January 2011 Rads

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  • oakley
    oakley Member Posts: 206
    edited February 2011

    I got my UV swim shirt online at skinz.com.  The places mentioned above are also good.  There are also shirts that are similar called "rash guards."  These shirts also protect from the chlorine and salt I believe.

    Jo - you are definitely good to go my mid-April.  Cruise!!! 

  • oakley
    oakley Member Posts: 206
    edited February 2011

    oops I meant uvskinz.com.  I just ordered from there yesterday.

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    oakley - The cruise is paid for and I am trying to decide what shore excursions we will do in Jamaica and the Cayman Islands.  Cozumel is definitely snorkeling.  Got to pick up some rum cakes in the Caymans - love the ones there.

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited February 2011

    Rachel, interesting about your Doc not actually seeing you once a week. I asked why I needed to see the doc when things were going okay and I was told my Rads would not be covered if I didn't see the Doc. He also has to check the exray and the rads alignment(?) too. I wonder if your billing is going to show that you did see him. If it was my Doc I would want out of there if he was compromising himself in one area I would wonder where else he might.    

    I don't know exactly why but the idea of a RADS Doc doing anything at all unethical makes me really furious. Perhaps because we are totally in their hands and because it is all something we can't even see. 

    I hope this isnt the case for you Rachel. If it is I would report so that you are not a victim twice. I am sure others here would know the best way to report. I personally would not address it to his staff since this is something he already does.

    Love GInger

    Just noticed you are in Ontario, maybe different rules there. 

  • oakley
    oakley Member Posts: 206
    edited February 2011

    Oh Jo that's going to be soooo nice!  I don't think I've ever tried rum cakes.  Sounds delicious though.  What a nice trip - count down the days!  How's the tamox going?  I'm going to start that after I get back, so the beginning of March - I'll have about two weeks in between the end of rads and the start of tamox.  My MO is having me start with one 10 mg per day for 3 weeks and then add another 10 mg after that.  I just want an easy transition - I'm more nervous about the tamox than I was about the rads.

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    oakley - My MO had me do 10 mg for a week and then I did a split dose - am & at dinner.  It has been going well - just a little over a month now.  Yesterday, I decided to try the whole dose at breakfast and it went great.  Gonna keep trying to take it all at once.  I have to say I was not nervous at all about starting Tamox other than possible stomach issues.  I had some pretty bad reactions with two of the AIs - but that has not been the case with Tamox.  I just get the pill out every morning and throw it in with the mix of all the other pills & supplements I have to take.  

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Jo - your trip sounds great.  I love the Caymans.  

    So, I am now done with the whole breast rads.  My skin, which really had held up great through thursday, decided to react to the last one.  I am really red on my left side (under the armpit and to the side of the left breast).  This is not an area that I have been great about putting lotion, but it also has not looked like it needed it.  It feels like a bad sunburn - the skin stings when pulled.  And I am now peeling under my breast - again the kind of peeling you get with a bad sunburn.

    Hopefully the boosts do not make things worse.   

  • rachel5738
    rachel5738 Member Posts: 920
    edited February 2011

    Hi Ginger....in Canada we don't get billed for anything so there is no issue with that. My RO is patient-unfriendly. He met with me twice at beginning and then last week. His nurse said he would meet with me on last week. I'm wondering if I had problems with skin or something, I could prob see him. I ask the Techs lots of questions and they provide lots of info! Seems like in speaking to others most RO's are completely different than the MO. My MO was really good.

  • rachel5738
    rachel5738 Member Posts: 920
    edited February 2011

    Lrr...I am same as you, finished full breast rads and now have some soreness under arm...like a sunburn. I'm hoping the weekend will help heal it before boosts start on Monday.

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    Irr4993 & rachel - The boosts are a walk in the park.  The rest of the skin will get a head start on healing which is a good thing.  Irr - Sorry to hear that you are peeling, slather on the creams over the weekend and you should do good.

