treatments soon...im reaching out.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited February 2011

    (((fuzzylemon)))Smile

  • Kymn
    Kymn Member Posts: 999
    edited February 2011

    Yeah Fuzzy that is such great news!!!!!! and the no cancer spreading too.....lol kidding....although it is awsome that your hubby and you reconnected I cant go a day without touch I am so over affectionate.....{{{{{{{HUG}}}}}}} Just for you . Gosh i just cant believe how happy and relieved I am for you. have a great day tomorrow all going to watch the bachelor lol yeah I know I am a geeek i taped it yesterday lol

    Love to you all

    Kymn

  • julie75
    julie75 Member Posts: 635
    edited February 2011

    Fuzzy:  Yes!  Yes!  Yes!  SO GLAD to hear your news!  Good luck with your treatment.

    Julie

  • libraylil
    libraylil Member Posts: 528
    edited February 2011
    Fuzzy  Have been thinking about you.....great news.  My oldest daughter went with me to all of my chemos.  Once things were rolling we talked, met other patients, played laptop, etc.  She was a real comfort and it has brought us closer.  DH would have been willing, but I nixed that.  Happy dance for you!libraylil
  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    I am thrilled to hear the scan results!!!!

    So you are a stage 3 triple positive like me!! The juicing is a great addition for us, lots of studies show it. Exercise too! Your comment about being able to separate your heart and your mind is very powerful. I was just reading a study on this.....amazing stuff. I am jealous of your meditation mentor....how wonderful for you!!

    Breathe through that first treatment. I visualized the chemo coming into my body washing over me cleansing the bad cells and replacing them with healthy glowing light. Did it every time. Yes that's a run on sentence too. I was not afraid of chemo after that first time, and I looked forward to counting each one down!! I loaded my iPod with music and visualizations to help me through each infusion.



    Join us on stage 3 forum. I am doing well, finished chemo almost a year ago. My blood counts are perfect again, and I feel very well. The new lifestyle takes effort, but it's worth the effort!



    Sending you white healing light for your first chemo. That's a run on too : )

  • coonie
    coonie Member Posts: 7,618
    edited February 2011

    ((((Fuzzy))))

    I've been thinking of you. So glad about your recent news!

    Hang in there!!!! You'll do just fine!

  • littletower
    littletower Member Posts: 333
    edited February 2011

    Yeahhhhhhhh Fuzzy!!!!!!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hello hello hello!  I just woke up from a 13 hour nap :)  This week has been so challenging mentally and I just dropped when I got home last night!  So, first thing this morning - I send an update to my sisters!!

    I had the MUGA and and ultrasound of my uterus and went to Gildas Club!  The ultrasound, I think, was ok ... I'm sure my oncologist will tell me more about that.  I think the Doc who was explaining it to me didn't really know why I was there - kept telling me to talk with my OBGyn ...

    Gildas Club is beautiful.  I met a lovely woman there who has Stage 4 Lung Cancer.  I will also be going to the Look Good...Feel Better sessions at the end of this month (which is about exactly the time I should be a Chrome Dome :) LOL ... I will have to upload pictures of that! 

    I did do breathing and visualizations all day yesterday.  These are the most helpful processes that I have done for myself...I"m so happy that others have found this and incorporate it into their healing...

    So, I'm thinking about returning to work (restricted) at the end of this month ... I want to be able to have some "normalness" and I hear that after 6 weeks of radiation, I may want to take time off to heal from that ...

    After today, I am off the Newbie 50!!!  I don't have anymore tests until I start Chemo on the 18th!!  I am also going to look at this as a Cancer Seek and Destroy Mission that attaches to the cancer and exits with a cleansing, bright release...

    Hugs and a smile to each of you!! 

