Did 3neg affect your decision re:lump/mast

kg1234
kg1234 Member Posts: 95

Did your results of triple negative affect your decision to lumpectomy or mastectomy?

I'm just wondering if being 3 negative has any impact on needing re-excision of lumpectomy and then needing mastectomy in the end anyways?  Since it's such an aggresive cancer...wondering if it matters for the surgery part...or if it matters with just the treatment after....

I'm 37, no history of b/c in family and wondering if my other breast is at risk for this kind of cancer.

Thanks,

Kg. 

Comments

  • sukie10
    sukie10 Member Posts: 96
    edited February 2011

    It's a tough choice with surgery pending. Sorry you have to make up your mind so quickly. I was diagnosed with pretty much exactly what you have a couple of days before you. I have personally opted to have a mastectomy because of the triple negative aspect of the tumor. I'm 47 and this ordeal has been the single most stressful thing I have ever had to go through so my feeling is just get the sucker out and off of me. In my case however I am having chemo first so I still have six months to change my mind. Though I'm sure I won't.

    I was told that with clear margins the risk was the same for both surgeries, My worry is whether or not they get the margins. 

    Have you asked about gene testing? You could opt for the lumpectomy first and if  additional testing shows your risk is much higher you can always have a second surgery if you change your mind.

    Ultimately its a personal choice you are going to have to feel comfortable with. 

    Best Wishes

    Sukie 

  • Luah
    Luah Member Posts: 1,541
    edited February 2011

    Sukie10:  You may want to read this from the Ask-theExpert online conference from July 2008. http://www.breastcancer.org/symptoms/types/ask_expert/2008_07/#q20  One of the questions is on this very topic.

  • mary2246
    mary2246 Member Posts: 8
    edited February 2011

    My doctor told me that there was no difference in recurrence between woman who had lumpectomies and mastectomies.   Recovering from a mastectomy and possibly going through reconstructive surgery is something I did not want to deal with so I choose to do the lumpectomy. I was back at work the next day.

  • bobsgirl
    bobsgirl Member Posts: 19
    edited February 2011

    At first, I wanted a double mastectomy. I was in total shock that I had breast cancer, and I just wanted my breasts gone!  My tumor was near my chest wall on my left breast, so I had neoadjuvant chemo to try and shrink the tumor.  The goal was to have a lumpectomy, even though I wanted a mastectomy.

     After my 4th treatment, my tumor could no longer be seen on a MRI.  When I found that out, I decided on a lumpectomy.  I did a lot of research, which told me a mastectomy will not prevent a distant recurrence.  The overall survival rates are the same for mastectomy and lumpectomy/radiation.  With all of that info, I changed my mind.

    I had my lumpectomy and SNB on 2/4/11.  Easy surgery and recovery.  The best news we got from the pathology report was this......I achieved pCR (pathologic complete response)!   My chemo kills all the cancer and the tumor could no longer be found.  Amazing!  So I'm really happy that I decided to do neoadjuvant chemo with lumpectomy vs. mastectomy.

    Good luck with your decision!

  • jenn3
    jenn3 Member Posts: 3,316
    edited February 2011

    Because of the location of the tumors in my left breast it was highly recommended that I have it removed, as they would not be able to get clear margins otherwise - the decision was easy for me - I choose to remove both and have no regrets. As it turns out that was what the board thought I should do.

    However, the decision is a very personal decision and can be hard to make for many women, there are a lot of options to consider. Removal of one or both, immediate recon, delayed recon and then what kind of recon and what doctor to use.  It's a lot to take in on top of getting a cancer dx.  I would suggest having a good long talk with your breast surgeon and/or the onc if you can get them together on one room.

    Remember, make the decision that YOU feel is the right decision and Good luck.

  • spirit5
    spirit5 Member Posts: 1
    edited February 2011

     Do you have a history of BCP use or other forms of artificial contraception use? I'm asking because we are getting more triple negative breast cancer patients in my oncology clinic. These women have the following in common: They are typically younger than our average age breast cancer patients and have a history of at least a several year usage of birth control pills, devices, or injections.

  • minxie
    minxie Member Posts: 484
    edited February 2011

    I had a lumpectomy just to find, after completing chemo, that there was a spot of DCIS in the same breast. At that pointed I opted for bilateral mx because I didn't want to deal with it anymore. Good luck with your decision!

  • Luah
    Luah Member Posts: 1,541
    edited February 2011

    spirit5: It would seem "younger women" would very likely have a history of BCP by virtue of their age. I wonder if the estrgeon + patients who happen to be younger wouldn't also have history of BCP. i.e. BCP being associated with youth... as opposed to hormone status BC?

  • LittleSister4
    LittleSister4 Member Posts: 3
    edited February 2011

    My TN status did not weigh on decision to have mastectomy. Actually, surgeon recommended lump but I was concerned with clear margins, having very small breasts and was afraid there wouldn't be anything left after first surgery, let alone a second.  I had mast w reconstrctn and very happy. I am now 2 months out from my last chemo trtmnt.  I just joined this site hoping I may be able to help a sister with her diagnosis, options and support.   I didn't realize the TN significance until after meeting w onc. I guess I was more focused on the whole picture up to that point!?

    I am #2 sister w bc... there are four of us girls. Oldest sister 10+ yr survivor!Smile  ( I am youngest)We both tested neg for genes.

    I pray for all of you, send strength to those who are in need and hope my experiences may help. 

  • dawn31337
    dawn31337 Member Posts: 307
    edited February 2011

    Heck yeah.  My first instinct was just to get rid of them, then I started thinking about a lumpectomy. My mother died of BC and my younger cousin had it as well.  After I found out about triple negative, I decided i don't want to go through this again, so had BLM on a Friday and was back to work on Monday.  Turns out I don't have BRCA 1 or 2, but there is no doubt in my mind I have another gene they haven't discovered yet.  Maybe BRCA5  :)  who knows, but 100% of the women in my family have had it, so common sense tells you it's hereditary.  I also don't buy 100% into the same recurrence rates.  I mean if there is no breast tissue, it has to be better in some respect.  That thought give *me* peace of mind anyway. Last T is a week from today, woo hoooooo!

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