    Ginger - My RO was a total moron and I did not see him much.  Sometimes had to raise a fuss if I wanted to see him for anything.  My rad techs were wonderful and gave me most of the information.  When I got ready to do my boosts - they explained the process to me in detail.  The only way I knew about the boosts was off the Nov Rads thread.  It was not even mentioned by my RO - I had to ask the rad techs about it. 

  • redninrah
    redninrah Member Posts: 773
    edited February 2011

    is it me, but any of you ladies who have just finished chemo, feel extremely tired all of a sudden??

  • rachel5738
    rachel5738 Member Posts: 920
    edited February 2011

    Red....I did well through chemo and then a few weeks after finishing started feeling more tired. Doc said normal as body still adjusting. Then started rads and seemed to feel more energy until this last week---now feel tired for sure! Hoping it gets better with time and more exercise.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    red - I was doing great this morning with chores around the house, feeling perky - than bam, I'm pooped.  Just like that. 
  • Blindsided
    Blindsided Member Posts: 68
    edited February 2011

    So nice to read about so many of you finishing and moving on with your lives- I love it!  I've only done 5 rads so far, so I will live vicariously through you for the next month!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    Sounds like everyone is doing well and nearly finished - I wish I was at the boost stage already. Only 5 more regular zaps and on to the 7 boosts. So far so good in the crease under the boob. Cross your fingers. I've finished my first tube of MooGoo - got one in reserve already. Skin still not showing much colour change - might be a tiny bit pinker than the other side but it's not noticeable. I wish we had taken pics of the other boob last time and we could compare how the skin is holding up. I could have been my own clinical trial of the Moo Goo. I'm sure my nipple was black and sore at this stage last time.

    The techs do keep an eye on your skin and if there is a problem, they let the rad onc know or send you to see the nurse. When my skin started to breakdown last time - I had to see the nurse and she dressed it for me every day. At the time I couldn't believe it - they made me go and buy my own burn gel to bring with me after she opened a new one to dress it the first time. You would think they would have just given it to me.

    I hope you are all enjoying your zap free weekend!!!

    Sue

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    Omaz - That happened to me too.  Going along doing things, then all of a sudden I was done..  Sometimes I had to go lay down for awhile.  I may not have slept but the rest would do me a world of good.

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    suepen:  Yes, enjoying the zap free weekend.  Didn't sleep though and had to take a benadryl after watching my soccer team on TV @ 7:30 am.  (Go MANU)  Slept for 4 hours, now I feel better.

    Had a really good day yesterday, #10 zap.  Went with my DD and left her doing the puzzle in the wait room, came out, later than usual as there was now a line of us (before I seemed to be the only one around).  Came out of rads and went up to her and said "OK, I'm cooked".  The look on her face was priceless!  She saw the funny side of it though.  By the way she is not a child, wouldn't do that to a child, just wanted to lighten the situation as the BC seemed to have been quite a shock to her.

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited February 2011

    lestwin - I laughed at your comment to your DD - I wore a tshirt to my final boost that said "Final Fry 2/9/11"

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    raincitygirl - Bet the tshirt made everyone laugh.  I know it got one out of me.

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    raincitygirl:  Where did you get the t-shirt?  Did you make it yourself (writing, not the t-shirt)?

    Mine would say something like:

    Started work: March 16, 1959.

            LIFE WITH BC SUCKS

     Final  fry:      March 16, 2011.

           LIFE WITH NO BC STARTS

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    I love it - I want one!!

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited February 2011

    Final Fry, that is great!

    I need to get more regular with the Emu oil I am getting more pink.  

    So how is it Raincity to just hang out with a second cup of coffee?  You were so good in getting to your treatments! 

    Omaz, I am still numb on my feet and hands. I am taking the Glutamine every day and my B6 too. I hope it will begin to resolve soon. 