  • thegood5
    thegood5 Member Posts: 478
    edited February 2011

    Fuzzy, I too am a newbie to this site and so thankful for it!  I have the most wonderful support group of family and friends, but not one of them has ever gone thru this and unless you do, you just don't understand what it is like.  It is so great to get on here and know you are not alone!  Like you, I started this journey thinking that things weren't too terribly bad, was told in Sept. that I had IDC and that they think it was caught early and hadn't spread.  I was 39.  I went for a PET scan and got the devastating news that it had spread to my liver, but just one nodule on it, which is very rare, either there is nothing or your liver is covered.  I was also told there is a node in my left armpit and one in my chest cavity.  I went from hysterics to a really weird sense of calm, while my husband sobbed.  I wanted answers that my Onc couldn't give me...how much longer I had, can I beat this.  I was told I was treatable, but no longer curable.  They sent me right away for a brain MRI...I was never so scared.  1 hour later I found out it didn't spread to my brain...such relief!  At that point I changed my thought pattern...finally some good news.  I was not going to let this beast win...too much to live for.  I have 3 beautiful daughters and the most supportive husband, and I am not leaving them without a fight!  My treatment is the opposite of yours, because of being her2nu+, they started me off with chemo, taxotere, carboplatin and herceptin.  I had it every 3 weeks for 6 treatments, and finished 3 weeks ago.  Now I go every 3 weeks for herceptin for the rest of my life, or until it stops working for me.  It has been a miracle drug for me...my tumor (5cm) was gone after the first treatment!  I go tomorrow to Philly to meet with my oncologist there (I had gotten a 2nd opinion, he totally agree's with my onc here) and a liver surgeon who may be able to take out the section of my liver that has the nodule, but that may not happen for a while.  I get my lumpectomy on the 23rd and then 4-6 wks out I will start my 33 radiation treatments. I found out last appt. that I have a spot on my sternum that was hiding behind the node there, and it will be radiated.  I'm not going to lie, for me the chemo      wasn't the greatest experience, but for some on here it was no problem.  I felt great the 1st 2 days after, thx to the steroids, but then spent 3 days in bed, never nauseous thx to the anti naus meds, but just achy and couldn't focus my eyes on things.  Sometimes I slept, other times I had insomnia.  Don't be afraid to tell your onc how you are feeling...there are really good meds out there to help you thru it.  One piece of advice I hope everyone will listen to...stay healthy the best you can!  With 3 daughters in 3 different schools, there was no chance of not getting a cold, and the 2nd cold landed me in the hospital with a 103 temp for 3 days and I was neutropenic (extremely low white blood cell counts).  After some antibiotics I bounced right back and was thrilled to hear my onc tell me the other day that I'm out of the woods with that now that I'm only getting herceptin.  My onc is very serious too and I just wanted so badly for her to tell me everything is going to be fine, but she doesn't sugar coat and she feels positive, but still lets me know I have a tough road ahead.  I look at my girls and they keep me strong...I am a fighter and won't go down easy!  A positive attitude is so important...even when you get the bad news.  There is a post on here from someone that they were told they only had 2 yrs and they just celebrated their 18th!  We need to stick together and bring each other up when we are feeling down.  I am so happy for you and your good news, may it keep coming! 

    I also cut my hair short and then had my kids buzz me when it started falling out.  One thing I wish I would have done was waited a little longer to buzz, I was told that I would definitely lose my hair with the chemo cocktail I was on, but it actually was growing thru it all.  Sparse, but I think if I would have left it short I might not have lost it all.  I don't do the wig thing, lots of hats and the pirate look with the bandana's.  I didn't lose my eyelashes or eyebrows, which I was so thankful for.  Everyone is different and reacts differently to their chemo...I hope you are able to tolerate it well and just remember, you will get thru it, even if you have days you want to stop.  I begged my onc to let me skip my last treatment because I would have a panic attack coming off the steroids and just dreaded it, but I got thru it and am so glad I did it or I might have regrets down the road.  I wish you all the best and keep that positive attitude!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hellloooooooo!!!!  So last night - after a whirlwind kind of week (emotionally more than anything), I got a wonderful night of sleep, went hat shopping, got a new outfit, had lunch with a great friend, went back to the hospital for an EKG, home for chicken wings, visited the neighbor and added the treadmill to my daily list of healing activities!!  One final proedure to go before Chemo ... the IUD has to be removed ... I'm at risk for it poking thru to the intestinal cavity which would be real bad while in treatment ... time to get rid of that nasty little thing!

    thegood5 - thank you so much for your story and wisdom and experience.  That means so much.  I am thankful everyday for the women on these boards.  I smile and go to a wonderful place when I think of the kindness each of them has given to me ... feelings have exposed a depth that I didn't know before. You have such an incredible story and I love your written expression ... thank you again for sharing it.  I learned so much.

