architectural distortion only sign?

JFT54
JFT54 Member Posts: 12
edited June 2014 in ILC (Invasive Lobular Carcinoma)

I am waiting for further tests Last week, I got the call.  The tech said that there was a dense area visible on one view on my screening mammogram. I have had cysts before, so wasn't terribly worried.  But  they sent to the doctor stated that there was architectural distortion (with no mass or calcifications.)  The tech never mentioned that to me.   I am terrified, as I lost my husband to pancreatic cancer and am  raising my children alone. I have seen that ILC can present with just architectural distortion.  I have read night and day on the internet and have gotten even more terrified by what I read. If something happens to me, my children will have no one.

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  • JFT54
    JFT54 Member Posts: 12
    edited February 2011

    I should have added that I also see that it is usually more advanced when it is discovered, since it is so hard to detect.  Does that make it harder to treat?  I'm sorry if I shouldn't be posting on the board since I haven't been diagnosed, but I am out of my mind with worry.

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  • Gitane
    Gitane Member Posts: 1,885
    edited February 2011

    I am sorry you are so terrified.  Please hold in your heart that you have not been diagnosed.  I know that's hard to do.  If there is any way you can get this looked at by a breast surgeon ASAP, you can get a core biopsy and will know what you are dealing with.  It's the unknown that drives us crazy.  ILC is not harder to treat.  It can also be discovered at a very early stage if it can be seen on the mammogram.  You probably don't have ILC, and there's no way to know yet.  Let us know how we can help you.  Hugs, G.  

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  • sgreenarch
    sgreenarch Member Posts: 528
    edited February 2011

    Wow. I know what that fear is like. My way of dealing with that terror is to jump into action and get Dr appts asap. Gitane is right. That waiting and wondering is the worst. Also the doctoring via the internet can just make you more crazy. You may have nothing and if you do (breathe deeply) sounds like you've been doing regular mammograms and it could be caught early. I was told that lobular cancers are often incredibly slow growing and often ER and PR positive and treatable. Statistics are good. This isn't pancreatic cancer. I know you must be traumatized by your experience with your husband but this isn't the same. Try to calm down and take one step at a time. Let us know how you are. We're here for you.

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  • marie5890
    marie5890 Member Posts: 3,594
    edited February 2011

    Sgreen,

    Just so you know JFT posted in another thread that things have turned out good. Smile 

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  • JFT54
    JFT54 Member Posts: 12
    edited February 2011

    Thanks Marie!  I didn't want to overstep any bounds since I hadn't been diagnosed. 

    Yes, the radiologist indicated that there really hadn't been any change, but they just wanted to get a better look.

      They showed me the mammogram and there was just a very dense fibrotic area and they wanted to get a better look at it.  I was so stressed out during the ultrasound, but I almost laughed when the tech said she didn't see anything "really interesting."  I told her "dull and boring " was fine with me. for peace of mind, I may do screening ultrasounds each year, since my breasts are so dense and fibrotic.  

    Thank you all for your concern, and I wish the best for each and every one of you.

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