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited February 2011

    lestwin - I made it myself, had fun, then put it away in the back of my drawer for some historical review later....:)

    gingerbrew - It is quite nice to NOT have to go. However, I do miss the cameraderie with the others in treatment as well as the techs.  They did pass on your message to me, by the way so thank you for that :)  It seems that I spent so much of the last few months dealing with rads and before that, chemo and before that surgery....well I just have a shxxload to catch up on.  Maybe Tuesday I will start on all that :)  Did you get the xclair prescription stuff?  It was great stuff - that along with alternating applications of aloe and aquafor kept me in darn good shape. Just about two weeks since completion of regular treatments and that area looks pretty much normal.  The boost area has some minor dry peeling, but also not bad.  I didn't know we could use oil....  Hang in there, it will be over before you know it.

  • oakley
    oakley Member Posts: 206
    edited February 2011

    Adey - I just remembered something about scheduling your cruise - the only issue for scheduling it so close to the end of rads (3 days after I think you said) is if you end up missing any rads appts they are usually tacked on to the end, so if you miss any you could be adding on and running into your trip (am I making any sense?).  Anyway, just be aware of that. 

    I think I was lucky and out of 29 so far I have not missed one.  A few times there were weather related issues but they moved me to later in the day.  They definitely knew I had a trip planned and had a deadline. 

  • michcon
    michcon Member Posts: 145
    edited February 2011

    Went back to work this week, so just catching up on all of the posts today.

    I'm done with 25 regular, now on to 8 boosts. The only bummer is they were supposed to do my boost planning on Friday and they told me they were really busy and didn't get to it so it will be Monday. "If all goes well" they should be able to do treatment in the same day. Well, they'd better! I hate adding days to this. 

    Omaz - Thanks for your questions, it made me realize what I need to ask. I hate how the RO doesn't explain anything. Seriously, nothing. I asked the techs to show me the screen that they see and they were very nice about it and explaining things. I'm going to ask tons of questions about the boosts! 

    My arm pit is so red and hurting. My tumor site was far away from it, so the boosts better not including zapping me there. I don't understand why they treated my entire armpit when I had no positive nodes.  

    I wish we could change the system. I can't believe how awful the doctors and nurses are across the board. No information given out at all. If it weren't for these boards I'd be lost. A woman I talk to at Radiation had no idea about Boosts. She asked because of me and they told her oh yeah, you'll have them next week. Nice huh? They didn't tell me either, but I knew to ask. Even with Chemo, not a lot of information given except to throw a bunch of pamphlets at me. Amazing to me that even when I ask detailed info about treatment the doctors seem to act like it's secret and private information. I'm like, hello, it's my body! 

    Thank you ladies for all of the support and valuable information! 

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    michcon - My doctors are great but they don't say much either.  I really have to ask and the women are these boards have been invaluable sources of information!  Also access to the internet and Dr. Google's help have been incredible.  I wondered (loudly) about treating the underarm too since I was node negative as well and onc said there is a thin bit of breast tissue that extends up in there and that the irradiation of the area is shallow.  Well it was deep enough to get me started with lymphedema.  Are you going to tamoxifen next?
  • michcon
    michcon Member Posts: 145
    edited February 2011

    Omaz - not sure on tamoxifen yet. I have an appointment with my Onc next week and will ask. I was so used to seeing him every 3 weeks that 6 weeks seems like forever since I've seen him. He's the only doctor through this that takes time to answer my questions. Problem is, you have to know what questions to ask!

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited February 2011

    My Radological Oncologist, Doctor Michael Hunter  is very open, informative, obviously into his work and has a super staff. Everyone seems to work together very well and anticipate and provide additional services as needed. I am sorry some of you are having such a hard time of it. I feel well informed and cared for in the radiological oncology department at Evergreen Hospital in Kirkland, WA.

    Gingerbrew

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited February 2011

    Well said Ginger!  I am glad you are having as good an experience as I have.  Now, what are you doing up so early?  :)

  • Adey
    Adey Member Posts: 3,610
    edited February 2011

    I finally received my Moogoo!!  Woot.  Just before starting rads tomorrow.  I'm nervous.  Next time I'll make sure to give a lot of time for transport.  I've decided to cruise in the summer and give myself a bit of time to recover.  I just don't know how my skin will react.  Hopefully so good that I would have been able to go!  Happy Sunday and thanks for the advice.

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