    I talk about these discussions every day, several times.  I don't know what I would have done without them ... but I know what can be done with them :)

    Hugs and a Smile!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Got another beam of exciting light this morning ... and all of you re involved ...

    My nurse sent me an email and requested information from me that she would be able to share with breast cancer patients that she receives - specifically tips and tricks ... (this is my PS nurse, wonderful woman).

    Naturally, the first bullet point read "Become a member of BreastCancer.org" ... they are here through thick and thin, happiest moments and saddest moments!  I went on to discuss what all of you have done for me.

    The most interesting part is that she has been a nurse for 30+years ... I feel that all of you have inspired her to go that extra step -  because of how you have inspired me.

    That was just another special moment that I needed to share with all of you.

    Hugs and a Smile!

  • libraylil
    libraylil Member Posts: 528
    edited February 2011
    Fuzzy  search the boards, there are two companies that will send you a free scarf/headwrap if you are undergoing chemo.  These are nice, expensive chapeaux.  One company is Gala.  Don't let the online photos scare you.  They look really tall.  You can tuck them and manipulate them and they don't scream "cancer".  The fabrics are really soft, quality cotton.  The other company is Franceluxe.  I know there are postings with the exact address on the boards. I had so many compliments on my Gala wraps.  I lived in those until the weather turned cold.  Mine were all summer cottons.  libraylil
  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Thank you!  I will check that out! 

    So, somehow ... I have this little sore in the back of my mouth ... freaking me out a little ... not sure where it came from or why ... I don't even start chemo until next Friday.  I have to find out how to prevent those ... do you suppose the "radiation" they put in for the test did that?

    Right now everything kinda makes me think ... "Oh, I'm dizzy" is a common on right now ..

    Just got done with cooking class with my oldest and her boyfriend!  Off to his bball game and then .... to sleep ... :)

    Hugs and a smile!

  • kriskat
    kriskat Member Posts: 163
    edited February 2011

    Fuzzy:

    Went to the movies today with my husband and daughter-and felt so normal.  Laughing for a few hours really hit the spot.  Will be thinking about you on your chemo start day.  I don't have my first mtg with onc until 2/21.  Enjoy your day!

  • Kymn
    Kymn Member Posts: 999
    edited February 2011

    Just popping on to wish you all a Happy Valentines Day and send you some beautiful pink roses :). Hope you all have a wonderful day

  • memory
    memory Member Posts: 106
    edited February 2011

    Fuzzy,

     Just thought I'd hop on here and tell you that my cousin's wife was stage 3, don't know how many nodes, but she underwent a grueling chemo regimen, and you'd never know it now. She looks happy, healthy, a two-year survivor. Her latest check-up, head to toe, showed nothing. The illness was very scary for her husband and daughter, but everybody's doing well now.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    I can't tell you how much your thoughts mean to me!!  Thank you all!! 

    Memory - that is so sweet for you to send that message my way!  Did she do rad's? 

    It's just wonderful having all of you in my corner at this special time in my life.  Everything is falling into place so well.  I will be starting a project tomorrow that will keep my mind occupied, I just got ear buds for my phone so I can download some nice music, I have to do a little shopping before Friday ... and I will have a Reiki treatment on Wednesday!! 

    I closed my eyes and just gave all of you a hug.  And...one more ;)  Happy valentines Day!

  • memory
    memory Member Posts: 106
    edited February 2011

    Fuzzy,

     Yes, she did rads. Lumpectomy first, then chemo, then rads. The usual protocol, I'm told. I had a double mast, no chemo or rads, so I had a different experience.

