseworker on your case.Tell them you need their fax number and always put your caseworkers name on everything you send.Fax all the records that you collected.It may cost 10-20 dollars if you don't have a fax machine but it's worth it.Call every time you fax something to make sure it got to your caseworker.Call him/her at least every 3-4 days to inquire about your claim.You can apply online or by phone but it is best to apply in person.They document physical things they notice.I wrote an 8 page letter and left out no details.From my hubby having to pull my pants up and down when I had 4 drains to the emotional distress I suffered from losing my hair and my breasts.If you are being treated for any mental disorder,depression,panic attacks etc,.If I can help you in any way just let me know and I will happy to.
Lisa
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I thought that SSD gets your records for you? That is what I was told by my caseworker. She said something about social services requesting my records. I will have to ask when I call Tuesday. I applied a couple months ago, but my request is going back to July 2010. I have stage 3C 10/19 nodes plus bipolar and severe depression issues. What else should I do? Should I start documenting every problem I develop from now on? I just had my MX a week ago..
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I am angry and embarrass that Women suffering from breast cancer, such as all of you and myself have to deal with this type of crappppppp ola.
Good information for the sister's out there!
Thanks for the posting!
Vicki Sam
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geocachelinda: When I went in for my interview (several months and a few phone calls after I applied online) i brought every piece of paper I could find! It is good that you applied in July since there is a 5 month waiting period. Since you are stage 3C, you are automatically qualified, whether or not you have to fight for it a little.
I agree with what Lisa said, once they meet you and see that you are legit, they are much more likely to take you seriously and speed up the process.
One other thing that I did was to speak to my doctors in advance. Good thing, since my medical oncologist is a little prudish and did not agree that I was disabled. On the other hand, my radiation doctor was more than happy to stand behind my claim. I believe he was instrumental in getting my case approved.
One love, Jackie
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I had no idea...I thought you had to be stage IV. I've been stage IIIc since July at dx, my husband is working a second job due to me being out of work.
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Jennyboog, With IBC, you automatically qualify. Apply as so as you can, since SSDI has a 5 month waiting period. Best of luck and remember, you deserve this! SSDI was created for people like us, take advantage of it...
One love, Jackie
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Actually the 5month waiting period is from when you were diagnosed and last worked, whichever is later. So if you were diagnosed in July, and had to quit working mid August, I believe the 5 month period would being in August.
I was diagnosed in Sep 08, but kept working until Oct 09. My 5 months clock began Oct 09.
In any case, do apply ASAP.
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Thanks ladies, I appreciate the info.
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MJLToday: Thanks for the clarification! I couldn't remember what date they counted back to.
Thank you everyone for sharing information... it is really important to be very prepared when going in for the interview.
One love, Jackie
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Well, I went yesterday and applied. I was told it would be 4-6 mths before I knew anything. I plan on being back at work before then.
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