    She did it, you can do it, too.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    You are awesome!  I'm kicking aruond an idea but I haven't reallllly studied it much yet ,,, the radiation is kinda weighing on my mind ... I'm wondering if others have skipped this part and why ...

    No chemo or rads?  I'd really like to know more about that.  I have several appointments this week to help me work with the chemo and help it work positively with me...very natural and focuses on energy and reducing negativity.  Anything I can do...I will :)  And any information you would share would be very appreciated.

    Hugs and a smile!

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    As a fellow stage 3, I wouldn't suggest skipping any traditional protocols. I hated rads, but it was only yucky the last week....and then it healed right before my eyes! Quick, quick , quick!! The chemo was no problem after the first one, which had me petrified. Once the mystery was gone, it was all downhill. I went into work every day, and made it home for the bus for kids. I got help with meals since everything smelled terrible.



    I have a reiki person...two actually. Mostly out of curiosity. It did help. I have now also found a medical intuitive healer. I know it sounds nutty, but It helps me tremendously. So good for you for seeking out integrative approaches! Hugs and white light coming your way for your first treatments!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    OMG!!!  Geewhiz!!  You won't believe this!  I'll be meeting with a medical intuitive today!!  And I did have TWO Reiki masters help me yesterday!!  There was one moment when I felt like I was pulled (forcefully) off the table ... found out today that he wanted to "pull the cancer out of me" ... amazing!  I also went to a chiropractor who works with energy this morning and I have sooooo much shopping to do because I need an alkaline diet!  WILD STUFF!!

    Thank you for the advice on Rads ... I will reconsider ... lots of thoughts running through this crazy little brain of mine! 

    Time for yoga, my last dentist appointment for a while, juicing and meditation ... maybe a sauna :)

    HUGS TO ALL!!  Please think happy thoughts around 7 am Friday morning (Central Time ... or ANYTIME for that matter!!  LOL

  • julie75
    julie75 Member Posts: 635
    edited February 2011

    Fuzzy:  Glad you had such a nice Reiki session yesterday.  Hope you enjoyed your yoga, juicing, meditation and sauna. 

    I will think happy thoughts around 7:00 a.m Central Time for you.  

    {{{HUGS}}} from a fellow Wisconsinite!

    Julie

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Thank you so much!  They called and offered to do another treatment tonight and another tomorrow night!  Isn't that wonderful!  I am as ready as I can possibly be ... inside and outside :) and I am taking all of ya all with me!

    Hugs and a Smile :)

  • kriskat
    kriskat Member Posts: 163
    edited February 2011

    Will be thinking of u in the morning. Good luck!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Thank you! I will update tomorrow...although I believe it takes a few treatments to really be 'in it'. ..wow! I can't believe its in a few hours!!! I'm thinking of all of you who have been here and I'm feeding off of your strength, knowledge and guidance!

    Maybe that's why I'm not asleep yet? LOL!

    Hugs, smiles and loads of love!!

  • julie75
    julie75 Member Posts: 635
    edited February 2011

    Fuzzy:  Will be checking back tomorrow to see how things went.  Sleep well.

    Julie

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    As promised...I'm in the Carbone Cancer Center and I brought you with me!!! Here's some funny stuff:

    I asked the nurse to Do That Again....AND SHE DID!! we all laughed so hard...it was just placing the port thingie in a good spot...

    My oncologist wants to have my thyroid checked...I was so wide eyed and excited that he thinks something might be messed up! HHHAAAHAA!!!! But, my vitals show a heartrate of 64, BP of 100/64 and temp of 98.1.....sounds pretty good to me!!!

    Very collected and ready for treatment....on very little sleep; )

    Should be going in soon!

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2011

    Here with ya. You will be fine!

  • njbhwgirl
    njbhwgirl Member Posts: 295
    edited February 2011

    Good News! Happy for you...Best post I read today....Take a deep breath...

    Okay now on to recovery.....

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Oh boy....nurse just asked if I had A.D.D. I told my daughter I better start to act upset or worried or something before they start drugging me for being too...positive!

    So far...that's the scary part!!!! Are they serious???

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